Tag Archives: Muscle spasms

Attorney. Lawyer. Lawsuit. Message me.

Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys.  Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.

3 year update

3 year update

 

Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .

I was put on 2400 mgs of nueronton and 100mgs of  Nortriptylin . Today most  of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back.  I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.

I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.

Oxygen in drops anyone tried?

Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..

Here is link to Oxy drops

http://www.earthsbounty.com/cgi-bin/commerce.cgi?preadd=action&key=1100-OXY_MAX

I will post about it when I get more info.

Sending all healing thoughts xoxo

Eye Issues/Nerve Pain – is this Botox related?

Hi everyone, I’m new to this site and am so grateful to find I’m not alone. I’m just wondering if my issues sound Botox related? I’ve had all the testing done (Opthsmologists, neurologist, rheumatologists, CT scan, MRI etc) & no one can figure out what’s going on – most attribute to anxiety (which I certainly know is not the case!).

ive had joint/nerve pain for past 6 months (buzzing between my elbows to hands/fingers and knees to gets/toes).  But after my last injections (in late March 2015), I’ve had eye problems. It started with pain behind my left eye, then became strained when focusing (eg, reading/using computer) and strain would lead to slight blurriness. Then I contracted conjunctivitis, then my cornea scarred up, healed, but then I had blurry vision, pupil would dilate (and pupil spasm) and double vision.  I’ve also had eye test which shows my vision has changed in just a few months.

I’m absolutely terrified because I can’t work and am in constant pain with eye and body (with occasional moments of relief). I can’t use computer (I’m only using one eye to type this on my phone). I don’t have family or partner to help and my friends just don’t understand. I’ve been referred to neuro – opthamologist, but that could be months off.

I eat paleo, no sugar, no caffine, no alcohol etc…but doesn’t show any improvement with symptoms.

I also have terrible insomnia, and get bouts of extreme anxiety, and severe depression when I wake up.

This site has offered me the only bit of hope I’ve had so far. Do my symptoms sound Botox related? And does anyone have any similar experience or have advice or help? I’m desperate ?

Thankyou

 

Higher dosage of botox (Dysport)

Hello everyone,
I’m new here and this is my first post. Now, my diagnose is paraplegia spastica, it’s spasticity in leg muscles, witch is causing problems with walking ( spasticity is reducing my control over my muscles);muscles are weakened, but not entirely. I received botox (actually Dysport) in gastrocnemius (2×75),adductor longus (150) and tibialis posterior (150). That was three months ago;I had a little headache that day. Soon I need to go to receive another dose (29.july),and I want to seek a higher dose (because spasticity is in all muscles of legs). I read that usual dose is around 1000 units and that maximum dose is 1500 units (at dose above that, poisoning is possible). What are you thinking about this? Has anyone been is similar situation?

relaxing helpful visit with gp

well ive been meaning to write an ‘improved’ update for some time and just not quite up to it yet.. juts want to say that i had a sort of encouraging visit with my gp today…

i havent seen her in the whole time since this becuase i was embarassed what i did to myself, and i was afraid she would disbelieve me.

shes really always been very nice and i told her that, first thing when i saw her.. that i was both embarassed, and afraid… she was very, sympathetic. i showed her the pictures of what happened to me and she was just very sympathetic. she didnt doubt what i said, and i told her straight out that many drs wont believe us and how painful that can be. she was again, very sympathetic. she said, ‘doctors dont always know’ and that it wasnt unreasonable to try botox for headaches, i had done reserach, it wasnt my fault that it went bad, she said i shouldnt feel bad about it at all.. she said it was a totaly reasonable thing to try and i shouldnt feel dumb in the least at all and that she felt that my drs should have been more ‘honest’ with me. she said drs are not always honest for many reasons, but she thinks beign honest is better, and i told her, yes i wish they had been honest with me it would have made this much much easier. she just said, ‘drs dont always know, and you have to be open to what patients tell you’.

she allowed me to have some tests for liver function and kidney function and thyroid and a few other things.. (i may try to ask for some more if i can think of which ones) and i asked her about muscle relaxants that are -not- benzos. (My chemist bf had been researching drugs for another purpose and told me to ask about other muscle relaxants.. these are often used for muscle spasms and nerve issues.. i think someone else here mentioned being on flexeril and this was the one she suggested so i wil try that first.)

