All posts by Liz

About Liz

I received Botox in April 2011 after going into to a medical spa facility to consult with the manager about skin care products, microdermabrasion, etc. I was talked into a few units between my brows but two days later at my appt given 36 units on my forehead horizontal lines, none on the elevens. Massive communication breakdown. It changed my face into a caricature. I have suffered with multiple symptoms.

Essential Oil Tips

This post is in response to some requests for more information on the essential oils. Please don’t panic and feel overwhelmed when you see the lists, just pick two or three oils and start trying them out.

Most of us have spent so much money trying to get well I can hear the groans when something like this gets posted. I would be the same way and don’t blame anyone for feeling that way. But from the bottom of my heart I so want anyone who has been leveled by this wicked stuff to not only get some relief but start living life again.

ESSENTIAL OILS* for…                                                                                                                                             Nerve and Muscle Pain Relievers
Cistus – When followed by peppermint or wintergreen it seems to boost effectiveness for nerve pain, and all by itself is one of the best oils for that type of pain. It takes very little.
Helichrysum – A favorite of mine, it’s an amazing pain reliever, for both muscle and nerve pain.
Lavender – An all time favorite for relaxation and pain relief.  These are all great oils…
Clary Sage, Thyme, Roman Chamomile, Frankincense, Geranium, Spruce, Pine, Clove, Lemon, Vetiver, Balsam Fir, Palo Santo, Marjoram, sweet (marjoram also works as a sedative). It’s what I use every night with lavender and vetiver no matter what else I might need.
**Eucalyptus – Use in small quantities; a couple drops mixed with carrier oil directly on pain area along with a drop or two “neat” on bottom of feet. Not recommended for daily use, a couple times a week for chronic pain is all I would personally use.
**Wintergreen – This is the one that first wowed me when I started using oils. I received immediate pain relief. It is an analgesic and an anodyne which means it can eliminate pain and reduce tension. However, it is an oil that needs to be used with caution. It really shouldn’t be used in a diffuser because of the Menthyl Salicylate and never used by anyone who is hyper-reactive to salicylates. For application use it like eucalyptus, but during a bad peripheral nerve flare up I will use it a few days in a row with no problem. I just don’t pour it on like I did in the beginning.
**Peppermint – one of the most popular oils out there that can be used for pain relief as well as a host of other things, but another one to use with caution. If you have an uncomfortable reaction, which I can honestly say that I have not had to any of the oils except for the rash, itching and swelling symptoms from overuse, it may be that it is another oil with menthol and might potentially cause someone who has been poisoned by a neurotoxic substance to have a reaction. Peppermint is effective against an astounding number of pathogenic organisms, including MRSA.

Nerve pain formula (# = drops)
15 Geranium
10 Helichrysum
10 Wintergreen
8 Marjoram
6 Cypress
5 Peppermint
2 Clove
2 Lemon

Mix with about 100 drops career oil and apply 4-5 drops of blended formula on inflamed area. For all over relief put drops on bottom of feet, on rub on from base of neck along spine down to small of back. There are charts that show nerve connections on our hands and feet to places all over our bodies.

Germ Fighting Formula
Clove
Lemon
Cinnamon bark
Eucalyptus
Rosemary

Oils for Anxiety (use any one or any combination of these)
Bergamot
Ylang Ylang
Clary Sage
Frankincense
Orange
Patchouli
Roman chamomile
Vetiver
Lavender
Sandalwood
Palmarosa

My all time favorites are lavender, vetiver, bergamot, Ylang Ylang, patchouli and clary sage. I also love all things citrus. Orange is a wonderful oil for equalizing moods.

