Tag Archives: Sinus infection

3 year update

3 year update

 

Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .

I was put on 2400 mgs of nueronton and 100mgs of  Nortriptylin . Today most  of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back.  I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.

I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.

Botox injections 2 months ago, extreme facial pain in cheeks

I had botox injections 2 months ago.  He injected around my eyes, corner of mouth and top of my cheeks.  I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth.  They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too.  That night my cheeks were sore to the touch and I couldn’t sleep on my stomach.  3 days later I started feeling sick.  I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes.  That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear.  She gave me the Z pack.  I took that for 5 days.  I felt better for about a week, and then the symptoms came back.  My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.

I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.

2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin.  I took it for 4 days and I thought I was going to die!  I got terribly sick and couldn’t function.  I stopped taking it, and the next day I felt good.  But not for long.  Symptoms reappeared once again.

I am a healthy person and work out 3 days a week.  I’m in good shape and not overweight, and take care of myself.  So I don’t understand what is happening to me.

I decided to go to a ENT doctor.  I explained to him how I felt.  He examined me, and found nothing.  I told him I had botox and he said nothing.  He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works.  I felt sick on and off with the pill.  I ended the pill 2 days ago and my face still hurts and I still have symptoms.  I have been putting ice packs on my cheeks and it helps a little.  Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!

At this point I don’t know what to do.  I know its the botox that is making me feel this way.  There is no other explanation.  What can I do to get this poison out of my system?  Can anyone help me?  Thanks for listening.

 

 

Slowly but surely – recovery taking time but is real

Hello,  I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.

My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference.  I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.

Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile –  the absolute worst was when I had 2 terrifying panic attacks  within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next.  If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.

I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that.  While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to.  That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.

My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.

If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body.  This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.

I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!

Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected.  You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.

Take care and don’t lose hope,

HopefulD from Canada

 

 

 

 

 

Feeling faint and very weak after eating

I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .

Need peace of mind after Botox

Hello….hopefully I am in the right place for some help or peace of mind. I am 41 very active. In the gym 4 nights a week & work in outside sales & marketing in the medical field. I got my first Botox injections on March 7, 2014, I am 9 weeks from injection date. I had 10 units in my forehead & 18 above my eyebrows & in between my eyebrows…sorry I don’t know the technical term. The area above my eyebrows did look swollen for almost 2 weeks after injections.

So let me start with right after injections. Within in a hour or less I started to get a headache. The pain came mostly from the front of my head. 4 hours after injections I felt like I needed to blow my nose…it kind felt like my nose was kind of stopped up. When I blew my nose nothing but blood was coming out. I blew & blew to get all the blood out. At this point I thought holy crap what is going on? I started to worry a little at that point. It was late & I couldn’t call the Dr. who did the injections. Now on to the next day….my forehead hurt so bad if I didn’t know better I would have thought my forehead was severely bruised, although it wasn’t. This pain last for 6 days after injections. I could barely touch my forehead. I went 3 days without washing my forehead the pain was so bad. I did go back to the Dr. After 3 days of injections & only got the “your crazy” look & reply. I talked to the dr about the possibility of to much being injected & allergic reaction she said no. All during this time my forehead was so itchy too, but without a rash. I did have a few tiny bumps, but not really a rash. I also started to have flu like symptoms after 5 days after. Runny nose, body aches, feeling of sinus pressure, tired feeling. At times I have also felt nausea. About two weeks after injections I woke up in the middle of the night feeling as if I was being smothered.

For 2 months now I have experienced sinus problems off & on.  This month the sinus problem put me at the dr office for antibiotics for a upper & lower respiratory infection.  I finished the medicine 2 weeks ago. Now I have a soar throat & sinus pressure again. This is getting ridiculous! I am staring to wonder is all this is from the Botox. I love the looks that Botox has given me, but is not worth it if all my problems are due to Botox.  I am open for any comments, advice or help. If this is from Botox when is all this going to go away & I’m going to feel healthy like I use to?

