Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
I had my first only and LAST cosmetic injection 9 th June 2015 (between the eyes) After a few localised symptoms…blurred vision, head colds during the first month, I concluded ‘never again’. Things have got worse unfortunately. My bowels seemed to stop working and after several weeks of taking laxatives, a few visits to emergency dept, in impaction and several ‘faintly’ episodes, things are changing. During the last couple of weeks I have been awakened by numbness in arms and legs, sometimes on one side or down both arms…. Scared. The symptoms have now returned to my head. Over the last few days, I have developed what seems to be vertigo. Just wondering if there is a journey to the symptoms? Thankfully my bowels are working again (a herbal tea-don’t know if I’m allowed to mention a brand name)..helped get things going. Has anyone got any info or advice on VERTIGO as this is really freaking me out.
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I started having an issue with food and liquid going past my esophagus into my stomach about a year ago. Food would get stuck and liquid would refuse to go down. My body would hiccup to help move it along or it would eventually go down with quite a bit of pain. Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food. My doctor sent me to get an upper GI. The diagnosis was “Achalasia” my esophagus was literally closed and turned up into what is known as a birds beak. I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis. The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery. I asked if he could explain both and he said he didn’t have time. Later that evening I was being taken to do the “Botox” treatment. I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed. No explanation on how it was done exactly or any info on side effects or future care or concerns. Within a couple of days I started to have confusion issues. By two weeks after the injection I was having pretty serious memory and confusion issues. I was extremely fatigued and dizziness was starting to be more frequent. I thought these symptoms were from lack of food and possibly dehydration. There was some food and liquid going down but not what would be considered usual. I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia. I personally have known quite a few over 80’s that have had anesthesia induced dementia. So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox). I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment. I had an event that I was putting on that needed my attention before I could take the time off. It ended up being the most stressful event of my entire marketing career. I couldn’t figure out how to organize anything. The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day. After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”. Before I went in to the surgery the Anesthesiologist came by to see if I had any questions. I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia. We decided since I couldn’t eat or drink I needed the surgery. After the surgery I was extremely fatigued. Slept a lot, had dizziness and still had pretty severe confusion and memory issues. I thought they would go away as I healed. 2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine. I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery. About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties. Slurring and confusion on which words to use. Even stuttering at times. I feel the surgery for the “Achalasia” was a success. The symptoms that I have discussed earlier are all over the map. Some days I feel like I am coming out of it. Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much. Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand. Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse. I have had a CT scan, every blood test available, even a spinal tap to try and find out what is causing these symptoms. Nothing to be found. My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case. My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them. The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist. My daughters father started looking into Botox, botulism poisoning and finally found this site. I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms. When he told me he found this site, I broke down crying. It lifted the huge dark cloud that had been hanging over my head for quite a while now. It isn’t gone completely but I can breath just knowing this is real. I am not crazy, imagining these symptoms. I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning. I am willing to try it to see if I can function enough to do my job. I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road. I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.
Much Aloha for now, Cathyann
Hello, I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.
My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference. I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.
Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile – the absolute worst was when I had 2 terrifying panic attacks within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next. If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.
I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that. While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to. That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.
My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.
If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body. This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.
I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!
Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected. You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.
Take care and don’t lose hope,
HopefulD from Canada
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I was hoping there are people on here who have experienced this (as I am worried the operation made my situation worse). I am also hoping it went away. My arm and wrist and sometimes my hand and down one side of my back turns cold… like its being dipped in ice water and so weak that it gets difficult to move my hand and my arm feels so weak. Once today it was also on the right side of my head. It comes and goes through out the day, but at night while trying to sleep it is constant. Please let me know if you experienced this and what you did for it. Thank you!
I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
Hi, this is my first post so sorry if it is long. I am
A hemiplegic migraine sufferer and have permanent visual symptoms. I decided to have Botox in my forehead in may 2012 and it didnt relieve my headaches but I had no side effects apart from eyelid twitching.
I then opted to have Botox in the back of my neck in august2013. 2 days after this I ended up in hospital with a severe migraine, my right side of my face,arm,mouth and chest was numb for 18 hours and I was sick.I also had a high white blood cell count and low blood pressure but doctors didn’t think it was Botox that was the trigger.
Since hospital I have got permanent tremors in my head/neck/left arm and left leg with right sided facial weakness and right arm weakness.my left eyelid twitches along with my right cheek. Also I have tinnitus since july2012 which came along with vertigo and I can hear blood rushing in my neck and ear (feels like a heartbeat)
I’m unsure if this tremor and weakness is the Botox or migraine or something else??
I would really appreciate any input.
Have any of you experienced swollen lymph nodes from any of this? I keep getting one after the other on the right side of my body. They are not big but I first got one in the back of my head. Then one in my jaw line. Then on the side of my neck. Now under my arm pit. Again, they are not big and they are moveable but I think its weird. I have had both botox and juvederm and I wonder if my body is having an allergic reaction to the juvederm in my body or if its due to the botox moving around. But i still find it strange they keep coming up and only on my right side. I do not have an infection that I know of.
