Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
Hello everyone–First entry, I’ll try to be concise. As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey. My thumb and first two fingers now spasm constantly, making it difficult to sleep. The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day). Tried botox twice, relatively small amounts, with some slight success and no SE. Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm. 20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass. I guess the lesson for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation. I wish I had. Later that day an extreme spike in anxiety, back muscles locked up. I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier. One of the hardest things I’ve ever had to do as an adult. Please, anyone who is taking benzos–be careful! Day 5, started to have the other standard–as I now know from reading this site–symptoms. Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety. Several days later, some difficulty breathing. Hard not to be anxious when that happens. It was as if the toxic effects were moving slowly down my body. Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me. He even called a neurologist at another hospital for a consult, as mine was out of town. He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues. The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time. However, return to the ER for worsening weakness, swallowing difficulties or speech problems.” So at least I was not dismissed out of hand. But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site. At 12 days in, I can only hope that things will not get too much worse, but they well may. I’ll check in in another day or two. The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed. It is likely to be a very unpleasant few months. Godspeed to all of us, I really do sympathize. Thanks also to those of you who share their recoveries.
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
I have been having some teeth related issues and want to know if anyone has any recommendations. Over the past 6 or 7 months I have noticed that my teeth have changed. There is more spacing between them and when I brush them they don’t feel the same. Also, there is a transparent look to them. I have been using a special toothpaste for enamel, but I don’t know if it is helping. I have also been taking a mineral supplement. Another support member has been having problems with teeth related sensitivity to eating cold foods and has had a tooth break off.
Thanks so much!
Wishing everyone lots of healing.
Hello, I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.
My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference. I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.
Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile – the absolute worst was when I had 2 terrifying panic attacks within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next. If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.
I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that. While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to. That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.
My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.
If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body. This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.
I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!
Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected. You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.
Take care and don’t lose hope,
HopefulD from Canada
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.
The website is WWW.ondamed.net
The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.
My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.
I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.
So, I thought I would share this with the group to see if anyone has tried it yet.
I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.
Hope and love to all
I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx
Hi to all
I feel that I am going out of my mind. I have been having Botox in my forehead, frown lines and occasionally my crows feet for over 3 years now around about every four months. I always usually get a migraine the following day and a bit of a stuffy sinus effect for a few days following the injections but this has always subsided and everything has been fine after this.
However I went for my Botox 3 weeks ago and about a week after I started with headaches, head pressure and stiff neck every day this has progressed to a blocked or full feeling in my ears,tinnitus. I am having hot flashes bouts of tachycardia for which I am taking propranolol i cant sleep and I am having huge panic attacks. My eyelids are also very swollen. At first I thought it was related to my thyroid as I do have graves disease. However I saw my Endo who did the tsh t4 and t3 and everything is normal there but she did put me back on the propranolol for the tachycardia and panic attacks. After a lot of google research I came across this site and after reading lots of posts the penny dropped! I spoke to my Endo and she said go back to the ps who did the Botox.
I made a consultant appointment and spoke to my ps who did the Botox this morning as I am totally freaked out. His reaction was” I haven’t done anything different to the other times and have been doing this for years and have never come across these symptoms after Botox. My opinion is that you are just coming down with something. You need to stop worrying”
I live in Dubai and it costs over a hundred pounds for a consultant appointment on top of the blood costs ect so I am racking up quite a bill already…
Any advice would be soooooooo appreciated right nowI don’t know what else to do, I feel really awful and I know this is going to sound mad but I am afraid I might die!
I have so much tingling and numbness in my hands and arms. This started happening right after the botox. I am so concerned that this permanent. I really haven’t seen posts about this. Does anyone have any experience with this symptom? I am concerned that I have permanent nerve damage. This is scary.
Also, does anyone have experience with any helpful tips on heavy, sunken eyes?
I would so much appreciate any input.
I hope everyone is improving!
I had cosmetic botox injections 8 days ago and have been searching for answers ever since. I went in for botox above my eyebrows and the “nurse” convinced me to get them around my eyes. I had been having some issues with my eyes and asked if the botox would effect my eye muscles. She said no. She also said that my only other option was to spend $17 thousand dollars on a facelift. So, hesitantly I had the botox injected for crows feet. I had this done by a dermatologist. The nurse is definitely a salesperson. She said that soon everyone will be asking “did you have your botox today?” This is sad. As soon as I had the injections, I felt strange. Not long after them, my head felt like a ton of bricks, dizzy and my right arm felt numb. I called and talked to someone in the office that said there is no way that the botox would cause the symptoms. She said I should just go about my day. Later that evening, I felt worse so I talked to the doctor. Once again I was told there is no way the botox would cause this and said that I should go to Urgent Care because I could be having a stroke. Over the weekend my symptoms got worse. Anxiety, horrible insomnia, no appetite and a panic attack. I have never had a panic attack before. My eyes looked half closed and sunken with bags. My whole face felt tingly including my nose. My right cheek felt numb. It was a weekend that I never want to have again. About 5 days after the injections, I was at work and my face just felt numb and tingly. It was an awful, sick feeling. I am still having symptoms. My throat has been really dry, my head still has a heavy feeling, my eyes are still sunken with bags. I still have an odd feeling in my face and the numb feeling in my arm is horrible. I just really feel out of it. Does anyone know if the botox triggered some sort of autoimmune disease or if my symptoms were caused from the botox and it will go away when the botox wears off? I am hoping for the latter. This is pure torture. Oh, I was also told it was probably allergies.
