Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
I’m at 4 weeks post in injections and I have to say that the anxiety/upset stomach is one of the hardest parts to deal with. I’ve been taking xanax to help, but don’t want to rely on this too much. Can anyone tell me how long the anxiety/panic attacks lasted and what you did to help the symptoms?
I received 26 units of Botox injections in my forehead on December 28th. I’ve had botox once a year for about 6 years with no issues. However. within a few days I noticed that my right eye felt a little droopy and numb. I also began to experience night sweats and intense anxiety, followed by tingling/numbness in my arms and legs, muscle weakness, dry eyes, brain fog and pain at the base of my skull. I immediately found this site, which of course scared me to death.
I began eating very healthy, drinking lots of water, sitting in the sauna at my gym, and working out every day – pretty much anything to flush this out of my system. I even went to an IV bar and paid $200 for a liver detox IV, along with Taurine and Tryphtophan for my anxiety. I also began taking neurotransmitter supplements (Taurine, Magnesium, GABA, Typhtophan, B6 and Niacin) at night. At about 2.5 weeks post injections, my symptoms seemed to subside. I felt normal again and thought it was over.
Then, right at about 4 weeks I got my period and holy cow did the symptoms come back worse than before. Intense tingling/numbness and weakness in my arms/legs, brain fog, intense night sweats and anxiety. I felt like my insides were burning, difficulty sleeping and shaky upon waking up. And I swear I’m noticing muscle atrophy around my shoulders and elbows, although this might be in my head.
I read posts on this site and see people experiencing much more severe symptoms and I’m very scared that I’m just at the beginning of this nightmare. I’d love to see some sort of timeline. Meaning, those who experience severe symptoms (having to drop out of work, can’t get out of bed, going to the hospital), did those symptoms come on immediately and then get better? Or were your symptoms mild at first and progress over the next few months?
I guess I’m wondering how much worse this is going to get. If I’m 4 weeks out and the symptoms are mild/moderate, does this mean it’s the worst it’s going to get? Or will things progressively get more severe?
I’m getting married in 8 months and am terrified that I’m not going to be able to walk down the aisle or enjoy my wedding day because of this stupid toxin!
Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?
Hello everyone–First entry, I’ll try to be concise. As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey. My thumb and first two fingers now spasm constantly, making it difficult to sleep. The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day). Tried botox twice, relatively small amounts, with some slight success and no SE. Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm. 20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass. I guess the lesson for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation. I wish I had. Later that day an extreme spike in anxiety, back muscles locked up. I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier. One of the hardest things I’ve ever had to do as an adult. Please, anyone who is taking benzos–be careful! Day 5, started to have the other standard–as I now know from reading this site–symptoms. Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety. Several days later, some difficulty breathing. Hard not to be anxious when that happens. It was as if the toxic effects were moving slowly down my body. Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me. He even called a neurologist at another hospital for a consult, as mine was out of town. He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues. The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time. However, return to the ER for worsening weakness, swallowing difficulties or speech problems.” So at least I was not dismissed out of hand. But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site. At 12 days in, I can only hope that things will not get too much worse, but they well may. I’ll check in in another day or two. The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed. It is likely to be a very unpleasant few months. Godspeed to all of us, I really do sympathize. Thanks also to those of you who share their recoveries.
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Hi all, I want to share my Botox experience to warn others.
I received Botox for the first time 2 weeks ago. Having injections around my eyes, between brows and above brows for cosmetic purposes.
This is my Botox diary below..
Botox injections at 12 pm
Bruise to one injection site on right hand side of my temple/crows feet lines.
Black dots in front of eyes for a few moments after the Botox
went home and rested.
