Tag Archives: Facial indentation/deformation

Facial indentation/deformation

Help!!! I can’t take this anymore!!!

I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.
Thanks!!!!!!!

Oxygen in drops anyone tried?

Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..

Here is link to Oxy drops

http://www.earthsbounty.com/cgi-bin/commerce.cgi?preadd=action&key=1100-OXY_MAX

I will post about it when I get more info.

Sending all healing thoughts xoxo

I wish this was just a bad dream

Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.

relaxing helpful visit with gp

well ive been meaning to write an ‘improved’ update for some time and just not quite up to it yet.. juts want to say that i had a sort of encouraging visit with my gp today…

i havent seen her in the whole time since this becuase i was embarassed what i did to myself, and i was afraid she would disbelieve me.

shes really always been very nice and i told her that, first thing when i saw her.. that i was both embarassed, and afraid… she was very, sympathetic. i showed her the pictures of what happened to me and she was just very sympathetic. she didnt doubt what i said, and i told her straight out that many drs wont believe us and how painful that can be. she was again, very sympathetic. she said, ‘doctors dont always know’ and that it wasnt unreasonable to try botox for headaches, i had done reserach, it wasnt my fault that it went bad, she said i shouldnt feel bad about it at all.. she said it was a totaly reasonable thing to try and i shouldnt feel dumb in the least at all and that she felt that my drs should have been more ‘honest’ with me. she said drs are not always honest for many reasons, but she thinks beign honest is better, and i told her, yes i wish they had been honest with me it would have made this much much easier. she just said, ‘drs dont always know, and you have to be open to what patients tell you’.

she allowed me to have some tests for liver function and kidney function and thyroid and a few other things.. (i may try to ask for some more if i can think of which ones) and i asked her about muscle relaxants that are -not- benzos. (My chemist bf had been researching drugs for another purpose and told me to ask about other muscle relaxants.. these are often used for muscle spasms and nerve issues.. i think someone else here mentioned being on flexeril and this was the one she suggested so i wil try that first.)

i have to say that at 3.5 years, many of my original issues have not really appreared during the last year. i have almost no joint pain anymore and i blieve this is directly due to the anti-inflammatory diet/cleanse i have been on.. (since exposure to certain foods/chemicals etc always increased the joint pain) joint pain is almost nonexistent now. muslce pain is much much less, i still have the muscle and nerve problems in my face, and very mildly in the neck and back.. this is what i was hoping the non-benzo muscle relaxers would help, they are specifically for muscle spasms and nerve pain.

so the other thing to know here, is that there -are- non-benzodiazepene meds specifically for muscle spasms.. and nerve pain.. theres a small handful of these meds, one is flexeril, there is baclofen, one called soma, and a few others.

soem are more mild than others i think flexeril is a mild one. i confess i have been trying baclofen as my bf had some and let me try it, and i really love it. i may ask my dr for it directly if the flexeril does not work. also, the benefit of baclofen is i have completly stopped the ativan, and im really happy about that.

it is better than the benzos for my issues now i think and im happy to be able to discontinue them if possible. also, baclofen is used specifically (of label) to stop cravings for alcohol -and- benzos.. so if you are on benzos and want to stop, you can try baclofen it will allow you to stop the benzos..

ok well, just wanted to say, at 3.5 years, the only real remaining issues that bother me are nerve pain in the face.. which is still the worst part of the problems… persistent but not overwhelming neck and lower back.. -very- occasional weakness.. extremely rare joint pain (usualy related to exposuer ot something). my hair is thick and healthy, my skin is healthy, i can eat most things, i can handle exposure to normal chemicals, i dont have to be afraid of every little thing that happens (though i often still am) and i have not had secondary symptoms arise during the past year. my eyesight is stil very bad, but as i said, the worst area continues to be the actual injected muscles including my eyes :<< puffiness is gone, bags under the eyes gone, dry eyes, gone. hollowness in the face, -much- bettter.

i will stick with my anti inflammatory cleanse for a second year (more about that later) as i feel it has reeeeeally helped the joint issues and all other issues in my body. i feel a lot of the problems are residual inflammation, i think some flares are due to inflammation from different causes. (there are many causes of flares though of course) and i feel as though im on the tail end of this now.

very interested to see if these non-benzo muscle relaxers help with the last of hte issues, the spasm in my facial muscles, and nerve issues in neck and back.

i feel stronger than ive been and its been a good year of pretty solid upswing.

so keep the faith everyone…….. keep the faith, eat clean, and do what you have to to hang in there…. and help your body restabilize… i feel i am on the upswing now….

edit: haha and i completely forgot to add this to ‘improved update’ i have to figure out how to do that!! sorry guys!!!

