Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
Is there anyone located in Oregon with advice for ongoing adverse affects from Botox? I have been to every doctor I could get in to. GP, neurologist, Psychiatrist, ER . None of which have any ideas, answers or advice. I suffer from severe anxiety, aches in my bones, muscle atrophy, weight loss (40#), no appetitive, chest pain, and nausea. I am 6 months out from last Botox injections. Will this ever end? This is truly a nightmare. If only there were a doctor that would show an interest in figuring this out. I have called Allergan several times. Their answer, “We recommend you contact your provider for this, we have no data to support your symptoms.” Oh my gosh! Is there any research going on? It seems there are a lot of people suffering.
Someone, please help!
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Hi all, I want to share my Botox experience to warn others.
I received Botox for the first time 2 weeks ago. Having injections around my eyes, between brows and above brows for cosmetic purposes.
This is my Botox diary below..
Botox injections at 12 pm
Bruise to one injection site on right hand side of my temple/crows feet lines.
Black dots in front of eyes for a few moments after the Botox
went home and rested.
Hot and cold tremors and awful feelings of anxiety by 6 pm onwards
Clammy hands and feet
Couldn’t eat all day after injections
Anxiety remained and got no sleep. Dry mouth
Pain to right side of temple
Anxiety hell/Deep feeling of dread
Twitching right eye
Couldn’t eat all day complete lack of appetite
Slept well tho
Slight Anxiety but much better
Twitching left eye – black dots in front of eyes twice
Dry mouth – peeling inside of bottom lip
Was able to eat lunch & dinner with effort
Not feeling like myself & low
Anxiety almost gone
Still have dry mouth
Still don’t feel like myself
Didn’t sleep well, woke 3 times during the night with hot sweats, bed soaked became a bit anxious after waking each time
From day 5 till now (day 14) symptons have gone, anxiety has gone but still get twitching in left eye and black dots in front of my eyes when in bright sun light.
I am hoping this was it for me, a short spell of hell, & never to return. I will never have Botox again even tho the results are good those few days of hell knocked me for six I have never experienced anything like it in my life and never wish to again!
I had botox injections 2 months ago. He injected around my eyes, corner of mouth and top of my cheeks. I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth. They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too. That night my cheeks were sore to the touch and I couldn’t sleep on my stomach. 3 days later I started feeling sick. I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes. That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear. She gave me the Z pack. I took that for 5 days. I felt better for about a week, and then the symptoms came back. My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.
I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.
2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin. I took it for 4 days and I thought I was going to die! I got terribly sick and couldn’t function. I stopped taking it, and the next day I felt good. But not for long. Symptoms reappeared once again.
I am a healthy person and work out 3 days a week. I’m in good shape and not overweight, and take care of myself. So I don’t understand what is happening to me.
I decided to go to a ENT doctor. I explained to him how I felt. He examined me, and found nothing. I told him I had botox and he said nothing. He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works. I felt sick on and off with the pill. I ended the pill 2 days ago and my face still hurts and I still have symptoms. I have been putting ice packs on my cheeks and it helps a little. Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!
At this point I don’t know what to do. I know its the botox that is making me feel this way. There is no other explanation. What can I do to get this poison out of my system? Can anyone help me? Thanks for listening.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
Hello….hopefully I am in the right place for some help or peace of mind. I am 41 very active. In the gym 4 nights a week & work in outside sales & marketing in the medical field. I got my first Botox injections on March 7, 2014, I am 9 weeks from injection date. I had 10 units in my forehead & 18 above my eyebrows & in between my eyebrows…sorry I don’t know the technical term. The area above my eyebrows did look swollen for almost 2 weeks after injections.
So let me start with right after injections. Within in a hour or less I started to get a headache. The pain came mostly from the front of my head. 4 hours after injections I felt like I needed to blow my nose…it kind felt like my nose was kind of stopped up. When I blew my nose nothing but blood was coming out. I blew & blew to get all the blood out. At this point I thought holy crap what is going on? I started to worry a little at that point. It was late & I couldn’t call the Dr. who did the injections. Now on to the next day….my forehead hurt so bad if I didn’t know better I would have thought my forehead was severely bruised, although it wasn’t. This pain last for 6 days after injections. I could barely touch my forehead. I went 3 days without washing my forehead the pain was so bad. I did go back to the Dr. After 3 days of injections & only got the “your crazy” look & reply. I talked to the dr about the possibility of to much being injected & allergic reaction she said no. All during this time my forehead was so itchy too, but without a rash. I did have a few tiny bumps, but not really a rash. I also started to have flu like symptoms after 5 days after. Runny nose, body aches, feeling of sinus pressure, tired feeling. At times I have also felt nausea. About two weeks after injections I woke up in the middle of the night feeling as if I was being smothered.