Hot and cold tremors and awful feelings of anxiety by 6 pm onwards
Clammy hands and feet
Couldn’t eat all day after injections
Anxiety remained and got no sleep. Dry mouth
Pain to right side of temple
Anxiety hell/Deep feeling of dread
Twitching right eye
Couldn’t eat all day complete lack of appetite
Slept well tho
Slight Anxiety but much better
Twitching left eye – black dots in front of eyes twice
Dry mouth – peeling inside of bottom lip
Was able to eat lunch & dinner with effort
Not feeling like myself & low
Anxiety almost gone
Still have dry mouth
Still don’t feel like myself
Didn’t sleep well, woke 3 times during the night with hot sweats, bed soaked became a bit anxious after waking each time
From day 5 till now (day 14) symptons have gone, anxiety has gone but still get twitching in left eye and black dots in front of my eyes when in bright sun light.
I am hoping this was it for me, a short spell of hell, & never to return. I will never have Botox again even tho the results are good those few days of hell knocked me for six I have never experienced anything like it in my life and never wish to again!
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I had botox injections 2 months ago. He injected around my eyes, corner of mouth and top of my cheeks. I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth. They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too. That night my cheeks were sore to the touch and I couldn’t sleep on my stomach. 3 days later I started feeling sick. I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes. That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear. She gave me the Z pack. I took that for 5 days. I felt better for about a week, and then the symptoms came back. My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.
I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.
2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin. I took it for 4 days and I thought I was going to die! I got terribly sick and couldn’t function. I stopped taking it, and the next day I felt good. But not for long. Symptoms reappeared once again.
I am a healthy person and work out 3 days a week. I’m in good shape and not overweight, and take care of myself. So I don’t understand what is happening to me.
I decided to go to a ENT doctor. I explained to him how I felt. He examined me, and found nothing. I told him I had botox and he said nothing. He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works. I felt sick on and off with the pill. I ended the pill 2 days ago and my face still hurts and I still have symptoms. I have been putting ice packs on my cheeks and it helps a little. Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!
At this point I don’t know what to do. I know its the botox that is making me feel this way. There is no other explanation. What can I do to get this poison out of my system? Can anyone help me? Thanks for listening.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
I go back to the psychiatrist tomorrow morning. I’ve tried zoloft and now paxil for my anxiety. Both seemed to work for a short period of time, but then symptoms came back with a vengeance. Clonazpam works well. I’ve read past posts. I really want to get off the paxil and not try anything new. I’d like to just take the Clonazpam when things get really bad. Usually 1/2 of one works (not sure of the dosage, but it melts in your mouth). The problem is that I have several family members (extended) that have anxiety. So do I really need it, or is it just the botox?
I like the simple format, so her is what works for me.
1. acupuncture, more than probably anything else.
2. massage. Like someone else said, at times it annoys me and at times it makes me worse, but when it’s good, it is damn good.
3. Eating clean with a lot of added vitamin B12 and probiotics. I feel like too many supplements can aggravate the toxins.
4. Talking about it with my husband. Crying it out when I need to. I don’t bother to tell anyone else because really, they can’t understand.
5. Wine. But we’ve been friends for a long time =-)
What DOESN’t work
2. Strenuous, new exercise. I tried I total body conditioning class the other day and 3 days later I was full on symptoms.
3. Not sure what else. We need to start keeping track of triggers.
Finally, I know that this has effected our nervous system. I know the toxins are in my body. I feel the twitches, swollen glands, hear the horse voice, am now experience skewed vision, etc. But what is the goal? Are we suppose to let our bodies rest or are we suppose to fight hard to get it out?
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx
I posted on my profile page this info also but wanted to get it out there again. I am at my 2 month and 3 week post Botox. My symptoms started the very next day, it was every symptom on the FDA website, I found out later after I could not get help from the ER docs or my own doctor. So, my husband helped me research reactions, because I could not use my lap top at the time. We found hope in a woman’s post who fully recovered in only 2 1/2 months. Who also had the full reaction. She said no caffeine (that has helped), she said juicing is essential, (so we went out and bought a juicer, and I believe that’s how I got stronger and able eat solid food again), Drink lots of water (that’s all I drink, except for the occasional lemon and honey water, or a Gatorade). Now having said all that I will say I was getting so much better. My bad days weren’t as bad and my good days were longer and very good (Normal days). Last week I had five normal days! I am still early on so that might be why the relapse last night and today, I feel awful today and my head fog and anxiety came back. I have no idea why. But I focus on the fact that I am doing everything to get better and that their are people who have survived this. I hope that helps some. God bless and best of luck.
