Three Year Update

Hi All, I just wanted to post a quick update. I wish I could say I am recovered, but just not there yet. However, I am much improved. I was a wreck, and like many of you, feared for my life. I was lucky enough to end up at Mayo Clinic where I was able to receive incredible care (even though they would not admit my illness was from botox). I have had to battle every day to rebuild my body. It’s been really hard, but I have seen improvement with time and care. Hang in there! Wishing you well.

Body under constant attack..

Hello  everyone,

Not long ago my adrenals were fine still and since last months I start having more weakness, breathing , circulation more issues, head exploding inside and the back of head, veins swelling especially in the afternoon and by eveining I barely stand on my legs with swollen belly, legs, hands , generally very ill and weak. In the morning I wake up with overactive nervous system , stiffness and after 15-20 mins I get weaker and weaker.  Head ache is worse than ever including my eyes.

I also get very emotional and down, I wanna cry for no reason.

About 2 months ago I had blood tests done by immunologist including cortisol  which showed very low level ,  my dr decided to do Short Synacthen test for me and it showed that my adrenal cortex doesnt produce cortisol enough which means that might be another autoimmune reaction. In the last 2 years I have been diagnosed with ANTI TPO ( started with 300 and by now is >1300 , )  IA2 – antibodies ( double high) and now possibly Addison’s disease..

I can feel my body deteriorate and  it’s just too damn much for one person to handle it all like surviving bad Botulism was not enough..

My immunologist seems to be very caring and as the only one tries to help and doesn’t deny it is all from poisoning , he actually says IT IS from poisoning but he can’t  kick this toxin out of my system anyhow. He decided to give me short course of Prednisone for about 4 weeks to see if I will have any improvement , I was trying to avoid it for long but I guess this is my only option right now since it gets so much worse.

Could you please let me know if any of you been diagnosed with autoimmune diseases or reactions after this evil poison?  Adrenal  insufficiency maybe? I’m so afraid to take prednisone but I guess I have no choice anymore, if somone is on steroids ( I’m sorry I can’t remember who was) could you please let me know if it helps or cause any more trouble..

It’s very hard  to stay positive now and keep thinking  that time is my friend..






Getting tests done by LLMD/MTHFR

I have a long complicated story but essentially was feeling “better” with the help of valproic acid and lorazepam . I hit a tolerance and had to come off of the lorazepam after several years and all of my symptoms plus many others came back.

I had about ten different tests run last week looking at toxicities, mold, lymes,  autoimmunity, and inflammation. I will be happy to share results when I get them.

Prior to botox I had a terrible time getting off of ativan and with general anesthesia in the past. I found out I had a specific type of the MTHFR gene mutation the 667t or c I believe, which means I have trouble with methylation. This translates into me being a terrible detoxifier. My body has an incredibly hard time breaking down toxins and eliminating them. This MTHRF gene is said to be the smoking gun behind why some people get sick from mold and others don’t or why some people smell perfume and get sick and others are fine. Inflammation is what ultimately results from not being about to properly deal with these environmental toxins/neurotoxins.

I will update this post when I can with any info that I find might be helpful as I get these test results. I want to encourage you to get the MTHFR test. Supposedly taking methylated versions of all vitamins especially methyl folic acid is essential. I really think we need to be looking at why some people get so sick from benzos or botox, chemical sensitivities and the inflammatory response etc. There is a reason beyond just being unlucky as to why our bodies reacted the way it did. And in no way-I repeat- NO WAY does that take the blame off of companies like allergan who know certain people should stay the hell away from this crap. If they were to say “chances are you’ll be fine” that woudn’t sell tons on their product. Very upsetting the info they hide.

Allergies acting up again

The breathing problems are back in the last few weeks and and I feel very weak and anxious .I have done allergy testing last year and only showed allergic to mold and dust mites but I don’t understand why allergies are acting up now.My doctor prescribed Flonase which helped a bit last night but now I find myself having a hard time breathing and my  sinus area between my eyebrows have gotten very red and itchy and I wanted to see if its there anyone else experiencing sinus issues and allergic type of reactions more so this time of the year ?

buona sera

sono quasi 4 anni che soffro per tutti i disturbi causati dal botox.

Ho bisogno di un consiglio.

qualcuno dopo la disgrazia del botulino ha provato a fare trattamenti al viso con vitamine o acido ialuronico con la tecnica del picotage?

sono spaventata per paura di reazioni allergiche.

qualcuno ha fatto esperienze del genere?




Da 4 anni soffro per tutti i disturbi causati da una iniezione di botox per uso estetico.

Ma qualcuno di voi ha vinto la causa legale contro il medico o la casa farmaceutica?

Se si con quali analisi o mezzi per dimostrare il danno subito?

Questa disgrazia del botox mi ha sconvolto la vita.

Vorrei cercare una strada per chiedere un risarcimento .

Qualcuno mi può dire come fare?


A possibly helpful supplement: citricoline

Hi All,

It seems like there’s not a ton of activity here anymore, though I do check back a lot. I found something that might possibly be helpful and wanted to share, though, in case there are still people checking this board.