Here are a recap of everything I have experienced in the last 9 weeks…

*forehead pain, bloody nose, headaches, body aches, tiredness, sinus pressure & sinus infection, lower respiratory infection, shortness in breath, at times nausea, sore throat.

Sorry my post is so long. I just wanted to get all the details out there for help.

one other thing I am allergic to latex & neosporne. Don’t know if that matters or not. The dr never asked me if I was before injections.

Thank you.

 

Botox is BAD

After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!

Swollen Lymph Nodes

Have any of you experienced swollen lymph nodes from any of this?  I keep getting one after the other on the right side of my body.  They are not big but I first got one in the back of my head.  Then one in my jaw line.  Then on the side of my neck.  Now under my arm pit.  Again, they are not big and they are moveable but I think its weird. I have had both botox and juvederm and I wonder if my body is having an allergic reaction to the juvederm in my body or if its due to the botox moving around.  But i still find it strange they keep coming up and only on my right side.  I do not have an infection that I know of.

I have posted before about all the other issues I have: migraines, right ear full feeling, humming in right ear, right side facial pain and pressure, sinus pressure, jaw pain on right side only, right side of my teeth hurt., dizziness (seems to be improving after 4 months).  pressure in my head but only on right side. oh and how could i forget, memory loss/foggy brain syndrome.

anyone else with this, and do you think it could be due to botox/juv?

Please help

I cannot believe how ill I feel. I am on day 9. I had 37 units of Botox around eyes and forehead. I really wish I could turn back the clock. I am 47 years old, My daughters begged me not to do it. Day 2 buzzing in the head and ears, day 3 after the most horrific night of my life with hot and cold flashes, insomnia chest palpitations ,my head felt on fire,anxiety  I went to the emergency room who could nothing but give me  Xanax. I took the Xanax, slept friday night felt ok Saturday, took another Saturday night felt ok Sunday. Thought hmm i’m ok now so did not take one Sunday night. Monday my ears started to buzz felt unwell again, so I took one monday night, woke up the next morning, ears blocked, dizzy weak, a friend took me back to the dermatologist who said he has never had a reaction like this, he looked in my ears said they look stuffed,he wanted to give prednisone but i had it once before horrid side effects. So he said well maybe sinus infection,  he gave me a zpack and i took a double dose of that and a  sudafed. I have been up all night with full blown again like day 3…worst night of my life.full pins and needles, hot/cold flashes, anxiety.  My husband is away on business and i am so so scared. I am not sure wether to take the z pack today or take a xanax or both.I have never taken pills in my life. I have a trip booked to visit my parents in the UK tuesday, I have not been back in 3 years. I am going to have to cancel today. I am beyond devastated. My derm emailed me this morning and said there is a medication called Lyrica that is used to help with nerve pain, but it has side effects of its own. Others medications that can help with nerve pain are antidepressants and mild tranquilizers like Zolft and Xanax. Given your history of sensitivity to medications, I think a short course of Xanax taken at night might be the safest bet in getting you through this.  My Family Dr said the same take the Xanax.  My question is… is there anyone out there that only has this for a few weeks and makes a full recovery or do i have to tell myself  this is it for me, I’m done? My vanity has ruined my life and my families life for good.?

Newbie from uk at post 3 months

Hello All,

Typing this on I phone so apologies for mistakes! Just wanted to say that I have been so happy to have found this site as it has given me hope as I’m sure it has to you all, thanks everyone :). I first found it about a month ago but have been too frightened to look again. But now I feel a tiny bit better so I thought I’d post my story.

