Not long ago my adrenals were fine still and since last months I start having more weakness, breathing , circulation more issues, head exploding inside and the back of head, veins swelling especially in the afternoon and by eveining I barely stand on my legs with swollen belly, legs, hands , generally very ill and weak. In the morning I wake up with overactive nervous system , stiffness and after 15-20 mins I get weaker and weaker. Head ache is worse than ever including my eyes.
I also get very emotional and down, I wanna cry for no reason.
About 2 months ago I had blood tests done by immunologist including cortisol which showed very low level , my dr decided to do Short Synacthen test for me and it showed that my adrenal cortex doesnt produce cortisol enough which means that might be another autoimmune reaction. In the last 2 years I have been diagnosed with ANTI TPO ( started with 300 and by now is >1300 , ) IA2 – antibodies ( double high) and now possibly Addison’s disease..
I can feel my body deteriorate and it’s just too damn much for one person to handle it all like surviving bad Botulism was not enough..
My immunologist seems to be very caring and as the only one tries to help and doesn’t deny it is all from poisoning , he actually says IT IS from poisoning but he can’t kick this toxin out of my system anyhow. He decided to give me short course of Prednisone for about 4 weeks to see if I will have any improvement , I was trying to avoid it for long but I guess this is my only option right now since it gets so much worse.
Could you please let me know if any of you been diagnosed with autoimmune diseases or reactions after this evil poison? Adrenal insufficiency maybe? I’m so afraid to take prednisone but I guess I have no choice anymore, if somone is on steroids ( I’m sorry I can’t remember who was) could you please let me know if it helps or cause any more trouble..
It’s very hard to stay positive now and keep thinking that time is my friend..