Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.
I received 26 units of Botox injections in my forehead on December 28th. I’ve had botox once a year for about 6 years with no issues. However. within a few days I noticed that my right eye felt a little droopy and numb. I also began to experience night sweats and intense anxiety, followed by tingling/numbness in my arms and legs, muscle weakness, dry eyes, brain fog and pain at the base of my skull. I immediately found this site, which of course scared me to death.
I began eating very healthy, drinking lots of water, sitting in the sauna at my gym, and working out every day – pretty much anything to flush this out of my system. I even went to an IV bar and paid $200 for a liver detox IV, along with Taurine and Tryphtophan for my anxiety. I also began taking neurotransmitter supplements (Taurine, Magnesium, GABA, Typhtophan, B6 and Niacin) at night. At about 2.5 weeks post injections, my symptoms seemed to subside. I felt normal again and thought it was over.
Then, right at about 4 weeks I got my period and holy cow did the symptoms come back worse than before. Intense tingling/numbness and weakness in my arms/legs, brain fog, intense night sweats and anxiety. I felt like my insides were burning, difficulty sleeping and shaky upon waking up. And I swear I’m noticing muscle atrophy around my shoulders and elbows, although this might be in my head.
I read posts on this site and see people experiencing much more severe symptoms and I’m very scared that I’m just at the beginning of this nightmare. I’d love to see some sort of timeline. Meaning, those who experience severe symptoms (having to drop out of work, can’t get out of bed, going to the hospital), did those symptoms come on immediately and then get better? Or were your symptoms mild at first and progress over the next few months?
I guess I’m wondering how much worse this is going to get. If I’m 4 weeks out and the symptoms are mild/moderate, does this mean it’s the worst it’s going to get? Or will things progressively get more severe?
I’m getting married in 8 months and am terrified that I’m not going to be able to walk down the aisle or enjoy my wedding day because of this stupid toxin!
Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks
Hi there, Swallowing has been by far my worst symptom and while I’m feeling so much better at 4 1/2 months , it seems the swallowing thing just moves down lower into my throat… It started at the top and whenever I think it’s starting to feel better, I wake up the next day and it’s farther down. I was finally comfortable and was starting to eat solid food again and now I’m back to the smoothies and stuff… Thank you Anne88 for the recipe..
Has anyone else experienced this?? Is it on its way out or somewhere else?? Does it ever just go away?? Other than the swallowing and a few pins and needles I’m feeling great and my days are back to normal…
Special thanks to my husband, god bless him, he made the last 4 1/2 months almost stress free for me..He took care of everything…He Said rest and be better… And that’s what I did.. I know Im probably not done with this yet, but hopeful the worst is behind me… I won’t be surprised if the symptoms show up again, but If they do, I will be better prepared and thanks to chgofit16, I will head straight back to this forum chicken light in hand… Thank you all so much… I wouldn’t have known what to do without you…Praying for all of us…
I should say, I’ve been seeing Dr. Larisa.. Thank you Soloist for the recommendation… She doesn’t claim to cure anyone, but I have to say everything about seeing her has helped me feel better… I didn’t take the supplements she recommended, only because I didn’t feel like I needed them… I’m saving them just in case the awful days return… She’s wonderful, if you’re feeling lost and don’t know what to do… Call her… She is great source of support, comfort and knowledge….
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Hi everyone, I’m new to this site and am so grateful to find I’m not alone. I’m just wondering if my issues sound Botox related? I’ve had all the testing done (Opthsmologists, neurologist, rheumatologists, CT scan, MRI etc) & no one can figure out what’s going on – most attribute to anxiety (which I certainly know is not the case!).
ive had joint/nerve pain for past 6 months (buzzing between my elbows to hands/fingers and knees to gets/toes). But after my last injections (in late March 2015), I’ve had eye problems. It started with pain behind my left eye, then became strained when focusing (eg, reading/using computer) and strain would lead to slight blurriness. Then I contracted conjunctivitis, then my cornea scarred up, healed, but then I had blurry vision, pupil would dilate (and pupil spasm) and double vision. I’ve also had eye test which shows my vision has changed in just a few months.