Teeth related symptoms

I have been having some teeth related issues and want to know if anyone has any recommendations. Over the past 6 or 7 months I have noticed that my teeth have changed. There is more spacing between them and when I brush them they don’t feel the same. Also, there is a transparent look to them. I have been using a special toothpaste for enamel, but I don’t know if it is helping. I have also been taking a mineral supplement. Another support member has been having problems with teeth related sensitivity to eating cold foods and has had a tooth break off.
Thanks so much!
Wishing everyone lots of healing.
Kris

Botox injections 2 months ago, extreme facial pain in cheeks

I had botox injections 2 months ago.  He injected around my eyes, corner of mouth and top of my cheeks.  I also had some juvaderm at the bottom of my cheek and on my clown lines by mouth.  They gave me a ice pack to put on my face when I got home, which I did and I took the vitamin Arnica as they told me too.  That night my cheeks were sore to the touch and I couldn’t sleep on my stomach.  3 days later I started feeling sick.  I had headaches, stuffiness, nausea and flu like symptoms, also my hands became very stiff and I kept dropping things, and terrible hot flashes.  That next day I went to my GP, she examined me, I told her my symptoms, she checked my ears, she said I had a sinus infection, and fluid in my ear.  She gave me the Z pack.  I took that for 5 days.  I felt better for about a week, and then the symptoms came back.  My face hurting, cheeks still sore, nausea, headache, body aches, flu like symptoms.

I went back to the Dermatologist for a follow up and told him that I had a sinus infection and asked if the injections caused it and he said no and was no help to me.

2 weeks later I went back to my GP and she said I still had fluid in ear and she gave me a stronger antibiotic, Levofloxacin.  I took it for 4 days and I thought I was going to die!  I got terribly sick and couldn’t function.  I stopped taking it, and the next day I felt good.  But not for long.  Symptoms reappeared once again.

I am a healthy person and work out 3 days a week.  I’m in good shape and not overweight, and take care of myself.  So I don’t understand what is happening to me.

I decided to go to a ENT doctor.  I explained to him how I felt.  He examined me, and found nothing.  I told him I had botox and he said nothing.  He said I might have an infection deep in my head and I need a cat scan, but he prescribed a steroid for me to take for 10 days to see if that works.  I felt sick on and off with the pill.  I ended the pill 2 days ago and my face still hurts and I still have symptoms.  I have been putting ice packs on my cheeks and it helps a little.  Sometimes as I go through the day I feel better but as the day goes on my face starts to hurt again and I will get a headache and feel downright sick!

At this point I don’t know what to do.  I know its the botox that is making me feel this way.  There is no other explanation.  What can I do to get this poison out of my system?  Can anyone help me?  Thanks for listening.

 

 

Did BOTOX cause my CRPS (RSD)?

Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows.  The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen.  I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result.  A few days later I started noticing bladder issues and problems swallowing.  I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues.   A couple of weeks later I noticed a triangular shaped dent in the center of my forehead.  That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined.  I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia.  Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night.  The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see.  Frownies have helped somewhat but its very temporary.  This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously.  Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS.  My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease).  I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help.  There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work.  I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working.  I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I  am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt.  I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP.  IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse.  If anyone has info, be it good or bad, I’d love to hear from you! I want answers.

Forehead dents after Botox

Hi,

I’m new  to the site and haven’t seen any posts re forehead dents appearing after being injected with Botox.  March 8, 2013 I had my forehead and 11 lines injected with Botox, after receiving shots once a year for about 8 years with no problems.  Well,  3/8/2013  Hell began.  That night my eyes and upper face swelled up so much, I looked like I had fetal baby alcohol syndrome, said my pharmacist husband.  Next morning I was unrecognizable.  It was a Saturday, so after paging the dr several times unsuccessfully, I got ahold of her partner, who relayed my messages.  Finally, she responded and I went to her office.  Of course, her first comment was, oh, I thought it would be worse!

I’ll save you all the rest of her in-denial-it’s-not-from-Botox comments.   She prescribed a medrol dose pack (strong steroid for severe swelling) for two weeks.  In the meantime. I began having severe dry, red, itchy eyes.  There were huge bags under my eyes.  Oh, the worst part, her first needle stick that day struck my supraorbital nerve, which felt like a nail gun going straight to the back of my head!  Excruciating pain.  My forehead is still numb 17 months later.  Following week, I saw two very prominent plastics  surgeons for consult.  Both were very concerned and took photos and asked if Allergan was notified by the dr who gave the shot.  I was off work two weeks due to unsightliness  and dry eyes and blurry vision.  After a month or two, those symptoms subsided.  Well, fast forward 4 months when the Botox started wearing off, and I noticed small dents appearing in my forehead,  that to this day,  17 months later, are still there.  And the top of my forehead and upper scalp are numb still from nerve injury from the needle.  So, my question is has anyone had these dents form and, if so, did they go away.  I’m scared they’ll be there forever.  It’s embarrassing because they’re so obvious and I’m self-conscious.   Next week I see one of the docs who evaluated me right after the shot, to get his opinion.  Then September 5, I see the other doc who evaluated me right after the shot.  I’d really appreciate it if someone out there who has also experienced these dents would reach out and let me know how they’re doing.  By the way, the dents are there 24/7.  I’m not squinting.

Thanks!