First: I am more than 24 months out (I was injected in January of 2015) and, I think, mostly recovered, though I still have lingering issues. For a year or two I had excruciating joint and stomach pain. I also developed high levels of anxiety. At first it was unrelenting, now it seems like it just presents in certain situations. For instance, I have a really, really hard time flying. (I take the train when I go out west to see my family now.) I also developed some OCD symptoms which may have been latent but are really annoyingly full-blown now. Half the time after I cook dinner I worry I will get food poisoning, and I am especially afraid of fish because it often harbors botulism. Lots of pretty irrational fears, which I did not have pre-Botox. No way to prove it’s connected but hey, I’d bet money on it…

My depression has also worsened – I was really proud to have been off meds of any kind for 10+ years, and now seeing a psychiatrist and trying to figure out what to take for anxiety & depression. He thinks I’m crazy, I’m pretty sure. I tried to explain the Botox and why I am so afraid of medication but as you all know, that often doesn’t go over well. : ) I had a really discouraging visit with him on Monday – I filled my wellbutrin Rx, but asked for the non-time-release stuff because for whatever reason, those are the meds that always seem to kick my butt.

Doing research into Wellbutrin, I realized my intuitive fear of it was actually founded – it’s anticholinergic. Actually I read that any med with “anti” in the title (including antibiotics) are anticholinergic, too, which explains a lot.

I remember Anne had a great thread about cholinergic supplements a few years back, so people might want to refer back to that. I tried Huperzine A and had a really bad reaction to it, and still have a mostly full (probably expired) bottle. But, in hopes of feeling better I re-Googled cholingerics and discovered citricoline, which apparently has a very low toxicity level, raises dopamine levels, clears your head out, increases blood flow, and boosts choline, which might help a lot of us. I did a search for it on the site and didn’t find it, so thought I’d post about it. I ordered a bottle from Vitacost so I’ll try it and see if it helps, and if so let you know what happens. I know a lot of us have unpredictable reactions to supplements and meds, but wanted to put it out there in case anyone wanted to try it. Hope everyone is on the up and up – happy (almost) spring!

Some hope for those sensitive to medications

As many others have reported I am very sensitive to most medications and a lot of supplements . A friend of mine who suffers from depression and anxiety brought a machine around which he has used with great results. It is a cranial electro-stimulating device. You attach clips to your earlobes and it sends electric currents into your brain . I was a bit sceptical but after 20 minutes a day for a week my anxiety levels were right down and my sleep has improved by leaps and bounds. I have now purchased one of my own. I bought the Alpha Stim but there are others on the market too. The downside is that they are really pricey but if they work for you are well worth the money.  This is a drug free way of managing anxiety and depression .

Role of meds/benzos


this started several years ago for me after I was going through a withdrawal from benzodiazepines. Why I thought a neurotoxin to the head was what I needed then I dont know. Anyway I felt I needed to go back on benzos back then since nothing else was working and I was losing my mind. The symptoms instantly got much better where I woulc tolerate them and live. Just recently I got off of the benzos and the depakote I started taking for my symptoms. I feel worse than ever before. I am wondering if what iv been experiencing was the original withdrawal all along that left me vulnerable to the botox. Or in other words I had a very vulnerable nervous system to start with and the botox was like adding fuel to the fire. So Now Im not sure what Im experiencing. I guess just trying to heal from an injured nervous system. I am not taking any meds now because I am hoping to slowly get better on my own. I dont seem to do ewll with meds and they dont seem to heal only mask. Does anyone have similar experience>?

Need some hope!❤

Hi everyone,
I am wondering if anyone has recovered or knows of anyone who has recovered from the facial fat loss, muscle and tissue loss. This continues to keep happening to me and I will be 4 years out from the shots in April. A couple doctors said the volume comes back, but I would like to talk to someone who has been through this. I still have other health problems, but feel I could be in a positive mind set if it weren’t for my face. I don’t know if it’s from nerves or some kind of catabolism. Any input would be great!
I wish everyone peace and healing.

5 Year Update

I have not been back to visit in a long time but wanted to check in to say nearly 5 years since my nightmare started – I am confidant to say I am now 95% recovered. I truly believe that this toxin took years to leave my body. The only residual effects are 1) bouts of tinnitus from time to time – that seem to resolve themselves. 2) Anxiety – though only on rare occasion does this happen anymore –  1x or 2x a year where I need to take an ativan. What if any long term consequences there are from putting this toxin into my body remains to be seen. After checking back in I am heartened to see that there seems to be more ‘study’ of these effects – though saddened to see so many still having these awful experiences and needing to seek support from a site like this because no one in the health profession believes you.

I know I am very lucky and my heart goes out to those who have not had as significant a recovery. When you are viewing this section of the website – please take heart that not as many people may post of their recovery. When the nightmare is over you simply want to move on with your life and don’t necessarily want to look back.  I can say anytime the topic of botox or fillers etc.. arise in conversation in my circle of peers/friends I warn them openly and honestly about my journey and seriously caution them about the serious and harmful “unknowns” of this toxin. I also direct them to this website so they can read for themselves the nightmares that people experience and no health professionals to take you seriously or help your recovery.

