Hello. I’m now 11 months out from my terrible botox experience. I’m looking for people with similar experiences as me who would be willing to let me give their information (or their situation, date of injection, diagnosis etc to start) when contacting attorneys. Following detrimental botox injections I was hospitalized with botulism as well as autonomic dysfunction and respiratory failure on exertion as well as abnormal heart rhythms. After 3 months of home oxygen I was then diagnosed with heart failure. I’m still on medications to help and have an array of other side effects. 11 months out I’m positive I have permanent damage and I’d like to pursue this. Please email me privately on here. Thank you.
3 year update
Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .
I was put on 2400 mgs of nueronton and 100mgs of Nortriptylin . Today most of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back. I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.
I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.
Hi all, just thought I will share with you I have also done bioresonance test now and it has shown botulinum toxin in my system stil.. Doctor who did the test has told me about Oxy Max Oxygen in drops to drink, she said people with Lyme get very good resuts with this and it could also be helpful for botulism toxin. Also I am going for consultation about ozonotherapy and high dosw of vitamin C in drip. Dont know if anyone tried that all yet but I thought it could be very helpful as Vit C is never absorbed fully by our system and terapeutic results are when given intravenously..
Here is link to Oxy drops
I will post about it when I get more info.
Sending all healing thoughts xoxo
Hi all, I haven’t seen much on here re legal action––any suggestions for firms to contact in the US? I’d like to see if I have any options before the statute runs. Thanks, Alison
I tried cleaning my eyes last night with Sterilid. I use warm water to soften skin then use a q tip with eye cleanser to get the waxy stuff out that sticks to my skin. It’s not working so I need to go back to the doctors. My vision will blur more over time. I also have collagen or fluid with bacteria sloshing and pulsing up and down my body 24/7. This makes me so angry that this stuff is all through my body and nobody cares! My husband has been supportive and a few friends, but the doctors act like this is nothing and I really am not getting anywhere. Does anyone else have these issues. My problems are from Juvederm Voluma XC. Thanks
Hi, I was injected with Juvederm Voluma XC in Jan. 2014. I had an indentation and crease that was repaired with Juvederm in Feb. 2014 and March 2014. The filler migrated to my nose area and my doctor used hyaluronadase to dissolve it in May 2014. I was wearing glasses 12 to 15 hrs a day and wasn’t told not to wear them. The doctor used more hyaluronadase June 2014 and it dispersed through my entire body. I own a hair salon and have been doing hair for 40 years. I never called in sick. I was not comfortable wearing my contacs or glasses so I took a year off work to find a doctor to help me. My skin tissues pulled around my right eye when doing any close up work and a muscle pulled in my right forehead when I cut hair, it was very painful. I have rosacea in my eyes and face and my legs,stomach,and back are swollen and inflamed. I have problems swallowing and burning in my stomach and chest.I am still looking for help after 1 year and 9 months. I am seeing an endocrinologist tomorrow because my lymphatic system is not working properly. I found out that Juvederm Voluma XC is crosslinked hyaluronic acid produced by Streptococcus equi bacteria. This bacteria is a disease found in horses. Strangles Disease. I am still living a nightmare but I haven’t given up. I will not give up. I realize this is a Botox Site and I read Katiedaily’s posts about Juvederm Ultra Plus and thought I would give this a try. Thanks so much for letting me share. I am so grateful.
Has anyone tried using CVAC chamber for detoxing and healing? It’s Supposed to be natural and safe. Of course symptoms can get worse before better.
I have had the same headache for over year I finally got a new neurologist to diagnose it is a converted migraine. He injected me with 31 shot of Botox now I have insomnia Moniz you trouble swallowing have to wait for September to go get another shot has anyone experienced a converted migraine could help me
I noticed this new development in the last week or 2 and is quite scary .The weird thing is that the blood pressure and heart come almost perfect …Urghh hard to make sense of any of these symptoms but just wondering if anyone had this happening .
