Where and Who do we turn to for help ??

My last injection of botox was May 2015. In August 2015 after numerous calls to my neurologist with no calls back, I tried to commit suicide. I was already “over prescribed” on prescription medications for over ten years due to an injury by a workers comp evaluator. I was taking over thirteen prescriptions for pain and muscle relaxers a day all prescribed by this doctor. This went on for ten years. For two years I received botox injections all over my head and neck area with no problems. But in May 2015, the problem began. My doctor had hit a blood vein in my head and injected it with botox. Two weeks later after a prescription of steroids caused eye site problems, my doctor had me come in for “lanacane injections”. These were suppose to calm the nerves in my head. The entire time she was injecting me, the pain became more and more intense. After this failed, at my six week check-up, her assistant hits a nerve on the opposite of my head with more lanacane. The pain just intensified from there. I would try to get back in to see my doctor, but her office said I was on enough pain medications and there was nothing the doctor could do. I literally became a vegetable from that point. I was moving from my bed in the morning to the couch and back to bed at nights. I don’t remember a lot from that period. My boyfriend at the time who had lived with me for over five years apparently took care of me. In August 2015 after receiving my monthly Oxycontin, I was ready to die. I remember my boyfriend being outside so I rushed and gathered all my prescriptions and just started swallowing them as fast as I could. To be continued……….


New research says botox effective for chronic migraine

Thought I’d post this to you all as it just came into my inbox…not good news…  it validates the use of botox for chronic migraines and says nothing about side effects. My guess is botox treatment for headaches will simply increase because of it. I haven’t read the guidelines associated with the news, but thought some of you might want to. Here is the link:


salve a tutti

Sono Passati 3 anni dall’iniezione di bottox Sono 6 mesi Che i Disturbi Sono insopportabili Qualcuno mi quo osare un consiglio Un aiuto Qualcuno sa dirmi se i Disturbi alle gambe alla Respirazione al occhio scompariranno Completamente?

Botox Flare-up after detox

Hello.  I received my last Botox injections close to six years ago.  I thought I had healed and was living a normal life for the past four years or so.  I recently decided to do a heavy metal detox and now all of my symptoms are back: anxiety, depression, brain fog, shakiness, abdominal pain, weakness, insomnia, fears, headaches, pain everywhere, etc.  I feel as though I am back to the beginning of my nightmare.  Have any of you heard of someone getting a severe reaction like this to a detox?  It’s been close to 2 1/2 months since I started feeling this way; I stopped the detox immediately.  Now I’m worried that I’ve stirred something up and since I’ve stopped the detox it won’t get out.  I didn’t think I would ever feel this way again since I knew I would never get Botox again.  Now I’m terrified.  Any feedback on this is appreciated.  Thank you.

Help!!! I can’t take this anymore!!!

I feel like I’m living in a nightmare that after 3 years just keeps getting worse. I can’t take it anymore. My face has lost all of it’s fat and keeps getting worse. I’m so scared! I don’t know what to do. Is there any hope of it coming back?
Can anyone help? I don’t recognize myself.

Cold that wont go away at 6 week today

Its been 1 year since i had the injections today. Im living life relatively normally with a few lingering symptoms, are try to keep myself to myself. But this cold i caught on April 27th wont shift. Its been six weeks today since it started, and I know its not allergies BC i took tablets and they didnt improve it. I have been to the Dr and she was very dismissive and scored me for going in with “a little cold” (that was at the 3/4 week mark). At this point the “little cold” had put me in bed for 3 days flat and I was unable to eat – I had a high tempratire.. so iim guessing it was flu.

Anywyas… now its getting to be a joke as its rolling round to 2 monthswith a snotty nose and I dont know what it is – even Sinusitis apparently clears up by itself in about 3 weeks… so could it be that? Then i thought about the Dysport and wondered if anybody on here had a suggestion or any experience with similar. I am blowing my nose every half hour, its snotty and clear but sometimes has dark streaks of black in it. Sorry if that graphic but i was told if it was green it would be infected… so what could it be?



3 year update

3 year update


Hi it has been 3 years since my injections. As I’ve mentioned before some of my major issues were the vestibular migraines meaning that I got dizzy and had head painI all along the right side of my face and head. I had eustation tube issues, loud humming in the right side of my head , anxiety swollen lymph nodes, neck pain, eye pain, pressure in my head . About a year ago I also had sudden hearing loss in my right ear .

