Tag Archives: Speech Difficulties

Speech Difficulties

Attorney. Lawyer. Lawsuit. Message me.

Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys.  Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.

Oxygen in drops anyone tried?

Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..

Here is link to Oxy drops

http://www.earthsbounty.com/cgi-bin/commerce.cgi?preadd=action&key=1100-OXY_MAX

I will post about it when I get more info.

Sending all healing thoughts xoxo

First entry–12 days in

Hello everyone–First entry, I’ll try to be concise.  As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey.  My thumb and first two fingers now spasm constantly, making it difficult to sleep.  The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day).  Tried botox twice, relatively small amounts, with some slight success and no SE.  Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm.  20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass.  I guess the lesson  for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation.  I wish I had.  Later that day an extreme spike in anxiety, back muscles locked up.  I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier.  One of the hardest things I’ve ever had to do as an adult.  Please, anyone who is taking  benzos–be careful!  Day 5, started to have the other standard–as I now know from reading this site–symptoms.   Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety.  Several days later, some difficulty breathing.  Hard not to be anxious when that happens.  It was as if the toxic effects were moving slowly down my body.  Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me.  He even called a neurologist at another hospital for a consult, as mine was out of town.  He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues.  The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time.  However, return to the ER for worsening weakness, swallowing difficulties or speech problems.”  So at least I was not dismissed out of hand.   But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site.  At 12 days in, I can only hope that things will not get too much worse, but they well may.  I’ll check in in another day or two.  The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed.  It is likely to be a very unpleasant few months. Godspeed to all of us,  I really do sympathize.  Thanks also to those of you who share their recoveries.

Did BOTOX cause my CRPS (RSD)?

Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows.  The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen.  I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result.  A few days later I started noticing bladder issues and problems swallowing.  I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues.   A couple of weeks later I noticed a triangular shaped dent in the center of my forehead.  That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined.  I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia.  Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night.  The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see.  Frownies have helped somewhat but its very temporary.  This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously.  Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS.  My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease).  I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help.  There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work.  I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working.  I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I  am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt.  I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP.  IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse.  If anyone has info, be it good or bad, I’d love to hear from you! I want answers.

Botox used to relax my esophagus pre surgery.

I started having an issue with food and liquid going past my esophagus into my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Feeling faint and very weak after eating

I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .

My head is fuzzy and my nerves are tingly….

Hi All,  I am new to the post.  I had my most recent injection crows feet with Dysport on Jan 10, 2014.   What was I thinking… prior to that had Dysport on Oct., 22, 2013 and had full blown chest pains, heart palpitations, droopy eyes and blurry vision, insomnia, memory loss, tingling, dehydration, mouth sores.  I honestly thought it was the flu and my body was just reacting, I now know it was the injection.  For some crazy reason I thought I was better and went for that injection in January.  I am so STUPID!!!!! I have been using botox and Dysport for 6 years  WHAT HAVE I DONE!!

After the injection on Jan. 10 I just had a little blurry vision, which I always blame on my contacts and dry eyes.  Onset of symptoms came 10 days later with chest pains, heart palpitations, blurry vision, insomnia, memory loss, tingling, dehydration.   The worst is the Insomnia and no appetite… I am afraid to eat.    I went to doctor Blood work PERFECT!  Went to cardiologist EKG perfect…. they all said don’t do anymore botox.  I feel as if my memory loss and confusion are getting worse.  My breathing is okay just tight throat, no heart palpitations in the past few days.  My muscle tone is barely there.  My arms tingle and at times I feel itchy on my dry fingers and elbows.  Insomnia and anxiety are full blown, I am a real sleeper so this is making me confused more.