For stress relief mix equal amounts of the oils listed below with a 2 x’s the carrier oil, rub together in hands clockwise, lay on your abdomen and at base of throat and slowly breathe in and out three times. With the index finger and middle finger tap over thymus area twice. I don’t know how – something to do with the electric current in our bodies – but it has an immediate calming affect on me.
Orange
Ylang Ylang
Patchouli
Blue Tansey
Tangerine

*Essential Oils have provided multiple health benefits for countless people around the globe, but they should be respected like any other potent compound, which is exactly what they are. I know some who do, but I would not personally ingest any of them, even the citrus oils. Our livers have already taken a beating and it’s not worth that kind of risk.
**Use extra caution with these oils as well as Blue Tansey. It’s another really good oil, but needs to be used carefully.

Reference Guides (can be purchased on Amazon)

Medical Aromatherapy Healing with Essential Oils by Kurt Schnaubelt. Excellent guide. Check Kurt’s book out here.

The first one I purchased was Reference Guide for Essential Oils by Connie & Alan Higley and I use it constantly It is a great reference book, but slanted toward a company I won’t endorse. Their recommendations for treatments with oils are very good though.
Click here for full edition   or…..  here for condensed quick guide.

Also, another very informative book is one by Dr. Cass Ingram, The Cure is in The Cupboard. It is all about oregano oil, an unbelievably powerful oil with which I am just now becoming familiar. Click here for the scoop on oregano.

The oil company I recommend above any others I’ve tried is here. Appalachian Valley Natural Products.  If you’re not seeing the bulk pricing after clicking the drop down menu under the oil name, you can either register and see if that works, or just send them an email and ask because the bulk prices are available to everyone whether registered or not.

Again, not one little thing in it for me by recommending them. The best part of finding something amazing or discovering something that is of tremendous personal benefit is telling others about it. I will only recommend what I’ve used, what works for me at this level, only after significant research, which I did with about a dozen companies. I honestly do not believe anyone can beat their oil quality, prices or customer service. One thing I’ve found without exception is that unless a company is running a promotion or having a legitimate sale, if an oil is very inexpensive compared to the majority of reputable companies out there, it’s because it’s an inferior oil. Having said that, I was skeptical when I saw some of AV prices because they were so much less than a company I had been using and considered staying with. Not only did their prices blow the other company out of the competition, the oil quality did too.

Generally speaking, our bodies probably respond better to the oils when we switch them up. I do use the three I mentioned everyday, and have for about a year. They still work and have caused no problems, but they are among the more mild oils. Like anything else, we are all different so different oils will work differently on different people. That’s why I listed quite a few oils. There are dozens more.

I am not familiar with WordPress, and Word is not that compatible with it. I need to get some formatting things figure out. After typing it out in Word I spent quite a while trying to get this to look halfway decent, and not sure I succeeded!

New Facebook Group

…. And where is the other one? I was looking for the Facebook group someone in this group started a couple of years ago…? Dysport Sufferers, I believe. I could not find that one but found this one –

https://www.facebook.com/botulismsupport?ref=ts&fref=ts

It would be difficult for me to believe that that is the only group.  I don’t understand why there have been no YouTube videos or an onslaught of FB groups unless it’s for what I mentioned earlier, that we’ve been too ill to deal with it. The only video I found was on someone doing injections illegally, which we all know has nothing to do with why people become sick.

I have recently been considering doing a vlog for Botox victims, has anyone else thought of that?  Has anyone on here skyped and discussed possibilities for getting the attention of the media? It blows me away that this isn’t all over the news. 

