Tag Archives: Muscle pain

Muscle pain

Attorney. Lawyer. Lawsuit. Message me.

Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys.  Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.

Help – 4 weeks post injections, is this going to get worse?

I received 26 units of Botox injections in my forehead on December 28th. I’ve had botox once a year for about 6 years with no issues. However. within a few days I noticed that my right eye felt a little droopy and numb. I also began to experience night sweats and intense anxiety, followed by tingling/numbness in my arms and legs, muscle weakness, dry eyes, brain fog and pain at the base of my skull. I immediately found this site, which of course scared me to death.

I began eating very healthy, drinking lots of water, sitting in the sauna at my gym, and working out every day – pretty much anything to flush this out of my system. I even went to an IV bar and paid $200 for a liver detox IV, along with Taurine and Tryphtophan for my anxiety. I also began taking neurotransmitter supplements (Taurine, Magnesium, GABA, Typhtophan, B6 and Niacin) at night. At about 2.5 weeks post injections, my symptoms seemed to subside. I felt normal again and thought it was over.

Then, right at about 4 weeks I got my period and holy cow did the symptoms come back worse than before. Intense tingling/numbness and weakness in my arms/legs, brain fog, intense night sweats and anxiety. I felt like my insides were burning, difficulty sleeping and shaky upon waking up. And I swear I’m noticing muscle atrophy around my shoulders and elbows, although this might be in my head.

I read posts on this site and see people experiencing much more severe symptoms and I’m very scared that I’m just at the beginning of this nightmare. I’d love to see some sort of timeline. Meaning, those who experience severe symptoms (having to drop out of work, can’t get out of bed, going to the hospital), did those symptoms come on immediately and then get better? Or were your symptoms mild at first and progress over the next few months?

I guess I’m wondering how much worse this is going to get. If I’m 4 weeks out and the symptoms are mild/moderate, does this mean it’s the worst it’s going to get? Or will things progressively get more severe?

I’m getting married in 8 months and am terrified that I’m not going to be able to walk down the aisle or enjoy my wedding day because of this stupid toxin!

Oxygen in drops anyone tried?

Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..

Here is link to Oxy drops

http://www.earthsbounty.com/cgi-bin/commerce.cgi?preadd=action&key=1100-OXY_MAX

I will post about it when I get more info.

Sending all healing thoughts xoxo

Auto immune disease side effect and doctors don’t believe me – please reply

Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?

Thank you,

Feebee

Waxy yellow stuff coming out of eyelids

I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks

 

 

 

 

I wish this was just a bad dream

Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.

Eye Issues/Nerve Pain – is this Botox related?

Hi everyone, I’m new to this site and am so grateful to find I’m not alone. I’m just wondering if my issues sound Botox related? I’ve had all the testing done (Opthsmologists, neurologist, rheumatologists, CT scan, MRI etc) & no one can figure out what’s going on – most attribute to anxiety (which I certainly know is not the case!).

ive had joint/nerve pain for past 6 months (buzzing between my elbows to hands/fingers and knees to gets/toes).  But after my last injections (in late March 2015), I’ve had eye problems. It started with pain behind my left eye, then became strained when focusing (eg, reading/using computer) and strain would lead to slight blurriness. Then I contracted conjunctivitis, then my cornea scarred up, healed, but then I had blurry vision, pupil would dilate (and pupil spasm) and double vision.  I’ve also had eye test which shows my vision has changed in just a few months.

I’m absolutely terrified because I can’t work and am in constant pain with eye and body (with occasional moments of relief). I can’t use computer (I’m only using one eye to type this on my phone). I don’t have family or partner to help and my friends just don’t understand. I’ve been referred to neuro – opthamologist, but that could be months off.

I eat paleo, no sugar, no caffine, no alcohol etc…but doesn’t show any improvement with symptoms.

I also have terrible insomnia, and get bouts of extreme anxiety, and severe depression when I wake up.

This site has offered me the only bit of hope I’ve had so far. Do my symptoms sound Botox related? And does anyone have any similar experience or have advice or help? I’m desperate ?

Thankyou

 

Higher dosage of botox (Dysport)

Hello everyone,
I’m new here and this is my first post. Now, my diagnose is paraplegia spastica, it’s spasticity in leg muscles, witch is causing problems with walking ( spasticity is reducing my control over my muscles);muscles are weakened, but not entirely. I received botox (actually Dysport) in gastrocnemius (2×75),adductor longus (150) and tibialis posterior (150). That was three months ago;I had a little headache that day. Soon I need to go to receive another dose (29.july),and I want to seek a higher dose (because spasticity is in all muscles of legs). I read that usual dose is around 1000 units and that maximum dose is 1500 units (at dose above that, poisoning is possible). What are you thinking about this? Has anyone been is similar situation?

