Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
I received 26 units of Botox injections in my forehead on December 28th. I’ve had botox once a year for about 6 years with no issues. However. within a few days I noticed that my right eye felt a little droopy and numb. I also began to experience night sweats and intense anxiety, followed by tingling/numbness in my arms and legs, muscle weakness, dry eyes, brain fog and pain at the base of my skull. I immediately found this site, which of course scared me to death.
I began eating very healthy, drinking lots of water, sitting in the sauna at my gym, and working out every day – pretty much anything to flush this out of my system. I even went to an IV bar and paid $200 for a liver detox IV, along with Taurine and Tryphtophan for my anxiety. I also began taking neurotransmitter supplements (Taurine, Magnesium, GABA, Typhtophan, B6 and Niacin) at night. At about 2.5 weeks post injections, my symptoms seemed to subside. I felt normal again and thought it was over.
Then, right at about 4 weeks I got my period and holy cow did the symptoms come back worse than before. Intense tingling/numbness and weakness in my arms/legs, brain fog, intense night sweats and anxiety. I felt like my insides were burning, difficulty sleeping and shaky upon waking up. And I swear I’m noticing muscle atrophy around my shoulders and elbows, although this might be in my head.
I read posts on this site and see people experiencing much more severe symptoms and I’m very scared that I’m just at the beginning of this nightmare. I’d love to see some sort of timeline. Meaning, those who experience severe symptoms (having to drop out of work, can’t get out of bed, going to the hospital), did those symptoms come on immediately and then get better? Or were your symptoms mild at first and progress over the next few months?
I guess I’m wondering how much worse this is going to get. If I’m 4 weeks out and the symptoms are mild/moderate, does this mean it’s the worst it’s going to get? Or will things progressively get more severe?
I’m getting married in 8 months and am terrified that I’m not going to be able to walk down the aisle or enjoy my wedding day because of this stupid toxin!
Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?
Hi all, I want to share my Botox experience to warn others.
I received Botox for the first time 2 weeks ago. Having injections around my eyes, between brows and above brows for cosmetic purposes.
This is my Botox diary below..
Botox injections at 12 pm
Bruise to one injection site on right hand side of my temple/crows feet lines.
Black dots in front of eyes for a few moments after the Botox
went home and rested.
Hot and cold tremors and awful feelings of anxiety by 6 pm onwards
Clammy hands and feet
Couldn’t eat all day after injections
Anxiety remained and got no sleep. Dry mouth
Pain to right side of temple
Anxiety hell/Deep feeling of dread
Twitching right eye
Couldn’t eat all day complete lack of appetite
Slept well tho
Slight Anxiety but much better
Twitching left eye – black dots in front of eyes twice
Dry mouth – peeling inside of bottom lip
Was able to eat lunch & dinner with effort
Not feeling like myself & low
Anxiety almost gone
Still have dry mouth
Still don’t feel like myself
Didn’t sleep well, woke 3 times during the night with hot sweats, bed soaked became a bit anxious after waking each time
From day 5 till now (day 14) symptons have gone, anxiety has gone but still get twitching in left eye and black dots in front of my eyes when in bright sun light.
I am hoping this was it for me, a short spell of hell, & never to return. I will never have Botox again even tho the results are good those few days of hell knocked me for six I have never experienced anything like it in my life and never wish to again!
I had botox injections 2 months ago. He injected around my eyes, corner of mouth and top of my cheeks. I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth. They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too. That night my cheeks were sore to the touch and I couldn’t sleep on my stomach. 3 days later I started feeling sick. I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes. That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear. She gave me the Z pack. I took that for 5 days. I felt better for about a week, and then the symptoms came back. My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.
I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.
2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin. I took it for 4 days and I thought I was going to die! I got terribly sick and couldn’t function. I stopped taking it, and the next day I felt good. But not for long. Symptoms reappeared once again.
I am a healthy person and work out 3 days a week. I’m in good shape and not overweight, and take care of myself. So I don’t understand what is happening to me.