I was put on 2400 mgs of nueronton and 100mgs of  Nortriptylin . Today most  of my symptoms are gone. I no longer have severe head pain, dizziness or blurred vision. After getting a steroid injection directly through the eardrum my hearing came back.  I no longer have anxiety or swollen lymph nodes. I do however still have tinnitus but it’s a lot lower. I still have to take the nortriptylin or my dizziness and migraine symptoms will come back. I also still have eustation issues but I hardly notice it anymore.

I believe my body reacted to the Botox by attacking itself. I notice that Botox is putting out there more and more side effects, I am glad to see that. I am like 90% back to my normal self . Thank god for the medication. I would say I felt better at the 1.5 mark maybe 2 year mark. Please hang in there it does get better with time. You may have some symptoms that don’t go away but the majority for me have cleared up.

3 year update


3 year out update

it has been about 3 years since I had these injections. As mentioned before some of my major issues were humming in right ear,  dizziness, permanent migraine with pain all along the right side of my head including jaw teeth face. I also had swollen lymph nodes in my neck , jaw and back of head. My eyes were blurry and my vision seemed off. There were more issues but these were the major ones. I have been on medication since this ordeal to combat the severe vestibular migraines I had been suffering from. I was put on 2400 mgs  of nueronton and 100 mgs of nortriptyline. I have been able to successfully wean off nueronton w no side effects. I have definitely gotten better since this ordeal. I no longer am dizzy, I do not have anymore migraine pain and my vision seems back to normal. I do however still have tinnitus but it seems a lot more quiet now. I hardly notice it now. I also still have eustation issues in both my ears. About a year ago I had sudden hearing loss that did come back with a steroid injection through the ear drum. Thankfully I got all my hearing back. I believe I had an attack of the immune system after these injections. I read about the list of side effects and thankfully they have come out with a lot more than 2.5 years ago. Glad that is being exposed. I still have to take the 100 mgs of nortriptylin or else my migraine symptoms come back. As I write this I now believe the botox or possibly the the juvederm were the cause. Please know that a lot of symptoms will disappear but you may be left w some. I am better but not the same. I can now function  and do everything and more pre injection. I would say it took a good 2 years to feel good again w the help of some major medications. All of that anxiety is also gone. . Peace and love to all of you. I hope you feel better soon.

Blood vessels dysregulation – everyone should read..

hello everyone, I know we all trying to find out why we still suffer so long after poisoning , I do too test myself even thought I really am tired of it and especially when all my tests come back normal, negative, nothing they can treat.. so far..

I have found out that botulinum toxin affects other nerves endings unfortunately these nerves DONT recover like muscles.. Which confirmed toxin specialist – an asshole who previously denied my botulism and ran off from hospital.

Anyway, as we know toxin binding to neurons is irreversible and recovery comes by new nerves endings sprouting. This happen usualy if muscles are affected – why there is no any information about recovery of autonomic nervous system or glands or blood vessels walls or anything else damaged by this shit in a leaflets or information provided by doctors? The answer is simple – because it does not recover the same way and in the same time line.

Another very important thing is that every damaged nerve sprouting  not just one new ending but more and thus makes our body start to get crazy usually in second year. We start having signals not just to one nerve but pathologicaly sprouted nerves which are not the same FOREVER. Peope think that the worse is behind but for many unfortunately its the begining of long different suffering depending on the damage. Spasms, cramps, weakness then cramps again, stiffness, pain, cold reaction, stress  reaction, hair loss, skin problems, stomach, kidneys, migraine, digestion, etc etc.

ONLY people who has been more lucky and toxin traveled via axons and ended up in muscles recover quicker usualy up to a year. It really does not have to be any other disease or Lyme to explain longer suffering from this evil drug. We have so many nerves that regulate our body apart muscles that it is really simple to read how the body function to understand that damage is done and nothing will be the same. Autonomic nervous system needs even 5 years to recover ( if ever). I really dont know why some people are surprised to be still sick longer than a year or 2.

