General Anaesthetic

I know this question has been asked previously however this was quite awhile ago – has anyone gone under general anaesthetic since their injections?  If so how did they feel afterwards?  Did the general anaesthetic make any of their symptoms worse, bring back any symptoms that had resolved or cause any new symptoms to occur?

Low Neutrophils & White Cell Count

I had Botox injections in my forehead over a five year period. My last injection was seven months ago. Since then I have been taking heaps of supplements to speed up my recovery [including B12, glutathione, digestive enzymes, astragalus and chlorella].

I had a whole lot of blood tests done last week and a few things have improved [my inflammation factor is nearly back to normal] but, for the last 4 years, I have had low neutrophils and white cells. They are always the same … neutrophils – 1.4 [should be between 2 & 7] and white cell count 3.5 [should be between 4 & 11] This shows my immune system has been badly affected, and I’m wondering if it will ever recover.

Has anyone else had this problem? And has anyone else had neutrophils and WCC that have eventually increased to a reasonable level?

Many thanks,

Botojo

Affects when Botox wearing off?

I had Botox injected into my jaw muscles in June 14. This was to help with the chronic neck and shoulder pain which I believe is caused by the TMD. It actually helped, eventually. I don’t remember suffering any immediate bad effects of the Botox. However, from August there has been a gradual decline in my mental health. I have had various issues to deal with-relationships breakdown, losing my job and having to find another, car dying and ongoing situation dealing with my dad who has dementia (and having to deal with all that alone as I do not have a partner), so I would expect those things to take their toll. However, I am currently off work because of anxiety. I thought I was feeling better but went out yesterday to a hospital appointment and it just turned into a bit of an ordeal. I felt anxious, cried in the waiting room, didn’t feel safe driving. I have a history of depression/alcohol and drug abuse but no longer drink/take drugs and the depression wasn’t really an issue anymore. I actually thought I was at last starting to feel better, after having issues my with my emotional/mental health for most of my life. This episode is not like anything I’ve experienced before which is why I’m on this site. Could this somehow be related to Botox wearing off?? I did read a snippet somewhere (by a doctor) that when B wears off it can cause anxiety).

Anyone else having worsening of their symptoms at this time of the year?!

Hi Guys,I was doing a bit better with going organic and the AC(activated charcoal ) treatment but just like last year this time around I’m back to square one again with violent muscle spasms/twichings ,breathing gets worse and also chest tightness and palpitations. Granted I did go for a pt evaluation and the therapist I would say was a bit to strong on my neck but still just trying to figure out if maybe its not just me and weather change has something to do with the relapse/worsening as well. Quite honestly the anxiety has gotten worse also since I am terrified of getting thru another breathless relapse .

Thanks in advance and sending healing thoughts to everyone.

Recommended reading

Hi all
Since I’ve been unwell over the last year or so I’ve read a number of different books on health and most recently I’ve started reading Why is my brain not working? by Datis Kharrazian. I think it has some very good suggestions to help us with many of the symptoms that we have all experienced. It talks a lot of about blood sugar imbalances, stress, adrenals, inflammation and how these things effect the brain. Also poor circulation and blood flow to the brain. My hands and feel are always cold which are symptoms of poor circulation which probably also effecting my brain. For poor brain oxygenation he recommends a number of botanical compounds including huperzine which I’ve read of other people taking on this forum. He talks a lot about gluten sensitivities and nervous system disorders and the gut brain axis and diet and herbs for healing leaky gut. He warns against heavy metal chelation if you have a leaky blood brain barrier. I know some people have considered having mercury fillings removed, this is dangerous if your blood brain barrier is compromised and can lead to further inflammation and brain degeneration. He recommends a number of herbs to dampen neuro inflammation including resveratrol, curcumin and a number of others. He takes these himself as a precautionary measure. I’m only half way through but this is by far the best book I’ve read so far. Also there are a number of practitioners that he recommends that may be able to help. I’m going to re-read it and apply many of the suggestions.

