Tag Archives: Breathing Difficulties

Breathing Difficulties

Attorney. Lawyer. Lawsuit. Message me.

Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys.  Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.

First entry–12 days in

Hello everyone–First entry, I’ll try to be concise.  As mentioned on my profile, I developed a focal dystonia in my right hand as the result of 40+ years of playing steel-stringed folk guitar in the manner of John Fahey.  My thumb and first two fingers now spasm constantly, making it difficult to sleep.  The promise of a botox-fueled recovery, and being able to recover some playing ability, has been a siren song for the last few years, after having tried a bunch of medications that either did not work or turned me into a zombie (the combo of a fairly high dose of propranalol and baclofen was particularly awful, as was one of the patches for Parkinson’s, which makes you want to heave all day).  Tried botox twice, relatively small amounts, with some slight success and no SE.  Third time 25 units–15 between thumb and forefinger, and 10 on underside of forearm.  20 minutes or so after leaving my neurologist’s office (she is highly regarded in Albuquerque, where I live) I started to feel very heavy, but no breathing difficulties so I thought it would pass.  I guess the lesson  for anyone who has such a reaction, as so many of us have had, is to IMMEDIATELY return your doctor’s office or go to an ER and explain the situation.  I wish I had.  Later that day an extreme spike in anxiety, back muscles locked up.  I am pretty familiar with anxiety, having done a straight taper off of klonopin over 3 months earlier.  One of the hardest things I’ve ever had to do as an adult.  Please, anyone who is taking  benzos–be careful!  Day 5, started to have the other standard–as I now know from reading this site–symptoms.   Some difficulty swallowing, ears burning like crazy, flu-like symptoms, blood pressure through the roof, perpetual anxiety.  Several days later, some difficulty breathing.  Hard not to be anxious when that happens.  It was as if the toxic effects were moving slowly down my body.  Two nights ago, I finally went to an ER, and had a good chat with a doc who actually spent a lot of time with me.  He even called a neurologist at another hospital for a consult, as mine was out of town.  He probably would not look favorably at this blogsite, but he also did not dismiss me, as my voice was still hoarse, and I spoke of the swallowing and breathing issues.  The upshot from the ER visit ($700 later) was–“Your symptoms of weakness, difficulty swallowing and weak voice may well be due to a systemic botox infection, but these are not life-threatening and will wear off over time.  However, return to the ER for worsening weakness, swallowing difficulties or speech problems.”  So at least I was not dismissed out of hand.   But obviously, physicians need to take more seriously the very real risk of botox hitting the entire system, and not just staying at the intended site.  At 12 days in, I can only hope that things will not get too much worse, but they well may.  I’ll check in in another day or two.  The other thing that pisses me off is that I’m probably going to have to cancel a European Xmas market trip in December that I had planned, but if that’s the worst of it I will be fortunate, indeed.  It is likely to be a very unpleasant few months. Godspeed to all of us,  I really do sympathize.  Thanks also to those of you who share their recoveries.

I wish this was just a bad dream

Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.

Feeling helpless…and scared

Hi all

I posted about recently about my bad experience of Botox. I have muscular dystrophy and was given Botox for spasticity in my ankle. The neuro said it was a “small” dose. I went through hell for six weeks…muscle weakness preventing me from walking or working or driving, breathing problems, hungry for air. Eventually got my review appointment with neuro moved forward after complaining a lot about symptoms. The neuro said I have had a generalised effect on my body due to Botox but that it will “definitely” wear off in the three months. After explaining the fear and depression I have due to feeling my life has been ruined he prescribed me with Mestinon which I believe is used for Myastenia Gravis but he said is used “off-label” for Botox adverse effects. I have been taking it since Tuesday and to be fair, it really does help with the muscle weakness but only for about three hours each dose. Now the breathing problems are back in full force though and it’s very scary. I don’t really know what to do and I’m so worried after reading the posts on here that it probably WONT be the three months before I’m better. I am living with muscular dystrophy which was hard enough but I was so active and outgoing and busy. I’m now a recluse at 26 years of age. Getting out of bed is difficult where as before getting me to stay in the house was a task!!! Does anyone have any success stories wherein the Botox actually DID wear off in the three months?