For 2 months now I have experienced sinus problems off & on. This month the sinus problem put me at the dr office for antibiotics for a upper & lower respiratory infection. I finished the medicine 2 weeks ago. Now I have a soar throat & sinus pressure again. This is getting ridiculous! I am staring to wonder is all this is from the Botox. I love the looks that Botox has given me, but is not worth it if all my problems are due to Botox. I am open for any comments, advice or help. If this is from Botox when is all this going to go away & I’m going to feel healthy like I use to?
Here are a recap of everything I have experienced in the last 9 weeks…
*forehead pain, bloody nose, headaches, body aches, tiredness, sinus pressure & sinus infection, lower respiratory infection, shortness in breath, at times nausea, sore throat.
Sorry my post is so long. I just wanted to get all the details out there for help.
one other thing I am allergic to latex & neosporne. Don’t know if that matters or not. The dr never asked me if I was before injections.
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I found this website by searching for botox insomnia and was a little relieved to see that I’m not the only one suffering from this. Actually, it’s the headache/nausea/insomnia/anxiety combination that is scaring me.
I had several rounds of Botox several years ago and never had a problem at all. The only reason I discontinued was because of the money involved. I liked the effect it had on my forehead but couldn’t justify the expense at the time.
I switched Drs. and had a round about 4 months ago and didn’t have any problems that I was aware of then. I did notice dry mouth at night and thought it odd, but figured it was just another aspect of aging.
I had botox again about 2 weeks ago and about 5 days after that I got a dull headache. Not too bad but noticeable. It has since gotten a little worse. It feels like it’s behind my eyes. It’s not always present and the nausea usually starts about mid-day. Sleeping is only possible with drugs to help me and even then I’m waking up at 3 or 4 am every night. I noticed that happening the last time I had Botox but never put 2 and 2 together then. I haven’t had a full nights sleep in over a week. My eyesight also feels like it has changed in the last week or so. I’m much more sensitive to light that I was.
Actually, I was so freaked out that I went and had an HIV test to see if it was seroconversion illness. I thought having that come back negative would put an end to the headaches, in case they were stress related.
I mentioned it to the Dr. who injected me but not surprisingly, he seems to think that it must be something else because “I’ve never heard any of my other patients complaining about this… go see your GP”. I know what my GP would say… “talk to the person who injected you and stop putting that crap in your body”. I may go back to the Dr. who did the injections with the documentation from the Allergan site and ask how he can rule out Botox as a possibility.
Though I don’t feel like eating, I can (except for one rather unappetizing meal last week) and though I feel like vomiting, I haven’t.
It’s certainly been the oddest thing I’ve gone through, as well as the scariest. I don’t feel normal in my own skin, which is very disconcerting.
So I guess my question to the group is, do you think this is Botox related or is it possible that there is something else at play?
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
Something sort of snapped in me about a week ago, and the mornings have become unbearable. When I wake up it’s like 90% of me is still asleep. My eyes are swollen and heavy and nothing is moving in real-time. There is strong, high-pitched ringing in my ears. This weekend, both days I slept from about midnight to 10 a.m. and had no great obligations during the day, spring weather, should be a pleasure. But getting up has been the most wretched ordeal imaginable. I splash cold water on my face, slap myself, drink tea, do anything I can think of but I’m moving in this heavy heavy mush of existence. Yesterday I made it all the way to the gym still in this state about 3 hours after waking up. The world was whizzing by me and I’m in this dense bubble. During the day I take 0.5 mg or 1.0 mg of Depas (same as equiv. doses of Ativan) and I might sort of start to come around by mid-afternoon, and by evening I’m more disoriented and dizzy than I am brain-fogged. This pattern doesn’t correlate with any of the psychiatric medications I’ve tried either. I keep a diary and I traced that route. My partner noticed it too the couple of nights I stayed with her about a week ago. Two weeks ago mornings were still crap, but I could sort of scrape myself together. This is so rough.
head feels pressure burns indide the head ringing in the ears burning in the ears nasseous dizzy space out anxious need help please email me on reply
I am 29, I suffer from botox for 13 months.
