Hope, Healing and Toxins: Iatrogenic Botulism and Lyme Recovery

For a very long time I was unable to participate in this group or even continue following it. I was so sick and afraid I could hardly get through each minute, each hour, each day and night. It’s hard to imagine that now. My last injection was in December 2014. In 2015, I was also diagnosed with Lyme Disease, and I suspect I have the genetic mutation that makes me a slow detoxifier. It has been a long, arduous journey toward healing, but I have improved so much, and I have hope again! (And some energy to try to help others suffering this horrific experience.)

I cannot describe nor even recall all of the things I have done that have helped. Generally, they are along the lines of detoxing, taking nutrients/supplements prescribed by various doctors, and minimizing exposure to more toxins. Everyone is different, so what has worked for me may or may not work for others. A commonality I’ve seen with many chronic health issues, though, is an increased sensitivity to all toxic substances. As many of us have learned through this terrible, life-altering experience, the toxins in our environment, food, personal care and home care products, etc. are many!

Eliminating gluten, dairy and grain from my diet has helped me tremendously! Also, I changed my entire beauty regimen to clean, safe products. I had no idea how many toxic substances are in most haircare, skincare, sun-care, perfume and makeup products! When I discovered how much I was hurting my body and impeding its healing with this daily toxic (over)load, I transitioned to Beautycounter, a company that refuses to us 1500 + toxic ingredients in its products [despite that they have yet to be banned in the US (many are banned in Europe!)]. Not only are their products safe, they are really wonderful and provide me with a little extra income as a Consultant. Please visit my page here https://www.beautycounter.com/alihoffman if you’d like to take a look/purchase products. I’m also happy to offer free phone/text/email or in person (if you’re near Santa Barbara or San Francisco) assistance with product selection, and I have some samples and information I can mail out as well!

Additionally, I have replaced all of my household cleaners with natural alternatives, many of which are made with essential oils. I use Young Living, and I am also happy to assist anyone interested in getting started with their amazing oils! I don’t have my own page with Young Living, but their site is here https://www.youngliving.com/en_US/discover and you can use my ID number (3441106) for purchases. Oils can also be used to promote healing, and a practitioner friend has given me some good recommendations for addressing neurological issues with oils, which I’d be happy to share.

Please be in touch! I’m happy to share samples and any/all knowledge I have about Beautycounter and Young Living. I truly believe reducing the toxins in my diet, personal and home care products has made a tremendous difference in my body’s ability to heal itself. Please reach out if you think this might be right for you––I know the sheer misery of being incapacitated by this terrifying illness and I want to help others who aren’t as far along on their healing journeys as I am.


Hi everybody,

I have not been on this site for many years as since I have recovered I do not want to be reminded of the terribly dark time that I went through.

It is 6 years since my dreaded Azzalure (dysport) injections that made me so ill.  I was very ill for about 18 months then had relapses for a further 6 months after that.

Now I live a normal life, I exercise, eat what I want, drink alcohol if I want and have my energy back.  I do not think that life will ever be the same as before as I have been left with an anxiety that whenever I feel slightly off I panic and think the symptoms are coming back so I guess this is a bit of PTSD.

This time last year I was feeling particularly well then I did something very foolish in August, a nurse at the hospital told me that although I was obviously very allergic to botox now I would be fine with fillers, I had boletero balance injected into the lines on my forehead, next day all botox symptoms were back full force!!  It took about 2 months for my body to settle back to normal again.  It is a lesson learned for me that my body cannot take anything foreign being injected into it.

All I am left with now is a little brain fog some days when I am over tired and not had 7 hours sleep, sometimes I get neck ache and a headache but if I take an ibrufen it goes.

If you are going through this awful botox journey, know that you will get better and life is happy again.  The best thing for recovery is distraction, so eve n if you do not feel like going out for a walk make yourself do it, get lots of fresh air and drink plenty of water.  The more you think about it and get anxious the worse you will feel.

I also found going on holiday and lying in the sun really helped loads – the sun heals nerves, get as much of it as you can.

It has been hard to accept my wrinkles but I do now and worry about all of my friends who all still insist on having botox and fillers, people are still convinced it is perfectly safe, I think in years to come they will both be banned, there will be a terrible aftermath for those injecting regularly.

Thinking of all of you going through this lonely and hard experience, keep positive and know that you will recover, the human body is an amazing machine that can recover from terrible damage.


Hello guys.