I decided to go to a ENT doctor. I explained to him how I felt. He examined me, and found nothing. I told him I had botox and he said nothing. He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works. I felt sick on and off with the pill. I ended the pill 2 days ago and my face still hurts and I still have symptoms. I have been putting ice packs on my cheeks and it helps a little. Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!
At this point I don’t know what to do. I know its the botox that is making me feel this way. There is no other explanation. What can I do to get this poison out of my system? Can anyone help me? Thanks for listening.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
It seems that the majority of people here have had complications with Botox. There are a few people who mentioned that they had Botox along with fillers and were sick. I am wondering if there is anyone who suffered an injury from a filler alone.
With all of the people experiencing various side effects, why hasn’t a class action lawsuit been filed against the manufacturer? Mu neuorologist refuses to believe that my symptoms are related to the shots, but the person I spoke to at Allergan said he had heard most if not all the symptoms I am reporting. It seems like they publish only the symptoms of the test cases and not the ones experienced by the real life users/suffers. Does anyone know of a pending lawsuit?
I was wondering if any of the ladies on this forum have had a mammogram that shows multiple calcifications, or little white dots, which are a sign of inflammation.
Now that I look back on it, I wonder if this was a sign my body was reacting negatively to Botox going systemic?
I started getting Botox in 2007.
In 2009 I had the mammogram. The calcifications were not in clusters which was a good sign I did not have cancer. However, I had a core biopsy to rule out cancer, with one of the best local radiologists (yes, that was nerve wracking!)
Here’s where it gets interesting: I was told that they don’t see this many calcifications or this much inflammation until a woman is 65-75 years old. And I was 42. I was very physically fit, and very active in my work and family life. I always ate a low fat diet, and never touched drugs. Why did I have this inflammation?
I continued to get Botox (regrettably).
Then in late 2010, the first signs of botox toxicity began with increasing fatigue. One year later I was off work due to illness, and was dealing with insomnia, extreme anxiety, trouble swallowing, multiple chemical and food sensitivities and struggling to breath.
So, I would like to know, has anyone else had a mammogram showing inflammation? I remember thinking to myself, if this is showing up on a mammogram, is the rest of my body inflamed too?
I feel this was likely one more sign that Botoxhad become systemic.
Looking forward to your brilliant feedback as always!
head feels pressure burns indide the head ringing in the ears burning in the ears nasseous dizzy space out anxious need help please email me on reply
I cannot believe how ill I feel. I am on day 9. I had 37 units of Botox around eyes and forehead. I really wish I could turn back the clock. I am 47 years old, My daughters begged me not to do it. Day 2 buzzing in the head and ears, day 3 after the most horrific night of my life with hot and cold flashes, insomnia chest palpitations ,my head felt on fire,anxiety I went to the emergency room who could nothing but give me Xanax. I took the Xanax, slept friday night felt ok Saturday, took another Saturday night felt ok Sunday. Thought hmm i’m ok now so did not take one Sunday night. Monday my ears started to buzz felt unwell again, so I took one monday night, woke up the next morning, ears blocked, dizzy weak, a friend took me back to the dermatologist who said he has never had a reaction like this, he looked in my ears said they look stuffed,he wanted to give prednisone but i had it once before horrid side effects. So he said well maybe sinus infection, he gave me a zpack and i took a double dose of that and a sudafed. I have been up all night with full blown again like day 3…worst night of my life.full pins and needles, hot/cold flashes, anxiety. My husband is away on business and i am so so scared. I am not sure wether to take the z pack today or take a xanax or both.I have never taken pills in my life. I have a trip booked to visit my parents in the UK tuesday, I have not been back in 3 years. I am going to have to cancel today. I am beyond devastated. My derm emailed me this morning and said there is a medication called Lyrica that is used to help with nerve pain, but it has side effects of its own. Others medications that can help with nerve pain are antidepressants and mild tranquilizers like Zolft and Xanax. Given your history of sensitivity to medications, I think a short course of Xanax taken at night might be the safest bet in getting you through this. My Family Dr said the same take the Xanax. My question is… is there anyone out there that only has this for a few weeks and makes a full recovery or do i have to tell myself this is it for me, I’m done? My vanity has ruined my life and my families life for good.?