I have discovered something amazing.
When I wear my sunglasses (all the Time during one month) my neurologic symptoms disappears.!! All of them.
But at this moment my face is swelling. It is amazing, It works, I want to share you my observation.
But I have since à big edema, It is not a perfect solution.
Sunglasses makes symptoms disappears for me, but create a new one : my face is swelling.
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much
I am really really struggling. I am now in Month 32…was hoping to start 2013 with high hopes…that this would be the year to really make some progress. Unfortunately I am having yet another what seems to be the start of a major relapse. Granted….I struggle every day and am only 30% of what i would call my normal functioning self…..so I at times feel that I am in a perpetual relapse. But I am now experiencing a significant downturn in my condition over the past week. I am petrified. I am having some symptoms that I haven’t had since the start of my relapse. The intense vice grip head pressure is back ….the intense eye pressure….the jumping at any sound…chills/sweats…nausea…the intense nerve pulsations …the dry mouth and eyes is back…the tingling down my face…intense fatigue even upon walking across the room…and the ANXIETY is excruciating. It shoots out of my brain and into every cell of my body. I can barely breathe. I feel like I am back at Month 2. I am exhausted. I can’t do this again. I told myself if I got hit with another round of this instensity…I just couldn’t do it. It is too hard. This stuff has somehow been resurrected to full force…like it has found new life…the intensity just as severe as it was in the beginning. It is too much. I am losing my strength. Every minute of the last 2 days has been like being plugged into a electrical outlet. I am back to shaking, tremoring and crying uncontrollably. I am praying to God for help. I can’t live this tortuous life anymore.
Hello, I have had a laser on my face on December 2011 and 1 month before, the injection of 125 dysports units on my face. One hour after the laser, eye problems begins, nausea, dry mouth appear, difficulty to speach … 9 months of Horror.. Today neurologic symptoms are decreasing but my face is swelling, i souffer of a very big edema. Does anyone have the same edema? And does It disappears? Tank you
I was hoping at this time to say I am recovered but I am not. My initial though was I would be fine within a year. I was healthy, fit and eat well. Didn’t many of us think this?
I no longer have anxiety or brain fog. Swallowing isn’t a problem either. My muscles spams and twitching is much less.
What remains is spine pain and intercostal pain. My pelvis is still having spasms and I still have sciatica. I also have stomach issues on and off and my ears are full most of the time and ring. I have dislocated bones from spasms that are so violent. At times the pain is so bad I just shake and want to pass out. I feel like my body is going into shock.
Over the past to year I have pretty much tried everything.
Acupuncture ( helped my head issues the most)
Epidural and trigger point injections- helped at first then seem to make things much worse.
Medication- I prefer Lidoderm Pads for pain and Flector for swallowing, and Aleve. Antihistamines for the itching and rashes. I carry an Epi pen just in case. Muscle relaxants as needed.
I have tried other meds but nothing really helps.
Physical therapy and chiropractic has helped the most. I have also had many tests, like many of us have. All negative.
My symptoms started with full like symptoms and a rash and hives. I stopped breathing and had difficulty swallowing, anxiety, muscles pain ,spasms,depression,burred vision and most of the symptoms on the list as well as some added ones. I am still alive and fighting.
I am starting hyperbaric chamber treatment tomorrow. I will keep you all posted on the results.
If it wasn’t for the support of the people here, I don’t think I would make it though this. I am sorry for all your struggles and hope that we all will someday come back and say we are RECOVERED!
I did Botox 4 days ago. Within hours I felt horrible. Panic attacks. My whole body burning. Dizziness. Tremors. Depression. I went To ER FOUR times and am being told I have anxiety. I never did before and this came on a few hours after injections?! Come on! I call bullshit! Im so angry. I have a 5 month old baby at home who needs me. This is debilitating! They are treating me with Ativan but it’s not enough. I need antidepressants. And a good neurologist who specializes in the nervous system. And I hope I don’t die! I’m reading about deaths and brain damage! Any input on which antidepressant works and how to manage like this would be greatly appreciated!