It seems like there’s not a ton of activity here anymore, though I do check back a lot. I found something that might possibly be helpful and wanted to share, though, in case there are still people checking this board.
First: I am more than 24 months out (I was injected in January of 2015) and, I think, mostly recovered, though I still have lingering issues. For a year or two I had excruciating joint and stomach pain. I also developed high levels of anxiety. At first it was unrelenting, now it seems like it just presents in certain situations. For instance, I have a really, really hard time flying. (I take the train when I go out west to see my family now.) I also developed some OCD symptoms which may have been latent but are really annoyingly full-blown now. Half the time after I cook dinner I worry I will get food poisoning, and I am especially afraid of fish because it often harbors botulism. Lots of pretty irrational fears, which I did not have pre-Botox. No way to prove it’s connected but hey, I’d bet money on it…
My depression has also worsened – I was really proud to have been off meds of any kind for 10+ years, and now seeing a psychiatrist and trying to figure out what to take for anxiety & depression. He thinks I’m crazy, I’m pretty sure. I tried to explain the Botox and why I am so afraid of medication but as you all know, that often doesn’t go over well. : ) I had a really discouraging visit with him on Monday – I filled my wellbutrin Rx, but asked for the non-time-release stuff because for whatever reason, those are the meds that always seem to kick my butt.
Doing research into Wellbutrin, I realized my intuitive fear of it was actually founded – it’s anticholinergic. Actually I read that any med with “anti” in the title (including antibiotics) are anticholinergic, too, which explains a lot.
I remember Anne had a great thread about cholinergic supplements a few years back, so people might want to refer back to that. I tried Huperzine A and had a really bad reaction to it, and still have a mostly full (probably expired) bottle. But, in hopes of feeling better I re-Googled cholingerics and discovered citricoline, which apparently has a very low toxicity level, raises dopamine levels, clears your head out, increases blood flow, and boosts choline, which might help a lot of us. I did a search for it on the site and didn’t find it, so thought I’d post about it. I ordered a bottle from Vitacost so I’ll try it and see if it helps, and if so let you know what happens. I know a lot of us have unpredictable reactions to supplements and meds, but wanted to put it out there in case anyone wanted to try it. Hope everyone is on the up and up – happy (almost) spring!