WHAT TO DO??? Please advise, I am scared I am going to die and doing this all alone.  My vision is still weird but clear… Any help for anything is greatly appreciated.   What can I eat so that this doesn’t get worse, what can I take?  Do I go to emergency room?  Will my breathing stop? I am so scared…

I am so sad and lost xo

Sadlady

 

 

 

 

 

 

 

To drug or not to drug…

I go back to the psychiatrist tomorrow morning.  I’ve tried zoloft and now paxil for my anxiety.  Both seemed to work for a short period of time, but then symptoms came back with a vengeance.  Clonazpam works well. I’ve read past posts.  I really want to get off the paxil and not try anything new.  I’d like to just take the Clonazpam when things get really bad.  Usually 1/2 of one works (not sure of the dosage, but it melts in your mouth).  The problem is that I have several family members (extended) that have anxiety.  So do I really need it, or is it just the botox?

I like the simple format, so her is what works for me.

1. acupuncture, more than probably anything else.

2. massage. Like someone else said, at times it annoys me and at times it makes me worse, but when it’s good, it is damn good.

3. Eating clean with a lot of added vitamin B12 and probiotics.  I feel like too many supplements can aggravate the toxins.

4. Talking about it with my husband.  Crying it out when I need to.  I don’t bother to tell anyone else because really, they can’t understand.

5. Wine.  But we’ve been friends for a long time =-)

What DOESN’t work

1. coffee.

2. Strenuous, new exercise.  I tried I total body conditioning class the other day and 3 days later I was full on symptoms.

3. Not sure what else.  We need to start keeping track of triggers.

Finally, I know that this has effected our nervous system.  I know the toxins are in my body.  I feel the twitches, swollen glands, hear the horse voice, am now experience skewed vision, etc.  But what is the goal?  Are we suppose to let our bodies rest or are we suppose to fight hard to get it out?

My story

 

Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(

Has anyone tried Ondamed to help? More advanced than Rife and used by MDs

Hi All

This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.

The website is WWW.ondamed.net

The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.

My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.

I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.

So, I thought I would share this with the group to see if anyone has tried it yet.

I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.

Hope and love to all
Jade

Botox is BAD

After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!

A solution I have discovered

Hello,
I am 29, I suffer from botox for 13 months.
I have discovered something amazing.
When I wear my sunglasses (all the Time during one month) my neurologic symptoms disappears.!! All of them.
But at this moment my face is swelling. It is amazing, It works, I want to share you my observation.
But I have since à big edema, It is not a perfect solution.
Sunglasses makes symptoms disappears for me, but create a new one : my face is swelling.

Edema/swelling around eyes after botox

Hello everyone,
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much

My turn to need help

I am really really struggling. I am now in Month 32…was hoping to start 2013 with high hopes…that this would be the year to really make some progress. Unfortunately I am having yet another what seems to be the start of a major relapse. Granted….I struggle every day and am only 30% of what i would call my normal functioning self…..so I at times feel that I am in a perpetual relapse. But I am now experiencing a significant downturn in my condition over the past week. I am petrified. I am having some symptoms that I haven’t had since the start of my relapse. The intense vice grip head pressure is back ….the intense eye pressure….the jumping at any sound…chills/sweats…nausea…the intense nerve pulsations …the dry mouth and eyes is back…the tingling down my face…intense fatigue even upon walking across the room…and the ANXIETY is excruciating. It shoots out of my brain and into every cell of my body. I can barely breathe. I feel like I am back at Month 2. I am exhausted. I can’t do this again. I told myself if I got hit with another round of this instensity…I just couldn’t do it. It is too hard. This stuff has somehow been resurrected to full force…like it has found new life…the intensity just as severe as it was in the beginning. It is too much.  I am losing my strength. Every minute of the last 2 days has been like being plugged into a electrical outlet. I am back to shaking, tremoring and crying uncontrollably.  I am praying to God for help. I can’t live this tortuous life anymore.

