Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
I’m at 4 weeks post in injections and I have to say that the anxiety/upset stomach is one of the hardest parts to deal with. I’ve been taking xanax to help, but don’t want to rely on this too much. Can anyone tell me how long the anxiety/panic attacks lasted and what you did to help the symptoms?
I received 26 units of Botox injections in my forehead on December 28th. I’ve had botox once a year for about 6 years with no issues. However. within a few days I noticed that my right eye felt a little droopy and numb. I also began to experience night sweats and intense anxiety, followed by tingling/numbness in my arms and legs, muscle weakness, dry eyes, brain fog and pain at the base of my skull. I immediately found this site, which of course scared me to death.
I began eating very healthy, drinking lots of water, sitting in the sauna at my gym, and working out every day – pretty much anything to flush this out of my system. I even went to an IV bar and paid $200 for a liver detox IV, along with Taurine and Tryphtophan for my anxiety. I also began taking neurotransmitter supplements (Taurine, Magnesium, GABA, Typhtophan, B6 and Niacin) at night. At about 2.5 weeks post injections, my symptoms seemed to subside. I felt normal again and thought it was over.
Then, right at about 4 weeks I got my period and holy cow did the symptoms come back worse than before. Intense tingling/numbness and weakness in my arms/legs, brain fog, intense night sweats and anxiety. I felt like my insides were burning, difficulty sleeping and shaky upon waking up. And I swear I’m noticing muscle atrophy around my shoulders and elbows, although this might be in my head.
I read posts on this site and see people experiencing much more severe symptoms and I’m very scared that I’m just at the beginning of this nightmare. I’d love to see some sort of timeline. Meaning, those who experience severe symptoms (having to drop out of work, can’t get out of bed, going to the hospital), did those symptoms come on immediately and then get better? Or were your symptoms mild at first and progress over the next few months?
I guess I’m wondering how much worse this is going to get. If I’m 4 weeks out and the symptoms are mild/moderate, does this mean it’s the worst it’s going to get? Or will things progressively get more severe?
I’m getting married in 8 months and am terrified that I’m not going to be able to walk down the aisle or enjoy my wedding day because of this stupid toxin!
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Hi all, I want to share my Botox experience to warn others.
I received Botox for the first time 2 weeks ago. Having injections around my eyes, between brows and above brows for cosmetic purposes.
This is my Botox diary below..
Botox injections at 12 pm
Bruise to one injection site on right hand side of my temple/crows feet lines.
Black dots in front of eyes for a few moments after the Botox
went home and rested.
Hot and cold tremors and awful feelings of anxiety by 6 pm onwards
Clammy hands and feet
Couldn’t eat all day after injections
Anxiety remained and got no sleep. Dry mouth
Pain to right side of temple
Anxiety hell/Deep feeling of dread
Twitching right eye
Couldn’t eat all day complete lack of appetite
Slept well tho
Slight Anxiety but much better
Twitching left eye – black dots in front of eyes twice
Dry mouth – peeling inside of bottom lip
Was able to eat lunch & dinner with effort
Not feeling like myself & low
Anxiety almost gone
Still have dry mouth
Still don’t feel like myself
Didn’t sleep well, woke 3 times during the night with hot sweats, bed soaked became a bit anxious after waking each time
From day 5 till now (day 14) symptons have gone, anxiety has gone but still get twitching in left eye and black dots in front of my eyes when in bright sun light.
I am hoping this was it for me, a short spell of hell, & never to return. I will never have Botox again even tho the results are good those few days of hell knocked me for six I have never experienced anything like it in my life and never wish to again!
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I was hesitant to post because I so badly want to say I am recovered and don’t want to discourage anyone. But here I am at the four year point; this has been my best year yet. At three years I started to see some improvement.
I still have pain everyday and new symptoms now and then. The new symptoms don’t last as long but can be just as painful. The old issues still come and go as well, but they too don’t last as long. The symptoms still seem to circulate though my system.
I seem a little less sensitive to things. My weight is back to normal. I still only work part- time. If I do too much I get pain. I have been able to be more social. Still not back to my regular exercise but I am running and have been able to increase my distance.
Recently, I had to have a biopsy on my breast and the light surgery caused a relapse but I recovered in about three weeks to my baseline. My baseline isn’t as bad as it was.
This has affected every part of my body. I am very careful in what I do, eat, drink and medical advice I take. I think this has changed my life forever. I probably would have killed myself if it wasn’t for the people on this forum and the encouragement and support I have gotten. I am forever grateful.
I hope to come back like others at some point and say that I am recovered. Everyone recovers in their own time.
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.
The website is WWW.ondamed.net
The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.
My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.
I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.
So, I thought I would share this with the group to see if anyone has tried it yet.
I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.
Hope and love to all
Thank you for the replies. I actually went about a week with light or nonexistent symptoms until yesterday. The feeling of a rock in my throat returned pretty strong and today same thing with the throat along with my ears feeling full. I talked to the dr who administered this crap and she actually suggested I try it again in a few months with a lighter dose to see if this happens again!!!! Are you freaking serious!!!! I’m just ready for this to end.