Hi to all
I feel that I am going out of my mind. I have been having Botox in my forehead, frown lines and occasionally my crows feet for over 3 years now around about every four months. I always usually get a migraine the following day and a bit of a stuffy sinus effect for a few days following the injections but this has always subsided and everything has been fine after this.
However I went for my Botox 3 weeks ago and about a week after I started with headaches, head pressure and stiff neck every day this has progressed to a blocked or full feeling in my ears,tinnitus. I am having hot flashes bouts of tachycardia for which I am taking propranolol i cant sleep and I am having huge panic attacks. My eyelids are also very swollen. At first I thought it was related to my thyroid as I do have graves disease. However I saw my Endo who did the tsh t4 and t3 and everything is normal there but she did put me back on the propranolol for the tachycardia and panic attacks. After a lot of google research I came across this site and after reading lots of posts the penny dropped! I spoke to my Endo and she said go back to the ps who did the Botox.
I made a consultant appointment and spoke to my ps who did the Botox this morning as I am totally freaked out. His reaction was” I haven’t done anything different to the other times and have been doing this for years and have never come across these symptoms after Botox. My opinion is that you are just coming down with something. You need to stop worrying”
I live in Dubai and it costs over a hundred pounds for a consultant appointment on top of the blood costs ect so I am racking up quite a bill already…
Any advice would be soooooooo appreciated right nowI don’t know what else to do, I feel really awful and I know this is going to sound mad but I am afraid I might die!
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
head feels pressure burns indide the head ringing in the ears burning in the ears nasseous dizzy space out anxious need help please email me on reply
I cannot believe how ill I feel. I am on day 9. I had 37 units of Botox around eyes and forehead. I really wish I could turn back the clock. I am 47 years old, My daughters begged me not to do it. Day 2 buzzing in the head and ears, day 3 after the most horrific night of my life with hot and cold flashes, insomnia chest palpitations ,my head felt on fire,anxiety I went to the emergency room who could nothing but give me Xanax. I took the Xanax, slept friday night felt ok Saturday, took another Saturday night felt ok Sunday. Thought hmm i’m ok now so did not take one Sunday night. Monday my ears started to buzz felt unwell again, so I took one monday night, woke up the next morning, ears blocked, dizzy weak, a friend took me back to the dermatologist who said he has never had a reaction like this, he looked in my ears said they look stuffed,he wanted to give prednisone but i had it once before horrid side effects. So he said well maybe sinus infection, he gave me a zpack and i took a double dose of that and a sudafed. I have been up all night with full blown again like day 3…worst night of my life.full pins and needles, hot/cold flashes, anxiety. My husband is away on business and i am so so scared. I am not sure wether to take the z pack today or take a xanax or both.I have never taken pills in my life. I have a trip booked to visit my parents in the UK tuesday, I have not been back in 3 years. I am going to have to cancel today. I am beyond devastated. My derm emailed me this morning and said there is a medication called Lyrica that is used to help with nerve pain, but it has side effects of its own. Others medications that can help with nerve pain are antidepressants and mild tranquilizers like Zolft and Xanax. Given your history of sensitivity to medications, I think a short course of Xanax taken at night might be the safest bet in getting you through this. My Family Dr said the same take the Xanax. My question is… is there anyone out there that only has this for a few weeks and makes a full recovery or do i have to tell myself this is it for me, I’m done? My vanity has ruined my life and my families life for good.?
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much