I’m absolutely terrified because I can’t work and am in constant pain with eye and body (with occasional moments of relief). I can’t use computer (I’m only using one eye to type this on my phone). I don’t have family or partner to help and my friends just don’t understand. I’ve been referred to neuro – opthamologist, but that could be months off.
I eat paleo, no sugar, no caffine, no alcohol etc…but doesn’t show any improvement with symptoms.
I also have terrible insomnia, and get bouts of extreme anxiety, and severe depression when I wake up.
This site has offered me the only bit of hope I’ve had so far. Do my symptoms sound Botox related? And does anyone have any similar experience or have advice or help? I’m desperate ?
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I have been having some teeth related issues and want to know if anyone has any recommendations. Over the past 6 or 7 months I have noticed that my teeth have changed. There is more spacing between them and when I brush them they don’t feel the same. Also, there is a transparent look to them. I have been using a special toothpaste for enamel, but I don’t know if it is helping. I have also been taking a mineral supplement. Another support member has been having problems with teeth related sensitivity to eating cold foods and has had a tooth break off.
Thanks so much!
Wishing everyone lots of healing.
Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows. The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen. I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result. A few days later I started noticing bladder issues and problems swallowing. I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues. A couple of weeks later I noticed a triangular shaped dent in the center of my forehead. That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined. I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia. Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night. The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see. Frownies have helped somewhat but its very temporary. This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously. Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS. My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease). I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help. There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work. I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working. I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt. I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP. IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse. If anyone has info, be it good or bad, I’d love to hear from you! I want answers.
Hello to all, I am from Spain and received 2 injections of botulinic toxin(BOCOUTURE from Merz Pharma) I think in the USA the name is Xeomin. I didn,t know it was Bocouture I sign my consent for Botox. I was desperate to find a solution for my eustachian tube I was injected twice with only one month apart for my patulous eustachian tube. After my first injection I notice tingling in my hands and 7 days after the second injection, I suddenly woke up red all over and a terrible pain descending from my neck down to my spine till my feet, I had muscle pain all over and felt like the flu had hit me. I called the ENT and said it had nothing to do with the botulinium toxin and has never helped me. I went by myself to a lot of doctors at no avail. My blood tests showed I had a high level of Protein C reactive, and hormones and C3 and cholinesterasa all messed up. This was in December 2013, now it is one year after and I have muscle twitching, nerve pain,muscle spams all over my body. They have decided that I have a small fiber neuropathy but they say that this is the 1st time they see such a thing and my feeling is that they don,t think it is BT related although is obvious. I feel alone and every day is a struggle. after Reading your posts I am releived to see thay I am not the only one. My lawyer says we can not sue them if we don,t have a proof. The only thing I do is to tell everybody about it and warning not to put such a toxin in their bodies!! In Spain there is not much help for health alternatives. If you could please help me on the nerve, muscle pain I would appreciate it very much. I wish this nightmare stops one day for all of us. Hugs to all from Spain P:S: Hope you understand my story, english is not my mother language
I’m new to the site and haven’t seen any posts re forehead dents appearing after being injected with Botox. March 8, 2013 I had my forehead and 11 lines injected with Botox, after receiving shots once a year for about 8 years with no problems. Well, 3/8/2013 Hell began. That night my eyes and upper face swelled up so much, I looked like I had fetal baby alcohol syndrome, said my pharmacist husband. Next morning I was unrecognizable. It was a Saturday, so after paging the dr several times unsuccessfully, I got ahold of her partner, who relayed my messages. Finally, she responded and I went to her office. Of course, her first comment was, oh, I thought it would be worse!