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much
I am really really struggling. I am now in Month 32…was hoping to start 2013 with high hopes…that this would be the year to really make some progress. Unfortunately I am having yet another what seems to be the start of a major relapse. Granted….I struggle every day and am only 30% of what i would call my normal functioning self…..so I at times feel that I am in a perpetual relapse. But I am now experiencing a significant downturn in my condition over the past week. I am petrified. I am having some symptoms that I haven’t had since the start of my relapse. The intense vice grip head pressure is back ….the intense eye pressure….the jumping at any sound…chills/sweats…nausea…the intense nerve pulsations …the dry mouth and eyes is back…the tingling down my face…intense fatigue even upon walking across the room…and the ANXIETY is excruciating. It shoots out of my brain and into every cell of my body. I can barely breathe. I feel like I am back at Month 2. I am exhausted. I can’t do this again. I told myself if I got hit with another round of this instensity…I just couldn’t do it. It is too hard. This stuff has somehow been resurrected to full force…like it has found new life…the intensity just as severe as it was in the beginning. It is too much. I am losing my strength. Every minute of the last 2 days has been like being plugged into a electrical outlet. I am back to shaking, tremoring and crying uncontrollably. I am praying to God for help. I can’t live this tortuous life anymore.
Hello, I have had a laser on my face on December 2011 and 1 month before, the injection of 125 dysports units on my face. One hour after the laser, eye problems begins, nausea, dry mouth appear, difficulty to speach … 9 months of Horror.. Today neurologic symptoms are decreasing but my face is swelling, i souffer of a very big edema. Does anyone have the same edema? And does It disappears? Tank you
I have had botox done for several years on my brow and around my eyes. I did have the headaches but I suffered through them. At my last visit I asked the nurse you was giving me the botox injectionw what i do do for the wrinkles above my upper lip. She said that she had botox injections there and it worked. So I trusted her and said OK however it turned into a disaster. She injected the needle right through my skin and injected the botox into my mouth which proceeded to drip dpwn my throat. Of course I freaked out but she assured me that it was duuted and I would be fine. Not!!! I feel like Im dying a slow death. I can barley swallow. I feel like a have a ball stuck in my throat. I also have a severe sore throat. I’m exhausted all the time. Even after a good night sleep. I have been a runner for ten years and now I feel like im running in quicksand and never complete my run. Im nervous that it might of had some effect on my thyroid. Has this happened to anyone??? I dont know what to do and Im a wreck. Help!!!
Hello dear friends
I have had a few minor relapses since i last posted. my symptoms included the mental anguish & anxiety which for me is really the absolute worst part, along with muscle weakness & headaches. as soon as i start back on the Activated Charcoal i have gotten better again. this has really been working for me in a big way, so i wanted to post again. as i said previously i tried this before in hospital and felt no change but when i got larger doses into me & used a good quality Activated Charcoal made from Bamboo things really changed. has anyone else has tried these doses ? its worth a try …
charcoal adsorbs the toxins in the body. i took 5 or 6 capsules of best quality i could find 5 to 6x a day for a few days then taper off.
secondly i used fresh organic turmeric. ! tbs in honey 2x a day.
Hi, I’m 4 days post Botox injection and feeling really unwell. Why is Botox allowed to be sold as a ‘safe’ drug? I had 75 units in my forhead to smooth out a frown line. When I had this done I felt that it would be okay and I did it as a ‘take time out for myself activity.’ Having three children is busy and you don’t always get to do that. I’m hoping that in time recovery will come but I know it will be a process as my brain feels really foggy due to neural pathways being blocked and my whole body is weak. I was very healthy before this but I feel this is a huge setback to my wellbeing. I feel very upset ubout what this drug does to people. I talked to a phone counsellor about the the devastation I am feeling and my concerns about how this will impact on my family. She talked me through a breathing meditation and encouraged me that there is a place in this world for ‘small beginnings’ and to be very kind to myself while i’m rebuilding my life slowly. Any words of encouragement here are greatly appreciated. I would love to here some success stories along the road to recovery.