Flu Botox symtoms begins after dermatologic laser called Fraxel

Hello, I have had a laser on my face on December 2011 and 1 month before, the injection of 125 dysports units on my face. One hour after the laser, eye problems begins, nausea, dry mouth appear, difficulty to speach … 9 months of Horror.. Today neurologic symptoms are decreasing but my face is swelling, i souffer of a very big edema. Does anyone have the same edema? And does It disappears? Tank you

Small Beginnings

Hi, I’m 4 days post Botox injection and feeling really unwell. Why is Botox allowed to be sold as a ‘safe’ drug? I had 75 units in my forhead to smooth out a frown line. When I had this done I felt that it would be okay and I did it as a ‘take time out for myself activity.’ Having three children is busy and you don’t always get to do that. I’m hoping that in time recovery will come but I know it will be a process as my brain feels really foggy due to neural pathways being blocked and my whole body is weak. I was very healthy before this but I feel this is a huge setback to my wellbeing. I feel very upset ubout what this drug does to people. I talked to a phone counsellor about the the devastation I am feeling and my concerns about how this will impact on my family. She talked me through a breathing meditation and encouraged me that there is a place in this world for ‘small beginnings’ and to be very kind to myself while i’m rebuilding my life slowly. Any words of encouragement here are greatly appreciated. I would love to here some success stories along the road to recovery.

Does Dysport help ?

Hello-

I have had dystonia- generalized, cervical dystonia and dysphonia for over 20 plus years. Here in the US , I got 7 treatments of Botox and then developed antibodies. Then was thrown into clinical trials with Myobloc. Got antibodies to that toxin after 6 years. But worked well for pain.Everything has been trial and error with tons of meds on and off. IN 2004 had Deep Brain Stimulation, which took a long time for the right settings to be found. Am headed for my 4th battery change. But my doc suggested use of a toxin for break-thru symptoms. Since  I am immune to Botox, Myoobloc, cant have Xeomin either, my other option is Dysport.

ANY GOOD EXPERIENCES WITH DYSPORT. Does it last longer as I have heard with less side effects ??

Help.

beka

Still working as an ICU RN, but getting a bit tired physically to say the least.. Dont want to go back to oral meds- could not function , felt like my brain was in a constant fog. Dont like needles either !

 

Update

Hi everyone.  Just an update because I promised. I did hear back twice from Allergan.  I AM feeling better and I was honest when they called 2 days ago. The only effect I seem to still suffer from is the swollen/droopy left eye and diminished vision. I am also not sleeping well at night- very restless and I was sleeping well prior to this.  Please make sure you are reporting your symptoms to different agencies, even if you only have minor ones or 1 out of the many that some of us have suffered. One of the many symptoms I experienced in the beginning was the inability to form cohesive thoughts. I had a hard time finding words. Hard to describe, but those of you who have experienced it know what I mean. Yesterday, the representative from Allergan said, “I am reading from your list of symptoms that you had a hard time expressing words. Clearly, you don’t have that problem anymore.” I thanked him for his sarcasm and answered, “thankfully, I don’t because it was an awful feeling- one that I hope you never experience.”