 

 

 

My story

 

Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(

9 months post botox asymmetry and drooping still not went away. Face droops in heat.

Hi,

If ANYBODY has any info or tips I would be eternally grateful in trying to get through this.

I had botox nearly 9 months ago in my crows feet and frown lines (she also put it under my eyes which I never asked for). I have drooping eyebrows/ asymmetry on right  side of face (nose to cheek muscle and under eye muscle)/outer face and cheekbones have never returned and my face also droops in the heat and hurst due to the pulling.  Forehead movement has returned but the eyebrow drooping has never corrected.

The first 3 times I got botox on my crows feet it worked well, although thinking back now I think it was making the sides of my face and cheekbones thinner/less. I had went to a good nurse practitioner. I was using it as a “treat” to myselft after having a very stressful period of time and actually thought I was looking after myself by using it. However on this occassion I went to a different nurse and got it in my crows feet and frown lines, she also put it under my eyes (which gave my a slightly dragging effect).  At 2-3 weeks my eyebrows drooped and and 3-4 weeks I got asymmetry on the right hand side. I have only ever apparently had regular doses. I had A LOT of tingling and sensations up to 6 weeks. I had/have to use eye gel as my eye was not shutting correctly at night and my pupil dilates due to dry eye ( right eye pulling due to asymmetry). I  have full movement back in my forehead but the eyebrow droop has never corrected. I work on a computer all day so don’t exercise my face that much.

At first I was told it would come back but have just seen a plastic surgeon who says for some people it doesn’t and at 9 months this is all it is going to recover. He also said it could be that I have had it 4 times (doesn’t account for 1st time in forehead) or  that I have had “micro-current” facials in the past.I have no nerve damage. He said he could not see my asymmetry but- he hadn’t seen me before and cannot feel the “pulling”. I know I write in a very matter of fact manner but unfortunately that is not how I feel. This has been a totally isolating and frightening experience, like a nightmare I cannot wake up from. My once nice face that looked like my father is now gone. I am told it is not that noticable but only you know your own face and people have looked at me oddly.  I am going to go to the doctor to get something to help me through this.

I am so sorry that there are other people out there who have had to go throught this as well. Is there any hope or am I just grasping at straws. I guess if the botox is metabolised by 6 months then it is your muscles failing to return at this point.  Please if anyone has anthing please let me know.

xxx

 

Botox is BAD

After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!

Edema/swelling around eyes after botox

Hello everyone,
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much

Flu Botox symtoms begins after dermatologic laser called Fraxel

Hello, I have had a laser on my face on December 2011 and 1 month before, the injection of 125 dysports units on my face. One hour after the laser, eye problems begins, nausea, dry mouth appear, difficulty to speach … 9 months of Horror.. Today neurologic symptoms are decreasing but my face is swelling, i souffer of a very big edema. Does anyone have the same edema? And does It disappears? Tank you

experience with ativan/lorazepam

hey all, who here is taking/has taken ativan or lorazepam? what is your experience?

i have resisted these due to potential for addiction but recently the anxiety has returned and is really a problem due to some -extremely- stressful unexpected events in life…. where i felt i was close to recovered mentally this has put me back to square one and i feel i need more help than i did before, i have started taking the ativan and i feel its helping. physically im not doing bad at all, just a bit of weakness and soreness, fatigue and stuff but i can handle that. the anxiety thought has become again to where i have become largely dysfunctional and my emotoins are all over the place and really a problem. i feel very destabilized and a lot of underlying disconnection and fear that doesnt really relate to anything ‘real’ but its overwhelming.

im only taking .5 mg but i take it sometimes a couple times a day. i only started this a few days ago but feel i need it right now.

i think i will try to ask for either a slightly higher dose or to be allowed to take several a day… right now they only give me enough for one .5 tablet every day and i feel its not quite enough.

i have heard people say here that ativan helps them and was wondering who all here has benefitted from it. i was really feeling more stable and pretty much out of the woods but the recent extremely stressful events (sort of a chain of them one on top of the other) have sort of pushed me back over the edge which has been very depressing and i just want to get back on track again and not spend more time here than necessary. hope that everyone is doing ok. sending lots of love to all.

Itchy and horn like symptoms at injection site

Hello all.  46 year old, healthy athletic vegan female here.  I have had botox every 3 months for 5 years with no problems at all.  Loved the results.

The last 3 times I have had injections it has gotten worse and worse.  6 months ago I had 3 large horns on my forehead, large enough for other people to notice and when I called the doctors office and they called the botox rep they said it would clear up in 10 days and it did.

Then 3 months ago I got another 50 units in just my forehead, brow and eye area and I got 8 large horns and the Botox did not take, I had the same wrinkles on my face I had started with after the 8 horns went away in another 10 days.  My doctor refunded my money and claimed they had never seen this before and suggested I try another doctor.

So yesterday I did, she only would shoot 30 units and 20 hours later I have a very itchy itchy face, particularly between my eyes and I don’t have full blown horns but large bumps at almsost every injection site.  I have had to wear a visor and glasses to hide this and to make me not itch them.