Feeling helpless…and scared

Hi all

I posted about recently about my bad experience of Botox. I have muscular dystrophy and was given Botox for spasticity in my ankle. The neuro said it was a “small” dose. I went through hell for six weeks…muscle weakness preventing me from walking or working or driving, breathing problems, hungry for air. Eventually got my review appointment with neuro moved forward after complaining a lot about symptoms. The neuro said I have had a generalised effect on my body due to Botox but that it will “definitely” wear off in the three months. After explaining the fear and depression I have due to feeling my life has been ruined he prescribed me with Mestinon which I believe is used for Myastenia Gravis but he said is used “off-label” for Botox adverse effects. I have been taking it since Tuesday and to be fair, it really does help with the muscle weakness but only for about three hours each dose. Now the breathing problems are back in full force though and it’s very scary. I don’t really know what to do and I’m so worried after reading the posts on here that it probably WONT be the three months before I’m better. I am living with muscular dystrophy which was hard enough but I was so active and outgoing and busy. I’m now a recluse at 26 years of age. Getting out of bed is difficult where as before getting me to stay in the house was a task!!! Does anyone have any success stories wherein the Botox actually DID wear off in the three months?

relaxing helpful visit with gp

well ive been meaning to write an ‘improved’ update for some time and just not quite up to it yet.. juts want to say that i had a sort of encouraging visit with my gp today…

i havent seen her in the whole time since this becuase i was embarassed what i did to myself, and i was afraid she would disbelieve me.

shes really always been very nice and i told her that, first thing when i saw her.. that i was both embarassed, and afraid… she was very, sympathetic. i showed her the pictures of what happened to me and she was just very sympathetic. she didnt doubt what i said, and i told her straight out that many drs wont believe us and how painful that can be. she was again, very sympathetic. she said, ‘doctors dont always know’ and that it wasnt unreasonable to try botox for headaches, i had done reserach, it wasnt my fault that it went bad, she said i shouldnt feel bad about it at all.. she said it was a totaly reasonable thing to try and i shouldnt feel dumb in the least at all and that she felt that my drs should have been more ‘honest’ with me. she said drs are not always honest for many reasons, but she thinks beign honest is better, and i told her, yes i wish they had been honest with me it would have made this much much easier. she just said, ‘drs dont always know, and you have to be open to what patients tell you’.

she allowed me to have some tests for liver function and kidney function and thyroid and a few other things.. (i may try to ask for some more if i can think of which ones) and i asked her about muscle relaxants that are -not- benzos. (My chemist bf had been researching drugs for another purpose and told me to ask about other muscle relaxants.. these are often used for muscle spasms and nerve issues.. i think someone else here mentioned being on flexeril and this was the one she suggested so i wil try that first.)

i have to say that at 3.5 years, many of my original issues have not really appreared during the last year. i have almost no joint pain anymore and i blieve this is directly due to the anti-inflammatory diet/cleanse i have been on.. (since exposure to certain foods/chemicals etc always increased the joint pain) joint pain is almost nonexistent now. muslce pain is much much less, i still have the muscle and nerve problems in my face, and very mildly in the neck and back.. this is what i was hoping the non-benzo muscle relaxers would help, they are specifically for muscle spasms and nerve pain.

so the other thing to know here, is that there -are- non-benzodiazepene meds specifically for muscle spasms.. and nerve pain.. theres a small handful of these meds, one is flexeril, there is baclofen, one called soma, and a few others.

soem are more mild than others i think flexeril is a mild one. i confess i have been trying baclofen as my bf had some and let me try it, and i really love it. i may ask my dr for it directly if the flexeril does not work. also, the benefit of baclofen is i have completly stopped the ativan, and im really happy about that.

it is better than the benzos for my issues now i think and im happy to be able to discontinue them if possible. also, baclofen is used specifically (of label) to stop cravings for alcohol -and- benzos.. so if you are on benzos and want to stop, you can try baclofen it will allow you to stop the benzos..

ok well, just wanted to say, at 3.5 years, the only real remaining issues that bother me are nerve pain in the face.. which is still the worst part of the problems… persistent but not overwhelming neck and lower back.. -very- occasional weakness.. extremely rare joint pain (usualy related to exposuer ot something). my hair is thick and healthy, my skin is healthy, i can eat most things, i can handle exposure to normal chemicals, i dont have to be afraid of every little thing that happens (though i often still am) and i have not had secondary symptoms arise during the past year. my eyesight is stil very bad, but as i said, the worst area continues to be the actual injected muscles including my eyes :<< puffiness is gone, bags under the eyes gone, dry eyes, gone. hollowness in the face, -much- bettter.

i will stick with my anti inflammatory cleanse for a second year (more about that later) as i feel it has reeeeeally helped the joint issues and all other issues in my body. i feel a lot of the problems are residual inflammation, i think some flares are due to inflammation from different causes. (there are many causes of flares though of course) and i feel as though im on the tail end of this now.

very interested to see if these non-benzo muscle relaxers help with the last of hte issues, the spasm in my facial muscles, and nerve issues in neck and back.

i feel stronger than ive been and its been a good year of pretty solid upswing.

so keep the faith everyone…….. keep the faith, eat clean, and do what you have to to hang in there…. and help your body restabilize… i feel i am on the upswing now….

edit: haha and i completely forgot to add this to ‘improved update’ i have to figure out how to do that!! sorry guys!!!

Botox injections 2 months ago, extreme facial pain in cheeks

I had botox injections 2 months ago.  He injected around my eyes, corner of mouth and top of my cheeks.  I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth.  They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too.  That night my cheeks were sore to the touch and I couldn’t sleep on my stomach.  3 days later I started feeling sick.  I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes.  That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear.  She gave me the Z pack.  I took that for 5 days.  I felt better for about a week, and then the symptoms came back.  My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.

I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.

2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin.  I took it for 4 days and I thought I was going to die!  I got terribly sick and couldn’t function.  I stopped taking it, and the next day I felt good.  But not for long.  Symptoms reappeared once again.

I am a healthy person and work out 3 days a week.  I’m in good shape and not overweight, and take care of myself.  So I don’t understand what is happening to me.

I decided to go to a ENT doctor.  I explained to him how I felt.  He examined me, and found nothing.  I told him I had botox and he said nothing.  He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works.  I felt sick on and off with the pill.  I ended the pill 2 days ago and my face still hurts and I still have symptoms.  I have been putting ice packs on my cheeks and it helps a little.  Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!

At this point I don’t know what to do.  I know its the botox that is making me feel this way.  There is no other explanation.  What can I do to get this poison out of my system?  Can anyone help me?  Thanks for listening.

 

 

Did BOTOX cause my CRPS (RSD)?

Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows.  The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen.  I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result.  A few days later I started noticing bladder issues and problems swallowing.  I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues.   A couple of weeks later I noticed a triangular shaped dent in the center of my forehead.  That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined.  I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia.  Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night.  The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see.  Frownies have helped somewhat but its very temporary.  This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously.  Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS.  My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease).  I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help.  There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work.  I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working.  I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I  am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt.  I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP.  IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse.  If anyone has info, be it good or bad, I’d love to hear from you! I want answers.

Hello to all,

Hello to all, I am from Spain and received 2 injections of botulinic toxin(BOCOUTURE from Merz Pharma) I think in the USA the name is Xeomin. I didn,t know it was Bocouture I sign my consent for Botox. I was desperate to find a solution for my eustachian tube I was injected twice with only one month apart for my patulous eustachian tube. After my first injection I notice tingling in my hands and 7 days  after the second injection, I suddenly woke up red all over and a terrible pain descending from my neck down to my spine till my feet, I had muscle pain all over and felt like the flu had hit me. I called the ENT and said it had nothing to do with the botulinium toxin and has never helped me. I went by myself to a lot of doctors at no avail. My blood tests showed I had a high level of Protein C reactive, and hormones and C3 and cholinesterasa all messed up. This was in December 2013, now it is one year after and I have muscle twitching, nerve pain,muscle spams all over my body. They have decided that I have a small fiber neuropathy but they say that this is the 1st time they see such a thing and my feeling is that they don,t think it is BT related although is obvious. I feel alone and every day is a struggle. after Reading your posts I am releived to see thay I am not the only one. My lawyer says we can not sue them if we don,t have a proof. The only thing I do is to tell everybody about it and warning not to put such a toxin in their bodies!! In Spain there is not much help for health alternatives. If you could please help me  on the nerve, muscle pain I would  appreciate it very much. I wish this nightmare stops one day for all of us. Hugs to all from Spain P:S: Hope you understand my story, english is not my mother language

Four year update

I was hesitant to post because I so badly want to say I am recovered and don’t want to discourage anyone.  But here I am at the four year point; this has been my best year yet. At three years I started to see some improvement.

I still have pain everyday and new symptoms now and then. The new symptoms don’t last as long but can be just as painful. The old issues still come and go as well, but they too don’t last as long. The symptoms still seem to circulate though my system.

I seem a little less sensitive to things. My weight is back to normal. I still only work part- time. If I do too much I get pain. I have been able to be more social. Still not back to my regular exercise but I am running and have been able to increase my distance.

Recently, I had to have a biopsy on my breast and the light surgery caused a relapse but I recovered in about three weeks to my baseline. My baseline isn’t as bad as it was.

This has affected every part of my body. I am very careful in what I do, eat, drink and medical advice I take. I think this has changed my life forever. I probably would have killed myself if it wasn’t for the people on this forum and the encouragement and support I have gotten. I am forever grateful.

I hope to come back like others at some point and say that I am recovered. Everyone recovers in their own time.

Should I use Botox again? Please advise.

Hello everyone. I’m new here and seeking information about Botox. In February 2010 I tried botox for the first time at Straub Plastic Surgery Department in Honolulu, HI. They injected 40 units into the lines between the eyes, forehead, and around my mouth. I later had very strange symptoms. In an email to a friend I wrote, “My whole head burns, my neck, my arm, my chest. I even had pain inside eating. And I felt pain when my heart would beat, and when I would breathe, and it’s like a sunburn underneath my skin. Not to mention my face which is painful in of itself and always burning.” I recall feeling that the substance had travelled from near my mouth to my right arm and then downward over my upper body, a painful numbing burning. I saw a neurologist then who said it was mild botulism and would pass. It did pass, if I recall, within a few weeks, though the Botox worked in my face for the normal period of several months. I was convinced that the Botox  was administered improperly, so I did venture to try it again at another clinic in CA. I had about 20-30 units put in only between the eyes 8/11/11, 2/23/12, 3/22/12 and 5/15/12.
I didn’t have any ill effects from these injections that I was aware of.  2/16/11 I had anterior uveitis of the eye, a rare autoimmune inflammatory eye condition that arose out of the blue without apparent cause in one eye, but that was a year after my strange Botox reaction. I attributed  it to the high amount of emotional stress I was under unprecedented in my life, but stress is only considered a unofficial cause of that problem by doctors. In October of 2012 I had Botox injected in Germany. The doctor injected it above the eyebrows as well as between the eyes while I lay down. I remember feeling some numbness above my eyebrows and some unusual burning in my eye. It made me nervous but passed within about a week. In 1/12 I lost a notable amount of hair due to badly placed hair extensions and experienced some scalp burning. This improved somewhat with oral prednisone. But scalp burning is a documented side effect of hair loss.  5/12 a nerve in my neck/ scalp  was injured from leaning backward over an object and I experienced immediate scalp neuritis. Two months later, about the end of June 2012 at the start if July, 2 years 4 months from my original bad Botox experience but in the same year that I had several normal Botox experiences, a  centralized pain syndrome initiated. I was diagnosed with “Complex Regional Pain Syndrome” or Sympathetically Mediated Pain. Some doctors felt it might be Small Fiber Neuropathy though I have my doubts on that diagnosis. I experienced a host of terrifying symptoms. To list a few initially there was passing numbness, “purple” feet from widespread circulation problems, widespread aching pain, upper body burning pain, hot and cold sensations, electric sensations and shocks, feeling of being wet on my skin, tenderness, twitching, sensitivity to pain, traveling intense pain etc. A lot of the symptoms in the first months subsided to what I have today which is basically a collection of injuries from the treatments I attempted added to the original pain syndrome which has stabilized. I take Lyrica, naltrexone, cyclobenzyprine, Clonazepam… I have bodywide aching which varies based on weather etc., upper body burning that intensifies with stress, electric shocks with extreme stress, continued scalp neuritis and occipital neuralgia, intersitial cystitis, a femoral nerve injury from an injection… And more but most important here however is that both my arms were made worse, one by an IV needle injury and the other by a blood draw in the left arm. One needle prick and the entire arm felt as though glass was running through my veins, burning, extreme sensitivity to touch, and stiffness in joints. My left arm is worst, It feels as though the needle is always there in my arm, it can’t tolerate touch or pressure, and aches and burns. Now, back to Botox. Botox was originally suggested to me again as a treatment for my occipital neuralgia. If I can help the original injury which is thought to have caused the CRPS then everything else might improve. They think that the muscles around the nerve may be in spasm. The idea would be to inject it into the muscles that may be putting pressure on my occipital nerve And release the nerve. Botox is often used to help CRPS patients. In addition I would like to continue the Botox between my eyes as not only did it help me with the wrinkles I had there but staved away my migraines for quite some time. The other day I was ready to try Botox again, first between my eyes as usual and by the injector that never lead me to have negative effects, but I decided to research the matter further first. I don’t like that I don’t have a good explaination for why I had such an unusual reaction to Botox in 2010 but then except for one time in Germany , the four other injections went smoothly. I also have to be concerned about the needle as a source of injury in my condition, but on this forum I’m looking into the Botox itself. Does my unusual nervous system presentation make me more likely to be a candidate for a catastrophic bodywide problem with Botox like many here describe? Or could Botox be helpful to me. Is there a way to prove that the 2010 incident was an isolated Incident? Is there any link whatsoever between what happened in 2010 and the nerve issues which cascaded upon me in the following four years? I would appreciate hearing anyone’a thoughts and stories as I decide whether Botox is worth another try. i realize many of you have had terrible consequences as a result of Botox. I have asked Stanford doctors, a Brown University fellow and a plastic surgeon whether they think Botox could be a cause for my pain and none think so. Nerve pain symptoms from CRPS may overlap with the types of symptoms you all feel, yet they may still be caused by CRPS which is caused by a nerve injury in my case. Before I rush to judge that I have been a victim if Botox too simply because I tried it, I have nerve problems, and my original experience produced a bad result, I need facts. I’m here on a fact- finding mission. I haven’t spent much time yet on this forum as I have spent a lot of time on forums for my diagnosis and haven’t yet had the time, but I plan to. I was hoping rather than getting just an all out warning against Botox  I could hear some facts and possibly links to studies etc. If someone came into the CRPS forum asking for information I know I could distill years of reading into a few simple paragraphs- if someone could do that for me I would be very grateful. Thank you.