7 years after botox and still in very bad shape. Muscle weakness, inability to excerise, joints cracking and pain, neck weakness. At some point got tested for lyme disease which came positive but borderline and months of treatment with no results so I believe its all still from botox. Got emg of my nerves and it shows nerve damage around wrist, elbow, knee , neck so basically everywhere. So basically it seems like a permanent damage if I havent recovered after 7 years? I think muscle weakness pretty much progress which is normal with polineuropathies. Any reason to continue that suffering? There are medical terms and its hard to translate but its shows like its a nerve damage in endings of nerves, axons , slight demienlization , slower response of nerves. With that kind of nerve damage I suppose not much can be done. Sad thing I am bedridden for 7 years , 29 yo currently and still years to suffer with sll of that. Forgot to write that I have joint damages in my  arm area  with mri of it. Hello chgofit16 . I remember you and it seems like you also still suffer. One person was right. We mostly never get back to previous shape…

32 months out massive relapse after acupuncture

Well once again Im on here writing this in case anybody else wants to read my posts. Oh boy this weeks been terrible. I have been so lucky in that my life is relatively normal. The only time I get relapses is when I go out partying too much and get no sleep. So ive been good and cut back on this and as long as i get sleep i’m fine. Jet lag used to make me bad also… I can honestly say i’ve been living a relatively normal life. Until I tried acupuncture and acupressure last week. I left feeling dizzy and basically… its brought back all my symptoms worse that ever before. Full of facial weirdness, blurry vision, tight throat, fullness of the ears, heavy weight on my head and shoulders, stiff neck, and feeling out of my body.  Its sad i’m back here. I must have been stimulated too much.

Writing this just as an outlet. Hopefully it’ll pass in a week like usual….

Did anybody else have a bad reaction to acupuncture / acupressure?

Stimulatory substances cause relapses

I am now almost 3 years out and I have now firmly established that any substance /activity that stimulates the adrenals causes a relapse in symptoms. I have recently upped my thyroid medication and had severe symptoms that even regular doses of copper are not really helping (Copper normally gets rid of all relapses in a day or two) I believe that besides the obvious ones like caffeine, Vitamin C and substances that directly stimulate adrenals other supplements , exercise and even some foods may cause a relapse as they may be mildly stimulatory to a very easily excitable adrenal system.

I am really scared

Hi everyone,
I hope everyone is on the way to recovery or recovered.
I was hoping to be better by now. It will be 5 years in April that I got the Botox. I continue to have issues with fatigue, brain fog, some tingling, circulation problems, dry mouth, eyes and nose and a few others. But, my biggest issue continues to be the muscle and fat atrophy. It has continued to get worse instead of better. I really am so scared. I don’t know what is causing it at this point. My face, eyes and head are so sunken. I don’t see myself anymore. My teeth, gums, nails, body and hair have also been changed. I have tested for ANA, RF, C reactive protein, SED rate and they are all normal. My face changes by the week…I am so scared. Does anyone have any ideas what this could be? Is it still a direct effect of the toxin?
I appreciate everyone’s support!

I ask for help

I ask for help

I am 4 years and I am sick 

I have days when I’m benin ‘others where I’m very bad

my muscles have fallen

I still have so much male to head and joints

Someone can tell me if he can get out of this nightmare 

or if I have to resign myself to suffering

thanks to who can tell me something

excuse my English

quattro anni e mezzo

chiedo aiuto

Sono 4 anni e mezzo che sto male 

ho giorni in cui sto benino altri in cui sto molto male

i miei muscoli sono caduti

ho ancora tanto maschio alla testa e alle articolazioni

qualcuno mi può dire se riesce ad uscire da questo incubo 

o se mi devo rassegnare alla sofferenza

grazie a chi può dirmi qualcosa

scusate ma non so l’ inglese

3 1/2 Year Update

Hi all. I just wanted to post an update. I have continued to improve although I still suffer from some symptoms such as circulation issues, muscle weakness, and pressure headaches.  I was at Mayo to retest and my autonomic nervous system is functioning much better. I also had normal blood work for the first time in a long time. My iron and iron saturation levels were normal and so was my c reactive protein (which had been wacky for sometime). I still have to pace myself and I continue my  (routine), but I am doing better. Hang in there 😘


Hello dear all,

fIRST  of all I want to tell you that English is not my mother language and I use a computer to transalate words and phrases that I do not know how to pronoumce…

I wish I could tell you in my own language but I will give you the key workds so you can find it and understand all english speaking people.

Like y ou I was neurologically injured and lost all my money in all kind of doctors , naturopahts and supplemetnss and one day while I pray God for help because I was at my end with nerve pain I heard the word Genensis in Mass. so I came home and typoe in Google GENEs . there came a workd I had not research…. and right a way came some doctors and tests…


From Spain is very difficult for me to do the testing in the USA but I manage to do the 23 and me and then started studying the word METHYLATION, whcih at this day I dont know the translation in my language….

There is where I found my angel Dr. Amy Yasko.at  www.holistichealth.com  you can download your results there for free.


i started in the chat group talking to the moderators fro free.. and then did my first Hair mineral test to find thta Ii was full of Mercury…( maybe botox has it as excip8ient?? i don,t know and thta my lithium was almost inexistent. so what th program claims that is useless to take huge amounts of b12 if your lithium is not in balance before adding the correct tuype of b12 depending on your genetics which turns to me is adenosyl b12 and not the methy b12 I was taking.


Dr. Amy has a lot of free ifnormation that I do not understand because of the languag e but I am sure all english spoken will understand.