I found this website by searching for botox insomnia and was a little relieved to see that I’m not the only one suffering from this. Actually, it’s the headache/nausea/insomnia/anxiety combination that is scaring me.
I had several rounds of Botox several years ago and never had a problem at all. The only reason I discontinued was because of the money involved. I liked the effect it had on my forehead but couldn’t justify the expense at the time.
I switched Drs. and had a round about 4 months ago and didn’t have any problems that I was aware of then. I did notice dry mouth at night and thought it odd, but figured it was just another aspect of aging.
I had botox again about 2 weeks ago and about 5 days after that I got a dull headache. Not too bad but noticeable. It has since gotten a little worse. It feels like it’s behind my eyes. It’s not always present and the nausea usually starts about mid-day. Sleeping is only possible with drugs to help me and even then I’m waking up at 3 or 4 am every night. I noticed that happening the last time I had Botox but never put 2 and 2 together then. I haven’t had a full nights sleep in over a week. My eyesight also feels like it has changed in the last week or so. I’m much more sensitive to light that I was.
Actually, I was so freaked out that I went and had an HIV test to see if it was seroconversion illness. I thought having that come back negative would put an end to the headaches, in case they were stress related.
I mentioned it to the Dr. who injected me but not surprisingly, he seems to think that it must be something else because “I’ve never heard any of my other patients complaining about this… go see your GP”. I know what my GP would say… “talk to the person who injected you and stop putting that crap in your body”. I may go back to the Dr. who did the injections with the documentation from the Allergan site and ask how he can rule out Botox as a possibility.
Though I don’t feel like eating, I can (except for one rather unappetizing meal last week) and though I feel like vomiting, I haven’t.
It’s certainly been the oddest thing I’ve gone through, as well as the scariest. I don’t feel normal in my own skin, which is very disconcerting.
So I guess my question to the group is, do you think this is Botox related or is it possible that there is something else at play?
I had Botox the 7 of may and have been miserable since. I got 28 units in my forehead and between my brows and I’ve been feeling awful. Dr said that she had never heard of my symptoms associated with cosmetic botox. Choking feeling that comes and go’s, ear pressure, stomach burning. I hate this. I wouldn’t get Botox again for ANYTHING!!! I feel like a terrible mother and wife because this has consumed me!!!
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
Let me start by saying english is my secondary language so I’ll try to be as simple as possible.My name is Sid and I’m in my mid twenties.I am originally from Albania and coming here in Us was a dream come true untill november of 2008 which I was diagnosed with cervical dystonia after an adverse reaction to a med that I used for exessive burping .After countless visits and loads of medications trying to relief the spasms my neurologist suggested that botox might help me.I started getting botox injections in 2009 and the first time after like 3 weeks of severe migraines finally i got some relief that lasted about 2 months with some side effects like throat and heavy head .So i went ahead and repeated the injections every 3 months even though the effect was less and the side effects were worse specially swallowing difficulties but nothing major.So this february my doctor recomended that since i was having side effects from botox maybe trying a new toxin Xeomin would give me better results.Anyway i went ahead and decided to go with it( bad idea).That’s when hell broke lose.4 weeks after the injection I woke up very dizzy and feeling lightheaded.I decided to go visit a friend but the longer the hours went by the more dizzy and shortness of breath I was having. So i stopped my car and i decided to call an ambulance.The doctor called it a panic attack and lorazepam seamed to help a little but later that day i ended up in er again cause i was extremely weak and feeling like passing out due to general weakness .They first said it was asthma and then anxiety and gave some prednisone which helped a little.To make a long story short since then i been in and out of emergency rooms.Having extreme hard time breathing ,my throat feels numb and like closing ,my muscle have gone twiching and very numb ,i can’t stand heat ,having chills and stomach pains,frequency urinating ,feeling like passing out every day specially when i move ,my anxiety has skyrocked to levels that i never thought were possible,my left side of my body has gone numb and i have loss of feelings ,dry mouth and sinus issues and the worst thing is it’s been going on for 7 weeks now and no doctor can seem to make sens of it or help me out which is very depressing.My neurologist that did the injections dissmised my symptoms as anxiety related even though I told him that i been doing these injections for 2 years and never feelt like this not even close. Since my doc was either playing dumb or try to cover his a.. I went to a pulmonary doc and did a spiometry test wich showed that my diaphraghm muscles are weak and now I need to do and emg to see if Xeomin(190 units) has effected my phrentic nerve .It has been a nightmare and is still going and for the first time in my life i am scared what could be next.Sorry maybe i wrote to long but this thing has taken a toll on me and i was just reaching out to see if anybody has found and remedies on how to lessen the symptoms.God bless u all and any suggestions or just sharing the experience would help so i don’t feel like i’m the only one going thru this .