Breathing problems. Muscle weakness

Hi all

I would be so grateful if I could get some advice on how long I will be suffering the side effects of Botox. I had injections into my right calf on the 13th of May 2015 to try and bring my ankle to the ground as I toe walk due to a muscle contracture.  and two weeks later I developed some pretty bad side effects. My breathing is very laboured and I cannot get a deep breath as it feels like my rib muscles aren’t strong enough. The worst side effect is the muscle weakness and fatigue that I’m feeling throughout my whole body. Every limb and muscle is so weak and I now cannot work or drive due to the loss of strength. It’s worth noting that I already have muscular dystrophy so this has made me even worse than I ever was. It has been six weeks since the injection. I have been to A and E once already and spoke to the doctor that administeredn the injection. He said that it is most likely linked to the Botox and that my symptoms should subside after about two months.  Any input or advice would be greatly appreciated.

 

matthew

Slowly but surely – recovery taking time but is real

Hello,  I have been on this site several times over the last 2 years and at the deepest hell pit of my symptoms can honestly say many of you saved my sanity!!! I am only registering and posting now to share my experience out of honest hope that I might be able to offer some of you a glimmer of optimism that recovery is real and can happen – though slowly with patience and courage.

My journey started in 2012 a as chronic migraine sufferer desperate for a treatment that would make a difference.  I received 4 rounds of injections over a near 10 month period. I got side effects (SEs) beginning approx 1 week after my initial treatment – only to be told what I was experiencing could in no way connected to Botox (sound familiar??). It took me a few rounds before I was able to start directly linking my SEs to the injections – hmmm – injections and symptoms – wow there is no coincidence. And it was discovering this website that gave me the proof I was looking for that I was not CRAZY like the MDs all told me I was! I am eternally grateful to this site and it’s members – because the night I discovered I was not alone I cannot begin to tell you what emotional relief it brought me.

Anxiety, and tachacardia have been the absolute biggest SEs I have had to manage in my recovery. Outside of a plethora of other SEs I experienced during active Botox treatments – feel free to review my profile –  the absolute worst was when I had 2 terrifying panic attacks  within about 1 month of each other – where I thought that’s it – sianara – off I go to the big blue yonder – convulsions and the works. I’m not posting today to relay all the horrors so many of you know too well in your own terrible journeys with this poison. Just reading the posts here sometimes sent me into panic over what might come next.  If you are in the deepest throws of your Botox nightmare right now – please believe me when I say it will get better – manage the best you can by whatever means brings you relief or support – and as hard as it sounds accept that time and deeply caring for yourself is the key – you are not alone – you are not crazy and it will get better! At least this has been my experience and I am confidant with time many of you will have the same.

I am now 17 months since my last injection. After reading many posts I was hopeful that I might find full recovery within about 6 to 12 months – and focussed on that.  While that hasn’t been my personal experience I can say that I now have literally weeks and sometimes months that will go by where I feel like I am almost back to my pre-Botox self – and then bam – a relapse will hit me out of the blue – for no apparent reason that I can link to.  That being said, the relapses are getting farther apart and when they happen they are more mild and manageable. While it winds my spirits and faith when it comes back – I remind myself that it will improve and pass (usually a couple of weeks) and I just need to stay focussed on believing that it has before and it will again. I now accept that my full recovery may still be a few years away. But when it does recur I know what it is, I know what to do and have the courage to continue to hang on.

My go to therapies have been healthy diet, massage, acupuncture, ativan for rescue when it gets bad and also tried calcium channel blockers to relieve my heart palpitations and anxiety. I only use ativan for rescue now when I have a relapse – it helps me fast when I feel a bad bout of anxiety coming on. Otherwise I try to ride out it out as best I can and take real comfort in the arms of my loving husband who has held my hand and heart throughout this nightmare.