I’m 32, from Manchester uk. I had restylane lip and Botox at the same appointment. Had redtylane twice before no issues, never had Botox before. At the time I was suffering from a bad back (diagnosed as a bulging disc 3 weeks post Botox, not related had already had it for 4 weeks) I’d already had a few weeks off work with back in a new highly pressurised job so I had to be in work when the hell started. Thought all was fine then 3 weeks after injections my left arm went numb and I felt like my strength had gone in this arm. I thought it may be back related. Went to hospital had ECG etc, sent home with ibuprofen. I then started with the horrific anxiety and felt as though I was going to die etc. i thougt i had so many forms of cancer etc. very dark times. started with nerve pains in right arm then same thing (subsided a lot now, just muscle weakness) This followed with intense pressure headaches and the burning feeling (just comes and goes but nowhere near as bad) I had gone back to work in new job and couldn’t cope but managed to get through it with beta blockers and diazepam (carry them with me just jncase but no linger take daily) This followed with swolllen glands in my neck (still there)and something catching when I swallowed (still there) no actual issues swallowing though. Dizziness (got a lot better). Intense pain around uper back, armpits and breasts. Breasts became so incredibly swelled, lumpy and painful a week before period. To the point where I couldn’t wear a bra. Burping, blocked left nostril when lie down, acid reflux, ibs like symptoms with swelling on left side of abdomen. These all happened within about 4-5 weeks post injections. I went to the doctors twice a week. Convinced myself I was dying. The insomnia was horrendous. Anyway, went private to see a neurologist. Now have low blood pressure which I never had before. My blood tests are fine but strangelyin the very low variance of normal for blood clotting. My blood would not clot if I had an accident etc. Had some anti toxin blood test that came back fine after I mentioned botox link. Not sure what it is? Have had an MRI on lower spine, cervical and brain. After I failed some tests he thought I may have ms. But not so. I would probably pass those now as the numbness has dissapeared somewhat. Neurologist listened but does not believe Botox theory. My doctor has been quite understanding about it all.

I am still having all my symptoms checked to rule anything sinister out. But I thought it complete madness that I had about 15 uncorrelating symptoms over about 3 weeks. Its crazy. I thought about what had been different as although I’d hurt my lower back (now better)I’d never had any of these symptoms before and was super super fit. I exercised 5 times a week, a bit of an addict really. Now I lift my arm and it’s tired. Good news is I’m off any pills except ones for acid reflux and sinus etc.

I have had 2 periods, waiting for 3rd to see if the breast armpit swelling comes back etc. I’ve had them checked 3 times for lumps etc, hormone tests too. Waiting for camera down throat, ultrasounds for abdomen etc. I don’t have anywhere near as bad anxiety when I started this. I no longer feel like I’m going to die. I have slept 4 nights in a row with no pills. I am fearful that things may take a turn for the worse again but I guess this is how it is. I have slight vision disturbance in left eye and muscle twitching and strange sort of shudder sensations. This is all in my left side.

I am eating healthier and taking superfood shakes. I had a massage, days after I was in agony, not for me. I could feel the food passing under my ribs in my bowels, so it must all be inflamed. I’m looking to start a raw food diet in January to see if that makes a difference. I immediately quit diet coke. I drank litres of it each day. That stuff should be illegal! I am now sticking with accupuncture and hoping it works. My therapist is completely supportive of Botox theory. Some friends have looked at me as though I’m mad when I mentioned this is why I’m Ill. They think I’m exaggerating! Get in my shoes.

After I felt a little better I tried to run and swim. It’s too much. I also tried Pilates, my arms would not support my body etc. this was a few weeks ago, so I’ll try again and let you know how I get on. I get really bad neck, back, chest (muscular) pain

Luckily one of my best friends is an occupational therapist in nhs (high up now and charges for neurological privately) for stroke and neurological rehab. She orders it to be administered medically hundreds of times a year. She has been through whole thing with me and when I made the Botox link she was slightly skeptical as she said it didn’t travel. Then when I showed her this site….she believes me. She was looking at doing a study on Botox use medically next year with her nurses and neurologists and is going to see if they have had any reportings like this. It seems medically it much stricter. They use a machine to find the exact spot in a muscle that it should be injected. I guess the caveat is this people already have neurological symptoms! She is thoroughly getting stuck into this by coming up with theories etc and trying to help. She has given me a sort of rehab programme that she gives to stroke/me patients. I am like a little project for her! I’ll try it for a few weeks and if I see results I’ll post it all on here too.