I’ll save you all the rest of her in-denial-it’s-not-from-Botox comments. She prescribed a medrol dose pack (strong steroid for severe swelling) for two weeks. In the meantime. I began having severe dry, red, itchy eyes. There were huge bags under my eyes. Oh, the worst part, her first needle stick that day struck my supraorbital nerve, which felt like a nail gun going straight to the back of my head! Excruciating pain. My forehead is still numb 17 months later. Following week, I saw two very prominent plastics surgeons for consult. Both were very concerned and took photos and asked if Allergan was notified by the dr who gave the shot. I was off work two weeks due to unsightliness and dry eyes and blurry vision. After a month or two, those symptoms subsided. Well, fast forward 4 months when the Botox started wearing off, and I noticed small dents appearing in my forehead, that to this day, 17 months later, are still there. And the top of my forehead and upper scalp are numb still from nerve injury from the needle. So, my question is has anyone had these dents form and, if so, did they go away. I’m scared they’ll be there forever. It’s embarrassing because they’re so obvious and I’m self-conscious. Next week I see one of the docs who evaluated me right after the shot, to get his opinion. Then September 5, I see the other doc who evaluated me right after the shot. I’d really appreciate it if someone out there who has also experienced these dents would reach out and let me know how they’re doing. By the way, the dents are there 24/7. I’m not squinting.
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
Hi All, I am new to the post. I had my most recent injection crows feet with Dysport on Jan 10, 2014. What was I thinking… prior to that had Dysport on Oct., 22, 2013 and had full blown chest pains, heart palpitations, droopy eyes and blurry vision, insomnia, memory loss, tingling, dehydration, mouth sores. I honestly thought it was the flu and my body was just reacting, I now know it was the injection. For some crazy reason I thought I was better and went for that injection in January. I am so STUPID!!!!! I have been using botox and Dysport for 6 years WHAT HAVE I DONE!!
After the injection on Jan. 10 I just had a little blurry vision, which I always blame on my contacts and dry eyes. Onset of symptoms came 10 days later with chest pains, heart palpitations, blurry vision, insomnia, memory loss, tingling, dehydration. The worst is the Insomnia and no appetite… I am afraid to eat. I went to doctor Blood work PERFECT! Went to cardiologist EKG perfect…. they all said don’t do anymore botox. I feel as if my memory loss and confusion are getting worse. My breathing is okay just tight throat, no heart palpitations in the past few days. My muscle tone is barely there. My arms tingle and at times I feel itchy on my dry fingers and elbows. Insomnia and anxiety are full blown, I am a real sleeper so this is making me confused more.
WHAT TO DO??? Please advise, I am scared I am going to die and doing this all alone. My vision is still weird but clear… Any help for anything is greatly appreciated. What can I eat so that this doesn’t get worse, what can I take? Do I go to emergency room? Will my breathing stop? I am so scared…
I am so sad and lost xo
I go back to the psychiatrist tomorrow morning. I’ve tried zoloft and now paxil for my anxiety. Both seemed to work for a short period of time, but then symptoms came back with a vengeance. Clonazpam works well. I’ve read past posts. I really want to get off the paxil and not try anything new. I’d like to just take the Clonazpam when things get really bad. Usually 1/2 of one works (not sure of the dosage, but it melts in your mouth). The problem is that I have several family members (extended) that have anxiety. So do I really need it, or is it just the botox?
I like the simple format, so her is what works for me.
1. acupuncture, more than probably anything else.
2. massage. Like someone else said, at times it annoys me and at times it makes me worse, but when it’s good, it is damn good.
3. Eating clean with a lot of added vitamin B12 and probiotics. I feel like too many supplements can aggravate the toxins.
4. Talking about it with my husband. Crying it out when I need to. I don’t bother to tell anyone else because really, they can’t understand.
5. Wine. But we’ve been friends for a long time =-)
What DOESN’t work
2. Strenuous, new exercise. I tried I total body conditioning class the other day and 3 days later I was full on symptoms.
3. Not sure what else. We need to start keeping track of triggers.
Finally, I know that this has effected our nervous system. I know the toxins are in my body. I feel the twitches, swollen glands, hear the horse voice, am now experience skewed vision, etc. But what is the goal? Are we suppose to let our bodies rest or are we suppose to fight hard to get it out?
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I was hoping there are people on here who have experienced this (as I am worried the operation made my situation worse). I am also hoping it went away. My arm and wrist and sometimes my hand and down one side of my back turns cold… like its being dipped in ice water and so weak that it gets difficult to move my hand and my arm feels so weak. Once today it was also on the right side of my head. It comes and goes through out the day, but at night while trying to sleep it is constant. Please let me know if you experienced this and what you did for it. Thank you!