If I were to say there is any silver lining in this nightmare it is this! I take much better care of myself now. I got healthier and more active and lost 50lbs and I am far more discerning of putting anything into my body.  This experience literally scared the crap out of me and I don’t take the precious days I have with my husband and family for granted. Not that I would ever have asked for or wished this upon anyone – but it forced me to get real with myself about many things including my health both physically and psychologically and see clearly that certain priorities in my life had to change. This was my wake up call and I had to answer it if there was to be any goodness that came from the nightmare.

I have reported my experience to my MDs and to Allergen and the local Health Authorities – but sadly don’t think it makes much difference. Though 1 MD professed he will be far more open to what other patients who may be using Botox experience. He termed me a “super responder” a patient with a high level of sensitivity to the drug. No shit!!!!

Thank you to all who have been brave enough to share your experiences and tips and offered heartfelt support to all of us affected.  You are helping more than you realize and in many meaningful ways – even to those who are invisible and looking for answers and some hope.

Take care and don’t lose hope,

HopefulD from Canada

 

 

 

 

 

Feeling faint and very weak after eating

I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .

My head is fuzzy and my nerves are tingly….

Hi All,  I am new to the post.  I had my most recent injection crows feet with Dysport on Jan 10, 2014.   What was I thinking… prior to that had Dysport on Oct., 22, 2013 and had full blown chest pains, heart palpitations, droopy eyes and blurry vision, insomnia, memory loss, tingling, dehydration, mouth sores.  I honestly thought it was the flu and my body was just reacting, I now know it was the injection.  For some crazy reason I thought I was better and went for that injection in January.  I am so STUPID!!!!! I have been using botox and Dysport for 6 years  WHAT HAVE I DONE!!

After the injection on Jan. 10 I just had a little blurry vision, which I always blame on my contacts and dry eyes.  Onset of symptoms came 10 days later with chest pains, heart palpitations, blurry vision, insomnia, memory loss, tingling, dehydration.   The worst is the Insomnia and no appetite… I am afraid to eat.    I went to doctor Blood work PERFECT!  Went to cardiologist EKG perfect…. they all said don’t do anymore botox.  I feel as if my memory loss and confusion are getting worse.  My breathing is okay just tight throat, no heart palpitations in the past few days.  My muscle tone is barely there.  My arms tingle and at times I feel itchy on my dry fingers and elbows.  Insomnia and anxiety are full blown, I am a real sleeper so this is making me confused more.

WHAT TO DO??? Please advise, I am scared I am going to die and doing this all alone.  My vision is still weird but clear… Any help for anything is greatly appreciated.   What can I eat so that this doesn’t get worse, what can I take?  Do I go to emergency room?  Will my breathing stop? I am so scared…

I am so sad and lost xo

Sadlady

 

 

 

 

 

 

 

My story

 

Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(

Weak nails and hair

I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx

I’m in hell!!!! I don’t k ow what to do. I’m so embarresed.

I had Botox the 7 of may and have been miserable since. I got 28 units in my forehead and between my brows and I’ve been feeling awful. Dr said that she had never heard of my symptoms associated with cosmetic botox. Choking feeling that comes and go’s, ear pressure, stomach burning. I hate this. I wouldn’t get Botox again for ANYTHING!!! I feel like a terrible mother and wife because this has consumed me!!!

Botox is BAD

After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!

Anybody out there has found any relief from this chronic poison?!

