I hope everyone is on the way to recovery or recovered.
I was hoping to be better by now. It will be 5 years in April that I got the Botox. I continue to have issues with fatigue, brain fog, some tingling, circulation problems, dry mouth, eyes and nose and a few others. But, my biggest issue continues to be the muscle and fat atrophy. It has continued to get worse instead of better. I really am so scared. I don’t know what is causing it at this point. My face, eyes and head are so sunken. I don’t see myself anymore. My teeth, gums, nails, body and hair have also been changed. I have tested for ANA, RF, C reactive protein, SED rate and they are all normal. My face changes by the week…I am so scared. Does anyone have any ideas what this could be? Is it still a direct effect of the toxin?
I appreciate everyone’s support!
Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
I’m at 4 weeks post in injections and I have to say that the anxiety/upset stomach is one of the hardest parts to deal with. I’ve been taking xanax to help, but don’t want to rely on this too much. Can anyone tell me how long the anxiety/panic attacks lasted and what you did to help the symptoms?
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi. I am new here and wanting to reach out to other people who have received Botox injections for migraines and had negative reactions, and no doctors that believe them. I started injections in September 2014. I have not felt normal since then. For most of the school year, I just basically didn’t feel right and had an increase in intensity of daily headaches. As the year progressed, I felt worse and worse, with vague symptoms. I just didn’t feel right. Right around May, I began to experience a lot of pain and weakness in my joints (all of them). I also became very fatigued, sometimes sleeping up to 20 hrs a day. I am now diagnosed with Rheumatoid Arthritis and on disability. In September 2014, before I got my first Botox injections, I completed a 24 mile mountain bike ride. Now, a year and few months later, my husband has to help me up from the couch, I have to arrange for a driver, I can’t use the can opener. I feel positive that this is all from the Botox injections. I have asked every doctor that I have seen and none agree or even consider it a possibility. Has anyone else been diagnosed with an autoimmune disease after receiving Botox injections for migraines?
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
Hi everyone, I’m new to this site and am so grateful to find I’m not alone. I’m just wondering if my issues sound Botox related? I’ve had all the testing done (Opthsmologists, neurologist, rheumatologists, CT scan, MRI etc) & no one can figure out what’s going on – most attribute to anxiety (which I certainly know is not the case!).
ive had joint/nerve pain for past 6 months (buzzing between my elbows to hands/fingers and knees to gets/toes). But after my last injections (in late March 2015), I’ve had eye problems. It started with pain behind my left eye, then became strained when focusing (eg, reading/using computer) and strain would lead to slight blurriness. Then I contracted conjunctivitis, then my cornea scarred up, healed, but then I had blurry vision, pupil would dilate (and pupil spasm) and double vision. I’ve also had eye test which shows my vision has changed in just a few months.
I’m absolutely terrified because I can’t work and am in constant pain with eye and body (with occasional moments of relief). I can’t use computer (I’m only using one eye to type this on my phone). I don’t have family or partner to help and my friends just don’t understand. I’ve been referred to neuro – opthamologist, but that could be months off.
I eat paleo, no sugar, no caffine, no alcohol etc…but doesn’t show any improvement with symptoms.
I also have terrible insomnia, and get bouts of extreme anxiety, and severe depression when I wake up.
This site has offered me the only bit of hope I’ve had so far. Do my symptoms sound Botox related? And does anyone have any similar experience or have advice or help? I’m desperate ?
I posted about recently about my bad experience of Botox. I have muscular dystrophy and was given Botox for spasticity in my ankle. The neuro said it was a “small” dose. I went through hell for six weeks…muscle weakness preventing me from walking or working or driving, breathing problems, hungry for air. Eventually got my review appointment with neuro moved forward after complaining a lot about symptoms. The neuro said I have had a generalised effect on my body due to Botox but that it will “definitely” wear off in the three months. After explaining the fear and depression I have due to feeling my life has been ruined he prescribed me with Mestinon which I believe is used for Myastenia Gravis but he said is used “off-label” for Botox adverse effects. I have been taking it since Tuesday and to be fair, it really does help with the muscle weakness but only for about three hours each dose. Now the breathing problems are back in full force though and it’s very scary. I don’t really know what to do and I’m so worried after reading the posts on here that it probably WONT be the three months before I’m better. I am living with muscular dystrophy which was hard enough but I was so active and outgoing and busy. I’m now a recluse at 26 years of age. Getting out of bed is difficult where as before getting me to stay in the house was a task!!! Does anyone have any success stories wherein the Botox actually DID wear off in the three months?