Still sick after10 months

Hi everyone thank you all for your questions about the filler that was used in the glabella area.It was juvederm ultra 2 and it is not FDA approved for this area.I was not informed of this at the time,I am now losing my sight in my right eye,going deaf in my left ear,the tinnitus is now 24 hours a day not just at night,I am getting pains in my heart as I am continuously fighting for breath and the burning and brain suffocation just doesnt stop.I contacted Allergan who said it was my fault my body rejected it,4 solicitors now do not want to take the case on as they say it will be hard to prove, the hospital doctors stated to me,my mum and husband that my brain nerves were sensitized and I had suffered facial and brain nerve damage from the filler.Yet this has only been recorded as facial nerve damage on paper.I am due to see the neurologist on Monday as his nurse kept contacting me when I was discharged with yet another packet of pills this time duloxetine.She would ask if I was ok but I would say no not all in fact I’m worse and feel like my brain is suffocating 24 hours a day, I have dementia with sundowning at 41 years old apart from that yeh I’m great.The tablets did not help the sames as all the other ones I’ve been prescribed I’ve tried them all.Ive also discovered that the enzyme I was injected with 7 weeks later to try to disperse the juvederm is actually off label and more dangerous than the filler.Even though juvederm is highly cross linked with streptococcus euquistrian a disease that causes strangles disease in horses,they literally suffocate,hyaluronidase is derived from pigs.So basically I have two chemicals,one worse than the other causing theses symptoms of brain dysfunction for months with no relief in sight.As this is such a rare occurrence juvederm getting into the brain,no one knows wether it will wear off or not.I can’t live like this anymore in this burning dementia state everyone, looks at me as if I’ve got cancer because of the weight loss and no doubt the black eyes and drawn appearance due to the lack of sleep.My chance to have another child and foster is gone because I don’t even know what day it is.Its as if someone is playing a movie like groundhog day and I’m in it but can’t get out.I pray there is a reason for all this suffering,why everyone has had to endure this on this site and many others.I did see the packet of juvederm that was opened but the hyaluronidase just came out of a bottle I have no record of that just the juvederm.Its like I’m trying to prove I’m not mental it’s your worst nightmare and then some.I do think I’m better off dead because it’s like trying to prove the impossible,the paper that was suppose to run the story says the editor is now dragging his heels as the clinic are trying to stop them printing it,so my mum said we will go up to the clinic with some placards and wait until the press come and we can tell them we are boycotting the clinic.I do not have a copy of the original consent form I signed either, the clinic won’t give it to me.So I’m stuck like this forever slowly suffocating and dying getting worse by the day, I basically paid someone for a frontal lobe chemical lobotomy and to go blind,but it’s safe Allergan states, there’s no chance of a reaction,well it isn’t,it’s a toxic chemical but I did it,it’s my fault I ruined my life,so I’ve got to live like this like a lab test animal until I succumb to its purpose,which is to literally burn and decay my brain,please forgive the depressing rant but I am backed into a corner with no escape, why don’t doctors read this site so they can see the suffering and do something.I pray for you all at least if I do succumb to this,it’s documented on here I have at least some proof what this stuff has done, and even though I have never met any of you it’s been wonderful to share my darkest hours with you all to know someone is always there just a few short clicks away I never thought in my wildest dreams my life would end like this,when all I wanted was to plump up my cheeks,I will keep posting as long as I can,if the doctors try to lock me away at least hopefully there’s this site that proves I’m not insane.Thank you everyone for being on here you’ve probably saved more people than you know of,god bless you kx

Just an update AND new info in Good Housekeeping magazine

I know some of you asked for an update when we were feeling better…I am afraid to be too optimistic BUT yesterday other than a bad headache at the end of the day, I felt fairly normal. For the past 5 days I have really devoted myself to drinking a lot of water (I was not good about that before).  A colleague who is very into homeopathic cures told me to bathe every night in epsom salts, baking soda, and lavender essential oil for the terrible sinus/headaches I was having. She said it would release toxins from the body…no idea is true or false, but I figured it couldn’t hurt.  She also showed me an exercise using pressure points above my eyes. I don’t know if it’s that, or just coincidence, but yesterday my sinus problems seemed to lift and the pressure point exercise really help my head. I have done it very often for the past 2 days. I am swearing off all meds-no Claritin, no Tylenol or Advil. Nothing artificial in my body. I want to detox as best as I can.  Coincidentally, I was reading the July issue of Good Housekeeping earlier today. There is an advertisement for BOTOX to treat migraines. I kid you not, there are 3 full size pages of warnings. There are even some that I did not see on the Allergan website. I was especially interested in the long list of medicines (even over the counter and supplements) that you should not use if you are receiving BOTOX. There must be many more complaints because I have never seen so much accompanying literature.

Today I feel almost normal. I don’t even have a headache. My left eye is still a bit blurry (it wasn’t before) and my left eye is still a bit swollen an droopy, but I don’t think it’s as bad (or else I’m just getting used to it…)

So, keep the faith-for the past 2 weeks I have felt as if I was dying, as many of you are. I hope the symptoms don’t return but I am thankful for today at least :)