I have just come back from hospital I’ve had a lung function test Cause my breathing has got so bad. They have said only 60% of my lungs are working other 40%are paralyzed. I’m so very scared now I feel the little bit of hope I.had is now gone, she said my whole respiratory system has been compromised cause damaged my heart too. I really feel now I am just slowly dying.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
Hello….hopefully I am in the right place for some help or peace of mind. I am 41 very active. In the gym 4 nights a week & work in outside sales & marketing in the medical field. I got my first Botox injections on March 7, 2014, I am 9 weeks from injection date. I had 10 units in my forehead & 18 above my eyebrows & in between my eyebrows…sorry I don’t know the technical term. The area above my eyebrows did look swollen for almost 2 weeks after injections.
So let me start with right after injections. Within in a hour or less I started to get a headache. The pain came mostly from the front of my head. 4 hours after injections I felt like I needed to blow my nose…it kind felt like my nose was kind of stopped up. When I blew my nose nothing but blood was coming out. I blew & blew to get all the blood out. At this point I thought holy crap what is going on? I started to worry a little at that point. It was late & I couldn’t call the Dr. who did the injections. Now on to the next day….my forehead hurt so bad if I didn’t know better I would have thought my forehead was severely bruised, although it wasn’t. This pain last for 6 days after injections. I could barely touch my forehead. I went 3 days without washing my forehead the pain was so bad. I did go back to the Dr. After 3 days of injections & only got the “your crazy” look & reply. I talked to the dr about the possibility of to much being injected & allergic reaction she said no. All during this time my forehead was so itchy too, but without a rash. I did have a few tiny bumps, but not really a rash. I also started to have flu like symptoms after 5 days after. Runny nose, body aches, feeling of sinus pressure, tired feeling. At times I have also felt nausea. About two weeks after injections I woke up in the middle of the night feeling as if I was being smothered.
For 2 months now I have experienced sinus problems off & on. This month the sinus problem put me at the dr office for antibiotics for a upper & lower respiratory infection. I finished the medicine 2 weeks ago. Now I have a soar throat & sinus pressure again. This is getting ridiculous! I am staring to wonder is all this is from the Botox. I love the looks that Botox has given me, but is not worth it if all my problems are due to Botox. I am open for any comments, advice or help. If this is from Botox when is all this going to go away & I’m going to feel healthy like I use to?
Here are a recap of everything I have experienced in the last 9 weeks…
*forehead pain, bloody nose, headaches, body aches, tiredness, sinus pressure & sinus infection, lower respiratory infection, shortness in breath, at times nausea, sore throat.
Sorry my post is so long. I just wanted to get all the details out there for help.
one other thing I am allergic to latex & neosporne. Don’t know if that matters or not. The dr never asked me if I was before injections.
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I found this website by searching for botox insomnia and was a little relieved to see that I’m not the only one suffering from this. Actually, it’s the headache/nausea/insomnia/anxiety combination that is scaring me.
I had several rounds of Botox several years ago and never had a problem at all. The only reason I discontinued was because of the money involved. I liked the effect it had on my forehead but couldn’t justify the expense at the time.
I switched Drs. and had a round about 4 months ago and didn’t have any problems that I was aware of then. I did notice dry mouth at night and thought it odd, but figured it was just another aspect of aging.
I had botox again about 2 weeks ago and about 5 days after that I got a dull headache. Not too bad but noticeable. It has since gotten a little worse. It feels like it’s behind my eyes. It’s not always present and the nausea usually starts about mid-day. Sleeping is only possible with drugs to help me and even then I’m waking up at 3 or 4 am every night. I noticed that happening the last time I had Botox but never put 2 and 2 together then. I haven’t had a full nights sleep in over a week. My eyesight also feels like it has changed in the last week or so. I’m much more sensitive to light that I was.
Actually, I was so freaked out that I went and had an HIV test to see if it was seroconversion illness. I thought having that come back negative would put an end to the headaches, in case they were stress related.
I mentioned it to the Dr. who injected me but not surprisingly, he seems to think that it must be something else because “I’ve never heard any of my other patients complaining about this… go see your GP”. I know what my GP would say… “talk to the person who injected you and stop putting that crap in your body”. I may go back to the Dr. who did the injections with the documentation from the Allergan site and ask how he can rule out Botox as a possibility.
Though I don’t feel like eating, I can (except for one rather unappetizing meal last week) and though I feel like vomiting, I haven’t.
It’s certainly been the oddest thing I’ve gone through, as well as the scariest. I don’t feel normal in my own skin, which is very disconcerting.