I will keep you all posted. My main message is that although I still have symptoms and I don’t know yet if they are something else or what can be done, my anxiety has eased a lot and the numbness has passed. I don’t feel as bad as I did say 4 weeks ago. Having lots of pills with me from docs helps as I know I can take them if I need to! Many people at work have said I look a lot better and that I seem less on edge etc (they don’t know all symptoms or this link etc, I was at risk of being fired because I hadn’t completed my probationary period, oh and even my boss who I report to in Belgium said I looked a bit better). I didn’t think people could tell as I tried to keep it under control.

Anyway, sorry for long post. I’m trying to keep positive. Love to you all :)

Sorry for the rambling and thanks for reading.

I NEED HELP

Please help me for migraines.. Does anyone else have severe breathing difficulties?  Breathing too slow, severe chest pain,cant get enough air. even if given oxygen. I can.t breathe all tests are negative. Had 31 shots in my head &neck . My main problem is I can;t breathe. I fight for air  twentty four sen=ven. Been to ER and put in hospital so many times I’ve lost count. Please, does anyone else have these symptoms? Did you get any help or are you like me, begging for oxygen.

Update

Hi everyone.  Just an update because I promised. I did hear back twice from Allergan.  I AM feeling better and I was honest when they called 2 days ago. The only effect I seem to still suffer from is the swollen/droopy left eye and diminished vision. I am also not sleeping well at night- very restless and I was sleeping well prior to this.  Please make sure you are reporting your symptoms to different agencies, even if you only have minor ones or 1 out of the many that some of us have suffered. One of the many symptoms I experienced in the beginning was the inability to form cohesive thoughts. I had a hard time finding words. Hard to describe, but those of you who have experienced it know what I mean. Yesterday, the representative from Allergan said, “I am reading from your list of symptoms that you had a hard time expressing words. Clearly, you don’t have that problem anymore.” I thanked him for his sarcasm and answered, “thankfully, I don’t because it was an awful feeling- one that I hope you never experience.”

Just an update AND new info in Good Housekeeping magazine

I know some of you asked for an update when we were feeling better…I am afraid to be too optimistic BUT yesterday other than a bad headache at the end of the day, I felt fairly normal. For the past 5 days I have really devoted myself to drinking a lot of water (I was not good about that before).  A colleague who is very into homeopathic cures told me to bathe every night in epsom salts, baking soda, and lavender essential oil for the terrible sinus/headaches I was having. She said it would release toxins from the body…no idea is true or false, but I figured it couldn’t hurt.  She also showed me an exercise using pressure points above my eyes. I don’t know if it’s that, or just coincidence, but yesterday my sinus problems seemed to lift and the pressure point exercise really help my head. I have done it very often for the past 2 days. I am swearing off all meds-no Claritin, no Tylenol or Advil. Nothing artificial in my body. I want to detox as best as I can.  Coincidentally, I was reading the July issue of Good Housekeeping earlier today. There is an advertisement for BOTOX to treat migraines. I kid you not, there are 3 full size pages of warnings. There are even some that I did not see on the Allergan website. I was especially interested in the long list of medicines (even over the counter and supplements) that you should not use if you are receiving BOTOX. There must be many more complaints because I have never seen so much accompanying literature.

Today I feel almost normal. I don’t even have a headache. My left eye is still a bit blurry (it wasn’t before) and my left eye is still a bit swollen an droopy, but I don’t think it’s as bad (or else I’m just getting used to it…)

So, keep the faith-for the past 2 weeks I have felt as if I was dying, as many of you are. I hope the symptoms don’t return but I am thankful for today at least :)

High Blood Pressure

Hi all- I went to my primary care doc today- what a wonderful and caring person. I had dropped off literature ahead of time from the Allergan website so he could acquaint himself with it. I do hope all of you are calling in or filling out reports with Allergan and in the US with the FDA.  I have not had the breathing/wheezing/throat issues again today and I’m grateful for that but I still have terrible sinus pain and a bad headache. Odd,though, my blood pressure was high- high for me- it is usually very low.  I have noticed that my fingers are swollen though. I have also been taking a TON of meds (Claritan, Advil Tylenol) to get relief but I believe some of those do raise blood pressure.  I am going to drink even more water and stop all pain meds and allergy meds. He is going to see me in 10 days for a follow up and we’ll do a plan from there. Is anyone else experiencing high blood pressure when they have never had high blood pressure? He took me very seriously and I am eternally grateful!