i have to say that at 3.5 years, many of my original issues have not really appreared during the last year. i have almost no joint pain anymore and i blieve this is directly due to the anti-inflammatory diet/cleanse i have been on.. (since exposure to certain foods/chemicals etc always increased the joint pain) joint pain is almost nonexistent now. muslce pain is much much less, i still have the muscle and nerve problems in my face, and very mildly in the neck and back.. this is what i was hoping the non-benzo muscle relaxers would help, they are specifically for muscle spasms and nerve pain.

so the other thing to know here, is that there -are- non-benzodiazepene meds specifically for muscle spasms.. and nerve pain.. theres a small handful of these meds, one is flexeril, there is baclofen, one called soma, and a few others.

soem are more mild than others i think flexeril is a mild one. i confess i have been trying baclofen as my bf had some and let me try it, and i really love it. i may ask my dr for it directly if the flexeril does not work. also, the benefit of baclofen is i have completly stopped the ativan, and im really happy about that.

it is better than the benzos for my issues now i think and im happy to be able to discontinue them if possible. also, baclofen is used specifically (of label) to stop cravings for alcohol -and- benzos.. so if you are on benzos and want to stop, you can try baclofen it will allow you to stop the benzos..

ok well, just wanted to say, at 3.5 years, the only real remaining issues that bother me are nerve pain in the face.. which is still the worst part of the problems… persistent but not overwhelming neck and lower back.. -very- occasional weakness.. extremely rare joint pain (usualy related to exposuer ot something). my hair is thick and healthy, my skin is healthy, i can eat most things, i can handle exposure to normal chemicals, i dont have to be afraid of every little thing that happens (though i often still am) and i have not had secondary symptoms arise during the past year. my eyesight is stil very bad, but as i said, the worst area continues to be the actual injected muscles including my eyes :<< puffiness is gone, bags under the eyes gone, dry eyes, gone. hollowness in the face, -much- bettter.

i will stick with my anti inflammatory cleanse for a second year (more about that later) as i feel it has reeeeeally helped the joint issues and all other issues in my body. i feel a lot of the problems are residual inflammation, i think some flares are due to inflammation from different causes. (there are many causes of flares though of course) and i feel as though im on the tail end of this now.

very interested to see if these non-benzo muscle relaxers help with the last of hte issues, the spasm in my facial muscles, and nerve issues in neck and back.

i feel stronger than ive been and its been a good year of pretty solid upswing.

so keep the faith everyone…….. keep the faith, eat clean, and do what you have to to hang in there…. and help your body restabilize… i feel i am on the upswing now….

edit: haha and i completely forgot to add this to ‘improved update’ i have to figure out how to do that!! sorry guys!!!

Did BOTOX cause my CRPS (RSD)?

Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows.  The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen.  I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result.  A few days later I started noticing bladder issues and problems swallowing.  I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues.   A couple of weeks later I noticed a triangular shaped dent in the center of my forehead.  That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined.  I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia.  Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night.  The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see.  Frownies have helped somewhat but its very temporary.  This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously.  Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS.  My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease).  I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help.  There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work.  I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working.  I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I  am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt.  I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP.  IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse.  If anyone has info, be it good or bad, I’d love to hear from you! I want answers.

Hello to all,

Hello to all, I am from Spain and received 2 injections of botulinic toxin(BOCOUTURE from Merz Pharma) I think in the USA the name is Xeomin. I didn,t know it was Bocouture I sign my consent for Botox. I was desperate to find a solution for my eustachian tube I was injected twice with only one month apart for my patulous eustachian tube. After my first injection I notice tingling in my hands and 7 days  after the second injection, I suddenly woke up red all over and a terrible pain descending from my neck down to my spine till my feet, I had muscle pain all over and felt like the flu had hit me. I called the ENT and said it had nothing to do with the botulinium toxin and has never helped me. I went by myself to a lot of doctors at no avail. My blood tests showed I had a high level of Protein C reactive, and hormones and C3 and cholinesterasa all messed up. This was in December 2013, now it is one year after and I have muscle twitching, nerve pain,muscle spams all over my body. They have decided that I have a small fiber neuropathy but they say that this is the 1st time they see such a thing and my feeling is that they don,t think it is BT related although is obvious. I feel alone and every day is a struggle. after Reading your posts I am releived to see thay I am not the only one. My lawyer says we can not sue them if we don,t have a proof. The only thing I do is to tell everybody about it and warning not to put such a toxin in their bodies!! In Spain there is not much help for health alternatives. If you could please help me  on the nerve, muscle pain I would  appreciate it very much. I wish this nightmare stops one day for all of us. Hugs to all from Spain P:S: Hope you understand my story, english is not my mother language

Four year update

I was hesitant to post because I so badly want to say I am recovered and don’t want to discourage anyone.  But here I am at the four year point; this has been my best year yet. At three years I started to see some improvement.

