Tag Archives: Convulsions/seizures

Oxygen in drops anyone tried?

Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..

Here is link to Oxy drops

http://www.earthsbounty.com/cgi-bin/commerce.cgi?preadd=action&key=1100-OXY_MAX

I will post about it when I get more info.

Sending all healing thoughts xoxo

Slowly but surely – recovery taking time but is real

Hello,  I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.

My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference.  I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.

Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile –  the absolute worst was when I had 2 terrifying panic attacks  within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next.  If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.

I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that.  While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to.  That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.

My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.

If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body.  This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.

I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!

Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected.  You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.

Take care and don’t lose hope,

HopefulD from Canada

 

 

 

 

 

Edema/swelling around eyes after botox

Hello everyone,
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much

24 Month Update…..

Well….it has been 2 years since my injections of Dysport.  I wish that I was typing this in the “fully recovered” section of this website, or even “almost recovered”, but, unfortunately, that is not the case for me.  :(
Those of you that have been following my journey know that I am still suffering from a major relapse of my symptoms at 17 months after feeling almost back to normal for a few months.   I, now at 24 months, feel that I have been at a plateau without much improvement for the past few months.   Again….this posting is not to cause fear or alarm for others just starting with their symptoms….as everyone has a different
path, body chemistry and length of time for healing.   Just as so much of what is happening to us is not understood….the same goes for our recovery.  There doesn’t seem to be a true understanding of any of this….and there is not a set schedule for everyone…..and what has
worked in recovery for some doesn’t work for all.

However, with that being said…….what does seem to be common
are our symptoms.   And…LOTS of them.   In thinking what I could possibly post to be of any help at the 2-year mark….is perhaps just list the myriad of symptoms that I have experienced and/or am still experiencing.   Again, those of you just starting with this ordeal can use this reference list as a guide to what you might be feeling…and wondering…..is THIS (….fill in the blank) from my toxin injection….or has anyone else experienced THIS (….fill in the blank)???   Well….scan the list of things…..and most of us on here have experienced many of these symptoms…and more.   I have had all of the below……and still have most of them intermittently.   I have them listed by category.

HEAD

Head pressure on sides of head (vice grip feeling)

Feelings of “worms” crawling inside head

Feelings of brain spasming; tightness within the head cavity
to the point of not being able to think straight

Headaches…both dull ache and migraine

Overall “numbness” or feeling that you have had novocaine
shot into your brain

Numbness in temple area; putting pressure on this area
causes nerve sensations down back of head

Lightheadness

“Buzzing” or vibration feeling in head, mostly at night when
trying to sleep

Extreme pain in the back of the head (area where the skull
meet the spine)

Slight head bobbing with the pulsation of my heartbeat

Feeling of sudden “blood rush” from the back of head to the
front of brain

Feelings that you are having a stroke….that you are “not
there” and can’t communicate

FACIAL

Muscle spasms in forehead, so tight that at times cannot open my eyes

Muscle spasms in cheeks; corners of mouth would pull back
right side of face involuntarily

Forehead injected muscles when started to regain
movement….the amount of movement would be intermittent; would sometimes be able to move muscles and then other times would be paralyzed again.

Droopy eyelids

Twitching eyelids, nose, below eyes, chin, corners of mouth (sometimes mild and sometime violent)

Increased number of veins and wrinkles in forehead

More pronounced muscles above eyebrows (once movement was
regained)

VISUAL

Intermittent blurred vision

Sensations of eye movements moving back/forth quickly with
eyes closed at night when trying to fall asleep

Muscle surrounding eyes twitching at night with eyes closed

Increased number of eye floaters

Abnormal pupil size…or one eye being slightly different size than the other

Globs of “gunk” floating in eyes

Redness in eyes

“Flea-type” movements seen in peripheral vision

“Static” black/white snowy-type vision at night

Extreme dry eyes to the point of not being able to move eyes

Eye pain behind eyes

Eyes not moving back/forth at the same time or some loss of range of movement

Sensitivity to light

Difficulty focusing on things in distance (uncomfortable
feeling)

Objects in distance appear to “shake”

Episodes of eyes quickly jerking back/forth when lying down
and looking sideways

Red/purple squiggly lines seen in center of vision at night
when trying to fall asleep

SPEECH

Slurred speech

Inability to get words out or think of words to say (during
times of head feeling tight)

COGNITIVE

Typing words that are different than what is being thought

Difficulty having prolonged conversation

Difficulty with following timeline of events….have to write
things down to understand

More forgetful

Difficulty multi-tasking

Taking longer to do things

Difficulty having conversation in groups of people

MUSCLE

Throat would tighten and close up; throat spasms

Tightness, pain and weakness in back of neck

Weakness in forearms

Forearm spasms

Muscle spasms in neck, shoulder blade area, upper and lower
back.