Let me start by saying english is my secondary language so I’ll try to be as simple as possible.My name is Sid and I’m in my mid twenties.I am originally from Albania and coming here in Us was a dream come true untill november of 2008 which I was diagnosed with cervical dystonia after an adverse reaction to a med that I used for exessive burping  .After countless visits and loads of medications trying to relief the spasms my neurologist suggested that botox might help me.I started getting botox injections in 2009 and the first time after like 3 weeks of severe migraines finally i got some relief that lasted about 2 months with some side effects like throat and heavy head .So i went ahead and repeated the injections every 3 months even though the effect was less and the side effects were worse specially swallowing  difficulties but nothing major.So this february my doctor recomended that since i was having side  effects from botox maybe trying a new toxin Xeomin would give me better results.Anyway i went ahead  and decided to go with it( bad idea).That’s when hell broke lose.4 weeks after the injection I woke up very dizzy and feeling lightheaded.I decided to go visit a friend but the longer the hours went by the more dizzy and shortness of breath I was having. So i stopped my car and i decided to call an ambulance.The doctor called it a panic attack and lorazepam seamed  to help a  little but later that day i ended up in er again cause i was extremely weak and feeling like passing out due to general weakness .They first said it was asthma and then anxiety and gave some prednisone which helped a little.To make a long story short since then i been in and out of emergency rooms.Having extreme hard time breathing ,my throat feels numb and like closing ,my muscle have gone twiching and very numb ,i can’t stand heat ,having chills and stomach pains,frequency urinating ,feeling like passing out every day specially when i move ,my anxiety has skyrocked to levels that i never thought were possible,my left side of my body has gone numb and i have loss of feelings ,dry mouth and sinus issues and the worst thing is it’s been going on for 7 weeks now and no doctor can seem to make sens  of it or help me out which is very depressing.My neurologist that did the injections dissmised my symptoms as anxiety related  even though I told him that i been doing these injections for 2 years and never feelt like this not even close. Since my doc was either playing dumb or try to cover his a.. I went to a pulmonary doc and did a spiometry test wich showed that my diaphraghm muscles are weak and now I need to do and emg to see if Xeomin(190 units) has effected my phrentic nerve .It has been a nightmare and is still going and for the first time in my life i am scared what could be next.Sorry maybe i wrote to long but this thing has taken a toll on me and i was just reaching out to see if anybody has found and remedies on how to lessen the symptoms.God bless u all and any suggestions or just sharing the experience would help so i don’t feel like i’m the only one going thru this .

Going on 7 months definitely improvement but still setbacks

Many of my symptoms have subsided except for hives, red burning patches, and the rediculous sensation that I cant breath.  The hives and burning red patches are daily but the breathing sensation comes off and on.  I went three weeks recently without it then my period started and its back.  Its certainly not as bad as it was in beginning but its soooo unpleasant–it comes with burning and muscle discomfort in the chest area below my ribs.  I worry when I get it that Im stuck like this for the rest of my life.  Has anyone had this and it went away for good??

Edema/swelling around eyes after botox

Hello everyone,
I introduce you my story :
I was injected in November 2011.
The 1st week : the worse effects, I was very tired, impossible to see objetcs in 3D !! Nausea, dizziness, breathing difficulty, dry mouth, difficulty to speak
1 month: dry mouth, dizziness, nausea, eye problems…
3-6 month : head pressure, headeaches and big big suffering in my brain, insomnia, eyes problems…
1 year (NOW) neurologic problems have decreased à lot !! But I suffer now from à big edema, maybe nettle rash according to doctors, my face is swelling, I first tried Extranaza and antihistamine .. But I am very scarry because swelling does not stop. Have you heard about edema, swelling problems one year after the incident? How can I fight it? And does It disappear? And when? Please I need help.
Thank you, thank you, thank you so much

Flu Botox symtoms begins after dermatologic laser called Fraxel

Hello, I have had a laser on my face on December 2011 and 1 month before, the injection of 125 dysports units on my face. One hour after the laser, eye problems begins, nausea, dry mouth appear, difficulty to speach … 9 months of Horror.. Today neurologic symptoms are decreasing but my face is swelling, i souffer of a very big edema. Does anyone have the same edema? And does It disappears? Tank you