Hi all- I went to my primary care doc today- what a wonderful and caring person. I had dropped off literature ahead of time from the Allergan website so he could acquaint himself with it. I do hope all of you are calling in or filling out reports with Allergan and in the US with the FDA.  I have not had the breathing/wheezing/throat issues again today and I’m grateful for that but I still have terrible sinus pain and a bad headache. Odd,though, my blood pressure was high- high for me- it is usually very low.  I have noticed that my fingers are swollen though. I have also been taking a TON of meds (Claritan, Advil Tylenol) to get relief but I believe some of those do raise blood pressure.  I am going to drink even more water and stop all pain meds and allergy meds. He is going to see me in 10 days for a follow up and we’ll do a plan from there. He took me very seriously and I am eternally grateful!

Update

Hi all- I posted 2 days ago- I had a terrible day and night. The swallowing difficulty, breathing difficulty, head pressure was almost too much to bear. The next day (yesterday) I woke up and the breathing/wheezing/swallowing difficulties were gone. I was very hopeful, but also very tentative. I WAS foggy-brained all day- could not concentrate on the easiest tasks BUT I was so thrilled about the other symptoms. Today I felt ALMOST normal. I’ve been a little headachy and have had a little head pressure, but I’ll take it! I have done the following things and I would urge others to do the same so that there is a tracking system of what is going on. I have also taken advice from people here and I have begun to drink a LOT of water. I was never thirsty before so I never drank much. Now, with the increased thirst, it is no problem to drink water. I will try not to be too disappointed if the symptoms come back…

  • I filed an adverse reaction report with Allergan by phone
  • I called the FDA and asked to have an adverse reaction reporting form mailed to me. I will fill that out and return it when it comes
  • I sent a certified letter of concern to the injecting doctor, which I will attach at a later date
  • I have an appointment with my primary care doctor tomorrow.

 

To all…chin up

Hi all…After a very bad day yesterday I decided that I needed to take your advice and put my best foot forward. Get rest…drink lots of water…eat healthy….and take 1 day at at time.  They funny thing is I was feeling great before this. This Botox was my retirement gift to myself.  No, I am facing the prospect of beginning my retirement in this manner. HOWEVER, I have decided to look at it from the approach that  at least if I feel awful, I can lie down, take a nap if I need to,and not worry about missing work. My last day is is Friday. Then I rebooked at the title of this forum. Botox Support Community. You have given me support and I will try to do the same for you. I will try not to obsess over the really bad news here but use it to gain insight. So, for today- as I begin my day, not knowing yet at this point what to expect, I wish you all peace and the ability to put one foot in front of the other to make one more step toward recovery. Good day to all…

24 Month Update…..

Well….it has been 2 years since my injections of Dysport.  I wish that I was typing this in the “fully recovered” section of this website, or even “almost recovered”, but, unfortunately, that is not the case for me.  :(
Those of you that have been following my journey know that I am still suffering from a major relapse of my symptoms at 17 months after feeling almost back to normal for a few months.   I, now at 24 months, feel that I have been at a plateau without much improvement for the past few months.   Again….this posting is not to cause fear or alarm for others just starting with their symptoms….as everyone has a different
path, body chemistry and length of time for healing.   Just as so much of what is happening to us is not understood….the same goes for our recovery.  There doesn’t seem to be a true understanding of any of this….and there is not a set schedule for everyone…..and what has
worked in recovery for some doesn’t work for all.

However, with that being said…….what does seem to be common
are our symptoms.   And…LOTS of them.   In thinking what I could possibly post to be of any help at the 2-year mark….is perhaps just list the myriad of symptoms that I have experienced and/or am still experiencing.   Again, those of you just starting with this ordeal can use this reference list as a guide to what you might be feeling…and wondering…..is THIS (….fill in the blank) from my toxin injection….or has anyone else experienced THIS (….fill in the blank)???   Well….scan the list of things…..and most of us on here have experienced many of these symptoms…and more.   I have had all of the below……and still have most of them intermittently.   I have them listed by category.