Has anyone had these side effects?  Did it ever clear up or just get worse?  I am very confused and annoyed. Thanks in advance for any thoughts or suggestions.

6 month update!

Hi Everybody,

I will be 6 months of this dysport journey on 24th August. I was extremely ill between months 2 and 4 and had to take 2 and a half months off work, my main problem was the dizziness, headaches, anxiety and hearing and just feeling generally ill. My periods stopped for 3 months and my whole body just shut down! I lost 16lbs in weight and looked gaunt, pale and exhausted.I got gradually better, well better in they way that I returned to work (but struggled) and was able to go out and about on my own again. Then at the end of July I went abroad for 10 days with my husband and 2 young children and for the first 7 days I felt fantastic – I was totally symptom free, relaxed and soooo happy for the first time in a long time. Then on day 8 I started to feel wobbly but got my monthlys for the first time in 4 months so put it down to that, I was really anxious on the flight coming home but kind of ok. On our first day home I started feeling the symptoms creeping back and by Tuesday of this week BAM!! I had everything going on again – very painful blocked ears, very loud tinnitus, tight chest and palpitations (this is completely new), and burning muscles down my forearms, the tingling came back full force all down my face, lips, scalp, spine and feet (this worries me the most). I have shed alot of tears this week mainly out of frustration and despair as I thought I was getting better, this weekend I hit rock bottom but cannot stop get too upset as I do not want to upset my children, when they have gone to bed I collapse on the settee and have a good cry!! I don’t think my husband knows what to do with me anymore and now even my family are saying ‘do you think this is from anxiety?’ As all of you on here know aswell as I do – I have no control over this.Anyway on a brighter note here is how I have improved with things so far:

Head pressure – This for me was the hardest thing to deal with – I felt like my head was being squashed, I suffered terrible dizzyness which made me panic as I was scared to go out without holding my mum’s arm for 2 months – this got much better by about month 4 and has only returned this week.

Ears – I have shed many tears about my ears, they hurt ALOT! At the height of this they felt like they were burning and swollen inside and I couldn’t bear my children to squeal by me or a dog to bark near me they were so sensitive – this got a little bit better but has also returned this week. I developed tinnitis with a high pitched sound in month 2 and still have this now – I attend tinnitis clinic at the hospital which teaches me to live with the sound and not to panic about it – I am hoping this will go when the dysport is out of my system.

Appetite – I am blessed that I can eat what I like and never put on weight, I am 40 and have been the same weight since I was 16 years old. At month 2 I lost 16lbs in 3 weeks and looked like the living dead. I had an upset stomach every morning on waking and could only eat bland breakfast cereals and crackers. By month 4 I had put all the weight back on and looked alot more healthy. I am back to eating what I want (although I do try not to eat sweet stuff, no alcohol or caffeine and drink tons of water).

Neckpain – I have always suffered with migraines and neck pain which was one of my reasons for having these injections, the neck pain I have had with this is much more intense, if I press either side of my throat I get a sharp pain go down my arms (I take 2 nurofen to ease this) and put a hot wheat pack on my neck.

Tingling – This was not really an issue at first had more muscle twiches all over – but over the last 4 weeks I have had mad tingling on my scalp, face, lips, feet and spine – this usually happens in the evening or in bed – it’s not painful just really weird, my face and lips go quite numb, like I have had an injection at the dentist. (I am hoping this is my nerves repairing themselves).

Headaches – I had hideous ‘toxic’ headaches between months 2 and 4 – these had gone but have returned (milder) this week.

Muscle Weakness – There were times around the 2 month mark that I had to concentrate to walk, write and type as my whole body had slowed down – this is alot better now.

Mood – I was very panicked and worried between months 2 and 4, now I just feel exhausted and low, I have days when I feel like screaming and I do have moments when I think ‘why me?’ My biggest fear is that I have done something permanent to my nervous system or my ears. On a good day I am happy as can be which proves to me that I am not depressed!

Medication – Although I have had many trips to the doctors and have got a cupboard full of prescription medicine – diazapan and amptitriptiline (spellcheck?) I have never resorted to taking any of them. I am against taking anything unnatural through out this and have somehow managed taking 1 multi vitamin table per day – 2 milk thistle tablets (for the liver) and as of up to this week I was taking 1 h5tp table per night (to increase serotonin). I have stopped this to see what happens.

Insomnia – This was bad around month 2 then got better, but I have been waking at 4am every single night for 6 months – it seems my brain is now programmed to do this – it doesnt matter what time I go to bed it is always this time. I do go back to sleep (eventually) and am always tired when it is time ot get up!

So overall things are much better, one thing I have noticed is that I cry much easier than before and am alot more emotional. I cry at the daftest of things!! I always want my children near me and can’t stop hugging and cuddling them.

My job is my biggest worry I have been with the company for nearly 20 years and been very successful in my marketing role, they are not very tolerant of sick leave and have been pretty horrid to me on my return. Fortunately I have got another job lined up but this does not start until January so I have got to drag on until then.