25 months post .50 units botox

I stumbled on this site on accident looking for anyone who could be sharing their story about post botox injection problems.  I cant stop reading the posts! I live in the US (Ohio)  I thought I was the only one on earth who had an adverse reaction! The doctor who did the injection and her office staff treated me like I was crazy and they had never had a patient experience any of the symptoms I had felt!  I went on November 5th of 2010 just to talk to a dermatologist  about having the lines between my eyes softened (20 year class reunion was coming up the following weekend and I wanted to look nice)  She saw that and ran with it….. Before I knew it I was in a chair and she had .50 cc of botox ready to go.  I asked her if it was necessary to use all .50 of it and she replied that the price would be the same regardless and that I should use it all for the full effect.  I told her that I was sensitive to medicine and that I do not take much of anything because of it.  She assured me that they had never had bad side effects from this and that if given properly there were no risks. With that  I was sold, but looking back now I should have known better!  After the injection I drove home and about 30 minutes into the drive I started to feel like I was getting the flu, hot sweaty, sick to my stomach and just generally  unwell.  I pulled over and called the office and the nurse told me it could not be a result of the botox and that I should continue home and treat thee symptoms as the flu!  I made it home about 30 minutes later (a total of one and a half hours post injection)  By this time I could not swallow I had a fever and I was shaking badly.  I again called the office and was told that It must be an illness I was coming down with unrelated to the botox injection.  I did not know what to do, I tried to sleep but was unable to.  As I see with many other posts having the same problems.  Ringing in my ears was horrible!  Could not sleep for weeks, could not eat, felt like I had the stomach flu for weeks and lost 15 lbs.  Headaches, muscle twitches, dry mouth, hot flashes, etc, etc, etc.  Most of them started to get better within the first five months.  My primary Dr. had never heard anything like what I was experiencing and started to test my thyroid, kidneys, heart, blood, saw an ENT  because of the constant feeling of something in my throat and not being able to swallow, not even an Advil. Had  throat camera tests (that was not fun!) they found nothing.  Saw an endocrinologist and many many tests with him, a cardiologist and had a device I wore for 30 days because I had two fainting spells, a rheumatologist who said I had fibromyalgia?!? Other than the fibromyalgia diagnosis, NOTHING was wrong with me!  How could that be!! Over and above all of that the worst thing I felt and continue to feel 25 months later is constant anxiety and depression!  I have four small children, two businesses, I loved to run and ran marathons every year. (last one was September 2010)  Now because of the anxiety I can barely get from day to day!  I truly believe this drug has damaged my entire body and I am desperately looking for a way to get my life back without medications. I started looking into my diet in January 2012 and figured if I didn’t want to go crazy or take anxiety meds  I needed to try something so I cut out gluten, caffeine, sugar, red meat and all processed food from my diet and started to eat organic whenever possible.   I think diet has helped but once I feel a little better I will cheat (sugar, coffee, breads, processed foods) and I seem to be back to my panic attack, anxious, depressed self.  I am still a work in progress and have good and bad days!  I miss what I would call just feeling GOOD! I still cannot run or work out in much of any way because my heart will start beat rapidly and I begin to feel sick and faint.  My ears still ring all the time and as I said I just never feel GOOD any more.  I am afraid I will never feel the way I did before 11-5-2010.  Is there anyone out there who is post 25 mo and feeling better? Or any suggestions to help my body continue to get better? I wish every day that I would not have wanted to be vain for for a day!  It has ruined my life and effects my children and husband  (that is the worst part of it)!!

Newbie from uk at post 3 months

Hello All,

Typing this on I phone so apologies for mistakes! Just wanted to say that I have been so happy to have found this site as it has given me hope as I’m sure it has to you all, thanks everyone :). I first found it about a month ago but have been too frightened to look again. But now I feel a tiny bit better so I thought I’d post my story.