HEAD

Head pressure on sides of head (vice grip feeling)

Feelings of “worms” crawling inside head

Feelings of brain spasming; tightness within the head cavity
to the point of not being able to think straight

Headaches…both dull ache and migraine

Overall “numbness” or feeling that you have had novocaine
shot into your brain

Numbness in temple area; putting pressure on this area
causes nerve sensations down back of head

Lightheadness

“Buzzing” or vibration feeling in head, mostly at night when
trying to sleep

Extreme pain in the back of the head (area where the skull
meet the spine)

Slight head bobbing with the pulsation of my heartbeat

Feeling of sudden “blood rush” from the back of head to the
front of brain

Feelings that you are having a stroke….that you are “not
there” and can’t communicate

FACIAL

Muscle spasms in forehead, so tight that at times cannot open my eyes

Muscle spasms in cheeks; corners of mouth would pull back
right side of face involuntarily

Forehead injected muscles when started to regain
movement….the amount of movement would be intermittent; would sometimes be able to move muscles and then other times would be paralyzed again.

Droopy eyelids

Twitching eyelids, nose, below eyes, chin, corners of mouth (sometimes mild and sometime violent)

Increased number of veins and wrinkles in forehead

More pronounced muscles above eyebrows (once movement was
regained)

VISUAL

Intermittent blurred vision

Sensations of eye movements moving back/forth quickly with
eyes closed at night when trying to fall asleep

Muscle surrounding eyes twitching at night with eyes closed

Increased number of eye floaters

Abnormal pupil size…or one eye being slightly different size than the other

Globs of “gunk” floating in eyes

Redness in eyes

“Flea-type” movements seen in peripheral vision

“Static” black/white snowy-type vision at night

Extreme dry eyes to the point of not being able to move eyes

Eye pain behind eyes

Eyes not moving back/forth at the same time or some loss of range of movement

Sensitivity to light

Difficulty focusing on things in distance (uncomfortable
feeling)

Objects in distance appear to “shake”

Episodes of eyes quickly jerking back/forth when lying down
and looking sideways

Red/purple squiggly lines seen in center of vision at night
when trying to fall asleep

SPEECH

Slurred speech

Inability to get words out or think of words to say (during
times of head feeling tight)

COGNITIVE

Typing words that are different than what is being thought

Difficulty having prolonged conversation

Difficulty with following timeline of events….have to write
things down to understand

More forgetful

Difficulty multi-tasking

Taking longer to do things

Difficulty having conversation in groups of people

MUSCLE

Throat would tighten and close up; throat spasms

Tightness, pain and weakness in back of neck

Weakness in forearms

Forearm spasms

Muscle spasms in neck, shoulder blade area, upper and lower
back.

Weakness in back muscles.

Muscle spasms and weakness in thighs

Arms tighten up and move inward towards chest with wrists
pulled back; head pulls back with chin upward toward ceiling.  Body would involuntarily pull in jerking
motions. (Spastic-type movements)

Prolonged cramping in feet, sometimes creating inability to walk

Muscles tighten when touched or rubbed

Overall body weakness

Intolerance to exercise (would worsen symptoms)

Abdominal pain and weakness

Incontinence

Inability to push bowels (could not go to bathroom)

SENSORY

Intermittent increased sensitivity to smells

Burning on tip of tongue

Constant feelings of nerve “pulsations” through your body

Lowered level of pain threshold

Cannot watch TV or listen to music due to sensory overload

Extreme sensitivity to movement (cannot watch things moving
fast)

SINUSES

Clogged feeling in sinuses

Intermittent increased sinus drainage (sinus drains like a
faucet…out of nowhere)

EARS

Plugged feeling in ears

Ringing in ears

Constant popping in ears

Pain in ears

Sudden loss of hearing in right ear; gradually returns

Extreme sensitivity to loud noise

MOVEMENT

Vertigo, lasting 6-8 hours

General feeling of dizziness

Dizziness when turning head or body too quickly

Abnormal gait (swinging legs out in front when walking)

