I hope everyone is on the way to recovery or recovered.
I was hoping to be better by now. It will be 5 years in April that I got the Botox. I continue to have issues with fatigue, brain fog, some tingling, circulation problems, dry mouth, eyes and nose and a few others. But, my biggest issue continues to be the muscle and fat atrophy. It has continued to get worse instead of better. I really am so scared. I don’t know what is causing it at this point. My face, eyes and head are so sunken. I don’t see myself anymore. My teeth, gums, nails, body and hair have also been changed. I have tested for ANA, RF, C reactive protein, SED rate and they are all normal. My face changes by the week…I am so scared. Does anyone have any ideas what this could be? Is it still a direct effect of the toxin?
I appreciate everyone’s support!
Well once again Im on here writing this in case anybody else wants to read my posts. Oh boy this weeks been terrible. I have been so lucky in that my life is relatively normal. The only time I get relapses is when I go out partying too much and get no sleep. So ive been good and cut back on this and as long as i get sleep i’m fine. Jet lag used to make me bad also… I can honestly say i’ve been living a relatively normal life. Until I tried acupuncture and acupressure last week. I left feeling dizzy and basically… its brought back all my symptoms worse that ever before. Full of facial weirdness, blurry vision, tight throat, fullness of the ears, heavy weight on my head and shoulders, stiff neck, and feeling out of my body. Its sad i’m back here. I must have been stimulated too much.
Writing this just as an outlet. Hopefully it’ll pass in a week like usual….
Did anybody else have a bad reaction to acupuncture / acupressure?
I am now almost 3 years out and I have now firmly established that any substance /activity that stimulates the adrenals causes a relapse in symptoms. I have recently upped my thyroid medication and had severe symptoms that even regular doses of copper are not really helping (Copper normally gets rid of all relapses in a day or two) I believe that besides the obvious ones like caffeine, Vitamin C and substances that directly stimulate adrenals other supplements , exercise and even some foods may cause a relapse as they may be mildly stimulatory to a very easily excitable adrenal system.
I ask for help
I am 4 years and I am sick
I have days when I’m benin ‘others where I’m very bad
my muscles have fallen
I still have so much male to head and joints
Someone can tell me if he can get out of this nightmare
or if I have to resign myself to suffering
thanks to who can tell me something
excuse my English
Sono 4 anni e mezzo che sto male
ho giorni in cui sto benino altri in cui sto molto male
i miei muscoli sono caduti
ho ancora tanto maschio alla testa e alle articolazioni
qualcuno mi può dire se riesce ad uscire da questo incubo
o se mi devo rassegnare alla sofferenza
grazie a chi può dirmi qualcosa
scusate ma non so l’ inglese
Hi all. I just wanted to post an update. I have continued to improve although I still suffer from some symptoms such as circulation issues, muscle weakness, and pressure headaches. I was at Mayo to retest and my autonomic nervous system is functioning much better. I also had normal blood work for the first time in a long time. My iron and iron saturation levels were normal and so was my c reactive protein (which had been wacky for sometime). I still have to pace myself and I continue my (routine), but I am doing better. Hang in there 😘
this was sent from moderator of the Facebook Botox/dysport group.
I hope this message provides hope to all.
We already know botox isn’t made for everyone – I don’t think we need anymore reminders of that . Hope we can continue to move forward and post proactive posts.
Btw my own two cents is its botulism in some then it can activate fungal like infections and damage already comprised immune systems in others. Obviously both outcomes act on immune system /CNS . So basically test for underlying active infections especially high Epstein bar .
Hope everyone is doing ok. I am posting this for another botox victim who has been trying to get on the site but has been unable to register. She is about 7 months out and has been told her gallbladder is not functioning and needs to come out. She’s permitting me to post for her and share info with you in hopes that someone has advice. Symptoms started just after botox. Diarrhea and total loss of appetite. She had an abdominal CT early on which was normal as well as all labs. The symptoms have been going on and off for almost 8 months. She recently had an abdominal ultrasound which was also normal so doc had her do a hida scan which showed her EF at 17%. Diagnosed with biliary dyskinesia.
Of course she is afraid to have the surgery and anesthesia. If anyone has dealt with this and can give advice, it’s so appreciated. This one is urgent as her surgery is scheduled for next week.
Thanks to all.
I don’t know if this has been posted or not, but a friend just sent it to me and I had not seen it.
Has anyone tried GABA as a way to deal with anxiety / insomnia etc? Was recommended but given the adverse, even paradoxical reactions I now have to supplements, I’m leery. thanks
Havent been here 4 ages. But in my daily prayers have supported everyone. For the last 1.5 year I felt quite good.I happily gave birth to my son and thought that toxin left my body forever.Unfortunately I got a terrible relapse past weekend( was on antybiotic).Feeling the same as at the beginning.Cant stop crying.How IT is possible?Thinking of everybody suffering.
