Tag Archives: Muscle weakness

I am really scared

Hi everyone,
I hope everyone is on the way to recovery or recovered.
I was hoping to be better by now. It will be 5 years in April that I got the Botox. I continue to have issues with fatigue, brain fog, some tingling, circulation problems, dry mouth, eyes and nose and a few others. But, my biggest issue continues to be the muscle and fat atrophy. It has continued to get worse instead of better. I really am so scared. I don’t know what is causing it at this point. My face, eyes and head are so sunken. I don’t see myself anymore. My teeth, gums, nails, body and hair have also been changed. I have tested for ANA, RF, C reactive protein, SED rate and they are all normal. My face changes by the week…I am so scared. Does anyone have any ideas what this could be? Is it still a direct effect of the toxin?
I appreciate everyone’s support!
Kris

Attorney. Lawyer. Lawsuit. Message me.

Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys.  Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.

Seeking help…

Is there anyone located in Oregon with advice for ongoing adverse affects from Botox? I have been to every doctor I could get in to. GP, neurologist, Psychiatrist, ER .  None of which have any ideas, answers or advice.  I suffer from severe anxiety, aches in my bones, muscle atrophy, weight loss (40#), no appetitive, chest pain, and nausea. I am 6 months out from last Botox injections. Will this ever end? This is truly a nightmare. If only there were a doctor that would show an interest in figuring this out. I have called Allergan several times. Their answer, “We recommend you contact your provider for this, we have no data to support your symptoms.” Oh my gosh!  Is there any research going on? It seems there are a lot of people suffering.

Someone, please help!

Help!!! I can’t take this anymore!!!

I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.
Thanks!!!!!!!

3 year update

3 year update

 

Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .

I was put on 2400 mgs of nueronton and 100mgs of  Nortriptylin . Today most  of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back.  I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.

I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.

Help – 4 weeks post injections, is this going to get worse?

I received 26 units of Botox injections in my forehead on December 28th. I’ve had botox once a year for about 6 years with no issues. However. within a few days I noticed that my right eye felt a little droopy and numb. I also began to experience night sweats and intense anxiety, followed by tingling/numbness in my arms and legs, muscle weakness, dry eyes, brain fog and pain at the base of my skull. I immediately found this site, which of course scared me to death.

I began eating very healthy, drinking lots of water, sitting in the sauna at my gym, and working out every day – pretty much anything to flush this out of my system. I even went to an IV bar and paid $200 for a liver detox IV, along with Taurine and Tryphtophan for my anxiety. I also began taking neurotransmitter supplements (Taurine, Magnesium, GABA, Typhtophan, B6 and Niacin) at night. At about 2.5 weeks post injections, my symptoms seemed to subside. I felt normal again and thought it was over.

Then, right at about 4 weeks I got my period and holy cow did the symptoms come back worse than before. Intense tingling/numbness and weakness in my arms/legs, brain fog, intense night sweats and anxiety. I felt like my insides were burning, difficulty sleeping and shaky upon waking up. And I swear I’m noticing muscle atrophy around my shoulders and elbows, although this might be in my head.

I read posts on this site and see people experiencing much more severe symptoms and I’m very scared that I’m just at the beginning of this nightmare. I’d love to see some sort of timeline. Meaning, those who experience severe symptoms (having to drop out of work, can’t get out of bed, going to the hospital), did those symptoms come on immediately and then get better? Or were your symptoms mild at first and progress over the next few months?

I guess I’m wondering how much worse this is going to get. If I’m 4 weeks out and the symptoms are mild/moderate, does this mean it’s the worst it’s going to get? Or will things progressively get more severe?

I’m getting married in 8 months and am terrified that I’m not going to be able to walk down the aisle or enjoy my wedding day because of this stupid toxin!

Auto immune disease side effect and doctors don’t believe me – please reply

Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?