I would be so grateful if I could get some advice on how long I will be suffering the side effects of Botox. I had injections into my right calf on the 13th of May 2015 to try and bring my ankle to the ground as I toe walk due to a muscle contracture. and two weeks later I developed some pretty bad side effects. My breathing is very laboured and I cannot get a deep breath as it feels like my rib muscles aren’t strong enough. The worst side effect is the muscle weakness and fatigue that I’m feeling throughout my whole body. Every limb and muscle is so weak and I now cannot work or drive due to the loss of strength. It’s worth noting that I already have muscular dystrophy so this has made me even worse than I ever was. It has been six weeks since the injection. I have been to A and E once already and spoke to the doctor that administeredn the injection. He said that it is most likely linked to the Botox and that my symptoms should subside after about two months. Any input or advice would be greatly appreciated.
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I have been having some teeth related issues and want to know if anyone has any recommendations. Over the past 6 or 7 months I have noticed that my teeth have changed. There is more spacing between them and when I brush them they don’t feel the same. Also, there is a transparent look to them. I have been using a special toothpaste for enamel, but I don’t know if it is helping. I have also been taking a mineral supplement. Another support member has been having problems with teeth related sensitivity to eating cold foods and has had a tooth break off.
Thanks so much!
Wishing everyone lots of healing.
Hello.. I received BOTOX for about 4 years between my brows without any problems, as a matter of fact, I loved the results! The BOTOX cured my tension headaches, definitely decreased my migraines, as well as getting rid of the nasty frown line between my brows(that I had developed due to my head aches0). My last injection was on June 17, 2013. I had 33.5 units injected between my brows. The first problem I noticed was my right eyelid seemed odd, not drooping but it almost looked swollen. I contacted the injecting DR the next day, he had me go in and said that eye actually looked better, that I should wait at least two weeks for the final result. A few days later I started noticing bladder issues and problems swallowing. I called again and was told that those symptoms only happen to people who have much more BOTOX injected, that it wasn’t possible the BOTOX was causing these issues. A couple of weeks later I noticed a triangular shaped dent in the center of my forehead. That went away after a few weeks, but then a dent between my brows and one above my left brow appeared, approximately 10 weeks after the last injection. I contacted the DR again, he saw me and said I probably just needed more BOTOX. I declined! I went to about 6 plastic surgeons looking for help, almost all suggested more BOTOX. My eyelid still didn’t look right and the BOTOX wasn’t working well as it had in the past, so I declined. I started getting strange head aches, I would get a sharp pain in my right eye then a horrid head ache that at times only lasted 30 minutes. I developed anxiety, severe depression, dry eyes and insomnia. Melatonin would help me fall asleep, but I would only sleep a few hours then up the rest of the night. The dents have continued to get worse and I HATE looking at myself in the mirror, they are all I see. Frownies have helped somewhat but its very temporary. This summer I had some foot pain (I had it for the last two years but it kept increasing)> I finally saw a Podiatrist who said it was a stress fracture&put a boot on me. A few weeks later I woke up in the middle of the night in severe pain, pain I’d NEVER had previously. Saw the Podiatrist the next day, he said to stay off completely and try crutches. It just kept getting worse, I couldn;t even wear socks, it felt like the sock was crushing my foot. Back to the Dr who explained it had to be neuralgia& I needed to get in PT ASAP. Therapist did her eval, explained I have CRPS. My nervous system was sending incorrect pain signals. Well, a few weeks later it spread to my other foot, then hands> I saw another Physical Therapist, she confirmed and also told me I have Raynauds (which is an auto immune disease). I then went to a Neurologist, I didn’t want pain meds, just hoping for a different diagnosis and some help. There is no cure for CRPS, and at the time I couldn’t even walk, I am a single mother with three daughters and couldn’t even work. I was scared to death that I was going to be permanently disabled. I have pushed through the pain, and force myself to move every day. If I distract myself and try to do regular activities it seems to help. I stopped going to PT because I could no longer afford my health insurance because I wasn’t working. I wake up at night with tingling in my hands, they are stiff and painful and seem to get stuck when I use them a lot. I am posting now because I read a couple other people’s posts stating they have CRPS as well, I didn’t want to sound like a crazy woman but that’s how I’ve felt. I have always been very healthy and active, the only time I started having problems was when I had that last injection. Every Dr I saw said it couldn’t be the BOTOX, except my PCP. IF the BOTOX has caused this disabling condition, it should be listed as a possible side effect. It is the MOST painful thing I have experienced, and I have given birth to three babies, without drugs of any kind! The dents are very troubling as well. One DR did state that it was atrophy and I could wait a year or so, but they have only gotten worse. If anyone has info, be it good or bad, I’d love to hear from you! I want answers.