I know deep down that I will get better I have just lost my patience now – I desperately want to go back out with my friends and go back to the gym and get my hectic life back, I have learnt alot about myself over the last 6 months and know now that health is the most important thing in life. We will all get better in time I know that, I feel deeply for the ladies on here that have been ill for 2 years+ that is heartbreaking. I wish you all happy healing and more good days and times ahead.

This forum is the only thing that has kept me sane.

I will definately post back when I am fully recovered.

Sam x

 

 

microcurrent therapy + update, 11 months now, lot of improvement :>

hmmmm so hm. still not really time for a full symptom update but i wanted to mention something ive heard about recently called microcurrent therapy and see if anyone has heard of it.. and update as much as i can at least.

i had been looking into acupuncture, which i do actually believe in if its done correctly, but then my symptoms changed.. a few months ago i had this weird feeling as though the numbness was moving down my face.

i started to feel very stiff under my eyes and on my cheeks and it was hard to move the muscles there. i tried to ignore it but then i noticed that a wrinkle that was previous on the side of my nose was gone. at that point i felt that something was happenign that was causing the numbness to move down my face and into the rest of my body. i understand after talking to others here that this is a predictable stage in the healing, that others have experienced this migrating neck weakness at this late stage too, it had been about 8 months for me at that point.

i did -not- have neck pain or weakness before. ive also had a lot of stiffness/weakness in my joints, hands, hips, etc, and stiff/sore shoulders which is all new. my shoulders/neck hurt the worst but its stil bearable. also ive started noticing difficulty speaking clearly. at my job i talk on the phone a lot and have been having a lot of problems enunciating clearly and stumble over words a lot. all of this appeared around the 8 month mark, just when the other symptoms were really going away.

on the good side, the anxiety is -greatly- reduced, and overall i feel almost completley ‘myself’ again. which is a =major= victory. i still struggle often with suicidal thoughts however. but in general i dont feel that weird dissociated evil feeling anymore. i feel relatlively normal and relaxed and like i am ‘myself’ almost all the time. this is a major, -major- victory. i dont have sleepign problems, appetite problems, none of that now. my eyes can tear normally, my sexual response has returned. // so those things related to my autonomic nervous system function, appear to be normalizing. PRAISE GOD.

most of the overwhelming symptoms from the first 6 – 8 months, vicious headaches, constant evil dark thoughts and thoughts of death and doom and all that, the severe anxiety, the depersonalization, feeling like i had done something completely evil that had wrecked my entire life forever, and the weird disruptions of my autonomic nervous system, all of that is almost completely gone. i would say that from those symptoms, i am recovered… which is REALLY REALLY REALLY REALLY GREAT.

however my symptom picture has changed… which i understand represents ‘phase 2’ of the healing process and i hope means that i am movign forward in healing. i now have more physical symptoms that have moved into my neck and rest of my body. this weakness in my neck was so noticeable that when lying down i was not able to lift my head without literally holding it up with my hands. this was kind of freaky but at any rate made me feel that at this point acupuncture would not be a good idea as somehow my shoulders/ back etc seem weak or extra sensitive now, and i dont want to stress them.

so i guess to sum up basically at month 8 i had pretty much recovered from the main symptoms of the first phase. // then i moved into another phase which is not that severe and really very bearable compared to the first phase, and im hoping it will dissipate soon becuase it was never very severe and because im treating it AGGRESSIVELY (but gently) with a number of herbs, supplements, light exercise, (very, -very- light, mainly a lot of gentle walking) and other treatments that basically im just doing myself.

this includes vitamin c and b complex, mixed in water so its a steady low dose rather than big dose at once.. choline in the form of lecithin.. maca to normalize neurotransmitters.. and extra calcium, magnesium, potassium, lots of fruit, vitamin d, and yes the dreaded fish oil. i have stopped taking the muscle relaxers for sleep completely.. i use a very small dose of hydroxyzine now for sleep which is also anti anxiety.

i have found that gentle stretching actually helps my shoulders, so im doing that, but that wont work for everyone. i have definitely given up strenuous or tiring exercise for now.

the most interesting thing ive tried has to do with herbal medicine. in looking through some herb books i came upon something called
‘anti spasmodic tincture’ which is specifically for severe muscular weakness, spasms, paralysis, and neurological issues like meningitis. i have been using it just a few drops at a time, and also, as a poultice on my actual muscles of my face. after doing this the weakness and stiffness of my lower face completely went away, and the weakness of my shoulders/neck was -greatly- improved and continues to improve.

it was after this that my sexual function also returned (with extremely great strength, stronger than it was before).

it contains lobelia, scullcap, black cohosh, and myrrh gum. i mix this with my ginger tea and also add hops, camomile, catnip, and elder flowers, which are all for relaxing nerves, and also juniper, yellow dock, and echinacea, which are cleansing to the system as a whole.

when i put it on my face i mix it with slippery elm to form a paste. i have also used it in bathwater.