External tremors (extreme movements of head
(back/forth/up/down))

NERVE

Intense nerve “sensations” down neck/spine, at worst lasting for hours

Nerve “pulsations” down neck/spine and into arms

Intense nerve electrical-shock type feelings in various
parts of body

Tingling/numbness in hands, feet, legs

Tingling/numbess in forehead and down sides of face

“Buzzing” feeling in legs/feet

Internal “shakiness”/tremors

Sharp needle-prickly pain in both heels

Painful sensitivity in genital area

Intolerance to cold or extreme heat

MISC

Mild anxiety at onset; extreme anxiety at relapse

Panic attacks

Mood swings….feelings of deep depression that hit suddenly
and leave just as suddenly

Crying spells that are not set off by any particular feeling
or event

Insomnia; loud buzzing sound inside head when first falling
asleep

Extreme dry mouth

Naseau  lasting forweeks or can come/go several times in a day

Diarrhea or loose stool

Extreme fatigue…..again that can come/go quickly

Intolerance to alcohol

Extreme intolerance to sugar and some foods

Sensitivity to medicines, vitamins

Sensitivity to chemicals

Racing heart; heart palpitations

Sharp pain in center of chest

Intermittent shortness of breath

Hot flashes/cold chills

Severe back pain/sciatica

Joint pain (shoulder and knees)

Tightness in chest; heaviness; difficulty breathing

Burning, itchy rash down sides of legs, on back, stomach
area

Inability to drive (to do sensitivity to movement issues)

I THINK I have remembered most of them!    Yes…..this list is extensive…..and just getting through the day can be quite challenging…….as most of you know.    I just keep trying to take one day at a time….and try not to think about how long this may take to be fully recovered.

I am still seeking various practitioners to offer any sort
of help in the recovery process.   I recently had brain “mapping” done….which is used as a diagnostic and treatment tool for those who have various brain disorders and/or brain injury.    I am also seeking assistance from a naturopathic physician and mind/body practitioner….as well as waiting results of tests done by a chiropractic neurologist.   This….on top of the continual monitoring being done by my regular physicians.  I am continuing a gluten and dairy-free diet.  It is hard to say it if has helped with symptoms or not…..as again, I haven’t seen any noticeable improvement since starting it….but given that I do believe that the neurotoxin has set off some sort of inflammatory response in our bodies…..I am going to continue with that.    I am still unable to drive or work full time, and haven’t been able to resume any sort of social schedule yet.     On top of dealing with all of the symptoms, the
isolation that results from this illness is yet another thing that we end up having to deal with.    Hence, this is why discussion boards like this are so important. ….if only to post things like this….and hope that in doing so…..there is some help and/or connection that is
being offered/made with others.

I hope/wish for healing for everyone.

 

 

Overwhelmed..I had never had dysport or botox before. I researched & never found anything about what a black box warning was as it applied to dysport, or what it even meant; & believing that it was safe. Until after my injury from dysport. THEN IT WAS TOO LATE! It destroyed my lacrimal glands, constant eye infections, double pneumonia, emphysema & the infections crystalized into MY LACRIMAL GLANDS W/ MALT LYMPHOMA CANCER!