I’m 32, from Manchester uk. I had restylane lip and Botox at the same appointment. Had redtylane twice before no issues, never had Botox before. At the time I was suffering from a bad back (diagnosed as a bulging disc 3 weeks post Botox, not related had already had it for 4 weeks) I’d already had a few weeks off work with back in a new highly pressurised job so I had to be in work when the hell started. Thought all was fine then 3 weeks after injections my left arm went numb and I felt like my strength had gone in this arm. I thought it may be back related. Went to hospital had ECG etc, sent home with ibuprofen. I then started with the horrific anxiety and felt as though I was going to die etc. i thougt i had so many forms of cancer etc. very dark times. started with nerve pains in right arm then same thing (subsided a lot now, just muscle weakness) This followed with intense pressure headaches and the burning feeling (just comes and goes but nowhere near as bad) I had gone back to work in new job and couldn’t cope but managed to get through it with beta blockers and diazepam (carry them with me just jncase but no linger take daily) This followed with swolllen glands in my neck (still there)and something catching when I swallowed (still there) no actual issues swallowing though. Dizziness (got a lot better). Intense pain around uper back, armpits and breasts. Breasts became so incredibly swelled, lumpy and painful a week before period. To the point where I couldn’t wear a bra. Burping, blocked left nostril when lie down, acid reflux, ibs like symptoms with swelling on left side of abdomen. These all happened within about 4-5 weeks post injections. I went to the doctors twice a week. Convinced myself I was dying. The insomnia was horrendous. Anyway, went private to see a neurologist. Now have low blood pressure which I never had before. My blood tests are fine but strangelyin the very low variance of normal for blood clotting. My blood would not clot if I had an accident etc. Had some anti toxin blood test that came back fine after I mentioned botox link. Not sure what it is? Have had an MRI on lower spine, cervical and brain. After I failed some tests he thought I may have ms. But not so. I would probably pass those now as the numbness has dissapeared somewhat. Neurologist listened but does not believe Botox theory. My doctor has been quite understanding about it all.

I am still having all my symptoms checked to rule anything sinister out. But I thought it complete madness that I had about 15 uncorrelating symptoms over about 3 weeks. Its crazy. I thought about what had been different as although I’d hurt my lower back (now better)I’d never had any of these symptoms before and was super super fit. I exercised 5 times a week, a bit of an addict really. Now I lift my arm and it’s tired. Good news is I’m off any pills except ones for acid reflux and sinus etc.

I have had 2 periods, waiting for 3rd to see if the breast armpit swelling comes back etc. I’ve had them checked 3 times for lumps etc, hormone tests too. Waiting for camera down throat, ultrasounds for abdomen etc. I don’t have anywhere near as bad anxiety when I started this. I no longer feel like I’m going to die. I have slept 4 nights in a row with no pills. I am fearful that things may take a turn for the worse again but I guess this is how it is. I have slight vision disturbance in left eye and muscle twitching and strange sort of shudder sensations. This is all in my left side.

I am eating healthier and taking superfood shakes. I had a massage, days after I was in agony, not for me. I could feel the food passing under my ribs in my bowels, so it must all be inflamed. I’m looking to start a raw food diet in January to see if that makes a difference. I immediately quit diet coke. I drank litres of it each day. That stuff should be illegal! I am now sticking with accupuncture and hoping it works. My therapist is completely supportive of Botox theory. Some friends have looked at me as though I’m mad when I mentioned this is why I’m Ill. They think I’m exaggerating! Get in my shoes.

After I felt a little better I tried to run and swim. It’s too much. I also tried Pilates, my arms would not support my body etc. this was a few weeks ago, so I’ll try again and let you know how I get on. I get really bad neck, back, chest (muscular) pain

Luckily one of my best friends is an occupational therapist in nhs (high up now and charges for neurological privately) for stroke and neurological rehab. She orders it to be administered medically hundreds of times a year. She has been through whole thing with me and when I made the Botox link she was slightly skeptical as she said it didn’t travel. Then when I showed her this site….she believes me. She was looking at doing a study on Botox use medically next year with her nurses and neurologists and is going to see if they have had any reportings like this. It seems medically it much stricter. They use a machine to find the exact spot in a muscle that it should be injected. I guess the caveat is this people already have neurological symptoms! She is thoroughly getting stuck into this by coming up with theories etc and trying to help. She has given me a sort of rehab programme that she gives to stroke/me patients. I am like a little project for her! I’ll try it for a few weeks and if I see results I’ll post it all on here too.

I will keep you all posted. My main message is that although I still have symptoms and I don’t know yet if they are something else or what can be done, my anxiety has eased a lot and the numbness has passed. I don’t feel as bad as I did say 4 weeks ago. Having lots of pills with me from docs helps as I know I can take them if I need to! Many people at work have said I look a lot better and that I seem less on edge etc (they don’t know all symptoms or this link etc, I was at risk of being fired because I hadn’t completed my probationary period, oh and even my boss who I report to in Belgium said I looked a bit better). I didn’t think people could tell as I tried to keep it under control.

