Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
I am 28 months out and apart from the usual symptoms most of people here are going thru I also been experiencing and suffering greatly from speech difficulties .I still can’t keep a long conversation and mostly been texting to friends ,throat muscles always either weak and voice is effected or very tight and unable to speak clearly .I was wondering if anyone else it’s having these problems with throat ?
Also I was very exited that after the awful winter I might be able to enjoy the summer and even try some swimming to help with muscle recovery .Well ..that’s not been the case .The high temperatures and the heat that comes with it make it impossible to stay outside for long .It effects the breathing and also seems to make the the weakness/numbness worse and I was wondering if anyone else it’s experiencing the same problem .
I had botox injections 2 months ago. He injected around my eyes, corner of mouth and top of my cheeks. I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth. They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too. That night my cheeks were sore to the touch and I couldn’t sleep on my stomach. 3 days later I started feeling sick. I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes. That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear. She gave me the Z pack. I took that for 5 days. I felt better for about a week, and then the symptoms came back. My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.
I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.
2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin. I took it for 4 days and I thought I was going to die! I got terribly sick and couldn’t function. I stopped taking it, and the next day I felt good. But not for long. Symptoms reappeared once again.
I am a healthy person and work out 3 days a week. I’m in good shape and not overweight, and take care of myself. So I don’t understand what is happening to me.
I decided to go to a ENT doctor. I explained to him how I felt. He examined me, and found nothing. I told him I had botox and he said nothing. He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works. I felt sick on and off with the pill. I ended the pill 2 days ago and my face still hurts and I still have symptoms. I have been putting ice packs on my cheeks and it helps a little. Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!
At this point I don’t know what to do. I know its the botox that is making me feel this way. There is no other explanation. What can I do to get this poison out of my system? Can anyone help me? Thanks for listening.
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
Hello….hopefully I am in the right place for some help or peace of mind. I am 41 very active. In the gym 4 nights a week & work in outside sales & marketing in the medical field. I got my first Botox injections on March 7, 2014, I am 9 weeks from injection date. I had 10 units in my forehead & 18 above my eyebrows & in between my eyebrows…sorry I don’t know the technical term. The area above my eyebrows did look swollen for almost 2 weeks after injections.
So let me start with right after injections. Within in a hour or less I started to get a headache. The pain came mostly from the front of my head. 4 hours after injections I felt like I needed to blow my nose…it kind felt like my nose was kind of stopped up. When I blew my nose nothing but blood was coming out. I blew & blew to get all the blood out. At this point I thought holy crap what is going on? I started to worry a little at that point. It was late & I couldn’t call the Dr. who did the injections. Now on to the next day….my forehead hurt so bad if I didn’t know better I would have thought my forehead was severely bruised, although it wasn’t. This pain last for 6 days after injections. I could barely touch my forehead. I went 3 days without washing my forehead the pain was so bad. I did go back to the Dr. After 3 days of injections & only got the “your crazy” look & reply. I talked to the dr about the possibility of to much being injected & allergic reaction she said no. All during this time my forehead was so itchy too, but without a rash. I did have a few tiny bumps, but not really a rash. I also started to have flu like symptoms after 5 days after. Runny nose, body aches, feeling of sinus pressure, tired feeling. At times I have also felt nausea. About two weeks after injections I woke up in the middle of the night feeling as if I was being smothered.
For 2 months now I have experienced sinus problems off & on. This month the sinus problem put me at the dr office for antibiotics for a upper & lower respiratory infection. I finished the medicine 2 weeks ago. Now I have a soar throat & sinus pressure again. This is getting ridiculous! I am staring to wonder is all this is from the Botox. I love the looks that Botox has given me, but is not worth it if all my problems are due to Botox. I am open for any comments, advice or help. If this is from Botox when is all this going to go away & I’m going to feel healthy like I use to?
Here are a recap of everything I have experienced in the last 9 weeks…
*forehead pain, bloody nose, headaches, body aches, tiredness, sinus pressure & sinus infection, lower respiratory infection, shortness in breath, at times nausea, sore throat.
Sorry my post is so long. I just wanted to get all the details out there for help.
one other thing I am allergic to latex & neosporne. Don’t know if that matters or not. The dr never asked me if I was before injections.
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
It seems that the majority of people here have had complications with Botox. There are a few people who mentioned that they had Botox along with fillers and were sick. I am wondering if there is anyone who suffered an injury from a filler alone.