I’m new to this site & I’ve not used Botox or have ever desired too, Nevertheless, I did have the dysport injections just once, & it caused me to immediately lose all of my tearing ability with ZERO tears, followed with eye infections, a few months later in the dead heat of August, I woke up one morning shivering insanely with 103 fever & severe double pneumonia. I was so emotionally numb & dealing with constant eye drops to my eyes for moisture, that my mindstate was past trying to make sense of anything.  Anyway, I infact waited I think about 2 days before going to the hospital, I can’t really remember. I know that when I went in, is when my doctor immediately had me in for xrays, then I had to have catscans on my lungs. I knew that I was sick, but not as sick as what I was, & getting  worse. I didn’t have a cough, yet the pressure to my lungs was so strange. I recall as a teenager I had bronchitis a few times, but got over it. I never had anything, past having a cold in 40 yrs. I was in a strange fog during the fever & pneumonia. My diagnostics showed as the double pneumonia with a lot of scarring & emphysema to my lungs. My lungs  described by the doctor, that they looked like someone had taken a sand blaster to them. The same description [sandblaster] as what my eyes looked like a few days after I had the dysport . My God! What the hell? I didn’t even smoke. I did about 20 yrs ago, yet for the greater part of my life, I was an athlete & very athletic since 1990. Aerobic dance was my greatest passion & multi-step.  The zero tearing, damaged glands, eye infections progressed & crystallized into the tear-ducts of my eyes. This time last year, the physical, emotional & mental pain was beyond describing. I looked like a monster & freak. I scared my little dog & adult kids. I felt like I had leprosy in the eyes of others. I of course had to quit going to school [online]. It was only part time, & I was able to conform to audio study, but I couldn’t keep up. My studies,  sleep, dog & crocheting hats on a loom kept me sane at best.  I had enough when in the mornings this time last year, I would awaken & my eyeballs were protruding out of their eye sockets. My r-eyeball especially bulged so intense, that the crystallizing  had cut into my eyeball causing it to bleed. My opthamologist  & his staff did everything they could for helping me. I was even having to use my own plasma for my tear drops. The poison destroyed my system throughout my body, beginning with my eye glands & spreading to my lungs.  I have malt lymphoma cancer in my eyes. In May 2011, I had to endure 4 weekly Retuxin chemo treatments at 6 hr sittings. With a needle in my vein, while it was killing my cancer cells with my good cells. My first treatment, I had no idea if I would even live through the treatment because sometimes the body rejects the retuxin & it’s dangerous. I couldn’t fucking even cry. I hate needles. And to now have an incurable cancer because I had one Dysport treatment to not looked so stressed out.  I remember when I was so frantic in 2010, I was having to patch one eye,  determined to find out why such a thing was happening to me, & how superficial & casual could this VanderVeer blankety blank be when I was suffering so terribly bad? Her final words were 5 months that this is in my system. Until a few weeks ago, I called her again & let her have it. I asked her “How could you have done this, or allowed this to happen & not even call find out how I was doing? To see, if I was dead or alive”. Her only reaction was, “Valerie, don’t ever call me again, you can call my lawyer, & then she gave me the name”. What a dog! I trusted her, & her  so called reputable ads, website etc.. With the coupon special,  I’ll do something for myself at Christmas. I’m going to school & will reward myself. What a nice gift.

I have to really monitor my computer usage because I still have zero tearing ability since having the  dysport injections in 12/2009.

I feel so bad for myself, for all that I had gone through & the anger with insult to injury is so blinding in itself. It’s paralyzing in its own sick way, with the realization that these FDA poisons on the market are very influential & believable.

Unless you were born PERFECT  & have HONESTY WITHIN THE JUSTICE SYSTEM, WHICH INCLUDES the FDA, MANUFACTURED PRODUCTS & ABOVE ALL ELSE THE DOCTORS tO take full responsibility to their patients. It’s their jobs!  We put our trust in them & it’s imperative that they realize that we are not to be led through there coupon specials like a herd of cattle, just to make the bastards rich. This is so destructive & is harmful to put such risk to a patient/persons body. And [doctors~ VanderVeer] seem to have themselves covered so well & efficiently, when something wrong does happen. I recall how nonchalant & professional it was for her to offer me my $200.00 refund. Like it was a Monopoly game to her. Even while she was aware that my tear glands were completely damaged, as they had stopped immediately producing all tears. And corneas so irritated that resembled sandblasting . She is the president of her company & trains Botox, etc. She of course  knew what was going on with me. And kept me at a distance as the time passed.

I feel so bad for everyone suffering, as we all are. Everyone has their own personal experience. We’re all human & shouldn’t have to suffer.

I try to lay low & appreciate not having to put myself out there. I have a limit to exposure. However, I will do about anything for the good & to bring justice to… The DOCTOR, PRODUCT LIABILITY & OF COURSE THE FDA,

You’re all sincerely in my heart & prayers

Always Love with honor & respect