Thank you,

Feebee

Odd circular swelling in the centre of my forehead

Hi guys, I wonder if anyone can help me.  For the past 13 years, I have had botox around my crows feet and my forehead.  I had my regular shot in September around my eyes and decided to leave my forehead because I noticed the effects did not appear to be wearing off.  However, my forehead has not returned to it’s pre-botox condition but instead I have developed a central circular type swelling (started of looking a bit like a slightly raised acorn shape but is more roundish now).  I went to my surgery nurse who said it was barely noticeable and she said not to worry.  I went to see the GP who said she could clearly see it but did not know what could be causing it but confirmed it was not a cyst or anything else she was concerned about but asked if I had had filler or botox in the area as she suspected it might be muscle weakening or something else related to the botox.  She advised me to go back to my botox practitioner which I did.  He too said he had not really seen anything like it and confirmed it was not  anything to worry about (he is also a GP) and even suggested that I rebotox the forehead to achieve an even look again – naturally I refused!!  It is absolutely no coincidence that this odd raised area has turned up on my forehead after not having my regular shot of botox.  What’s also incredible is that my forehead has not had any botox whatsoever now for 9 months and it still isn’t moving!!!  To be frank, no-one has said “what’s that on your forehead” or “have you bumped your head but it’s clearly a roundish circular odd looking raised area.  I have searched the whole of the network using different key words “lump on forehead” or “slight swelling on forehead” and many more but nothing comes up.  Nearly ALL the botox practitioners I have found who have responded to other people mentioning indents on their forehead area have all said “this cannot be due to the botox” and yet I have seen similar postings about it on here.  Has anyone else experienced this sort of odd raised bumpy forehead.  I have also noted that I do have it slightly on the left hand side of my forehead but it just looks so much more pronounced in the centre of my forehead.  Any advice would truly be appreciated.  I WILL NEVER USE BOTOX AGAIN THIS IS TRULY FREAKING ME OUT.

First entry–12 days in

Hello everyone–First entry, I’ll try to be concise.  As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey.  My thumb and first two fingers now spasm constantly, making it difficult to sleep.  The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day).  Tried botox twice, relatively small amounts, with some slight success and no SE.  Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm.  20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass.  I guess the lesson  for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation.  I wish I had.  Later that day an extreme spike in anxiety, back muscles locked up.  I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier.  One of the hardest things I’ve ever had to do as an adult.  Please, anyone who is taking  benzos–be careful!  Day 5, started to have the other standard–as I now know from reading this site–symptoms.   Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety.  Several days later, some difficulty breathing.  Hard not to be anxious when that happens.  It was as if the toxic effects were moving slowly down my body.  Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me.  He even called a neurologist at another hospital for a consult, as mine was out of town.  He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues.  The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time.  However, return to the ER for worsening weakness, swallowing difficulties or speech problems.”  So at least I was not dismissed out of hand.   But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site.  At 12 days in, I can only hope that things will not get too much worse, but they well may.  I’ll check in in another day or two.  The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed.  It is likely to be a very unpleasant few months. Godspeed to all of us,  I really do sympathize.  Thanks also to those of you who share their recoveries.

Higher dosage of botox (Dysport)

Hello everyone,
I’m new here and this is my first post. Now, my diagnose is paraplegia spastica, it’s spasticity in leg muscles, witch is causing problems with walking ( spasticity is reducing my control over my muscles);muscles are weakened, but not entirely. I received botox (actually Dysport) in gastrocnemius (2×75),adductor longus (150) and tibialis posterior (150). That was three months ago;I had a little headache that day. Soon I need to go to receive another dose (29.july),and I want to seek a higher dose (because spasticity is in all muscles of legs). I read that usual dose is around 1000 units and that maximum dose is 1500 units (at dose above that, poisoning is possible). What are you thinking about this? Has anyone been is similar situation?

Feeling helpless…and scared

Hi all

I posted about recently about my bad experience of Botox. I have muscular dystrophy and was given Botox for spasticity in my ankle. The neuro said it was a “small” dose. I went through hell for six weeks…muscle weakness preventing me from walking or working or driving, breathing problems, hungry for air. Eventually got my review appointment with neuro moved forward after complaining a lot about symptoms. The neuro said I have had a generalised effect on my body due to Botox but that it will “definitely” wear off in the three months. After explaining the fear and depression I have due to feeling my life has been ruined he prescribed me with Mestinon which I believe is used for Myastenia Gravis but he said is used “off-label” for Botox adverse effects. I have been taking it since Tuesday and to be fair, it really does help with the muscle weakness but only for about three hours each dose. Now the breathing problems are back in full force though and it’s very scary. I don’t really know what to do and I’m so worried after reading the posts on here that it probably WONT be the three months before I’m better. I am living with muscular dystrophy which was hard enough but I was so active and outgoing and busy. I’m now a recluse at 26 years of age. Getting out of bed is difficult where as before getting me to stay in the house was a task!!! Does anyone have any success stories wherein the Botox actually DID wear off in the three months?

