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I am really scared

Hi everyone,
I hope everyone is on the way to recovery or recovered.
I was hoping to be better by now. It will be 5 years in April that I got the Botox. I continue to have issues with fatigue, brain fog, some tingling, circulation problems, dry mouth, eyes and nose and a few others. But, my biggest issue continues to be the muscle and fat atrophy. It has continued to get worse instead of better. I really am so scared. I don’t know what is causing it at this point. My face, eyes and head are so sunken. I don’t see myself anymore. My teeth, gums, nails, body and hair have also been changed. I have tested for ANA, RF, C reactive protein, SED rate and they are all normal. My face changes by the week…I am so scared. Does anyone have any ideas what this could be? Is it still a direct effect of the toxin?
I appreciate everyone’s support!
Kris

RECOVERED

Hi everybody,

I have not been on this site for many years as since I have recovered I do not want to be reminded of the terribly dark time that I went through.

It is 6 years since my dreaded Azzalure (dysport) injections that made me so ill.  I was very ill for about 18 months then had relapses for a further 6 months after that.

Now I live a normal life, I exercise, eat what I want, drink alcohol if I want and have my energy back.  I do not think that life will ever be the same as before as I have been left with an anxiety that whenever I feel slightly off I panic and think the symptoms are coming back so I guess this is a bit of PTSD.

This time last year I was feeling particularly well then I did something very foolish in August, a nurse at the hospital told me that although I was obviously very allergic to botox now I would be fine with fillers, I had boletero balance injected into the lines on my forehead, next day all botox symptoms were back full force!!  It took about 2 months for my body to settle back to normal again.  It is a lesson learned for me that my body cannot take anything foreign being injected into it.

All I am left with now is a little brain fog some days when I am over tired and not had 7 hours sleep, sometimes I get neck ache and a headache but if I take an ibrufen it goes.

If you are going through this awful botox journey, know that you will get better and life is happy again.  The best thing for recovery is distraction, so eve n if you do not feel like going out for a walk make yourself do it, get lots of fresh air and drink plenty of water.  The more you think about it and get anxious the worse you will feel.

I also found going on holiday and lying in the sun really helped loads – the sun heals nerves, get as much of it as you can.

It has been hard to accept my wrinkles but I do now and worry about all of my friends who all still insist on having botox and fillers, people are still convinced it is perfectly safe, I think in years to come they will both be banned, there will be a terrible aftermath for those injecting regularly.

Thinking of all of you going through this lonely and hard experience, keep positive and know that you will recover, the human body is an amazing machine that can recover from terrible damage.

Sam

Hello guys.

 

7 years after botox and still in very bad shape. Muscle weakness, inability to excerise, joints cracking and pain, neck weakness. At some point got tested for lyme disease which came positive but borderline and months of treatment with no results so I believe its all still from botox. Got emg of my nerves and it shows nerve damage around wrist, elbow, knee , neck so basically everywhere. So basically it seems like a permanent damage if I havent recovered after 7 years? I think muscle weakness pretty much progress which is normal with polineuropathies. Any reason to continue that suffering? There are medical terms and its hard to translate but its shows like its a nerve damage in endings of nerves, axons , slight demienlization , slower response of nerves. With that kind of nerve damage I suppose not much can be done. Sad thing I am bedridden for 7 years , 29 yo currently and still years to suffer with sll of that. Forgot to write that I have joint damages in my  arm area  with mri of it. Hello chgofit16 . I remember you and it seems like you also still suffer. One person was right. We mostly never get back to previous shape…

32 months out massive relapse after acupuncture

Well once again Im on here writing this in case anybody else wants to read my posts. Oh boy this weeks been terrible. I have been so lucky in that my life is relatively normal. The only time I get relapses is when I go out partying too much and get no sleep. So ive been good and cut back on this and as long as i get sleep i’m fine. Jet lag used to make me bad also… I can honestly say i’ve been living a relatively normal life. Until I tried acupuncture and acupressure last week. I left feeling dizzy and basically… its brought back all my symptoms worse that ever before. Full of facial weirdness, blurry vision, tight throat, fullness of the ears, heavy weight on my head and shoulders, stiff neck, and feeling out of my body.  Its sad i’m back here. I must have been stimulated too much.

Writing this just as an outlet. Hopefully it’ll pass in a week like usual….

Did anybody else have a bad reaction to acupuncture / acupressure?

Stimulatory substances cause relapses

I am now almost 3 years out and I have now firmly established that any substance /activity that stimulates the adrenals causes a relapse in symptoms. I have recently upped my thyroid medication and had severe symptoms that even regular doses of copper are not really helping (Copper normally gets rid of all relapses in a day or two) I believe that besides the obvious ones like caffeine, Vitamin C and substances that directly stimulate adrenals other supplements , exercise and even some foods may cause a relapse as they may be mildly stimulatory to a very easily excitable adrenal system.