There are a lot of people from other support groups like Botox Dysport Support on Facebook trying to join this group with no success , has something gone wrong?
in 2000 I was shot in the temple with botox. It felt wired and numb at the time. It paralyzed my face for life. I’s horrifying and it weakend my entire core. It’s created a unbalance in my neck and that is felt down to my toes.
I want to sue this fuckers!
Im finally dealing with this, MIR net week, I want to take these bastards down!
I know one executive for Allergan, she lives in a a huge home, she’s a horrible person
I have the courage to take on the pigs!
these greedy punks are going down!
After 25 years, a “beauty therapist” in the U.K. notices a strong correlation between Botox users and a diminished sex drive and even a lack of love or emotional capacity.
She assumes it is the result of not being able to smile because she doesn’t understand the damage to the nervous system after botulinum toxin poisoning or the long-term damage to the muscles or the interruption of acetylcholine, which remains compromised to various degrees indefinitely in some cases. As you all realize, not even physicians understand the long-term damage of botulism and partial recovery!
So I would like to hear candid comments from the Botox Support Community as to your experiences, both male and female.
Hi All, I just wanted to post a quick update. I wish I could say I am recovered, but just not there yet. However, I am much improved. I was a wreck, and like many of you, feared for my life. I was lucky enough to end up at Mayo Clinic where I was able to receive incredible care (even though they would not admit my illness was from botox). I have had to battle every day to rebuild my body. It’s been really hard, but I have seen improvement with time and care. Hang in there! Wishing you well.
Tests just came back positive for both. Anyone else?
I know this site doesn’t get the traffic it used to, but I was wondering if any members using it lived in SoCal? We just moved back and I could use someone nearby to talk to who has been through this nightmare… no one else really gets it. Let me know and I’ll forward my contact info.
Not long ago my adrenals were fine still and since last months I start having more weakness, breathing , circulation more issues, head exploding inside and the back of head, veins swelling especially in the afternoon and by eveining I barely stand on my legs with swollen belly, legs, hands , generally very ill and weak. In the morning I wake up with overactive nervous system , stiffness and after 15-20 mins I get weaker and weaker. Head ache is worse than ever including my eyes.
I also get very emotional and down, I wanna cry for no reason.
About 2 months ago I had blood tests done by immunologist including cortisol which showed very low level , my dr decided to do Short Synacthen test for me and it showed that my adrenal cortex doesnt produce cortisol enough which means that might be another autoimmune reaction. In the last 2 years I have been diagnosed with ANTI TPO ( started with 300 and by now is >1300 , ) IA2 – antibodies ( double high) and now possibly Addison’s disease..
I can feel my body deteriorate and it’s just too damn much for one person to handle it all like surviving bad Botulism was not enough..
My immunologist seems to be very caring and as the only one tries to help and doesn’t deny it is all from poisoning , he actually says IT IS from poisoning but he can’t kick this toxin out of my system anyhow. He decided to give me short course of Prednisone for about 4 weeks to see if I will have any improvement , I was trying to avoid it for long but I guess this is my only option right now since it gets so much worse.
Could you please let me know if any of you been diagnosed with autoimmune diseases or reactions after this evil poison? Adrenal insufficiency maybe? I’m so afraid to take prednisone but I guess I have no choice anymore, if somone is on steroids ( I’m sorry I can’t remember who was) could you please let me know if it helps or cause any more trouble..
It’s very hard to stay positive now and keep thinking that time is my friend..
I was wondering if this is the only support group like this?
There doesn’t seem to be much traffic. Maybe there is another one everyone is on? I cant
I have a long complicated story but essentially was feeling “better” with the help of valproic acid and lorazepam . I hit a tolerance and had to come off of the lorazepam after several years and all of my symptoms plus many others came back.
I had about ten different tests run last week looking at toxicities, mold, lymes, autoimmunity, and inflammation. I will be happy to share results when I get them.
Prior to botox I had a terrible time getting off of ativan and with general anesthesia in the past. I found out I had a specific type of the MTHFR gene mutation the 667t or c I believe, which means I have trouble with methylation. This translates into me being a terrible detoxifier. My body has an incredibly hard time breaking down toxins and eliminating them. This MTHRF gene is said to be the smoking gun behind why some people get sick from mold and others don’t or why some people smell perfume and get sick and others are fine. Inflammation is what ultimately results from not being about to properly deal with these environmental toxins/neurotoxins.
I will update this post when I can with any info that I find might be helpful as I get these test results. I want to encourage you to get the MTHFR test. Supposedly taking methylated versions of all vitamins especially methyl folic acid is essential. I really think we need to be looking at why some people get so sick from benzos or botox, chemical sensitivities and the inflammatory response etc. There is a reason beyond just being unlucky as to why our bodies reacted the way it did. And in no way-I repeat- NO WAY does that take the blame off of companies like allergan who know certain people should stay the hell away from this crap. If they were to say “chances are you’ll be fine” that woudn’t sell tons on their product. Very upsetting the info they hide.