Breathing problems. Muscle weakness

Hi all

I would be so grateful if I could get some advice on how long I will be suffering the side effects of Botox. I had injections into my right calf on the 13th of May 2015 to try and bring my ankle to the ground as I toe walk due to a muscle contracture.  and two weeks later I developed some pretty bad side effects. My breathing is very laboured and I cannot get a deep breath as it feels like my rib muscles aren’t strong enough. The worst side effect is the muscle weakness and fatigue that I’m feeling throughout my whole body. Every limb and muscle is so weak and I now cannot work or drive due to the loss of strength. It’s worth noting that I already have muscular dystrophy so this has made me even worse than I ever was. It has been six weeks since the injection. I have been to A and E once already and spoke to the doctor that administeredn the injection. He said that it is most likely linked to the Botox and that my symptoms should subside after about two months.  Any input or advice would be greatly appreciated.

 

matthew

Botox injections 2 months ago, extreme facial pain in cheeks

I had botox injections 2 months ago.  He injected around my eyes, corner of mouth and top of my cheeks.  I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth.  They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too.  That night my cheeks were sore to the touch and I couldn’t sleep on my stomach.  3 days later I started feeling sick.  I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes.  That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear.  She gave me the Z pack.  I took that for 5 days.  I felt better for about a week, and then the symptoms came back.  My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.

I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.

2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin.  I took it for 4 days and I thought I was going to die!  I got terribly sick and couldn’t function.  I stopped taking it, and the next day I felt good.  But not for long.  Symptoms reappeared once again.

I am a healthy person and work out 3 days a week.  I’m in good shape and not overweight, and take care of myself.  So I don’t understand what is happening to me.

I decided to go to a ENT doctor.  I explained to him how I felt.  He examined me, and found nothing.  I told him I had botox and he said nothing.  He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works.  I felt sick on and off with the pill.  I ended the pill 2 days ago and my face still hurts and I still have symptoms.  I have been putting ice packs on my cheeks and it helps a little.  Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!

At this point I don’t know what to do.  I know its the botox that is making me feel this way.  There is no other explanation.  What can I do to get this poison out of my system?  Can anyone help me?  Thanks for listening.

 

 

Hello to all,

Hello to all, I am from Spain and received 2 injections of botulinic toxin(BOCOUTURE from Merz Pharma) I think in the USA the name is Xeomin. I didn,t know it was Bocouture I sign my consent for Botox. I was desperate to find a solution for my eustachian tube I was injected twice with only one month apart for my patulous eustachian tube. After my first injection I notice tingling in my hands and 7 days  after the second injection, I suddenly woke up red all over and a terrible pain descending from my neck down to my spine till my feet, I had muscle pain all over and felt like the flu had hit me. I called the ENT and said it had nothing to do with the botulinium toxin and has never helped me. I went by myself to a lot of doctors at no avail. My blood tests showed I had a high level of Protein C reactive, and hormones and C3 and cholinesterasa all messed up. This was in December 2013, now it is one year after and I have muscle twitching, nerve pain,muscle spams all over my body. They have decided that I have a small fiber neuropathy but they say that this is the 1st time they see such a thing and my feeling is that they don,t think it is BT related although is obvious. I feel alone and every day is a struggle. after Reading your posts I am releived to see thay I am not the only one. My lawyer says we can not sue them if we don,t have a proof. The only thing I do is to tell everybody about it and warning not to put such a toxin in their bodies!! In Spain there is not much help for health alternatives. If you could please help me  on the nerve, muscle pain I would  appreciate it very much. I wish this nightmare stops one day for all of us. Hugs to all from Spain P:S: Hope you understand my story, english is not my mother language

Botox used to relax my esophagus pre surgery.

I started having an issue with food and liquid going past my esophagus into my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Slowly but surely – recovery taking time but is real

Hello,  I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.

My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference.  I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.

Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile –  the absolute worst was when I had 2 terrifying panic attacks  within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next.  If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.

I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that.  While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to.  That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.

My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.

If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body.  This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.

I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!

Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected.  You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.

Take care and don’t lose hope,

HopefulD from Canada

 

 

 

 

 

Feeling faint and very weak after eating

I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .

nervous breakdown of both kinds :-(

Hi everyone
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair