Tag Archives: Mouth ulcers

Waxy yellow stuff coming out of eyelids

I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks

 

 

 

 

I wish this was just a bad dream

Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.

Botox injections 2 months ago, extreme facial pain in cheeks

I had botox injections 2 months ago.  He injected around my eyes, corner of mouth and top of my cheeks.  I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth.  They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too.  That night my cheeks were sore to the touch and I couldn’t sleep on my stomach.  3 days later I started feeling sick.  I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes.  That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear.  She gave me the Z pack.  I took that for 5 days.  I felt better for about a week, and then the symptoms came back.  My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.

I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.

2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin.  I took it for 4 days and I thought I was going to die!  I got terribly sick and couldn’t function.  I stopped taking it, and the next day I felt good.  But not for long.  Symptoms reappeared once again.

I am a healthy person and work out 3 days a week.  I’m in good shape and not overweight, and take care of myself.  So I don’t understand what is happening to me.

I decided to go to a ENT doctor.  I explained to him how I felt.  He examined me, and found nothing.  I told him I had botox and he said nothing.  He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works.  I felt sick on and off with the pill.  I ended the pill 2 days ago and my face still hurts and I still have symptoms.  I have been putting ice packs on my cheeks and it helps a little.  Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!

At this point I don’t know what to do.  I know its the botox that is making me feel this way.  There is no other explanation.  What can I do to get this poison out of my system?  Can anyone help me?  Thanks for listening.

 

 

Botox used to relax my esophagus pre surgery.

I started having an issue with food and liquid going past my esophagus into my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Charlotte

I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me

Feeling faint and very weak after eating

I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .

My head is fuzzy and my nerves are tingly….

Hi All,  I am new to the post.  I had my most recent injection crows feet with Dysport on Jan 10, 2014.   What was I thinking… prior to that had Dysport on Oct., 22, 2013 and had full blown chest pains, heart palpitations, droopy eyes and blurry vision, insomnia, memory loss, tingling, dehydration, mouth sores.  I honestly thought it was the flu and my body was just reacting, I now know it was the injection.  For some crazy reason I thought I was better and went for that injection in January.  I am so STUPID!!!!! I have been using botox and Dysport for 6 years  WHAT HAVE I DONE!!

After the injection on Jan. 10 I just had a little blurry vision, which I always blame on my contacts and dry eyes.  Onset of symptoms came 10 days later with chest pains, heart palpitations, blurry vision, insomnia, memory loss, tingling, dehydration.   The worst is the Insomnia and no appetite… I am afraid to eat.    I went to doctor Blood work PERFECT!  Went to cardiologist EKG perfect…. they all said don’t do anymore botox.  I feel as if my memory loss and confusion are getting worse.  My breathing is okay just tight throat, no heart palpitations in the past few days.  My muscle tone is barely there.  My arms tingle and at times I feel itchy on my dry fingers and elbows.  Insomnia and anxiety are full blown, I am a real sleeper so this is making me confused more.

WHAT TO DO??? Please advise, I am scared I am going to die and doing this all alone.  My vision is still weird but clear… Any help for anything is greatly appreciated.   What can I eat so that this doesn’t get worse, what can I take?  Do I go to emergency room?  Will my breathing stop? I am so scared…

I am so sad and lost xo

Sadlady

 

 

 

 

 

 

 

To drug or not to drug…

I go back to the psychiatrist tomorrow morning.  I’ve tried zoloft and now paxil for my anxiety.  Both seemed to work for a short period of time, but then symptoms came back with a vengeance.  Clonazpam works well. I’ve read past posts.  I really want to get off the paxil and not try anything new.  I’d like to just take the Clonazpam when things get really bad.  Usually 1/2 of one works (not sure of the dosage, but it melts in your mouth).  The problem is that I have several family members (extended) that have anxiety.  So do I really need it, or is it just the botox?

I like the simple format, so her is what works for me.

1. acupuncture, more than probably anything else.

2. massage. Like someone else said, at times it annoys me and at times it makes me worse, but when it’s good, it is damn good.

3. Eating clean with a lot of added vitamin B12 and probiotics.  I feel like too many supplements can aggravate the toxins.

4. Talking about it with my husband.  Crying it out when I need to.  I don’t bother to tell anyone else because really, they can’t understand.

5. Wine.  But we’ve been friends for a long time =-)

What DOESN’t work

1. coffee.

2. Strenuous, new exercise.  I tried I total body conditioning class the other day and 3 days later I was full on symptoms.

3. Not sure what else.  We need to start keeping track of triggers.

Finally, I know that this has effected our nervous system.  I know the toxins are in my body.  I feel the twitches, swollen glands, hear the horse voice, am now experience skewed vision, etc.  But what is the goal?  Are we suppose to let our bodies rest or are we suppose to fight hard to get it out?

Has anyone tried Ondamed to help? More advanced than Rife and used by MDs

Hi All

This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.

The website is WWW.ondamed.net

The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.

My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.

I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.

So, I thought I would share this with the group to see if anyone has tried it yet.

I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.

Hope and love to all
Jade

Weak nails and hair

I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx

Wanted to give some helpful info

I posted on my profile page this info also but wanted to get it out there again.  I am at my 2 month and 3 week post Botox.  My symptoms started the very next day, it was every symptom on the FDA website, I found out later after I could not get help from the ER docs or my own doctor.  So, my husband helped me research reactions, because I could not use my lap top at the time.  We found hope in a woman’s post who fully recovered in only 2 1/2 months.  Who also had the full reaction.  She said no caffeine (that has helped), she said juicing is essential, (so we went out and bought a juicer, and I believe that’s how I got stronger and able eat solid food again),  Drink lots of water (that’s all I drink, except for the occasional lemon and honey water, or a Gatorade).  Now having said all that I will say I was getting so much better.  My bad days weren’t as bad and my good days were longer and very good (Normal days). Last week I had five normal days!  I am still early on so that might be why the relapse last night and today, I feel awful today and my head fog and anxiety came back.  I have no idea why.  But I focus on the fact that I am doing everything to get better and that their are people who have survived this.   I hope that helps some.  God bless and best of luck.

Botox is BAD

After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!

What supplements can you take without symptoms and which ones aggravate your condition?

Hi All,

Like many of us on this forum, I am trying to determine which supplements I am taking are helping me, and which might be exacerbating my neuro symptoms. I greatly appreciate your feedback on how you react to these supplements:

  • Vitamin D (or D3) – can you take this without noticeable side effects? I was taking 4000 IUs a day for 3 months, then I think I became intolerant to it – I felt that it was making my symptom of weakness greater, but now I’m not convinced it was the Vitamin D, and maybe it was something else in the capsule.
  • Magnesium – one other person who I have connected with on this forum cannot tolerate magnesium. I am wondering if this might be bothering me too, and I just haven’t figured it out yet. Does anyone else get bad symptoms from magnesium?
  • Calcium? (I have been trying Calcium Citrate)
  • CoQ10?
  • Quercetin?
  • Selenium?
  • Alpha Lipoic Acid?
  • Biotin?
  • Any of the B vitamins? (I take methalated B12,  and B1 and B5 and B6)
  • Potassium
  • Vitamin C
  • Vitamin E
  • Vitamin A (I also don’t think I tolerate this well)
  • Zinc
  • Folate
  • DHEA and Isocort – I could not tolerate these and believe they both caused a relapse.

If there are any other supplements you think are helping you, or any you believe you can’t tolerate I would love to know these too!

Also, one new supplement tip I have that may be helpful to others: I believe that Chromium Picolinate is helping me with glucose intolerance. This supplement was referred to me by my naturopath. There is evidence-based research indicating this supplement is helpful for diabetics with glycemic control.

Best,

J.

Has anyone taken Lyrica?

On the 5th Jan I stopped taking Endep – I slowly weaned myself off and my last dose was approx 6mg.  I have been incredibly sick ever since.  I am just wondering has anyone taken Endep and come off it?  Did they have any withdrawal symptoms?

I have had intense jaw/face neuralgia, anxiety only on waking in the morning, my teeth are buzzing again, return of the sore throat/mouth ulcers, my ears are feeling blocked again – they are burning and itchy also, I have the car sick/fatigue feeling and am back to crying from exhaustion/frustration on a daily basis.  The most concerning return symptom is the intense neck/shoulder pain – to an intensity that I haven’t had since approx the 12 month mark (I am now at 23 months).

I am sure this must have something to do with the stopping of the Endep?????  My Dr wants to put me on Lyrica which he says serves the same purpose as Endep but without so many side effects (when I was on the Endep I didn’t really have that many side effects from this drug though).  I read your post Soloist and I feel your pain about the relapses – I just feel defeated at 23 months and still dealing with this.  This week has seen the return of Botox thoughts consuming my everyday existence.

This sounds bizarre but for 2 weeks in December I felt so good – slight jaw pain every now and then and some twitches but really feeling good about life – this is probably what prompted me to come off the Endep.

I have seen some of the discussions about auto immune responses to the injections – do people think their symptoms are more Botulism related or auto immune related – I am just confused and worried again.  Katie you mentioned reading a book by a young girl who had an auto immune response – you didn’t say how the book ended – did she recover?

I keep hoping that fact that we haven’t really got any members past 3-4 years on here with severe issues means that eventually all of these things do resolve themselves and people get on with life…..that’s what I am going to keep thinking anyway.  Cameron has once again been my life line – the person who continues to be there no matter how low I get – I can’t even put into words how much this means to me – I only wished he didn’t have to put up with all of this :(

 

Arm pain-despair

I am 17 months out and not doing well at all. At about 16 months, arm pain returned for about 2 weeks, then I started with new vision problems, once that ended the rash this all started with returned, and as of Sunday I can not left my left arm and have unbelievable nerve pain. This is the worse pain I have had so far. Also the 1st time I have lost function. I feel like I am starting over. My original stomach problems have also returned. I have not had a pain-free day in 17 months.  It seems to move from one area to the next. I am thinking I will never recover. I don’t know where to turn next.