How can we be healthy up to 2 years if toxin can be still active circulating in our blood? It is still in my blood for example. I have been tested AGAIN by spectometry mass and this shit still circulate. Im not talking here about antibodies guys, it has been found light chain active toxin in my blood which means this is still able to make me feel worse and I am 2 years out in july. So.. I would suggest to try to do the right test if its possible of course.

Here below I will post a link to very good info about blood vessels dysregulation which is also botulinum toxin’s job to do in our body..


Hope it helps..


Hi All,

I wanted to write an update to everyone and try to help some of you. I have learned a lot on this journey I’d like to share because I feel that if you are suffering years out you are not having a drug reaction. Please read what I am sharing and do your own research as I am not a doctor, but have spent the last year with several lyme/mold/biotoxin doctors.

I have found that most people with our symptoms are suffering from:

  1. some type of infection (could be lyme, even if you test neg for lyme it could be any other vector borne illness like mycoplasma) These were brought to life after botox. Similar to a vaccine injury.
  2. condition like CIRS( chronic inflammatory response from these infections toxins, and having specific genes I will talk about)
  3. or other neurotoxin overload after botox (mold toxicity)

In my case for example (and many other who are finding out they had Lyme) I had some pre-existing conditions that triggered my health to decline.

  1. I had Lyme bacteria (still waiting on confections) I tested negative for confections by Igenex but they are not a reliable test for confections. Most LLMDS dx these by symptoms.
  2. I had 3 types of toxic black mold found in my urine. Very high levels.
  3. I had parasites
  4. I have HLA genes

What this means for me is that the botox weakened my immune system enough for the infections to take over, my bad genes to be expressed, and my health to decline. Having HLA genes your immune system does not mount an antigen to mycotoxins. This means compared to normal people, your body will not excrete them. It took me living in a very moldy house to find out most of my fibro symptoms were from this. An easy test to see if you might have CIRS from biotoxin illness is googling VCS test.

I have made A LOT of progress treating lyme, and taking Cholestrymine. Most lymies cannot handle CSM, as was my case. I had to go on a no amylose diet, load up on fish oil, and feel shitty for the first 3 weeks on it. Once I got past the feeling crappy part I feel amazing. The CSM binds the neurotoxins from lyme and mold and helps those of us with HLA genes to excrete them. You do not want to take CSM until you have cleared the Lyme infection.

I am about 80% better. I am traveling to a clinic in Florida to continue detoxing the lyme and mold toxins with IV therapy. and also getting some IV treatments for lyme like silver and h202. I was on 3 different heavy antibiotics for about 2 months, along with biofilm busters and herbs. Then CSM everyday 4 times a day since then. My last remaining symptoms seem to be chemical sensitivities and food allergies as I am still working on healing my gut after antibiotics.

Hope this helps some of you on your path to restoring your health. For those of you new, if your symptoms are not getting better and much time has passed, please look into other causes like the ones I mentioned, before just thinking this is a drug reaction.




Other Conditions: Botox the Trigger

Hello, and it is ages since I have posted. I am over 2 and a half years along. I had not started recovering up to 4 or 5 weeks ago. Not a lot. Now, pennies are dropping….

Maybe some of us were totally healthy and just have an unfortunate genetic pattern, that makes us react to Botox, and get so so ill. (check out methylation pathways).

Some of us felt healthy, but unknowingly, we already had a bug like Lyme disease, and it was simply brought to life by the Botox. It may never have surfaced, otherwise. So we get Lyme PLUS Botox illness symptoms.

Some of us unwittingly have always had Acute Intermittent Porphyria (check it out, Most doctors are ignorant of it and will miss it). You can be fine your whole life but your heme system just can’t take a neurotoxin. There is a cure.

Ohers of us, including me (I believe) have simply had a King-size Drug Interaction. A year before the final injection, I started to get physical signs (didn’t know at the time….eg swallowing issues, UTIs heartburn), and readily took the doctor’s advice that this was just “getting old or hormones”. I took a significant dose of the “extremely safe for the long term” NEXIUM (40mg daily), and was already on a moderate dose of Zoloft, plus occasional benzo phases. None of these were stated on the Botox form as interacting with Botox.