I ask for help

I ask for help

I am 4 years and I am sick 

I have days when I’m benin ‘others where I’m very bad

my muscles have fallen

I still have so much male to head and joints

Someone can tell me if he can get out of this nightmare 

or if I have to resign myself to suffering

thanks to who can tell me something

excuse my English

quattro anni e mezzo

chiedo aiuto

Sono 4 anni e mezzo che sto male 

ho giorni in cui sto benino altri in cui sto molto male

i miei muscoli sono caduti

ho ancora tanto maschio alla testa e alle articolazioni

qualcuno mi può dire se riesce ad uscire da questo incubo 

o se mi devo rassegnare alla sofferenza

grazie a chi può dirmi qualcosa

scusate ma non so l’ inglese

3 1/2 Year Update

Hi all. I just wanted to post an update. I have continued to improve although I still suffer from some symptoms such as circulation issues, muscle weakness, and pressure headaches.  I was at Mayo to retest and my autonomic nervous system is functioning much better. I also had normal blood work for the first time in a long time. My iron and iron saturation levels were normal and so was my c reactive protein (which had been wacky for sometime). I still have to pace myself and I continue my  (routine), but I am doing better. Hang in there 😘

Very good news for botulism sufferers

https://www.scripps.edu/news/press/2017/20170524janda.html

this was sent from moderator of the Facebook Botox/dysport group.

I hope this message provides hope to all.

We already know botox isn’t made for everyone – I don’t think we need anymore reminders of that .  Hope we can continue to move forward and post proactive posts.

 

Btw my own two cents is its botulism in some then it can activate fungal like infections and damage already comprised immune systems in others. Obviously both outcomes act on immune system /CNS . So basically test for underlying active infections especially high Epstein bar .

Gallbladder surgery – please help

Hope everyone is doing ok. I am posting this for another botox victim who has been trying to get on the site but has been unable to register. She is about 7 months out and has been told her gallbladder is not functioning and needs to come out. She’s permitting me to post for her and share info with you in hopes that someone has advice. Symptoms started just after botox. Diarrhea and total loss of appetite. She had an abdominal CT early on which was normal as well as all labs. The symptoms have been going on and off for almost 8 months. She recently had an abdominal ultrasound which was also normal so doc had her do a hida scan which showed her EF at 17%. Diagnosed with biliary dyskinesia.

Of course she is afraid to have the surgery and anesthesia. If anyone has dealt with this and can give advice, it’s so appreciated. This one is urgent as her surgery is scheduled for next week.

Thanks to all.

J

6 years after Azzulare

Havent been here 4 ages. But in my daily prayers have supported everyone. For the last 1.5 year I felt quite good.I happily gave birth to my son and thought that toxin left my body forever.Unfortunately I got a terrible relapse past weekend( was on antybiotic).Feeling the same as at the beginning.Cant stop crying.How IT is possible?Thinking of everybody suffering.

Docter said my case was one in 100 million

in 2000 I was shot in the temple with botox.  It felt wired and numb at the time.  It paralyzed my face for life.  I’s horrifying and it weakend my entire core.  It’s created a unbalance in my neck and that is felt down to my toes.

I want to sue this fuckers!

 

Im finally dealing with this, MIR net week,  I want to take these bastards down!

 

I know one executive for Allergan, she lives in a a huge home, she’s a horrible person

 

I have the courage to take on the pigs!

 

these greedy punks are going down!

 

Help!

Botox Kills Sex Drive – Your comments??

After 25 years, a “beauty therapist” in the U.K. notices a strong correlation between Botox users and a diminished sex drive and even a lack of love or emotional capacity.

http://www.dailymail.co.uk/femail/article-4470692/Why-botox-kills-sex-life-beauty-therapist.html

She assumes it is the result of not being able to smile because she doesn’t understand the damage to the nervous system after botulinum  toxin poisoning or the long-term damage to the muscles or the interruption of acetylcholine, which remains compromised to various degrees indefinitely in some cases. As you all realize, not even physicians understand the long-term damage of botulism and partial recovery!

So I would like to hear candid comments from the Botox Support Community as to your experiences, both male and female.

Three Year Update

Hi All, I just wanted to post a quick update. I wish I could say I am recovered, but just not there yet. However, I am much improved. I was a wreck, and like many of you, feared for my life. I was lucky enough to end up at Mayo Clinic where I was able to receive incredible care (even though they would not admit my illness was from botox). I have had to battle every day to rebuild my body. It’s been really hard, but I have seen improvement with time and care. Hang in there! Wishing you well.