Anyway, sorry for long post. I’m trying to keep positive. Love to you all :)

Sorry for the rambling and thanks for reading.

I NEED HELP

Please help me for migraines.. Does anyone else have severe breathing difficulties?  Breathing too slow, severe chest pain,cant get enough air. even if given oxygen. I can.t breathe all tests are negative. Had 31 shots in my head &neck . My main problem is I can;t breathe. I fight for air  twentty four sen=ven. Been to ER and put in hospital so many times I’ve lost count. Please, does anyone else have these symptoms? Did you get any help or are you like me, begging for oxygen.

Still sick after10 months

Hi everyone thank you all for your questions about the filler that was used in the glabella area.It was juvederm ultra 2 and it is not FDA approved for this area.I was not informed of this at the time,I am now losing my sight in my right eye,going deaf in my left ear,the tinnitus is now 24 hours a day not just at night,I am getting pains in my heart as I am continuously fighting for breath and the burning and brain suffocation just doesnt stop.I contacted Allergan who said it was my fault my body rejected it,4 solicitors now do not want to take the case on as they say it will be hard to prove, the hospital doctors stated to me,my mum and husband that my brain nerves were sensitized and I had suffered facial and brain nerve damage from the filler.Yet this has only been recorded as facial nerve damage on paper.I am due to see the neurologist on Monday as his nurse kept contacting me when I was discharged with yet another packet of pills this time duloxetine.She would ask if I was ok but I would say no not all in fact I’m worse and feel like my brain is suffocating 24 hours a day, I have dementia with sundowning at 41 years old apart from that yeh I’m great.The tablets did not help the sames as all the other ones I’ve been prescribed I’ve tried them all.Ive also discovered that the enzyme I was injected with 7 weeks later to try to disperse the juvederm is actually off label and more dangerous than the filler.Even though juvederm is highly cross linked with streptococcus euquistrian a disease that causes strangles disease in horses,they literally suffocate,hyaluronidase is derived from pigs.So basically I have two chemicals,one worse than the other causing theses symptoms of brain dysfunction for months with no relief in sight.As this is such a rare occurrence juvederm getting into the brain,no one knows wether it will wear off or not.I can’t live like this anymore in this burning dementia state everyone, looks at me as if I’ve got cancer because of the weight loss and no doubt the black eyes and drawn appearance due to the lack of sleep.My chance to have another child and foster is gone because I don’t even know what day it is.Its as if someone is playing a movie like groundhog day and I’m in it but can’t get out.I pray there is a reason for all this suffering,why everyone has had to endure this on this site and many others.I did see the packet of juvederm that was opened but the hyaluronidase just came out of a bottle I have no record of that just the juvederm.Its like I’m trying to prove I’m not mental it’s your worst nightmare and then some.I do think I’m better off dead because it’s like trying to prove the impossible,the paper that was suppose to run the story says the editor is now dragging his heels as the clinic are trying to stop them printing it,so my mum said we will go up to the clinic with some placards and wait until the press come and we can tell them we are boycotting the clinic.I do not have a copy of the original consent form I signed either, the clinic won’t give it to me.So I’m stuck like this forever slowly suffocating and dying getting worse by the day, I basically paid someone for a frontal lobe chemical lobotomy and to go blind,but it’s safe Allergan states, there’s no chance of a reaction,well it isn’t,it’s a toxic chemical but I did it,it’s my fault I ruined my life,so I’ve got to live like this like a lab test animal until I succumb to its purpose,which is to literally burn and decay my brain,please forgive the depressing rant but I am backed into a corner with no escape, why don’t doctors read this site so they can see the suffering and do something.I pray for you all at least if I do succumb to this,it’s documented on here I have at least some proof what this stuff has done, and even though I have never met any of you it’s been wonderful to share my darkest hours with you all to know someone is always there just a few short clicks away I never thought in my wildest dreams my life would end like this,when all I wanted was to plump up my cheeks,I will keep posting as long as I can,if the doctors try to lock me away at least hopefully there’s this site that proves I’m not insane.Thank you everyone for being on here you’ve probably saved more people than you know of,god bless you kx