this is to be done carefully as some of these are pretty strong medicinal herbs. however, i personally believe it has done a huge amount to normalize my system with careful use. it also seemed to return a lot of function to the muscles of my face when used as a poultice. ive got almost complete movement back in my face now.

which brings to me to the one final symptom that is NOT really going away. the one that still is worse than any other. MY FACE.

on the good side. i now have almost all movement back although the muscle tone is still pretty flabby. also, the muscle recruitment on the left side, which was not very severe to begin with, seems to be clearing up. the muscle recruitment in the cetner of my face, also seemes to be clearing up. this gives me a little bit of hope that eventually the right side might heal too, though that was extremely more severe and also started much earlier. using the little face tapes, the frownies, has literally prevented my suicide as well as prevented me from sliding into an irreversible depression. when i use them it prevents the extreme damage that used to occur at night, and makes me look semi normal during the day, although i still wear hats prety much everywhere. that $20 investment without any exagerration saved my life and my sanity.

however the right side of my face, remains a complete disaster. the corrugator is extremely tight, creating huge gash-like wrinkles and a lot of discomfort, and when i try to -raise- my brows, the corrugator actually visibly engages and pulls down on that side… which is completely abnormal. id like to think its improving slowly, but, its going verrrrrrrrrrrry slowly. its very depressing because im a healthy person and take care of myself, at 45 ive got the body of a 25 year old and not a wrinkle on me, and my face looks like its been put through a lawnmower.

this is why i am thinking of trying micro current therapy. i have read about it and it involves extremely low levels of electrical current. it was originally used for victims of strokes and bells palsy, its is also used for people with tmj and sports injuries, it is specifically for healing “muscles that are abnormally tight, shortened, or paralyzed from illness or injury” and its used a lot on the face.

which sounds pretty exactly like what this is. so i am looking into that rigiht now. the treatments start at $50 or more, but you can buy units for home use, i am looking into both those things.

truly the abnormality on my face is the only symptom remaining that truly bothers me. everything else has reduced to the completely bearable stage. i would say that except for my facial muscles/nerves, i am truly almost completley recovered. i am very, very thankful for this.

my nervous system function is normalizing and my mental state is normalizing. i only just have some lasting soreness and weakness in my neck and back, shoulders, and some joints, but its all extremely minor and bearable especially when taking the herbs. i was able to go on vacation last month, we went river rafting and i went on a zip line, hanging by my arms and falling ten feet or so into a lake. i was really not going to do that but felt it would be ok and it was copmletly ok. it actually made me feel better cause it was very relaxing. i got a bit sunburned and honestly it was all fine.

if it werent for my face right now i would honestly feel almost normal and be feeling pretty good.

so, im really hoping thats all good news for people here…….. it seems to be following the path that maria identified in her reserach: symptoms that were worse to begin with, take longest to heal.. symptoms that lasted longest, heal the slowest.. symptoms that were not as severe or longlasting heal faster and heal earlier. this is what i have noticed.

the longest lasting symptoms appear to be having to do with fatigue and depression, cause its just so wearing to deal with this complete bullshit on an ongoing basis.

i still feel i have ruined my face and also my life permanently and suicide still seems like a really good idea. however, im hoping that slowly this feeling will also fade and that i can find things that will continue to heal my face until eventually that too is better.

im so thankful to feel as much better as i do. i hope that one day all of us will reach this point where we feel BETTER and like normal human beings again.

re: two week update

When I initially registered for this site, I thought I would be commenting on my symptoms in four months, but alas yesterday was so bad that I felt compelled to post at the two week post injection point.

About two weeks ago I had 18 units of botox injected. This was the second time this year that I had botox injections for cosmetic reasons.  The first time which was in January, I had a bit of a sinus infection and I just wrote it off to the time of year and some kind of virus going around. However, I could not ignore the slight droop that started occurring under my left eyebrow. No one said they noticed it until I pointed it out. Well, this time the droop is much more noticeable. But, that is the least of it. I have felt awful this time. In fact, I felt so awful, that I googled illness due to botox and then one thing led to another and I found this site.

Since this second set of injections, across my forehead and around my eyes for crow’s feet, I have experienced: anxiety (mostly at night), dry mouth, a slight indentation along my temples, weird prcikly feelings on my face and elsewhere on my body, a really bad headache the day before yesterday, hot flashes and just plain sweating, muscle pain on either side of my calves, nausea, fatigue, and muscle weakness. Oh and lest I forget, brain fog or a flatness or dullness of emotional response.

Yesterday, was the worst by far. I went to the gym yesterday thinking that I could use mind over matter and just ignore how tired I felt. Well, I stumbled through my workout. By that I mean, I had such muscle weakness that I just went through the motions of my workout. I weight train on a schedule and yesterday was upper body. Cardio was a struggle. I was sweating profusely and instead of feeling energized post  workout, I felt depleted. When I went to work I felt like I was in a trance. I was almost too lethargic to do my job but I kept at it and I finally felt like I woke up at around 2 p.m. even though I had been awake since 5 a.m.