I started having an issue with food and liquid going past my esophagus into my stomach about a year ago. Food would get stuck and liquid would refuse to go down. My body would hiccup to help move it along or it would eventually go down with quite a bit of pain. Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food. My doctor sent me to get an upper GI. The diagnosis was “Achalasia” my esophagus was literally closed and turned up into what is known as a birds beak. I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis. The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery. I asked if he could explain both and he said he didn’t have time. Later that evening I was being taken to do the “Botox” treatment. I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed. No explanation on how it was done exactly or any info on side effects or future care or concerns. Within a couple of days I started to have confusion issues. By two weeks after the injection I was having pretty serious memory and confusion issues. I was extremely fatigued and dizziness was starting to be more frequent. I thought these symptoms were from lack of food and possibly dehydration. There was some food and liquid going down but not what would be considered usual. I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia. I personally have known quite a few over 80’s that have had anesthesia induced dementia. So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox). I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment. I had an event that I was putting on that needed my attention before I could take the time off. It ended up being the most stressful event of my entire marketing career. I couldn’t figure out how to organize anything. The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day. After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”. Before I went in to the surgery the Anesthesiologist came by to see if I had any questions. I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia. We decided since I couldn’t eat or drink I needed the surgery. After the surgery I was extremely fatigued. Slept a lot, had dizziness and still had pretty severe confusion and memory issues. I thought they would go away as I healed. 2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine. I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery. About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties. Slurring and confusion on which words to use. Even stuttering at times. I feel the surgery for the “Achalasia” was a success. The symptoms that I have discussed earlier are all over the map. Some days I feel like I am coming out of it. Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much. Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand. Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse. I have had a CT scan, every blood test available, even a spinal tap to try and find out what is causing these symptoms. Nothing to be found. My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case. My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them. The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist. My daughters father started looking into Botox, botulism poisoning and finally found this site. I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms. When he told me he found this site, I broke down crying. It lifted the huge dark cloud that had been hanging over my head for quite a while now. It isn’t gone completely but I can breath just knowing this is real. I am not crazy, imagining these symptoms. I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning. I am willing to try it to see if I can function enough to do my job. I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road. I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.
Much Aloha for now, Cathyann
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
I have posted my story previously.
I am 9 weeks in after having 15 shots of botox in my head, neck and shoulders for chronic pain.
As I have antidepressant withdrawl induced CFS and Lyme, I am already very drug sensitive.
Since I had the major reaction to the shots, I have been trying various medications to help. Every drug I have taken has given me a hypersensitive reaction, a ‘stimulating’ one. From Naproxen to gabapentin to nortriptyline. These stimulating reactions although they made my pain hyper would get me through a day and allow me to do things, though my body would ‘drop’ again afterwards.
The anticholinergic effect on my body means my muscles have turned very soft and weak, making my lymphatic system not work properly (puffy eyes and swollen feet), AND My Neck AND Shoulder Muscles Drop SO Much THE nerves around my head and face and neck pull downwards, ringing ears, hisding actually,with such a force my migraines and eyesight are getting worse daily. As I have fibromyalgia, I have severe twitching around all my nerves on my body as my muscles have become so weak.