Weakness in back muscles.

Muscle spasms and weakness in thighs

Arms tighten up and move inward towards chest with wrists
pulled back; head pulls back with chin upward toward ceiling.  Body would involuntarily pull in jerking
motions. (Spastic-type movements)

Prolonged cramping in feet, sometimes creating inability to walk

Muscles tighten when touched or rubbed

Overall body weakness

Intolerance to exercise (would worsen symptoms)

Abdominal pain and weakness

Incontinence

Inability to push bowels (could not go to bathroom)

SENSORY

Intermittent increased sensitivity to smells

Burning on tip of tongue

Constant feelings of nerve “pulsations” through your body

Lowered level of pain threshold

Cannot watch TV or listen to music due to sensory overload

Extreme sensitivity to movement (cannot watch things moving
fast)

SINUSES

Clogged feeling in sinuses

Intermittent increased sinus drainage (sinus drains like a
faucet…out of nowhere)

EARS

Plugged feeling in ears

Ringing in ears

Constant popping in ears

Pain in ears

Sudden loss of hearing in right ear; gradually returns

Extreme sensitivity to loud noise

MOVEMENT

Vertigo, lasting 6-8 hours

General feeling of dizziness

Dizziness when turning head or body too quickly

Abnormal gait (swinging legs out in front when walking)

External tremors (extreme movements of head
(back/forth/up/down))

NERVE

Intense nerve “sensations” down neck/spine, at worst lasting for hours

Nerve “pulsations” down neck/spine and into arms

Intense nerve electrical-shock type feelings in various
parts of body

Tingling/numbness in hands, feet, legs

Tingling/numbess in forehead and down sides of face

“Buzzing” feeling in legs/feet

Internal “shakiness”/tremors

Sharp needle-prickly pain in both heels

Painful sensitivity in genital area

Intolerance to cold or extreme heat

MISC

Mild anxiety at onset; extreme anxiety at relapse

Panic attacks

Mood swings….feelings of deep depression that hit suddenly
and leave just as suddenly

Crying spells that are not set off by any particular feeling
or event

Insomnia; loud buzzing sound inside head when first falling
asleep

Extreme dry mouth

Naseau  lasting forweeks or can come/go several times in a day

Diarrhea or loose stool

Extreme fatigue…..again that can come/go quickly

Intolerance to alcohol

Extreme intolerance to sugar and some foods

Sensitivity to medicines, vitamins

Sensitivity to chemicals

Racing heart; heart palpitations

Sharp pain in center of chest

Intermittent shortness of breath

Hot flashes/cold chills

Severe back pain/sciatica

Joint pain (shoulder and knees)

Tightness in chest; heaviness; difficulty breathing

Burning, itchy rash down sides of legs, on back, stomach
area

Inability to drive (to do sensitivity to movement issues)

I THINK I have remembered most of them!    Yes…..this list is extensive…..and just getting through the day can be quite challenging…….as most of you know.    I just keep trying to take one day at a time….and try not to think about how long this may take to be fully recovered.

I am still seeking various practitioners to offer any sort
of help in the recovery process.   I recently had brain “mapping” done….which is used as a diagnostic and treatment tool for those who have various brain disorders and/or brain injury.    I am also seeking assistance from a naturopathic physician and mind/body practitioner….as well as waiting results of tests done by a chiropractic neurologist.   This….on top of the continual monitoring being done by my regular physicians.  I am continuing a gluten and dairy-free diet.  It is hard to say it if has helped with symptoms or not…..as again, I haven’t seen any noticeable improvement since starting it….but given that I do believe that the neurotoxin has set off some sort of inflammatory response in our bodies…..I am going to continue with that.    I am still unable to drive or work full time, and haven’t been able to resume any sort of social schedule yet.     On top of dealing with all of the symptoms, the
isolation that results from this illness is yet another thing that we end up having to deal with.    Hence, this is why discussion boards like this are so important. ….if only to post things like this….and hope that in doing so…..there is some help and/or connection that is
being offered/made with others.

I hope/wish for healing for everyone.