Feeling faint and very weak after eating

I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .

My story

 

Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(

back from the eye dr

hi all so im coming up on two years here at the end of august. cant even believe it and dont really even want to think about it. ive got some stuff to write and id like to make a full update at 2 years which will be easier once i have my new glasses ( i am totally unable to use my old ones and had to get a copmletely new prescription – trifocals this time!! aw yeah, trifocals)

either way i cant see very well right now so ive been putting off writing both a full update and also on my progress in general, but should get all that done next week sometime. overall many things are improving (by 2 years i should hope the f#ck so) but i feel it will probly be another year before i am really truly through this. i can say my health has improved a lot over the past 6 months.

it doesnt seem to be in the acute emergency nightmare stage anymore… now its kind of in the after-the-emergency-nightmare stage.. like how you feel after having the flu really bad for days.. like you are sort of weak and cant believe your alive but it seems the acute stage has passed…… i feel now im more in the recovery phase.. where im actually starting to regain some health, rather than just process toxin and respond to the original injury. i feel like im actually doing some amount of healing now… and making forward progress.. rather than just respond to and process the injury.

ive been doing a lot of research and my bf has been doing a lot of research and we have some stuff to post here, as i said we will do that after i can see again and it doesnt hurt to try to look at the computer so much.

i just wanted to write something really interesting that my eye dr just told me.

now ive worn glasses since pre school and ive had a LOT of eye exams with many different drs. one thing they invariably tell me is how healthy and clear my eyes are.. just a few years ago at my last exam the dr again remarked as always how remarkably clear and healthy my eyes were especially for my age.

so today i had my first eye app since the stupidest decision of my life. ( you know what) and the dr did the usual stuff and when he looked inside my eyes he had a kind of worried look.

i asked him what he saw in there and he asked if i had allergies. (never been asked that before) i said no ive never had allergies in my life.. i asked him what he was seeing.

he said i just had an unusual amount of inflammation in the tissues of my eyes. he thought maybe it had been due to allergies.

i’ll give you all two guesses why there is an unusal amount of inflammation inside my eyes, 2 years after being attacked with a neurotoxin. and you know ive been following the anti inflammatory diet and protocols the whole time too.

i actually told the dr about that and he didnt have much to say one way or the other… but ive started telling every dr i talk with about what happened to me and what it did to me. i figure it has to get harder and harder to pretend theyve never heard of it, the more people tell them.

i wonder how long it will be before i have another eye app where the dr tells me how healthy my eyes are. ???

hope everyone is well, i do have good news though and many things are better… i will post a 2 year update when my new glasses come, oh gosh i hope they work. hoping continued recovery for all.