I have posted before about all the other issues I have: migraines, right ear full feeling, humming in right ear, right side facial pain and pressure, sinus pressure, jaw pain on right side only, right side of my teeth hurt., dizziness (seems to be improving after 4 months). pressure in my head but only on right side. oh and how could i forget, memory loss/foggy brain syndrome.
anyone else with this, and do you think it could be due to botox/juv?
Something sort of snapped in me about a week ago, and the mornings have become unbearable. When I wake up it’s like 90% of me is still asleep. My eyes are swollen and heavy and nothing is moving in real-time. There is strong, high-pitched ringing in my ears. This weekend, both days I slept from about midnight to 10 a.m. and had no great obligations during the day, spring weather, should be a pleasure. But getting up has been the most wretched ordeal imaginable. I splash cold water on my face, slap myself, drink tea, do anything I can think of but I’m moving in this heavy heavy mush of existence. Yesterday I made it all the way to the gym still in this state about 3 hours after waking up. The world was whizzing by me and I’m in this dense bubble. During the day I take 0.5 mg or 1.0 mg of Depas (same as equiv. doses of Ativan) and I might sort of start to come around by mid-afternoon, and by evening I’m more disoriented and dizzy than I am brain-fogged. This pattern doesn’t correlate with any of the psychiatric medications I’ve tried either. I keep a diary and I traced that route. My partner noticed it too the couple of nights I stayed with her about a week ago. Two weeks ago mornings were still crap, but I could sort of scrape myself together. This is so rough.
Hi, I am 31 year old female..went to have my first dose of botox on Jan 29th and was talked into using dysport instead. I cant recall amount but was very small doses on forehead and crows feet. approx one month later I started feeling vertigo symptoms. They are easing but it still comes on reasonably regularly. I have also developed a sensitivity to bright lights and extremely concerned how long this could last. Can anybody help me with this concern? worried it will never go away??
I seem to recall reading a thread where a few people reported extreme muscle tightness in their neck, shoulders and back. After sorting some of my medical documents and moving my arms more than I usually do, I know find I’ve lost more feeling in my arms and the traps arae of my back feels frozen and so heavy.
Can you direct me to the thread or share your comments about the muscle changes at 10-12 months? And how long this goes on for?
Thank you and healing wishes to all of you!
In yet another attempt to explain away my symptoms, my doctor ordered a series of bloodtests to check various vitamin levels, as apparently a poor diet resulting in vitamin deficiencies will cause many of the same symptoms I have been experiencing. Imagine my surprise when my vitamin B6 levels came back as toxic. According to my doctor, and all of the research I have since done, this cannot be caused by dietary means alone, but is instead caused by taking too much of a vitamin B supplement in any form. However, I do not take ANY vitamins or vitamin supplements!
After questioning my repeatedly regarding any vitamins I may take (like they are illegal drugs), my doctor then proceeded to contradict herself by telling me to eliminate all foods from my diet that contain Vitamin B6 – after she previously stated that the toxicity cannot be caused by diet alone?!
My receiving any type of treatment for the intense muscular pain I have been experiencing for almost eleven months hinged on all of my bloodtests coming back normal. My doctor said that she cannot repeat the blood test for four months, as this is the amount of time it takes the toxicity to leave your body. FOUR MONTHS?! That is almost half of the time I have been suffering, already, and cannot imagine going through four more months with no help.
I have also searched at great length to find a possible metabolic or natural cause for the vitamin toxicity, but have found none. I was hoping that maybe someone might know some information about this, as I do not know what I can do.
I was wondering if any of the ladies on this forum have had a mammogram that shows multiple calcifications, or little white dots, which are a sign of inflammation.
Now that I look back on it, I wonder if this was a sign my body was reacting negatively to Botox going systemic?
I started getting Botox in 2007.
In 2009 I had the mammogram. The calcifications were not in clusters which was a good sign I did not have cancer. However, I had a core biopsy to rule out cancer, with one of the best local radiologists (yes, that was nerve wracking!)
Here’s where it gets interesting: I was told that they don’t see this many calcifications or this much inflammation until a woman is 65-75 years old. And I was 42. I was very physically fit, and very active in my work and family life. I always ate a low fat diet, and never touched drugs. Why did I have this inflammation?
I continued to get Botox (regrettably).
Then in late 2010, the first signs of botox toxicity began with increasing fatigue. One year later I was off work due to illness, and was dealing with insomnia, extreme anxiety, trouble swallowing, multiple chemical and food sensitivities and struggling to breath.
So, I would like to know, has anyone else had a mammogram showing inflammation? I remember thinking to myself, if this is showing up on a mammogram, is the rest of my body inflamed too?
I feel this was likely one more sign that Botoxhad become systemic.
Looking forward to your brilliant feedback as always!