I still have pain everyday and new symptoms now and then. The new symptoms don’t last as long but can be just as painful. The old issues still come and go as well, but they too don’t last as long. The symptoms still seem to circulate though my system.

I seem a little less sensitive to things. My weight is back to normal. I still only work part- time. If I do too much I get pain. I have been able to be more social. Still not back to my regular exercise but I am running and have been able to increase my distance.

Recently, I had to have a biopsy on my breast and the light surgery caused a relapse but I recovered in about three weeks to my baseline. My baseline isn’t as bad as it was.

This has affected every part of my body. I am very careful in what I do, eat, drink and medical advice I take. I think this has changed my life forever. I probably would have killed myself if it wasn’t for the people on this forum and the encouragement and support I have gotten. I am forever grateful.

I hope to come back like others at some point and say that I am recovered. Everyone recovers in their own time.

Slowly but surely – recovery taking time but is real

Hello,  I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.

My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference.  I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.

Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile –  the absolute worst was when I had 2 terrifying panic attacks  within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next.  If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.

I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that.  While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to.  That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.

My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.

If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body.  This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.

I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!

Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected.  You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.

Take care and don’t lose hope,

HopefulD from Canada

 

 

 

 

 

nervous breakdown of both kinds :-(

Hi everyone
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair

To drug or not to drug…

I go back to the psychiatrist tomorrow morning.  I’ve tried zoloft and now paxil for my anxiety.  Both seemed to work for a short period of time, but then symptoms came back with a vengeance.  Clonazpam works well. I’ve read past posts.  I really want to get off the paxil and not try anything new.  I’d like to just take the Clonazpam when things get really bad.  Usually 1/2 of one works (not sure of the dosage, but it melts in your mouth).  The problem is that I have several family members (extended) that have anxiety.  So do I really need it, or is it just the botox?

I like the simple format, so her is what works for me.

1. acupuncture, more than probably anything else.

2. massage. Like someone else said, at times it annoys me and at times it makes me worse, but when it’s good, it is damn good.

3. Eating clean with a lot of added vitamin B12 and probiotics.  I feel like too many supplements can aggravate the toxins.

4. Talking about it with my husband.  Crying it out when I need to.  I don’t bother to tell anyone else because really, they can’t understand.

5. Wine.  But we’ve been friends for a long time =-)

What DOESN’t work

1. coffee.

2. Strenuous, new exercise.  I tried I total body conditioning class the other day and 3 days later I was full on symptoms.

3. Not sure what else.  We need to start keeping track of triggers.

Finally, I know that this has effected our nervous system.  I know the toxins are in my body.  I feel the twitches, swollen glands, hear the horse voice, am now experience skewed vision, etc.  But what is the goal?  Are we suppose to let our bodies rest or are we suppose to fight hard to get it out?

My story

 

Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(

Five months and new symptoms

I was hoping there are people on here who have experienced this (as I am worried the operation made my situation worse).  I am also hoping it went away.  My arm and wrist and sometimes my hand and down one side of my back turns cold… like its being dipped in ice water and so weak that it gets difficult to move my hand and my arm feels so weak.  Once today it was also on the right side of my head.  It comes and goes through out the day, but at night while trying to sleep it is constant.  Please let me know if you experienced this and what you did for it.  Thank you!

Heather

Weak nails and hair

I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx

Dizzy and Head fog. How many have had these symptoms?

I see a lot of anxiety and stomach issues within this group.  Not had the stomach one yet.  Breathing problems were early on and awful!  However, the brain fog is the worst for me.  I will cry for days because there is nothing else I can do.  And today I am dizzy and feel like I am constantly about to pass out. And my kidneys hurt. How many on here have had the dizziness and brain fog, and for how long?

Thank you.

Heather

Botox is BAD

After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!