I have to say, I have no crow’s feet and my forehead is as smooth as a baby’s bottom. But, the way I have been feeling, the cosmetic results are not worth going this horrible malaise. I will not ever get botox again. This bout of botox flu has soured me on any more ideas of cosmetic enhancement.

And to think that Dr. Oz encourages the use of botox. Just before my latest set of injections I had watched a Dr. Oz segment with a plastic surgeon who highly touted botox. Well, like everything else in life, buyer beware.

I’ll keep posting on my progress. Thank you to everyone who posts on this site because if you didn’t I would either think I had a serious terminal illness or that was all in my head!!t i

24 Month Update…..

Well….it has been 2 years since my injections of Dysport.  I wish that I was typing this in the “fully recovered” section of this website, or even “almost recovered”, but, unfortunately, that is not the case for me.  :(
Those of you that have been following my journey know that I am still suffering from a major relapse of my symptoms at 17 months after feeling almost back to normal for a few months.   I, now at 24 months, feel that I have been at a plateau without much improvement for the past few months.   Again….this posting is not to cause fear or alarm for others just starting with their symptoms….as everyone has a different
path, body chemistry and length of time for healing.   Just as so much of what is happening to us is not understood….the same goes for our recovery.  There doesn’t seem to be a true understanding of any of this….and there is not a set schedule for everyone…..and what has
worked in recovery for some doesn’t work for all.

However, with that being said…….what does seem to be common
are our symptoms.   And…LOTS of them.   In thinking what I could possibly post to be of any help at the 2-year mark….is perhaps just list the myriad of symptoms that I have experienced and/or am still experiencing.   Again, those of you just starting with this ordeal can use this reference list as a guide to what you might be feeling…and wondering…..is THIS (….fill in the blank) from my toxin injection….or has anyone else experienced THIS (….fill in the blank)???   Well….scan the list of things…..and most of us on here have experienced many of these symptoms…and more.   I have had all of the below……and still have most of them intermittently.   I have them listed by category.

HEAD

Head pressure on sides of head (vice grip feeling)

Feelings of “worms” crawling inside head

Feelings of brain spasming; tightness within the head cavity
to the point of not being able to think straight

Headaches…both dull ache and migraine

Overall “numbness” or feeling that you have had novocaine
shot into your brain

Numbness in temple area; putting pressure on this area
causes nerve sensations down back of head

Lightheadness

“Buzzing” or vibration feeling in head, mostly at night when
trying to sleep

Extreme pain in the back of the head (area where the skull
meet the spine)

Slight head bobbing with the pulsation of my heartbeat

Feeling of sudden “blood rush” from the back of head to the
front of brain

Feelings that you are having a stroke….that you are “not
there” and can’t communicate

FACIAL

Muscle spasms in forehead, so tight that at times cannot open my eyes

Muscle spasms in cheeks; corners of mouth would pull back
right side of face involuntarily

Forehead injected muscles when started to regain
movement….the amount of movement would be intermittent; would sometimes be able to move muscles and then other times would be paralyzed again.

Droopy eyelids

Twitching eyelids, nose, below eyes, chin, corners of mouth (sometimes mild and sometime violent)

Increased number of veins and wrinkles in forehead

More pronounced muscles above eyebrows (once movement was
regained)

VISUAL

Intermittent blurred vision

Sensations of eye movements moving back/forth quickly with
eyes closed at night when trying to fall asleep

Muscle surrounding eyes twitching at night with eyes closed

Increased number of eye floaters

Abnormal pupil size…or one eye being slightly different size than the other

Globs of “gunk” floating in eyes

Redness in eyes

“Flea-type” movements seen in peripheral vision

“Static” black/white snowy-type vision at night

Extreme dry eyes to the point of not being able to move eyes

Eye pain behind eyes

Eyes not moving back/forth at the same time or some loss of range of movement

Sensitivity to light

Difficulty focusing on things in distance (uncomfortable
feeling)

Objects in distance appear to “shake”

Episodes of eyes quickly jerking back/forth when lying down
and looking sideways

Red/purple squiggly lines seen in center of vision at night
when trying to fall asleep

SPEECH

Slurred speech

Inability to get words out or think of words to say (during
times of head feeling tight)

COGNITIVE

Typing words that are different than what is being thought

Difficulty having prolonged conversation

Difficulty with following timeline of events….have to write
things down to understand

More forgetful

Difficulty multi-tasking

Taking longer to do things

Difficulty having conversation in groups of people

MUSCLE

Throat would tighten and close up; throat spasms

Tightness, pain and weakness in back of neck

Weakness in forearms

Forearm spasms

Muscle spasms in neck, shoulder blade area, upper and lower
back.

Weakness in back muscles.