Many of my symptoms have subsided except for hives, red burning patches, and the rediculous sensation that I cant breath. The hives and burning red patches are daily but the breathing sensation comes off and on. I went three weeks recently without it then my period started and its back. Its certainly not as bad as it was in beginning but its soooo unpleasant–it comes with burning and muscle discomfort in the chest area below my ribs. I worry when I get it that Im stuck like this for the rest of my life. Has anyone had this and it went away for good??
I am 29, I suffer from botox for 13 months.
I have discovered something amazing.
When I wear my sunglasses (all the Time during one month) my neurologic symptoms disappears.!! All of them.
But at this moment my face is swelling. It is amazing, It works, I want to share you my observation.
But I have since à big edema, It is not a perfect solution.
Sunglasses makes symptoms disappears for me, but create a new one : my face is swelling.
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much
I am having a very difficult time. It is 2:30am and I have been awoken in pain regularly at this time now for the past week. Sleeping hasn’t been an issue for me until now. I am at 19+ months. I am also very scared, feeling that my symptoms are getting worse.
The good new is I no longer have, anxiety, that was only with me the 1st few months. I am now longer having difficulty swallowing, depression comes and goes depending on my symptoms. My stomach isn’t as bad as it once was. I no longer have diarrhea and nausea on a daily bases and I have gained back the weight I originally lost. My stomach is still not 100% yet. I had eye dryness and vaginal dryness, that seems to have improved as well as the dental pain and mouth ulcers. My blurred vision has improved but I now get ocular headaches and disturbed vision more then I had over the past months.
Here is what is worrying me the most. I am twitching more now then I have been in the past few months. It wakes me up at night. I have had twitching though most of this but it did clam down for awhile but it is back. In the past few months the nerve pain in my arms, legs , traps, neck and spine has increased . I have increased muscle weakness and have returned to physical therapy. My muscle contractions are worse and so painful I no longer feel I can manage them. It is difficult to sit the nerve pain is so bad. Nothing really helps. Originally my spasms were so bad I had dislocated my arm a few times and twisted my ribs and vertebra and pulled in my tailbone. Nothing new has dislocated in a few months, thank GOD. I feel it is moving into my head . My ears are more full and I have more visual disturbances, more regularly as well as headaches that I had in the first few months, have returned. The quality of my live is quickly decreasing. I cry more then ever. I haven’t had hives in 2 months but now have more of a shingles like rash. I often get this before a new nerve pain comes about.
My doctor had recommended Cymbalta (sp) but I have tried so may things that have not helped. I do not know if I want to try another drug or put anything new into my body. I also have all kinds of drug sensitives since this has all started. I pray daily for all of us.
I still can’t believe this is happening. I am starting to loss hope of recovering and just wish there were more stories of recovery.
Today is my 18 month post injection anniversary. I am still not doing well. The nerve pain seems to be getting worse. I was wondering if anyone has tried hyperbaric treatments, what was results and treatment protocol ( how many treatment and for how long)? It was recommended that it might help.
I have had 8 botox injections over the last 6 years and was never given any indication that botox was anything but safe. My last injection was on April 24, 2012 and I almost immediately had an adverse reaction. Within the next few days, dry mouth and eyes, muscle pains in arms and legs, flu-like symptoms, followed by lump in throat feeling and severe muscle stiffness and weakness, pain between shoulder blades, blurry vision, ringing in ears, pressure in head and temples, tightness in chest, burning during urination followed by frequent urge to urinate and one day loss of bladder control, shallow breathing and shortness of breath, dizzy, chills, tremors, fatigue, loss of strength, can’t think straight, tingling in arms, legs and red itchy hot hands, bad gag reflex. I had a feeling of my diaphram relaxing and have had terrible nausea, indigestion, and bowel issues. Very anxious at times. I have lost ten pounds in 5 weeks and I am eating every 3hours. I was 140lbs at 5′ 7″. Now I am already down to 130lbs with no muscle tone. I have been back to my dermatologist who denied that it could have been the botox and referred me to my family doctor for anxiety/depression. I wanted to scream, I was fine before the shot and very healthy, working out an hour every day and now I am wasting away with no energy and totally fatiqued. My family doctor thought I had a virus and let it go for a week before I went back even more fatiqued and had lost bladder control. She did bloodwork which all came back normal and a week later had another appointment with different doctor that believed me and put me on 5 day steroid pack. Since then I went back she said I had to put up with the side effects, spent 1 day at the ER getting fluids, EKG, more bloodwork all which came back fine, but I still feel like crap. I have a neurologist appointment this week to rule out anyother diseases or causes. Please help me! How long is this going to last!!! If I keep losing weight at this rate I’ll be dead in a month or so. Why is there so little that anyone (Doctors) know about this and how to treat it!