So I guess my question to the group is, do you think this is Botox related or is it possible that there is something else at play?
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
Hello everyone, something’s happened to me this afternoon and it’s something which worries me a lot. I was laying on my sofa watching TV with my usual foreign body sensation in my throath, but the sentation has worsened and all of a sudden I felt a burning sensation in my chest and it went up to my head, like if my whole head was set on fire for a few seconds. It was the same kind of hotness you feel when you have fever but in way worse. I became nauseous, my left arm was painful and a little numb and almost paralysed. I had pain in the left side of my jaw and pain in my left shoulder and left side of my back. It’s been months I have pain in my left arm and left part of my jaw but it had never hurt so bad. I had a discomfort in my chest and difficulties breathing. Then I felt a new sentation I had never felt before, it was like a huge weight on my head and eyes. It felt exactly like if I had an anvil on the top of my skull. My vision went blurry and I began sweating a lot, especially my feet. My heart’s started racing and I thought I would pass out any moment. Home alone I’ve called someone I knew and I left my house. I did not want to call a doctor because I knew botox could can cause so many symptoms so I wasn’t sure, but I had to go outside because if I was about to have a heart attack I didn’t want to be alone. I wanted people around me to see me “dropping dead” so that they could call an ambulance. So I’ve walked to the street but it’s been very hard because my legs went stiff and I didn’t manage to flex them anymore, and that I was very dizzy with blurry eyesight. Then I felt like my chest was crushed.
Well no heart attack has actually happened but I wouldn’t want this to be a warning sign that it’s going to happen soon. I’m going to see a cardiologist but could he even predict a heart attack through tests? I’ve lost all trust in the medical field.
I know that botox can cause heart attack for sure. But could it happen 7 months later?
Something sort of snapped in me about a week ago, and the mornings have become unbearable. When I wake up it’s like 90% of me is still asleep. My eyes are swollen and heavy and nothing is moving in real-time. There is strong, high-pitched ringing in my ears. This weekend, both days I slept from about midnight to 10 a.m. and had no great obligations during the day, spring weather, should be a pleasure. But getting up has been the most wretched ordeal imaginable. I splash cold water on my face, slap myself, drink tea, do anything I can think of but I’m moving in this heavy heavy mush of existence. Yesterday I made it all the way to the gym still in this state about 3 hours after waking up. The world was whizzing by me and I’m in this dense bubble. During the day I take 0.5 mg or 1.0 mg of Depas (same as equiv. doses of Ativan) and I might sort of start to come around by mid-afternoon, and by evening I’m more disoriented and dizzy than I am brain-fogged. This pattern doesn’t correlate with any of the psychiatric medications I’ve tried either. I keep a diary and I traced that route. My partner noticed it too the couple of nights I stayed with her about a week ago. Two weeks ago mornings were still crap, but I could sort of scrape myself together. This is so rough.
head feels pressure burns indide the head ringing in the ears burning in the ears nasseous dizzy space out anxious need help please email me on reply
Hello everyone. I’m 5.5 months post botox injections (50 units) and I seem to be now developping a new symptom which worries me a lot…It is a foreign body sensation in my throath. This “foreign body” sometimes makes me nauseaus like if I’m going to vomit it, it also makes me drool a lot. Sometimes I feel a burning in my throath too, like if it’s very dry, and sometimes I feel like my throath is contracting. I’m even more worried because I remember reading about someone here whose throath would have closed at some point. I wondered, what is this throath closure thing? Is it serious? Does that mean you can no longer breath?? I’m very worried!!
Thanks for your help!
I am 29, I suffer from botox for 13 months.
I have discovered something amazing.
When I wear my sunglasses (all the Time during one month) my neurologic symptoms disappears.!! All of them.
But at this moment my face is swelling. It is amazing, It works, I want to share you my observation.
But I have since à big edema, It is not a perfect solution.
Sunglasses makes symptoms disappears for me, but create a new one : my face is swelling.
