Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
Hello everyone–First entry, I’ll try to be concise. As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey. My thumb and first two fingers now spasm constantly, making it difficult to sleep. The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day). Tried botox twice, relatively small amounts, with some slight success and no SE. Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm. 20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass. I guess the lesson for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation. I wish I had. Later that day an extreme spike in anxiety, back muscles locked up. I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier. One of the hardest things I’ve ever had to do as an adult. Please, anyone who is taking benzos–be careful! Day 5, started to have the other standard–as I now know from reading this site–symptoms. Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety. Several days later, some difficulty breathing. Hard not to be anxious when that happens. It was as if the toxic effects were moving slowly down my body. Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me. He even called a neurologist at another hospital for a consult, as mine was out of town. He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues. The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time. However, return to the ER for worsening weakness, swallowing difficulties or speech problems.” So at least I was not dismissed out of hand. But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site. At 12 days in, I can only hope that things will not get too much worse, but they well may. I’ll check in in another day or two. The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed. It is likely to be a very unpleasant few months. Godspeed to all of us, I really do sympathize. Thanks also to those of you who share their recoveries.
I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks
Hi there, Swallowing has been by far my worst symptom and while I’m feeling so much better at 4 1/2 months , it seems the swallowing thing just moves down lower into my throat… It started at the top and whenever I think it’s starting to feel better, I wake up the next day and it’s farther down. I was finally comfortable and was starting to eat solid food again and now I’m back to the smoothies and stuff… Thank you Anne88 for the recipe..
Has anyone else experienced this?? Is it on its way out or somewhere else?? Does it ever just go away?? Other than the swallowing and a few pins and needles I’m feeling great and my days are back to normal…
Special thanks to my husband, god bless him, he made the last 4 1/2 months almost stress free for me..He took care of everything…He Said rest and be better… And that’s what I did.. I know Im probably not done with this yet, but hopeful the worst is behind me… I won’t be surprised if the symptoms show up again, but If they do, I will be better prepared and thanks to chgofit16, I will head straight back to this forum chicken light in hand… Thank you all so much… I wouldn’t have known what to do without you…Praying for all of us…
I should say, I’ve been seeing Dr. Larisa.. Thank you Soloist for the recommendation… She doesn’t claim to cure anyone, but I have to say everything about seeing her has helped me feel better… I didn’t take the supplements she recommended, only because I didn’t feel like I needed them… I’m saving them just in case the awful days return… She’s wonderful, if you’re feeling lost and don’t know what to do… Call her… She is great source of support, comfort and knowledge….
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows. The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen. I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result. A few days later I started noticing bladder issues and problems swallowing. I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues. A couple of weeks later I noticed a triangular shaped dent in the center of my forehead. That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined. I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia. Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night. The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see. Frownies have helped somewhat but its very temporary. This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously. Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS. My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease). I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help. There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work. I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working. I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt. I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP. IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse. If anyone has info, be it good or bad, I’d love to hear from you! I want answers.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.
The website is WWW.ondamed.net
The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.
My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.
I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.
So, I thought I would share this with the group to see if anyone has tried it yet.
I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.
Hope and love to all
Thank you for the replies. I actually went about a week with light or nonexistent symptoms until yesterday. The feeling of a rock in my throat returned pretty strong and today same thing with the throat along with my ears feeling full. I talked to the dr who administered this crap and she actually suggested I try it again in a few months with a lighter dose to see if this happens again!!!! Are you freaking serious!!!! I’m just ready for this to end.
So today marks 4 weeks since my injections. I’m still having problems with turning my head, lifting my head and eating and drinking. I have a very hard time swallowing. So I will post again after my appointment.
I had Botox the 7 of may and have been miserable since. I got 28 units in my forehead and between my brows and I’ve been feeling awful. Dr said that she had never heard of my symptoms associated with cosmetic botox. Choking feeling that comes and go’s, ear pressure, stomach burning. I hate this. I wouldn’t get Botox again for ANYTHING!!! I feel like a terrible mother and wife because this has consumed me!!!
Well its been a little over a week and no changing for the better !! As I read all the posts I realize I am lucky to not be dealing with more but I also wonder if other things will show up and get worse. The sad thing is I was feeling pretty good before my pain Dr. injected me. Now I just want to kick myself for going through with it. I feel for every single one of you…..I’m upset I didn’t find out more before this happened. I wish you all healthy days ahead!
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
It seems that the majority of people here have had complications with Botox. There are a few people who mentioned that they had Botox along with fillers and were sick. I am wondering if there is anyone who suffered an injury from a filler alone.
I seem to recall reading a thread where a few people reported extreme muscle tightness in their neck, shoulders and back. After sorting some of my medical documents and moving my arms more than I usually do, I know find I’ve lost more feeling in my arms and the traps arae of my back feels frozen and so heavy.
Can you direct me to the thread or share your comments about the muscle changes at 10-12 months? And how long this goes on for?
Thank you and healing wishes to all of you!
I was wondering if any of the ladies on this forum have had a mammogram that shows multiple calcifications, or little white dots, which are a sign of inflammation.
Now that I look back on it, I wonder if this was a sign my body was reacting negatively to Botox going systemic?
I started getting Botox in 2007.
In 2009 I had the mammogram. The calcifications were not in clusters which was a good sign I did not have cancer. However, I had a core biopsy to rule out cancer, with one of the best local radiologists (yes, that was nerve wracking!)
Here’s where it gets interesting: I was told that they don’t see this many calcifications or this much inflammation until a woman is 65-75 years old. And I was 42. I was very physically fit, and very active in my work and family life. I always ate a low fat diet, and never touched drugs. Why did I have this inflammation?
I continued to get Botox (regrettably).
Then in late 2010, the first signs of botox toxicity began with increasing fatigue. One year later I was off work due to illness, and was dealing with insomnia, extreme anxiety, trouble swallowing, multiple chemical and food sensitivities and struggling to breath.
So, I would like to know, has anyone else had a mammogram showing inflammation? I remember thinking to myself, if this is showing up on a mammogram, is the rest of my body inflamed too?
I feel this was likely one more sign that Botoxhad become systemic.
Looking forward to your brilliant feedback as always!
Like many of us on this forum, I am trying to determine which supplements I am taking are helping me, and which might be exacerbating my neuro symptoms. I greatly appreciate your feedback on how you react to these supplements:
- Vitamin D (or D3) – can you take this without noticeable side effects? I was taking 4000 IUs a day for 3 months, then I think I became intolerant to it – I felt that it was making my symptom of weakness greater, but now I’m not convinced it was the Vitamin D, and maybe it was something else in the capsule.
- Magnesium – one other person who I have connected with on this forum cannot tolerate magnesium. I am wondering if this might be bothering me too, and I just haven’t figured it out yet. Does anyone else get bad symptoms from magnesium?
- Calcium? (I have been trying Calcium Citrate)
- Alpha Lipoic Acid?
- Any of the B vitamins? (I take methalated B12, and B1 and B5 and B6)
- Vitamin C
- Vitamin E
- Vitamin A (I also don’t think I tolerate this well)
- DHEA and Isocort – I could not tolerate these and believe they both caused a relapse.
If there are any other supplements you think are helping you, or any you believe you can’t tolerate I would love to know these too!
Also, one new supplement tip I have that may be helpful to others: I believe that Chromium Picolinate is helping me with glucose intolerance. This supplement was referred to me by my naturopath. There is evidence-based research indicating this supplement is helpful for diabetics with glycemic control.