It turns out I have a CBSC699t mutation and can have issues with sulfur. I was taking huge amounts of cilantro and chorella anad ALA following the directions of a naturopath  which probably was not good for ME.  MAYBE good for someone else.


thne I did the Urine test , and then the CSA and GI test and Dr. Amy checkes everything with the genetics and she writes down what supplements and some comments….specifically for every person and we are all different I have h pylori and I am asymptomatic which in turn as I have read in her program steals the b12 …  so right now I am following her  h pylori protocol natural supplemetntaion and I iam very eager to see what happens in the next 4 months… I do not dare to take antibiotics… now I do not dare to take anything….. chemical…


I wish I could have more moeny to do some tests but I donm,t have… i have not been working all these years…


I have recently made my 3rd mineral hair test and my mercury is much better and the lithium too . My muscle spams are gone the twitches also…. the nerve pain is there but I am sure is the last peel of the onion…


I am one year and a half in the program and I have waited this long to post because I have had relapses before with orhter programs and did not want to bring false expectations… but I can feel every week that I feel a steady improvement and recovery. My mood is much better . I have some anxiety but my panic attacks are goone and I think it has to do with the Lithium Orotate  whcich in my JHair Mineral test was inexistent.(thank,s God it was not caught in Customes)


I feel the better I have in all these years since those injections in 2013,  and the key thing is I think everyone genetics and the underlyuing infections or what ever that the toxin has done to our body.


Please it takes hours to get this post becasue of the transalation and I am sure I can not  answer any og thte questions you ask . check the web and ask the moderators for free..  I wish I could but I can,t


at first I wa svery suspicious of ANOTHER PROGRAM….  and mostly because Dr. Amy is very interested in autism but she wrote me a comment in my test that the toxin begaves like the injur of the tetanus toxin and gave me not es in my genetics and resutls of the tests I did.

so I think that any supplemtn is not good for everybody and this is what is working for me. right now.


I was scared in the beggining , i wrote in the chat group and told her with my first test what happened and I am the only one she has treated I think. I have begged her in my last test that althought she is in the autism word to please invvestigate the botulinium toxin injury and she wrote she would take it into account in her research. I am the first one , maybe we have something in common in our genetic mutations..?? I do not know….

If you see my posts in the chat group of Dr. Amy  from one and a half year ago under the name of gospel you will see my trayectory and my path to better recovery , Maybe those englisth translations can help you with the symtoms that most of us have…

I think they all know me in the blog because I am the only one with this probolem and that I am from Spain,. Now I do not take any supplement. I take it for my genetics and the results of the tests and the directrices of the program



I pray God that this will work for all of us….


Very good news for botulism sufferers


this was sent from moderator of the Facebook Botox/dysport group.

I hope this message provides hope to all.

We already know botox isn’t made for everyone – I don’t think we need anymore reminders of that .  Hope we can continue to move forward and post proactive posts.


Btw my own two cents is its botulism in some then it can activate fungal like infections and damage already comprised immune systems in others. Obviously both outcomes act on immune system /CNS . So basically test for underlying active infections especially high Epstein bar .

Gallbladder surgery – please help

Hope everyone is doing ok. I am posting this for another botox victim who has been trying to get on the site but has been unable to register. She is about 7 months out and has been told her gallbladder is not functioning and needs to come out. She’s permitting me to post for her and share info with you in hopes that someone has advice. Symptoms started just after botox. Diarrhea and total loss of appetite. She had an abdominal CT early on which was normal as well as all labs. The symptoms have been going on and off for almost 8 months. She recently had an abdominal ultrasound which was also normal so doc had her do a hida scan which showed her EF at 17%. Diagnosed with biliary dyskinesia.

Of course she is afraid to have the surgery and anesthesia. If anyone has dealt with this and can give advice, it’s so appreciated. This one is urgent as her surgery is scheduled for next week.

Thanks to all.


6 years after Azzulare

Havent been here 4 ages. But in my daily prayers have supported everyone. For the last 1.5 year I felt quite good.I happily gave birth to my son and thought that toxin left my body forever.Unfortunately I got a terrible relapse past weekend( was on antybiotic).Feeling the same as at the beginning.Cant stop crying.How IT is possible?Thinking of everybody suffering.

Docter said my case was one in 100 million

in 2000 I was shot in the temple with botox.  It felt wired and numb at the time.  It paralyzed my face for life.  I’s horrifying and it weakend my entire core.  It’s created a unbalance in my neck and that is felt down to my toes.

I want to sue this fuckers!


Im finally dealing with this, MIR net week,  I want to take these bastards down!


I know one executive for Allergan, she lives in a a huge home, she’s a horrible person


I have the courage to take on the pigs!


these greedy punks are going down!



Botox Kills Sex Drive – Your comments??

After 25 years, a “beauty therapist” in the U.K. notices a strong correlation between Botox users and a diminished sex drive and even a lack of love or emotional capacity.


She assumes it is the result of not being able to smile because she doesn’t understand the damage to the nervous system after botulinum  toxin poisoning or the long-term damage to the muscles or the interruption of acetylcholine, which remains compromised to various degrees indefinitely in some cases. As you all realize, not even physicians understand the long-term damage of botulism and partial recovery!

So I would like to hear candid comments from the Botox Support Community as to your experiences, both male and female.