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much
I am really really struggling. I am now in Month 32…was hoping to start 2013 with high hopes…that this would be the year to really make some progress. Unfortunately I am having yet another what seems to be the start of a major relapse. Granted….I struggle every day and am only 30% of what i would call my normal functioning self…..so I at times feel that I am in a perpetual relapse. But I am now experiencing a significant downturn in my condition over the past week. I am petrified. I am having some symptoms that I haven’t had since the start of my relapse. The intense vice grip head pressure is back ….the intense eye pressure….the jumping at any sound…chills/sweats…nausea…the intense nerve pulsations …the dry mouth and eyes is back…the tingling down my face…intense fatigue even upon walking across the room…and the ANXIETY is excruciating. It shoots out of my brain and into every cell of my body. I can barely breathe. I feel like I am back at Month 2. I am exhausted. I can’t do this again. I told myself if I got hit with another round of this instensity…I just couldn’t do it. It is too hard. This stuff has somehow been resurrected to full force…like it has found new life…the intensity just as severe as it was in the beginning. It is too much. I am losing my strength. Every minute of the last 2 days has been like being plugged into a electrical outlet. I am back to shaking, tremoring and crying uncontrollably. I am praying to God for help. I can’t live this tortuous life anymore.
Hello, I have had a laser on my face on December 2011 and 1 month before, the injection of 125 dysports units on my face. One hour after the laser, eye problems begins, nausea, dry mouth appear, difficulty to speach … 9 months of Horror.. Today neurologic symptoms are decreasing but my face is swelling, i souffer of a very big edema. Does anyone have the same edema? And does It disappears? Tank you
I was hoping at this time to say I am recovered but I am not. My initial though was I would be fine within a year. I was healthy, fit and eat well. Didn’t many of us think this?
I no longer have anxiety or brain fog. Swallowing isn’t a problem either. My muscles spams and twitching is much less.
What remains is spine pain and intercostal pain. My pelvis is still having spasms and I still have sciatica. I also have stomach issues on and off and my ears are full most of the time and ring. I have dislocated bones from spasms that are so violent. At times the pain is so bad I just shake and want to pass out. I feel like my body is going into shock.
Over the past to year I have pretty much tried everything.
Acupuncture ( helped my head issues the most)
Epidural and trigger point injections- helped at first then seem to make things much worse.
Medication- I prefer Lidoderm Pads for pain and Flector for swallowing, and Aleve. Antihistamines for the itching and rashes. I carry an Epi pen just in case. Muscle relaxants as needed.
I have tried other meds but nothing really helps.
Physical therapy and chiropractic has helped the most. I have also had many tests, like many of us have. All negative.
My symptoms started with full like symptoms and a rash and hives. I stopped breathing and had difficulty swallowing, anxiety, muscles pain ,spasms,depression,burred vision and most of the symptoms on the list as well as some added ones. I am still alive and fighting.
I am starting hyperbaric chamber treatment tomorrow. I will keep you all posted on the results.
If it wasn’t for the support of the people here, I don’t think I would make it though this. I am sorry for all your struggles and hope that we all will someday come back and say we are RECOVERED!
I did Botox 4 days ago. Within hours I felt horrible. Panic attacks. My whole body burning. Dizziness. Tremors. Depression. I went To ER FOUR times and am being told I have anxiety. I never did before and this came on a few hours after injections?! Come on! I call bullshit! Im so angry. I have a 5 month old baby at home who needs me. This is debilitating! They are treating me with Ativan but it’s not enough. I need antidepressants. And a good neurologist who specializes in the nervous system. And I hope I don’t die! I’m reading about deaths and brain damage! Any input on which antidepressant works and how to manage like this would be greatly appreciated!
Please help me for migraines.. Does anyone else have severe breathing difficulties? Breathing too slow, severe chest pain,cant get enough air. even if given oxygen. I can.t breathe all tests are negative. Had 31 shots in my head &neck . My main problem is I can;t breathe. I fight for air twentty four sen=ven. Been to ER and put in hospital so many times I’ve lost count. Please, does anyone else have these symptoms? Did you get any help or are you like me, begging for oxygen.
Hi, I’m 4 days post Botox injection and feeling really unwell. Why is Botox allowed to be sold as a ‘safe’ drug? I had 75 units in my forhead to smooth out a frown line. When I had this done I felt that it would be okay and I did it as a ‘take time out for myself activity.’ Having three children is busy and you don’t always get to do that. I’m hoping that in time recovery will come but I know it will be a process as my brain feels really foggy due to neural pathways being blocked and my whole body is weak. I was very healthy before this but I feel this is a huge setback to my wellbeing. I feel very upset ubout what this drug does to people. I talked to a phone counsellor about the the devastation I am feeling and my concerns about how this will impact on my family. She talked me through a breathing meditation and encouraged me that there is a place in this world for ‘small beginnings’ and to be very kind to myself while i’m rebuilding my life slowly. Any words of encouragement here are greatly appreciated. I would love to here some success stories along the road to recovery.