Thank You!!

First, let me say how very, very sorry I am to all of you here who are suffering from this terrible poison. It is a profound reminder to me of the many who suffer in the shadows. I have already begun praying for you all and that you may get your lives back as they were, and as you deserve. I can tell you that your stories brought me to tears, over and over.

All I can say is thank God for this site and that I was lucky enuf to find it before I went and played Russian roulette with my life. I have been diagnosed with severe health anxiety, if you don’t know what it is, look it up, it is a nightmare. It caused a major depressive episode and triggered panic disorder. It has taken me almost two years to recover, and to think I was about to destroy it, I can tell you, has shaken me to the core.

I couldn’t handle any medications for depression, especially the SSRIs, just a nightmare. The anxiety and insomnia were off the charts. The only thing that helped me was a good therapist and cognitive behavior therapy and it has been a very, very tough road to regain my emotional health.  Now that I’m feeling better, I’ve realized how much I’ve aged Because of the terrible stress and wanted to look a little “better”, and I started researching the botox, dermal filler route. I am shaking as I write this because SO many of the symptoms of botox poisoning mimic my symptoms of severe health anxiety. I went to the allergen site and read the manifesto of evil side effects of botox and I can tell you, I KNOW I dodged a deadly bullet. From all the posts I’ve read here, I KNOW that this evil stuff would have triggered a catastrophic event for me. I have a very difficult time with bodily sensations to begin with and I know that every little flutter or sensation I felt would have sent me over the edge, it would not have mattered whether it was the botox causing it or not, but I do know that I’ve struggled so hard to recover and im not about to lose this tenacious emotional health over some wrinkles.

I know that it is small comfort to you all who are suffering so badly, but perhaps you can take some small measure of satisfaction knowing you absolutely prevented someone from doing something that they may very well have not been able to handle. By reading these posts, I know you all are much stronger than I am emotionally. I will be forever grateful to all of you and from now on, will warn anyone I know not to do anything within 100 miles of this evil stuff.  I will continue to check back here in hopes that you are all recovering and regain your lives that were certainly stolen from you. My prayer is that you will all have the perseverance to help yourselves and be well again.

Much love and peace to you all.

5 years , feeling ok, but not fully recovered, legal action

Hi All,

Iam back here for an update  to give hope for the new victims of botox world.I had very very hard time from 2009-2013.I had all the symptoms which are listed on this forum. From 2013 I started to feel better but in a very small steps.I feel ok now , I can live my life , but I still have light symptoms like fainting feeling, sleeping attacks, tiredness.Iam also very paranoid about my health.I think it will be with me the rest of my life , the shocking paranoid feeling  from the re-lapse.Thats how the recovery went , you got better and re-lapse and again better and re-lapsed even deeper.Socking!!!I live in the UK but  I received my injections in Hungary in a private clinic.Ive  run out of time by the hungarian law to sue the manufacture, so I had to go for the doctor.Its all began.I have many documents from all over the world , from America, Sweden…  I received botox clinical trial results , which is a secret in a way, I have emails from Matteo Caleo who is an Italian science and testing the botox on animals… I have many documents that shows the botox can travel from the injection points to the central nerve system and brain.

I found a neurologist who is practising with a german founded  mashine and he was able to find the botulinum toxin in 3 places in my brain, bladder and liver.He told me in this case the botox is build and attached into the nerve cells and endings that is a very long process to get rid of it.It will clears out but very long time.I had also a thermographic scan , which  shows the poison part of the spine.Also I talk do Dr. Anna Hristrova , who knows a lot about  botox.

My lawer wanted an out of court setlement which is only for the loss money and payments for cures, nothing major amount but it will be a legal action.The media is always hungry for new stories , in Europe the botox subject is still very quiet not well known as in America.

