Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
I would appreciate very much hearing from those of you who bega to experience insomnia shortly after botox injections. I went from being a very healthy sleeper, to having insomnia, from one day to the next. It was like a light switch was turned on. I had injections two months ago and have a few other symptoms. All have improved a slight bit, but not the insomnia. The only improvement is that I can sleep 4 hours straight if I take 10 mg. of ambience (I tried with some of my husband’s).
It would be encouraging to hear from some of you who have struggled with insomnia, how you’re doing, what has helped, etc.
I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
Hello everyone–First entry, I’ll try to be concise. As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey. My thumb and first two fingers now spasm constantly, making it difficult to sleep. The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day). Tried botox twice, relatively small amounts, with some slight success and no SE. Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm. 20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass. I guess the lesson for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation. I wish I had. Later that day an extreme spike in anxiety, back muscles locked up. I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier. One of the hardest things I’ve ever had to do as an adult. Please, anyone who is taking benzos–be careful! Day 5, started to have the other standard–as I now know from reading this site–symptoms. Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety. Several days later, some difficulty breathing. Hard not to be anxious when that happens. It was as if the toxic effects were moving slowly down my body. Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me. He even called a neurologist at another hospital for a consult, as mine was out of town. He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues. The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time. However, return to the ER for worsening weakness, swallowing difficulties or speech problems.” So at least I was not dismissed out of hand. But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site. At 12 days in, I can only hope that things will not get too much worse, but they well may. I’ll check in in another day or two. The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed. It is likely to be a very unpleasant few months. Godspeed to all of us, I really do sympathize. Thanks also to those of you who share their recoveries.
I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I have been having some teeth related issues and want to know if anyone has any recommendations. Over the past 6 or 7 months I have noticed that my teeth have changed. There is more spacing between them and when I brush them they don’t feel the same. Also, there is a transparent look to them. I have been using a special toothpaste for enamel, but I don’t know if it is helping. I have also been taking a mineral supplement. Another support member has been having problems with teeth related sensitivity to eating cold foods and has had a tooth break off.
Thanks so much!
Wishing everyone lots of healing.
I had botox injections 2 months ago. He injected around my eyes, corner of mouth and top of my cheeks. I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth. They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too. That night my cheeks were sore to the touch and I couldn’t sleep on my stomach. 3 days later I started feeling sick. I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes. That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear. She gave me the Z pack. I took that for 5 days. I felt better for about a week, and then the symptoms came back. My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.
I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.
2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin. I took it for 4 days and I thought I was going to die! I got terribly sick and couldn’t function. I stopped taking it, and the next day I felt good. But not for long. Symptoms reappeared once again.
I am a healthy person and work out 3 days a week. I’m in good shape and not overweight, and take care of myself. So I don’t understand what is happening to me.
I decided to go to a ENT doctor. I explained to him how I felt. He examined me, and found nothing. I told him I had botox and he said nothing. He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works. I felt sick on and off with the pill. I ended the pill 2 days ago and my face still hurts and I still have symptoms. I have been putting ice packs on my cheeks and it helps a little. Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!
At this point I don’t know what to do. I know its the botox that is making me feel this way. There is no other explanation. What can I do to get this poison out of my system? Can anyone help me? Thanks for listening.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
Hello, I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.
My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference. I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.
Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile – the absolute worst was when I had 2 terrifying panic attacks within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next. If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.
I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that. While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to. That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.
My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.
If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body. This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.
I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!
Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected. You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.
Take care and don’t lose hope,
HopefulD from Canada
Hello….hopefully I am in the right place for some help or peace of mind. I am 41 very active. In the gym 4 nights a week & work in outside sales & marketing in the medical field. I got my first Botox injections on March 7, 2014, I am 9 weeks from injection date. I had 10 units in my forehead & 18 above my eyebrows & in between my eyebrows…sorry I don’t know the technical term. The area above my eyebrows did look swollen for almost 2 weeks after injections.