Well,  Nexium at that dose shuts down 95% of your stomach acid, I now know. Causes all kinds of enzyme inhibition (critical enzymes!) and causes deficiencies of vital minerals. It causes FOOD AND DRUG  INTOLERANCES.

It is also a significant ACETYLCHOLINESTERASE INHIBITOR. People should never be given 40mg to take, not unless it is for very short periods and or for severe problem cases like Barrett’s Oesophagus. Stupid doctor. Naive me.

So I went off it a month ago and guess what? My symptoms are suddenly starting to recede, my skin and hair and hormones all are starting to recover, and I am SUDDENLY, now eating all kinds of food and able to take pretty much anything. Can’t wait to taper down the Zoloft to the lowest tolerable dose as well. I am GETTING BETTER!!!!!!!! YAY!!!!!!!!!!!!!!!!!

hope this helps someone



my story

I will soon return with my story. I have been sick for almost two years now. I have done a lot of research and tests. The symptoms of LYME disease are similar – and I will have my blood analysed with dark field microscopy soon.  I will return as soon as I know more about it. Lyme disease patients can get help to detox – maybe we can too.

Important info

Hello everyone, I don’t know if you ever found this documentation but I will post it in here incase someone did not.
In 2009 Dysport manufacture Ipsen tried to get aproval for cosmetic use under brand name RELOXIN. They were not successfull for 300 U vials and with information they put in here so.. They have changed vials to 125 su, changed the brand name and hidden lots of informations.. And got aproval in 2010 for AZZALURE.
Take a look of what they hidden from public..
This is a link :





Hello all,

I am 22 months out,my life is hell.
I have been diagnosed with polineuropathy, fibromyalgia, cardiovascular system damage, muscles atrophy, skin atrophy, fat loss, alopecia,thermoragulation problem, anxiety is much worse than ever. I am on daily IV fluids because i cant absorb fluids when I drink.Autonomic nervous system damage. Have referal for EEG because of central sleep apnea suspicion.Plus awful face and neck disfigurment.
It is hard to stay positive and I feel like give up. I want this nightmare end. Its too much for me.
Hope you all doing better..

Dental Work…Holy Pain!!!

Hey Everyone!

It’s been a REALLY long time since I’ve posted on here…mostly because I talk to quite a few of you off the forum.  Anyway, the last time I was on here, there were about 30 members…now there are hundreds, and that breaks my heart!  I am praying for all of you on a daily basis as I know how hard this journey is!  I can tell you to hang in there, it does get better, but it is a LONG journey and full of ups and downs.  For the most part, I’ve been doing MUCH better – I’m at 4 1/2 years and back to work, running, family and friends…basically back to normal life, with flare ups here and there caused by stress (Emotional or physical).  I gotta say the flare ups are still brutal though, and I will never get used to them.  I am currently in a flare up because of dental work, and was hoping to get some encouragement/advice – PLEASE be gentle as my anxiety is high because of this.

Anyway, so I had a few questions that I’m hoping you all could help me with!  I have been going for dental cleanings regularly through this, and my gums would always act up a bit for a few days after, but nothing unbearable.  Well, about 2 months ago, I had a back molar chip in such a way that I had to have the filling in it replaced and since it was a big filling, I had to get a crown.  I had the dentist put some temporary bonding on there till I could muster up the courage to get the crown done.  I was SO scared of that numbing shot!!!  Fast forward a month, and I felt ready.  I was feeling good and brave, so off I went to the dentist to have the tooth prepped and have a temporary crown put on.  The numbing shot was absolutely fine (no issue at all), but what I didn’t prepare myself for was once the shot wore off (stupid on my part – I know how sensitive we are, so I should have been prepared to be at the very least uncomfortable for a while).

Once the numbing wore off, the pain took me aback – it was brutal.  I have gone through this entire botox process med free (aside from an ativan here and there if things get really rough, but even that was only 3-4 times a year), but this pain brought me to my knees, and I caved and took some ibuprofen, which helped to calm things down, but as soon as it wears off, there’s the pain again (in the crowned tooth and the tooth in front of it…I also have had gum sensitivity and pain in other teeth, which I know for sure is botox/nerve related sensitivities since those teeth weren’t touched, so I know that will go).  So, I took the ibuprofen for the first few days, then stopped it and decided to try to wait it out till the permanent crown came in a couple weeks.  During those couple of weeks, the pain waxed and weaned, but was always present to some degree.