There are 3 known botox victims in Hungary at the moment.We all met through the forum and we are regurlary keeping in touch.We all 3 had a more serious blood test and we had the common results of  a low  CD- 57 white blood cells which is responsible for the immune system. I started to study the reason of  CD 57  cells, only 2 cause of lower CD 57 cells : any type of poisoning and lyme. Both effecting the central nerve system.We all were healthy before botox , so the low CD-57 caused by the botox. I would recommend to all of you to do the blood test for CD 57….  thats why the recovery so slow because the body is struggeling to recover the immune system , white blood cells also the botox is stucked in a molekular level in the brain and central nerve system.

I will update you how the legal action is going and my recovery !

Take Care , look after your self

Botox used to relax my esophagus pre surgery.

I started having an issue with food and liquid going past my esophagus into my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Botox was used to relax my esophagus pre-surgery for Achelasia

I started having an issue with food and liquid going past my esophagus and getting to my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Lawsuit – do I have a shot? And looking for lawyer

Hi everyone. I am now 5ish months out from my botox injections and I feel like I’ve reached a plateau in terms of recovery. My most troubling issues at this time are whole body muscle weakness and chronic fatique (terribly exacerbated just yesterday by 2 doses of flexeril – a muscle relaxant – given to me for severe muscular headaches and jaw tension/pain which is preventing me from sleeping), tinnitus and vision issues. I  feel as though none of this is getting better (and gets so much worse when I make even little shifts, such as flying, taking meds stronger than tylenol, spending too long on the computer etc.) and I have been thinking about getting a lawyer as I am still not able to work and we have spent quite a bit of money on my care. I am in Canada, but I am a US citizen and so I am thinking about doing this in the US, if possible. I looked into representation here in Canada – suing the injecting doctor – but I was warned that I have to absolutely prove she was negligent and if I did win, compensation is so low in this country it may not even cover court costs. If I don’t win, I am on the hook for hers.

So, back to suing through the US… I did a bunch of searching and contacted a couple law firms but they are no longer taking botox cases. And then I began to wonder if I even had a shot, considering that I am not as bad as some others on this site – I am walking and can now do some of my own housework. And I have little proof, other than 2 neuros I saw did put in writing that I am ‘sensitive’ to botox and should never have it again.

I’d welcome any input as to whether it is worth the stress to continue down this legal road. I am so angry that docs and big pharma think nothing of ruining people’s lives that I want to sue. But I’m so tired I don’t know if I should put my energy here. Is anyone out there going through this process? And if anyone does have a lawyer taking cases in the US, please let me know. Thank you and quick healing to all!

This is so much more serious than I ever could have thought

I still have been having many issues. Today I was diagnosed as prediabetic from a test that my hormone dr. gave me last week. So very scary. I have never been sick a day in my life before this episode with Botox.

I am beyond scared. The inflammation in my body must be so very bad. I know that I still have a crazy thirst everyday since I got these shots. I am seeing so many doctors and nothing at all seems to help. What I did to myself is so upsetting to me.

I have to push myself to exercise even though I am so very tired every single day. My immune system is a mess. I feel like I am slowing dying I really do.

Did anyone else get diagnosed with this??? If anyone did please let me know.

Lumps on fingers and toes

Hi everyone!

I have been getting lumps on my fingers and toes. They look like blisters, but they are hard and under the skin rather than on top. They start out as a small circle, and grow much bigger. They last for weeks, and once they eventually shrink, others will take their place on different parts of the finger or toe.