So let me start with right after injections. Within in a hour or less I started to get a headache. The pain came mostly from the front of my head. 4 hours after injections I felt like I needed to blow my nose…it kind felt like my nose was kind of stopped up. When I blew my nose nothing but blood was coming out. I blew & blew to get all the blood out. At this point I thought holy crap what is going on? I started to worry a little at that point. It was late & I couldn’t call the Dr. who did the injections. Now on to the next day….my forehead hurt so bad if I didn’t know better I would have thought my forehead was severely bruised, although it wasn’t. This pain last for 6 days after injections. I could barely touch my forehead. I went 3 days without washing my forehead the pain was so bad. I did go back to the Dr. After 3 days of injections & only got the “your crazy” look & reply. I talked to the dr about the possibility of to much being injected & allergic reaction she said no. All during this time my forehead was so itchy too, but without a rash. I did have a few tiny bumps, but not really a rash. I also started to have flu like symptoms after 5 days after. Runny nose, body aches, feeling of sinus pressure, tired feeling. At times I have also felt nausea. About two weeks after injections I woke up in the middle of the night feeling as if I was being smothered.
For 2 months now I have experienced sinus problems off & on. This month the sinus problem put me at the dr office for antibiotics for a upper & lower respiratory infection. I finished the medicine 2 weeks ago. Now I have a soar throat & sinus pressure again. This is getting ridiculous! I am staring to wonder is all this is from the Botox. I love the looks that Botox has given me, but is not worth it if all my problems are due to Botox. I am open for any comments, advice or help. If this is from Botox when is all this going to go away & I’m going to feel healthy like I use to?
Here are a recap of everything I have experienced in the last 9 weeks…
*forehead pain, bloody nose, headaches, body aches, tiredness, sinus pressure & sinus infection, lower respiratory infection, shortness in breath, at times nausea, sore throat.
Sorry my post is so long. I just wanted to get all the details out there for help.
one other thing I am allergic to latex & neosporne. Don’t know if that matters or not. The dr never asked me if I was before injections.
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
Hi All, I am new to the post. I had my most recent injection crows feet with Dysport on Jan 10, 2014. What was I thinking… prior to that had Dysport on Oct., 22, 2013 and had full blown chest pains, heart palpitations, droopy eyes and blurry vision, insomnia, memory loss, tingling, dehydration, mouth sores. I honestly thought it was the flu and my body was just reacting, I now know it was the injection. For some crazy reason I thought I was better and went for that injection in January. I am so STUPID!!!!! I have been using botox and Dysport for 6 years WHAT HAVE I DONE!!
After the injection on Jan. 10 I just had a little blurry vision, which I always blame on my contacts and dry eyes. Onset of symptoms came 10 days later with chest pains, heart palpitations, blurry vision, insomnia, memory loss, tingling, dehydration. The worst is the Insomnia and no appetite… I am afraid to eat. I went to doctor Blood work PERFECT! Went to cardiologist EKG perfect…. they all said don’t do anymore botox. I feel as if my memory loss and confusion are getting worse. My breathing is okay just tight throat, no heart palpitations in the past few days. My muscle tone is barely there. My arms tingle and at times I feel itchy on my dry fingers and elbows. Insomnia and anxiety are full blown, I am a real sleeper so this is making me confused more.
WHAT TO DO??? Please advise, I am scared I am going to die and doing this all alone. My vision is still weird but clear… Any help for anything is greatly appreciated. What can I eat so that this doesn’t get worse, what can I take? Do I go to emergency room? Will my breathing stop? I am so scared…
I am so sad and lost xo
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
I was hoping there are people on here who have experienced this (as I am worried the operation made my situation worse). I am also hoping it went away. My arm and wrist and sometimes my hand and down one side of my back turns cold… like its being dipped in ice water and so weak that it gets difficult to move my hand and my arm feels so weak. Once today it was also on the right side of my head. It comes and goes through out the day, but at night while trying to sleep it is constant. Please let me know if you experienced this and what you did for it. Thank you!
This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.
The website is WWW.ondamed.net
The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.
My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.
I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.
So, I thought I would share this with the group to see if anyone has tried it yet.
I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.
Hope and love to all