Today, I went back to get the permanent crown put on.  I refused the numbing shot, because I wanted to make sure that they got my bite correct.  Wow, talk about pain!!!  When they finally got the temp off (OUCH!), they put the permanent on.  I was doing okay so far, though in pain.  Once they put the cement on the permanent and then put it on my tooth, I wanted to pass out.  It was literally like having acid poured into an overly sensitive tooth.  They then put a desensitizer on it, but that didn’t help any.  I’ve had the dentist check twice in the past three weeks for infection or problems, and there are none.  He says everything looks fine and that even when he prepped the crown, no pulp was exposed, so he doesn’t think pulpitis is involved.  I told him I would tough it out as long as I can in hopes that things will calm down, but if not what do I do.  He said the only thing to do is a root canal or extraction.  I told him I won’t do a root canal (I’ve researched extensively over the past 3 weeks, and I know that extraction would be my chosen route, if necessary), so he said that’s fine…if it comes down to it, we’ll remove the tooth.  The pain right now is unbearable, and I need some insight from people that know what we botox people go through.

Okay, so here are my questions (sorry for the long winded lead up).  Again, please be gentle as my anxiety is quite high because of all of this.

– Has anyone on here had EXTREME pain after a dental procedure (like I have to put all my food in a processor right now, because I can’t chew anything…constant, intense, pain that makes it so you can’t sleep, shooting nerve pain in the tooth from anything touching it, even my tongue, etc), and if so, did it calm down and how long did it take?

-Has anyone on here had a tooth extraction through this?  If so, could you describe your experience and the healing process.  I’m not scared of the shot, since I did fine with it before, but I am scared of the healing process – basically I’m having terrible anxiety that I’m not going to be able to get rid of this pain!!!

-Lastly, if I can stand it, how long do you think I should wait to see if it does calm down before having the tooth extracted.  I realize I just had it worked on today, and without numbing, so of course it’s going to be painful even with the ibuprofen I’ve taken, but I seriously feel like I want to go in there and rip it out myself right now because the pain is so bad.

If anyone could give me some encouragement/helpful insight, I would be forever grateful!  Thank you so much!

Giving away a red lamp for pain

Hello all,

I have a brand new red lamp with stand and adjustable neck and settings that has not helped me. I understand it works well for some for muscle pain but most of my pain is from nerve damage and it actually seems to make it worse. If anyone would like this lamp, I am moving and have to donate it but thought I’d check with everyone here first. I’d just ask that you pay for shipping. Please private message me with your address if interested and I’ll look for the cheapest shipping method.

Thinking of you all,

Some Hope

Hi All,
I wanted to post an update that made me feel more hopeful and maybe can give hope to other people struggling through this nightmare, too. One of the most disturbing side effects I suffered was ocular hypertension – basically damage to the optic nerve/glaucoma. I went back to my eye doc last week and took a field vision test (I got my injections on 1/7/15, so this is a little more than a year out). It was almost perfect (meaning no permanent eye damage) and the pressure is starting to come down in my eyes. He feels like all I need to do is keep seeing the optometrist and having them do the low-tech eye pressure test and I should be fine. This despite the fact I have had a hard time kicking coffee and haven’t had a consistent exercise program, the two things my doc suggested would help. (I did the best I could – partly it’s my damn stressful job which eats up a lot of hours and energy. Hence coffee. Hence inconsistent exercise! But just to say, my body has healed on its own despite my lousy habits.) I still have some facial damage with my chin (dents – argh!!!) but even that has gotten slightly better. There are some weeks where my face still looks awful but it seems to get better after it gets worse. My horrible joint pain, which was really getting me down last year, has gotten better, and though I am still having stomach issues, the feeling of having razor blades rolling around in my stomach is gone, at least. : ) And my hair is starting to fall out at a much slower rate (gotta have gratitude for the little things, right?). I know that sometimes people get better and then get much worse – it’s such a crapshoot! – but it really feels like maybe I have made some true progress. I wanted to let people know because reading “recovered” posts here helped me get through some of my darkest hours with Botox poisoning. I think about everyone here a lot and send out love & light for healing.