I went to my doc who just said it must be an autoimmune symptom. They are not nodules on the joint like with arthritis although some have grown near the joint. (as usual all inflammation type tests were normal, no surprise there.)

has anyone had these? I can post a picture later on if necessary.

topical capsaicin for muscle/nerve issues & pain

hey everyone!

i know a lot of people have neurological issues here, including pain, numbness, and a lot of various neuropathies and problems.. also muscle pains, joint pains, and related issues.

obviously with our sensitivity this would not work for everyone or at all times, but has anyone tried topical capsaicin for these issues.

im really not sure why i thought of it but for some reason smeared a bunch of cayenne pepper oil on the muscles of my forehead a few days ago. (i have no bad reaction to hot peppers, i eat them all the time this might not be true of everyone) ive done this twice now and it stung predictably a few hours both times and i had significantly less nerve pain in my entire head when it wore off.

i did a lot of reading about capsaicin and its got a long history of use for neurological issues and a large amount of actual research has been done on this effect. its considered pretty safe for normal use and can be used several times a day for several weeks.

the theory of how it works is that by its ‘stinging’ effect it depletes the nerves of something called substance P, a neurotransmitter which transmits pain signals. the nerves can only make so much substance P at one time, and if it ‘dumps’ it all becuase of the ‘sting’ effect, it cannot make more for a certain amount of time, so the body will perceive less random nerve pain during this time.

i realized doing this that my facial nerves are constantly in pain (something i knew already anyway) and applying the topical capsaicin has actually really helped this. also i feel that the nerves there are not firing normally, some are overactive, some underactive, but the action of the capsaicin sort of makes them all fire at once, and for a sustained period, which seems to sort of normalize their action.

i realize capsaicin isnt for everyone but i have had very good results with 2 tries so far and plan to continue. i have not used the kind from the store, i have a lot of good fresh chiles in my garden so have made my own chili oil (soaking chiles or cayenne in olive or coconut oil)

obviously you dont want to get this in your eyes!!! but honestly, ive gotten it in my eyes by mistake and really its not that big a deal if you are used to hot peppers. (which lots of people arent) capsiacin can blister if too much is used but in small doses doesnt actually damage the skin, or even mucous membranes… it just stimulates the nerves. ive had no problem putting enough on my skin to cause a good sting. additionally, chilies are of course members of the nightshade family and i know some have sensitivity to nighshades in general.

anyone else tried this? i plan to continue i am loving the less pain in the nerves.. i didnt realize how much constant pain i was in until it actually went away for an hour or two. there are some studies which indicate capsaicin is effective against headaches, many people snort tiny amounts into their nose to combat migraines and other headaches!

supposedly it should be used for several weeks before full effect is even felt, so i have hopes to get even more improvement with careful use. i know a lot of people have nerve issues of all kinds here so thought i would see if anyone else has looked into topical capsaicin. :}}

hope everyones slowly getting better.

New Issues can anyone relate

I am at almost 2 years now and I am having some wierd issues. I now have water behind my ears I saw an ear, nose and throat specialist. I have fullness in the ears and my sinuses are always clogged since the injections. I am also very very dizzy like vertigo. The dr. saw some water behind the ear on my right side and sent me home with Antibiotics and also Zyrtec pills and flonase. He said all this should dry up the water. It has caused me to loose my balance and almost pass out numerous times. Does anyone else still have ear issues going on. So scary for me all this. I went to the hospital because they thought I was having a stroke because I almost passed out and lost my words. But thank God I didn’t now this pops up. It never ends.

Thinning skin in face and body

Hi everyone! I hope everyone is feeling improvement in their symptoms.
I know that this subject has been brought up before, but I don’t know if anyone has more information about thinning skin. I have really noticed drastic changes in my skin the last couple of months and it continues to get worse. I thought by almost 16 months things might be turning around for the better, not getting worse. The hardest hit area is my face and under my eyes. The skin is so thin under my eyes and it is getting more wrinkled by the day. The bags under my eyes are so large, I look ill. My muscles are still sunken, so I don’t know for sure if it was related. Does anyone know what exactly causes this and has anyone had it and improved? Is there anything that can help? All of these facial changes have taken any self esteem away that I had….
Thank you everyone for your support!
Kris