Muscle spasms and weakness in thighs

Arms tighten up and move inward towards chest with wrists
pulled back; head pulls back with chin upward toward ceiling.  Body would involuntarily pull in jerking
motions. (Spastic-type movements)

Prolonged cramping in feet, sometimes creating inability to walk

Muscles tighten when touched or rubbed

Overall body weakness

Intolerance to exercise (would worsen symptoms)

Abdominal pain and weakness

Incontinence

Inability to push bowels (could not go to bathroom)

SENSORY

Intermittent increased sensitivity to smells

Burning on tip of tongue

Constant feelings of nerve “pulsations” through your body

Lowered level of pain threshold

Cannot watch TV or listen to music due to sensory overload

Extreme sensitivity to movement (cannot watch things moving
fast)

SINUSES

Clogged feeling in sinuses

Intermittent increased sinus drainage (sinus drains like a
faucet…out of nowhere)

EARS

Plugged feeling in ears

Ringing in ears

Constant popping in ears

Pain in ears

Sudden loss of hearing in right ear; gradually returns

Extreme sensitivity to loud noise

MOVEMENT

Vertigo, lasting 6-8 hours

General feeling of dizziness

Dizziness when turning head or body too quickly

Abnormal gait (swinging legs out in front when walking)

External tremors (extreme movements of head
(back/forth/up/down))

NERVE

Intense nerve “sensations” down neck/spine, at worst lasting for hours

Nerve “pulsations” down neck/spine and into arms

Intense nerve electrical-shock type feelings in various
parts of body

Tingling/numbness in hands, feet, legs

Tingling/numbess in forehead and down sides of face

“Buzzing” feeling in legs/feet

Internal “shakiness”/tremors

Sharp needle-prickly pain in both heels

Painful sensitivity in genital area

Intolerance to cold or extreme heat

MISC

Mild anxiety at onset; extreme anxiety at relapse

Panic attacks

Mood swings….feelings of deep depression that hit suddenly
and leave just as suddenly

Crying spells that are not set off by any particular feeling
or event

Insomnia; loud buzzing sound inside head when first falling
asleep

Extreme dry mouth

Naseau  lasting forweeks or can come/go several times in a day

Diarrhea or loose stool

Extreme fatigue…..again that can come/go quickly

Intolerance to alcohol

Extreme intolerance to sugar and some foods

Sensitivity to medicines, vitamins

Sensitivity to chemicals

Racing heart; heart palpitations

Sharp pain in center of chest

Intermittent shortness of breath

Hot flashes/cold chills

Severe back pain/sciatica

Joint pain (shoulder and knees)

Tightness in chest; heaviness; difficulty breathing

Burning, itchy rash down sides of legs, on back, stomach
area

Inability to drive (to do sensitivity to movement issues)

I THINK I have remembered most of them!    Yes…..this list is extensive…..and just getting through the day can be quite challenging…….as most of you know.    I just keep trying to take one day at a time….and try not to think about how long this may take to be fully recovered.

I am still seeking various practitioners to offer any sort
of help in the recovery process.   I recently had brain “mapping” done….which is used as a diagnostic and treatment tool for those who have various brain disorders and/or brain injury.    I am also seeking assistance from a naturopathic physician and mind/body practitioner….as well as waiting results of tests done by a chiropractic neurologist.   This….on top of the continual monitoring being done by my regular physicians.  I am continuing a gluten and dairy-free diet.  It is hard to say it if has helped with symptoms or not…..as again, I haven’t seen any noticeable improvement since starting it….but given that I do believe that the neurotoxin has set off some sort of inflammatory response in our bodies…..I am going to continue with that.    I am still unable to drive or work full time, and haven’t been able to resume any sort of social schedule yet.     On top of dealing with all of the symptoms, the
isolation that results from this illness is yet another thing that we end up having to deal with.    Hence, this is why discussion boards like this are so important. ….if only to post things like this….and hope that in doing so…..there is some help and/or connection that is
being offered/made with others.

I hope/wish for healing for everyone.

 

 

haha frownies – gonna try em

ok you guys i have just found a super goofy product that i am going to try.

they are called ‘frownies’ and they are really, really goofy. the reason i want to try them is that i have often wished i had some sort of tape or something, that would hold my face in place while i sleep, cause for some reason while i am sleeping my muscles get extremely bunched up and always look incredibly awful in the morning, maybe from lack of tone, i really dont know, it takes hours of ice and massage and stuff to get it to look even as bad as it usually looks, cause in the morning its so much worse.. i feel like this is making the whole thing worse since it spends all night, in this weird position rather than healing normally. so ive often thought about this idea of taping my face to hold it from getting so scrunched up at night.

anyhow theres apparnetly a product that does this, its called frownies and they totally make me laugh. basically they stick on your face and hold the muscles flat. i just ordered some and im hoping they get here tomorrow. i wish i had been using them the whole time rahter than starting now, but im hopeful they may help. the same company also make other eye products like under eye gels for puffiness and some other things. they generally get pretty good reviews and have been around for a long time so might be worth a try.

i only wish i had started much earlier as ive already spent months like this, probably making it worse the whole time… but i guess better late than never.

i didnt order the undereye puffiness gels cause i couldnt afford them but they are also available online. :> really hoping this helps some.