Finally Real Hope

Hi all,

It’s been quite a while since I’ve posted on here. Most of you effected by Botox understand the frustrating roller coaster ride of extremes. I have not wanted to provide false hope during one of those relatively symptom free periods, and I don’t like sharing unless I have something encouraging. Today symptoms are about average, no burst in energy or dramatic decrease in pain, so it’s as real as it gets. I have something I believe can give encouragement. Here’s the story…     Injections: April 2011 at Medical Spa. Was supposed to have 4-6 units between brows, received about 36 units in forehead.   Phase One Symptoms: Morning after the following 4 months housebound with hardcore flulike symptoms, severe nausea, body aches, anxiety, brain-fog, difficulty breathing, unreal insomnia, and indescribable abyss. I’d not been warned of any symptoms. The first round of symptoms began to wane which is when I believed I was starting to get back to feeling normal. So wrong. Six weeks later the real pain started.  Phase Two (Permanent) Symptoms: Developed peripheral nerve pain, fibromyalgia type pain and moderate to advanced nerve damage in my right arm, hand and two right fingers; lost the ability to track time, a difficult to explain but very real and very frustrating phenomenon; developed sleep apnea (diagnosed in sleep clinic), hard to fathom in someone who was a long distance runner; anxiety, another rarely experienced symptom became frequent; short term memory loss; frequent nausea and intolerance to foods; constant fatigue only somewhat managed with a very limited schedule and stress, which in today’s world is next to impossible; sitting for very long periods is excruciating; teeth and gums started developing all kinds of problems, very unusual for me; and unable to do more than one thing at a time without getting completely lost – a huge change from life immediately before Botox as an HR professional.  Diagnosis: Specialists ordered 12 medical tests over several months, most of them invasive, a couple very risky, and all of them costly. Most diseases and neurological problems known to man, including autoimmune disease, were ruled out. I personally still wasn’t connecting the Botox in the second phase of symptoms because of the break of time with relatively few symptoms I experienced between phase 1 & 2. Not until an angel on a forum pointed out that she believed my symptoms were Botox-related and then connected me with someone who could help did I begin to understand what had happened. Fortunately my physician, neurosurgeon and neurologist now believe it is botulism from Botox. Unfortunately, there is not a single thing they can do about it, which they readily admit, so it was up to me to figure out how to manage.  Life AB Coping Tools: Apple Cider Vinegar with baking soda – diminishes brain fog and substantially decreases nausea. I drink 1- 3 big glasses of water a day with 2-3 tsp ACV. It has helped with food intolerances, general digestive issues and nausea. Along with ACV I have used acupuncture. Most of the time acupuncture helps a lot with the peripheral nerve pain for up to 3-day stretches of time. Anything that brings the pain down to a moderate level after the continuous pain Dr. Helton described as having your skin ripped off and alcohol poured over it (very accurate description I might add), is like a little slice of heaven. It can be expensive, but definitely worth trying. I still get it as often a I can. Other helpful tools – chiropractic, eliminated sugar, green veggie smoothies, foot reflexology, routine sleep, cranial massage, herbal teas, yoga and walking all help. I cannot stress enough that consistency is key in all of those things. But by far the number one help I have received is through ESSENTIAL OILS.

Before I say one more word, it’s imperative that you know I do not, nor have I ever sold essential oils. I am not involved with anyone who is, nor am I or ever have been affiliated with anyone who does. I don’t receive any kickbacks for mentioning oil companies, and I could not in good conscientiousness share in places like this if I did. I’ve been desperate to get well and to have back at least a percentage of the quality of life I once enjoyed.  I want to share what has helped me and when I found out the company I use is having a sale tomorrow (Friday, July 24th) it motivated me to get off my rear.