After skipping around taking gabapentin for a few days I noticed I was getting dry skin and spots mire and my face is so dry I was burning in the sun.
I then tried to go back on nortriptyline a drug I have taken last year. Both nights I took it my migraine became so sharp, then the ‘drop’ the next day. On the second day of 10 mg, my skin was dry, paper thin and had a red rash the looked like someone had thrown acid in my face! I used to get very dry skin from Colestyramine or charcoal because it would absorb fluids from my gut, make my pain worse and again, throw my nervous system into disarray
I stopped again.
I KNOW this is due to my nervous system being whacked out and over stimulated.
I just need to know how I can get better!
Is there anything I can do to counteract the muscle weakness I am having? A supplement or drug?
It definitely is my nervous system all over the shop.
I don’t know if my reaction to nortriptyline was a proper one: the redness/dry out I would normally only get from taking a large dose of a drug and it affecting my autonomic nervous system that badly.
The dry skin is something new and it’s just getting worse. Lack of oxygen and nervous system exhaustion?
I am having a good diet when I can eat: protein, veg and complex carbs (I have only just started eating these again as I am so drained it’s the only burst of energy I get)
I don’t know what supplements to take
I have had a lot of Epsom salt baths also very drying.
Please can someone offer advice?
I’m not making the paper dry skin thing up.
I am 9 weeks in and back in my wheelchair and am having severe depression and anxiety because of the effects too and have thoughts of ending it all. I am in touch with mental health.
I should say that I have been trying to detox, have acupuncture and Lymphatic drain age if my head and neck and am not sure if this us also contributing to making it worse. I did a very stimulating body brushing on Saturday to try and get this poison out. I did AC every few days at the beginning.
Thank you for any help xx
Especially on muscle regeneration and nerve repair
Hi All, I am new to the post. I had my most recent injection crows feet with Dysport on Jan 10, 2014. What was I thinking… prior to that had Dysport on Oct., 22, 2013 and had full blown chest pains, heart palpitations, droopy eyes and blurry vision, insomnia, memory loss, tingling, dehydration, mouth sores. I honestly thought it was the flu and my body was just reacting, I now know it was the injection. For some crazy reason I thought I was better and went for that injection in January. I am so STUPID!!!!! I have been using botox and Dysport for 6 years WHAT HAVE I DONE!!
After the injection on Jan. 10 I just had a little blurry vision, which I always blame on my contacts and dry eyes. Onset of symptoms came 10 days later with chest pains, heart palpitations, blurry vision, insomnia, memory loss, tingling, dehydration. The worst is the Insomnia and no appetite… I am afraid to eat. I went to doctor Blood work PERFECT! Went to cardiologist EKG perfect…. they all said don’t do anymore botox. I feel as if my memory loss and confusion are getting worse. My breathing is okay just tight throat, no heart palpitations in the past few days. My muscle tone is barely there. My arms tingle and at times I feel itchy on my dry fingers and elbows. Insomnia and anxiety are full blown, I am a real sleeper so this is making me confused more.
WHAT TO DO??? Please advise, I am scared I am going to die and doing this all alone. My vision is still weird but clear… Any help for anything is greatly appreciated. What can I eat so that this doesn’t get worse, what can I take? Do I go to emergency room? Will my breathing stop? I am so scared…
I am so sad and lost xo
I am a 37 year old male (Scotland)had botox feb 15th 2013 and within a week … Bang I had botox ev 4 months prior to that with no problems but this time I was dizzy,fuzzy vision, felt my head was in a vice,severe severe anxiety and depression to the point I didn’t want to be alive anymore,I have two boys 1 just 11 weeks now and there were I found my strength to get through I would wake every day praying for bedtime hoping that time would take this away if I didn’t work for my dad I believe I would be sacked couldnt concentrate or function it has put enormous strain on my marriage,it’s been 10 months now and I think and hope I’m slowly getting better from 6 months. Iv had periods of feeling bit better but always relapse,I found this site early so decided not to take meds but with every relapse it gets harder, does anybody know how long this will last is it permanent and if I should take anxiety meds and if so what ones your help would be greatly appreciated as I am in a living nightmare