Hi everyone im new here and was so happy when i found this site, i have had most of the symptoms listed on here. 28 year old received about 50 units of botox in forhead and frown lines. It was for preventive of having wrinkles in the future, the Dermatologist convinced me of doing. Same day extremly bad headache, followed by constipation next day and few days later vertigo, head pressure, migranes, unbearable migranes i had to force myself to sleep through it, feelings of being out of it, confused, i would loss my balance all the time couldnt walk. Heat palpitions was given beta blockers, throbbing pain on chest arms neck, back, heartburn , reflux, 3 weeks later shortness of breath, feeling of something stuck in my throath and chest, like food wasnt going down, had MRI on my brain done back in May , nothing found, Cat Scan for lungs nothing found except for enlarged lymph nodes Dr. said it was probably from a recent flu. Many blood tests all came back fine, xrays, pulomonary function tests, echo test , all normal!! Went back to the doctor who did the injections he was so cold and so like not caring and said he never heard of that, “i was probably fighting a virus” before i had the injections i never knew of the black box warnings, the only thing i knew and was the only thing the Dermatologist told me was that i could have a little headache and swelling and drooping eyelid. Time went on and daily migranes, confusion, dizzy, weak, fatigue, lossing balance, shortness of breath, ended up in the ER like 10 times, with them telling me its nothing. On one of the times i was hospitalized because i was so dizzy faint like feeling and my heart rate was now slow down to 39 and 40s and low blood pressure. Was put on a heart monitor and sent home 2 days later , nothing showed up , had upper endoscopy, all normal, this was all back in July. My main concern now is that i still have ao much muscle stiffness all over my chest back and neck and its painful, also under arms, they feel so stiff i cant even continue my singing career, i get so out of breath and faint like feelings, cant use my rib cage muscles , but its always like this not only singing but any physical activity i have diffuculty breathing, even eating, wow its horrible feels like your chocking, my burps seem so hard to come out, i have to force so much, it feels like my esophogus is weak, or stomach too, because food takes long to go down and i have so much reflux of the food and shortness of breath.,, deep breaths are hard to do the pull, muscles feel weak. Im always bloated, gasy, looks like im pregnant. I dont have the headaches and loss if balance and all that was going up on head as much anymore, those symptoms have subsided, sometimes a relapse i have noticed a relapse after using nail polish or dying my hair, im probably sensitive to chemicals now.
Does anyone have these stomach, eaophogus problems and breathing issues,?? Dont know if i should request another endoscopy etc, because from July to now it has gotten worse :-( if i could just go back in time.. My family has a well know Doctor in Brasil he is a neurologist and Cardiologist and his daughter is a Dermatologist, and he is the only doctor who has really helped me along this scary journey. He said everything im going through is because of botox. :-(
This machine looks promising. I have met someone who used Ondamed treatments to signigificantly help their Lymes condition. What is encouraging is that many MDs are using it in the US and around the world. The machine uses electromagnetic frequencies to determine and treat inflammation.
The website is WWW.ondamed.net
The MD testimonials are encouraging. It is a long drive for me to get to a treatment, but I am considering trying it.
My friend with Lymes had 112 treatments over a few months and is supposed to be free of Lymes now. Time will tell for her if her symptoms return. I have read that botulism and Lymes cause similar symptoms.
I spoke to a technician who told me the Ondamed would pick up on co-infections and help the body fight these.
So, I thought I would share this with the group to see if anyone has tried it yet.
I am personally extremely sensitive to energy medicine and could not tolerate ozone therapy in the tiniest of doses. However I have found acupuncture to be very helpful and the Ondamed apparently uses the same principles as acupuncture to help the body heal itself by opening up blocked energy channels.
Hope and love to all
I have not noticed if any of you have found their nails to be weakened since reacting. I now have splits down the center of my two middle fingers and they are very thin now.I always had strong nails and hair before. Since my hairloss from this it is also very fine strands but at least it grew back in most spots anyway. The nail thing is ugly cause I have to keep it so short and it snags all the time. I read about Vit A and E should help so I am going to try these now. Any other advice to help this? Thx
Thank you for the replies. I actually went about a week with light or nonexistent symptoms until yesterday. The feeling of a rock in my throat returned pretty strong and today same thing with the throat along with my ears feeling full. I talked to the dr who administered this crap and she actually suggested I try it again in a few months with a lighter dose to see if this happens again!!!! Are you freaking serious!!!! I’m just ready for this to end.
I had Botox the 7 of may and have been miserable since. I got 28 units in my forehead and between my brows and I’ve been feeling awful. Dr said that she had never heard of my symptoms associated with cosmetic botox. Choking feeling that comes and go’s, ear pressure, stomach burning. I hate this. I wouldn’t get Botox again for ANYTHING!!! I feel like a terrible mother and wife because this has consumed me!!!
Hi to all
I feel that I am going out of my mind. I have been having Botox in my forehead, frown lines and occasionally my crows feet for over 3 years now around about every four months. I always usually get a migraine the following day and a bit of a stuffy sinus effect for a few days following the injections but this has always subsided and everything has been fine after this.
However I went for my Botox 3 weeks ago and about a week after I started with headaches, head pressure and stiff neck every day this has progressed to a blocked or full feeling in my ears,tinnitus. I am having hot flashes bouts of tachycardia for which I am taking propranolol i cant sleep and I am having huge panic attacks. My eyelids are also very swollen. At first I thought it was related to my thyroid as I do have graves disease. However I saw my Endo who did the tsh t4 and t3 and everything is normal there but she did put me back on the propranolol for the tachycardia and panic attacks. After a lot of google research I came across this site and after reading lots of posts the penny dropped! I spoke to my Endo and she said go back to the ps who did the Botox.