I did my own oil-to-oil research and comparison study, read countless articles and books and began digging into the integrity of the oil companies. I was looking for one with the best overall quality oils, the friendliest and most efficient customer service and the one that offered the most competitive pricing. Then one day while I was researching cold air diffusers I stumbled onto a blog of an intriguing woman, a scientist who had done research at John Hopkins. She recommended an essential oil company unfamiliar to me, Appalachian Valley Natural Products. Given her credentials, and someone in a profession who usually would not publicly recommend alternative helps, I thought I had to check the place out. What I found ended up being a godsend.  Currently I use them exclusively, except for a few oils I still had on hand from the trial.  It is by far the best in every category I was researching and rating. I was immediately drawn by their down-to-earth style and helpful website. Their customer service is platinum standard. They have bulk oils and offer international shipping. However, as excited as I am about the oil company, which is a big deal because of how many I tried, it is secondary to what the actual oils have done for me. After Essential Oils: This is not easy for me to put into writing after so many peaks and valleys, but after months of using the oils and consistent improvement, I am actually getting better. Some of the symptoms are becoming less frequent, decreasing in severity and some have stopped and/or reversed. The sleep apnea has stopped, a fairly big deal for us. I didn’t snore, but stopped breathing and would sputter awake or bolt upright in bed gasping for air. I am sleeping through the night more often; get relief from pain that prescription pills or anything else won’t touch; have considerably decreased anxiety and an increase in my general sense of wellbeing. Today I am better than I have been and have real hope that I will continue to get better for the first time since the neurosurgeon used the words “lifelong and permanent”.  If you choose to check out Appalachian Valley you can find them here.  Like I said, I believe they are having a sale tomorrow, the 24th. There is a description of each oil as well as how they’ve shown to be most beneficial.  I hope you at least try essential oils at some reputable company. There are many EO reference guides  available on Amazon and multiple articles online.  For pain I have had success with wintergreen, marjoram, pine, helichrysum, lavender, peppermint, spruce and geranium to name a few. For anxiety I have used lavender, ylang, ylang, bergamot, hyssop, and roman chamomile. Thyme, vetiver, marjoram and lavender helped me start sleeping normally. There are so many options, and different oils might work better on different people.

I am no doctor, but my own physician told me to do whatever it is that I have been doing. Recently he said he was very proud of me for not giving up and very interested in what I’d done to get better, because he said, and I quote, “people who have been as far down the path you’ve been on do not typically find their way back to a quality life.” My husband says he’s getting back the woman he fell in love with. I’ve been able to do things I have tabled for two years, and my gums started improving dramatically, enough for my dentist to ask what products I used a couple of visits ago. We’ve benefitted in countless ways by using oils. I have a long way to go, but two steps forward one back, I am making solid progress. This is my personal experience, for you to do with what you want. It’s been so disheartening for me to read the stories on here, often depressing me so much I couldn’t get on the site for long stretches of time. I am only sharing now because I have given the oils almost a year’s worth of time, and by far they have proven the most effective for my own recovery. Thank you for taking the time to read this lengthy post. I am look forward to the day Botox is exposed for what it is. I appreciate you all so much, especially the women who had the foresight to start this support community.

20 weeks update

It’s been several weeks since I registered on this forum but have only commented on other posts infrequently. Just go update…  I received 36 units of Botox April 2011. I had the initial severe flu like symptoms, i.e., body aches, chills, nausea, fever and headache, which lasted several days. Then the black fog descended, unlike anything I’d ever experienced. Dark, bizarre thoughts, a major funk and fatigue that made my limbs feel as though I had lead weights tied to them.  After finding a forum with multiple suggestions for relief I tried the apple cider vinegar and baking soda which immediately lifted the “fog” and got me out of the abyss, and fortunately I haven’t returned to that place. Acupuncture, foot reflexology, chiropractic, teas and tons of water have also helped to alleviate symptoms.  However…this has been one heck of a roller coaster ride.  The most consistent symptoms for me have been nausea, fatigue, and inability to concentrate. 
Lately I’ll have good hours or days and then out of nowhere get slammed with fatigue, aches and nausea. Recently it’s been leg tremors, spasms in my left eye and difficulty with equilibrium, even stumbling a few times. Yesterday I had a fairly decent day, except for a couple hours of fairly intense anxiety, which I have not had too much throughout.  This morning I woke up with the lead weight feeling and fatigue. I have to be so very disciplined to rest, stay away from sugar and sodium and not overdo, which is difficult when I feel halfway normal and want to make up for lost time.  I can push myself through some things, but depending on how long I have to be “on”, I will crash for several days after. Other times I’ve had to cancel commitments, which I seldom make because I can’t depend on my body these days. All of that means fighting discouragement on a regular basis.  I continue to have much hope for recovery though. I am not as bad as I was right after the injections, and not having symptoms with no breaks, so I am grateful for the good hours and days.  I am also thankful for this forum and all those who post, for whom I pray daily.