Stay strong, keep the faith and believe that with time alongside whatever methods you find brings relief – recovery is possible and time is your body’s best weapon to detox and mend. Yes, time heals!! Cliche but true in my experience.

God bless Annette for her commitment to this site and to fellow sufferers for sharing their journey. You are not alone!!

Hopeful D

Pain too strong to handle

hello everyone

I am now 2,5 years out and I still struggle with symptoms daily, my weakness is on and off every few days,. My cardiovascular symptoms are worse and on top of all I suffer daily with  pain in my whole body, joints ( even fingers) muscles, head, neck, organs ( stomach , kidneys, heart , liver..) the pain is the worst in the morning but today stays all  day making me cry – it’s  hard to handle. I also have blood vessels hardening. In the morning they feel like squeezing  and its very painful too, It gives me also morning head aches and preassure in my head, feels like its going to explode then everything gets very stiff.  I knew second year pain start to kick in – neurologist warned me about it but I did not expect it to be so bad and in my whole body. I was avoiding any medications they gave me for pain as long as it was possible but at the moment I don’t know if I can live like this.

Did anyone have such a bad pain and found anything helpful ? If my only option are drugs that doctors prescribe is anything I should be more careful about? Will this pain ever go away? I feel like my all bones and joints being crushed and yet my kidneys and other organs feel the same, cant  imagine my life suffering like this 😢

HI,,,,,, my life since botox .

HI,,, I was diagnosed with cervical dystonia in 2015 and given 200 units of botox into my neck…… a few days later I had no range of motion in my neck
!!!  which was very very painful and also I was unable to perform simple task .. such as bending over… and I felt very dizzy when I would look down.

after a month my entire head began to spasm… so ….

the neurologist  called it “anxiety” and started me on a dose of lexapro which made the dizzyness really really bad…

so I was switched to Elavil with zero improvement….

After 2 months of  staying home on the sofa I was very scared and decided to go to a  center in town where the doctors specialize in these psychiatric medicines………. Biggest mistake of my life………………….

I told them.. I am not tolerating the medicines…. and that my neck was the issue here from the botox…………… and the doctor did not listen.. because I was hysterical and gave me Klonopin .5 twice a day.

After 6 weeks on the Klonopin…… I realized this drug was not helping me at all…… as I begin to have balance issues and the dizzyness was even worse.

So…. then I learned Klonopin needs to be tapered! no one told me that. I had never taken a benzo before…………. so when I began to taper…… the dose.. boy….. I was in for a shock….

I had scalp burning sensations.. which I had never experienced in my life.. and I am 57…..

i know my body…

long story short… I took the Klonopin for 3 more months .. after tapering because if I missed a dose I would have such bad balance… it was unreal…. and

I was finally cold turkeyed off Klonopin last Feb …………… and I have been in severe withdrawal from that for 10 months on top of the damage done to my neck from the Klonopin…

My question is…………..will my neck muscles ever return to normal?????????????????? It seems to be the part of my body that hurts the worst………………… and Klonopin effects the brain and the whole nervous system……………….

I am just so …………………………………….heart broken over what botox and klonopin has done to my health and life………………………. and I wish I had never heard of either of them………

I f anyone has experience with t his please let me know.. I see that many are improving and recovering from botox………….. so  I hope that I will too//////// peace to all and thanks you for reading… :)

Chest burning and horrible relapse

Hello everyone,

I am now 27 months out and I did have some times of little or a bit bigger  improvements which did not last long but I was still very grateful to have any.  Unfortunately my nerves don’t regenerate well and mostly autonomic.  I suffer daily from heart symptoms, circulation issues, skin burning, cramps, vission loss, ringing ears or feeling blocked, nausea,  muscles tightness, muscles aches,weakness,  blood vessels pain in legs and arms , hair loss, I am very cold and dizzy, the list goes on.

Today I am very scared because again it has hit me very hard, I’m extremaly weak, have burning all over body, my legs turned blue, can’t keep myself up, I’m completely bed bound since yesterday, but what scares me the most is the burning in my chest, pain in the chest, white stiff hands and feet and the feeling to collapse. My breathing is very shallow and I can’t swallow properly due to weakness.

I feel like having some flu or chest infection, but my temperature is  very low. I don’t know if this is another bad relapse or If I have catched something but It has not been so difficult with my blood circulation and breathing since last time I have been taken to the hospital till now. I am afraid  to go here in UK  to A&E  because Im afraid of any medications they could give me but I will have to if my circulation and breathing wont  get any better 😔

I am trying warm bath with salts, magnesium but It is more helpful when I’m having stiffness, I take Vit C and will start echinecea drops, I have no idea how to fight infection now  if that’s what causing the relapse but I’m desperate to help my  chest  burning and breathing without any steroids or antibiotics , please if anyone have some advice that might  help I would be so much thankful. I am more afraid  to go to the hospital feeling so bad because I have completely lost my trust to these people..

Sending all healing thoughts