Hello guys.


7 years after botox and still in very bad shape. Muscle weakness, inability to excerise, joints cracking and pain, neck weakness. At some point got tested for lyme disease which came positive but borderline and months of treatment with no results so I believe its all still from botox. Got emg of my nerves and it shows nerve damage around wrist, elbow, knee , neck so basically everywhere. So basically it seems like a permanent damage if I havent recovered after 7 years? I think muscle weakness pretty much progress which is normal with polineuropathies. Any reason to continue that suffering? There are medical terms and its hard to translate but its shows like its a nerve damage in endings of nerves, axons , slight demienlization , slower response of nerves. With that kind of nerve damage I suppose not much can be done. Sad thing I am bedridden for 7 years , 29 yo currently and still years to suffer with sll of that. Forgot to write that I have joint damages in my  arm area  with mri of it. Hello chgofit16 . I remember you and it seems like you also still suffer. One person was right. We mostly never get back to previous shape…

6 thoughts on “

  1. Omg, I think of you often. I am still suffering as well, but have been showing some improvement over the past year .
    Or I am learning to cope with it. Who knows? The less treatment I do ,of any kind ,the better off I am . Yes ,I am at 7+ years as well. You were one of my first contacts. Sorry to hear that you haven’t made more progress!

  2. Yes I am currently worse but I believe its a result of lyme treatment. Who knows maybe I have this and botox side effects? Lyme can produce botulism like toxins in body itself so nice combinations to be honest. I made a little progress in terms of lungs health and skin condition. But as you can see I have nerves damages throught body and my muscle gettin weak lately. I need to give up antibiotics ..they will lead me to death fook. Did you find anything that help you ? I can only recommend peptides injections tb-500 and bpc 157. They helped me with burning pain sensations. Peptides stuff look promising. I am currently researching igf-r3 peptide that shows nerve repair abilities with a dramatic fast pace. Peptides heal your body and works on many things. With botulism your body is very compromised so you need to guve them much more time but at this point I think you should consider using them. Injections…sounds scary but they derived from natural things occuring in our bodies not like toxic botox.

    1. I have too many Sensitivities to try any injections. I still can’t use soaps or shampoos, natural or otherwise. HBOT has helped me the most.
      I think if you stop some of your intense treatment you will feel better.
      The toxin moves around my body. So once it moves to a new area I get some relief, and new damage . It’s a now win situation. The symptoms aren’t as severe this past year.

  3. Hi ,I’m really sorry to hear that you still struggling 7 years after injections although I can unfortunately relate .I’m 5 years out and still struggling with most of the symptoms you described especially the muscle weakness.Beside small dose Lorazepam I haven’t tried much medications or herbs because since the toxin spread I am very sensitive to them and the thing that seems to help a bit is small walks at the park on sunny days.Quitting smoking and going gluten free also has made a small difference for better .
    I can relate to the frustration as well because we seem to be around the same age and its not easy to have your dreams and plans change so much at this age .The frustration it hit me hard especially this year because I really thought it would be the year of the major improvements and so far it hasn’t been much different from last year and the possibility of the damage been permanent is becoming grater so I can imagine the frustration you have at 7 years dealing with all these symptoms .
    That been said I try to be grateful for the improvements that I had and try to help out family or around the house when I have some better days so I feel like I am contributing to something and also my goal is in the near future to start taking some classes at a community college or online and see how it goes.I also agree with Chgofit that stopping some of the intense treatments might make you feel better especially antibiotic s because I remember about 1 year ago I got what the doctor thought a sinus infection which he prescribed Amoxicillin for and 2 days after taking it I became so weak that couldn’t move much from bed and it took weeks to gain the strength back .Wishing you better health this year and the next to come .

  4. Hi!

    Thanks for your reply. I appreciate it. Sometimes I feel like I am better but when I go outside and try to do something I realize its all the same. My neck is so weak that sometimes I feel like I have no muscles in that area. I was excersing is for almost 5 months and basically not much change. Arms feel like they are atrophied. I had polineuropathy so I understand that nerves damage can make your muscle weak but my question what people take to heal nerves and make muscle strong again. I gave up 4 months of antibiotics and herbs therapy form lyme. I didnt feel any improvement and I am pretty sure symptoms are from botulism. My doctor prescribed low dose prednisone, alpha lipoic acid, high dose pottasium for polineuropathy. I also take omega 3, multi vitamin and minerals complex, drink a lot of water with essential oils and lemons and I try to eat healthy avoiding sugars. I take also stevia liguid extract..it boosts immune system and its powerful antioxidant. So far pain decreased but no muscle weakness and fatigue and also fatigue in general. I wonder if it ever improved. All the best. Adam.

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