I made a consultant appointment and spoke to my ps who did the Botox this morning as I am totally freaked out. His reaction was” I haven’t done anything different to the other times and have been doing this for years and have never come across these symptoms after Botox. My opinion is that you are just coming down with something. You need to stop worrying”
I live in Dubai and it costs over a hundred pounds for a consultant appointment on top of the blood costs ect so I am racking up quite a bill already…
Any advice would be soooooooo appreciated right nowI don’t know what else to do, I feel really awful and I know this is going to sound mad but I am afraid I might die!
After 5 years of saying “NO” to Botox for Migraines I agreed to try it. It was a bad decision, I have regretted doing it because I had an acute adverse reaction. It shut down any normal breathing and I got so sick, attacking my respiratory system and infecting my lungs and sinuses. I felt like I have been literally burnt with chemicals. My lungs burn, my eyes burn, my insides burn, my skin burns and I am either sweating or feel chilled with a fever. The paranoia & anxiety beyond explanation, the panic attacks come on out of the blue day & night. Nightmares and frantic night sweats are very frightening. The doctors are eager to give you the Botox, but have no answers or help other than more medicine that is like adding fuel to a raging fire. After 8 months & 8 rounds of antibiotics and steroid treatment I got thrush all over my insides and under my arms I had to take diflucan to clear it and I have had a major flare up of eczema all over my face which will not clear up. Been to lots of specialist & it’s costs me a lot of $ and put me in bed for months. I have had chronic illness’ diabetes, asthma, fibromyalgia, migraines and seizures for years, but they are nothing compared to this adverse reaction to Botox. I think Botox is a BAD idea for anyone! I wish I had continued to say “NO” But sadly I am living with the remnants still in my system. I hope it will end soon, it makes me sad that it has consumed my life. I literally have been trying to recover. There are more adverse reactions to mention in one entry. I hope that relief is in the near future!
It seems that the majority of people here have had complications with Botox. There are a few people who mentioned that they had Botox along with fillers and were sick. I am wondering if there is anyone who suffered an injury from a filler alone.
Hi, this is my first post so sorry if it is long. I am
A hemiplegic migraine sufferer and have permanent visual symptoms. I decided to have Botox in my forehead in may 2012 and it didnt relieve my headaches but I had no side effects apart from eyelid twitching.
I then opted to have Botox in the back of my neck in august2013. 2 days after this I ended up in hospital with a severe migraine, my right side of my face,arm,mouth and chest was numb for 18 hours and I was sick.I also had a high white blood cell count and low blood pressure but doctors didn’t think it was Botox that was the trigger.
Since hospital I have got permanent tremors in my head/neck/left arm and left leg with right sided facial weakness and right arm weakness.my left eyelid twitches along with my right cheek. Also I have tinnitus since july2012 which came along with vertigo and I can hear blood rushing in my neck and ear (feels like a heartbeat)
I’m unsure if this tremor and weakness is the Botox or migraine or something else??
I would really appreciate any input.
Have any of you experienced swollen lymph nodes from any of this? I keep getting one after the other on the right side of my body. They are not big but I first got one in the back of my head. Then one in my jaw line. Then on the side of my neck. Now under my arm pit. Again, they are not big and they are moveable but I think its weird. I have had both botox and juvederm and I wonder if my body is having an allergic reaction to the juvederm in my body or if its due to the botox moving around. But i still find it strange they keep coming up and only on my right side. I do not have an infection that I know of.
I have posted before about all the other issues I have: migraines, right ear full feeling, humming in right ear, right side facial pain and pressure, sinus pressure, jaw pain on right side only, right side of my teeth hurt., dizziness (seems to be improving after 4 months). pressure in my head but only on right side. oh and how could i forget, memory loss/foggy brain syndrome.
anyone else with this, and do you think it could be due to botox/juv?
Something sort of snapped in me about a week ago, and the mornings have become unbearable. When I wake up it’s like 90% of me is still asleep. My eyes are swollen and heavy and nothing is moving in real-time. There is strong, high-pitched ringing in my ears. This weekend, both days I slept from about midnight to 10 a.m. and had no great obligations during the day, spring weather, should be a pleasure. But getting up has been the most wretched ordeal imaginable. I splash cold water on my face, slap myself, drink tea, do anything I can think of but I’m moving in this heavy heavy mush of existence. Yesterday I made it all the way to the gym still in this state about 3 hours after waking up. The world was whizzing by me and I’m in this dense bubble. During the day I take 0.5 mg or 1.0 mg of Depas (same as equiv. doses of Ativan) and I might sort of start to come around by mid-afternoon, and by evening I’m more disoriented and dizzy than I am brain-fogged. This pattern doesn’t correlate with any of the psychiatric medications I’ve tried either. I keep a diary and I traced that route. My partner noticed it too the couple of nights I stayed with her about a week ago. Two weeks ago mornings were still crap, but I could sort of scrape myself together. This is so rough.