It seems that the majority of people here have had complications with Botox. There are a few people who mentioned that they had Botox along with fillers and were sick. I am wondering if there is anyone who suffered an injury from a filler alone.
Hi, this is my first post so sorry if it is long. I am
A hemiplegic migraine sufferer and have permanent visual symptoms. I decided to have Botox in my forehead in may 2012 and it didnt relieve my headaches but I had no side effects apart from eyelid twitching.
I then opted to have Botox in the back of my neck in august2013. 2 days after this I ended up in hospital with a severe migraine, my right side of my face,arm,mouth and chest was numb for 18 hours and I was sick.I also had a high white blood cell count and low blood pressure but doctors didn’t think it was Botox that was the trigger.
Since hospital I have got permanent tremors in my head/neck/left arm and left leg with right sided facial weakness and right arm weakness.my left eyelid twitches along with my right cheek. Also I have tinnitus since july2012 which came along with vertigo and I can hear blood rushing in my neck and ear (feels like a heartbeat)
I’m unsure if this tremor and weakness is the Botox or migraine or something else??
I would really appreciate any input.
With all of the people experiencing various side effects, why hasn’t a class action lawsuit been filed against the manufacturer? Mu neuorologist refuses to believe that my symptoms are related to the shots, but the person I spoke to at Allergan said he had heard most if not all the symptoms I am reporting. It seems like they publish only the symptoms of the test cases and not the ones experienced by the real life users/suffers. Does anyone know of a pending lawsuit?
Have any of you experienced swollen lymph nodes from any of this? I keep getting one after the other on the right side of my body. They are not big but I first got one in the back of my head. Then one in my jaw line. Then on the side of my neck. Now under my arm pit. Again, they are not big and they are moveable but I think its weird. I have had both botox and juvederm and I wonder if my body is having an allergic reaction to the juvederm in my body or if its due to the botox moving around. But i still find it strange they keep coming up and only on my right side. I do not have an infection that I know of.
I have posted before about all the other issues I have: migraines, right ear full feeling, humming in right ear, right side facial pain and pressure, sinus pressure, jaw pain on right side only, right side of my teeth hurt., dizziness (seems to be improving after 4 months). pressure in my head but only on right side. oh and how could i forget, memory loss/foggy brain syndrome.
anyone else with this, and do you think it could be due to botox/juv?
Something sort of snapped in me about a week ago, and the mornings have become unbearable. When I wake up it’s like 90% of me is still asleep. My eyes are swollen and heavy and nothing is moving in real-time. There is strong, high-pitched ringing in my ears. This weekend, both days I slept from about midnight to 10 a.m. and had no great obligations during the day, spring weather, should be a pleasure. But getting up has been the most wretched ordeal imaginable. I splash cold water on my face, slap myself, drink tea, do anything I can think of but I’m moving in this heavy heavy mush of existence. Yesterday I made it all the way to the gym still in this state about 3 hours after waking up. The world was whizzing by me and I’m in this dense bubble. During the day I take 0.5 mg or 1.0 mg of Depas (same as equiv. doses of Ativan) and I might sort of start to come around by mid-afternoon, and by evening I’m more disoriented and dizzy than I am brain-fogged. This pattern doesn’t correlate with any of the psychiatric medications I’ve tried either. I keep a diary and I traced that route. My partner noticed it too the couple of nights I stayed with her about a week ago. Two weeks ago mornings were still crap, but I could sort of scrape myself together. This is so rough.
I seem to recall reading a thread where a few people reported extreme muscle tightness in their neck, shoulders and back. After sorting some of my medical documents and moving my arms more than I usually do, I know find I’ve lost more feeling in my arms and the traps arae of my back feels frozen and so heavy.
Can you direct me to the thread or share your comments about the muscle changes at 10-12 months? And how long this goes on for?
Thank you and healing wishes to all of you!
I was wondering if any of the ladies on this forum have had a mammogram that shows multiple calcifications, or little white dots, which are a sign of inflammation.
Now that I look back on it, I wonder if this was a sign my body was reacting negatively to Botox going systemic?
I started getting Botox in 2007.
In 2009 I had the mammogram. The calcifications were not in clusters which was a good sign I did not have cancer. However, I had a core biopsy to rule out cancer, with one of the best local radiologists (yes, that was nerve wracking!)
Here’s where it gets interesting: I was told that they don’t see this many calcifications or this much inflammation until a woman is 65-75 years old. And I was 42. I was very physically fit, and very active in my work and family life. I always ate a low fat diet, and never touched drugs. Why did I have this inflammation?
I continued to get Botox (regrettably).
Then in late 2010, the first signs of botox toxicity began with increasing fatigue. One year later I was off work due to illness, and was dealing with insomnia, extreme anxiety, trouble swallowing, multiple chemical and food sensitivities and struggling to breath.
So, I would like to know, has anyone else had a mammogram showing inflammation? I remember thinking to myself, if this is showing up on a mammogram, is the rest of my body inflamed too?
I feel this was likely one more sign that Botoxhad become systemic.
Looking forward to your brilliant feedback as always!