Follow-up/second opinion apptmt

Hi All,

Just got home from seeing follow-up/second opinion dr. who saw me 17 months ago right after the nightmare Botox shot.  I want to scream YIPPEE!!!!! right now, not because he miraculously cured my forehead dents, but because he never once deviated from the fact these dents were not there before the shot and that there’s an OBVIOUS correlation.  He’s not sure exactly what caused them, I.e., a bad lot of Botox, my chemistry, the injector or all if the above.  So, he’s having me get my medical records sent over to him from the injecting dr to find out the Botox lot number, the amount, the history prior, etc., and is then personally going to follow up with ALLERGAN.  From there, we are going to devise some sort of plan to see if/how to resolve the  problem.  He did think it looked like my muscles were atrophied and that other ones were over working.  He has several different options he “threw” out there to think about, including, as he kind of chuckled, saying maybe more Botoxm BUT that was not his first recommendation.   He also knows another plastic surgeon, who’s developed a machine that isolates nerves that control the muscles and can weaken certain muscles like Botox does, but it’s NOT BOTOX, and it lasts two years.   Its being developed as a BOTOX alternative.  Anyway, he’s going to review my medical chart and then call ALLERGAN to see if they’ve had any other problems with that lot and ask them whether they’ve seen my type of reaction before.  He took pictures and video of me today, and wants me to make him a copy of a picture I brought him showing my “perfect” forehead months before the fateful Botox shot March 8.  He also thought it didn’t sound like an allergic reaction since I’d had Botox injections for several years prior with no incident.  That made him think it might have been the lot too.  Anyway, I’m so happy to finally have a doctor who acts like doctors should.  He’s concerned and wants to get to the bottom of it and find a solution, hopefully.    He saw how swollen my face and eyes were right after the original shot and took pics then as well.   By the way, he said if I ever did want Botox again, he would inject it someplace else, like my arm to do an allergy test.  But I will never have Botox again.   I like that he wasn’t pushing more Botox or any fillers.    He was sincerely trying to find out why the muscles reacted this way so we could find a solution.    I’ll keep you posted.  BTW, he said not to do TENS or micro stimulators since we don’t know whether that’d compound it.

23 months and still sick……………………………………

I am at 23 months now and I am still sick. And still different new symptoms are coming up. It is so scarey to me. This time I feel into a depression. I really feel like I lost my life. And I am a very positive upbeat person but this is starting to take a toll on me.

A few days ago I almost passed out at a tire dealership. I was waiting for my car to get fixed and my head started spinning and I had a headache bigger than NY state and I almost passed out. I went into another world and I felt like I could not snap out of it. My memory was blacked out. I didn’t know where I was. Luckly there was a nurse there waiting and she actually had a blood pressure unit in her car and took my blood pressure which was so low even after I ate in the morning. She made me drink fluids and took me to eat again. I explained to her what was happening with the botox and she agreed it was very toxic.

Finally after about an hour I started to snap out of it. I went to ER and they basically laughed at me. I have been in there so many time. The tech actually said what are you doing here again. I felt awful. They checked me out and said my potassium was low and sent me home my pressure went up. This whole thing put me into a horrific anxiety attack. And the dr. were saying it was in my head basically. Horrible. I felt violated again.

I just am at my wits end I am not getting better. I have vertigo and the room spins everyday now low low blood pressure. Also my eyes, throat and whole body is dehydrated everyday. I drink and drink and drink water. When will this ever end.

My question is did this ever happen to anyone else with the blood pressure and passing out.

Does anyone here still get dry throat, eyes and whole body?

What can be done any suggestions will greatly help.

I am doing everything and nothing is helping I am actually getting worse. I am terrified to go out of house what if that happened while driving.

Thanks

b12 methylation pathway – relationship to folate, glutathione

I know some people here have tried glutathione, and others b12. I’ve read a little bit about the b12 methylation pathway. It seems that for the myelin sheath around nerves to be repaired, the body’s folate and b12 methylation pathway has to be functional. There is also a relationship between glutathione and b12 that this article explains-

phoenixrising.me/research-2/glutathione-depletionmethylation-blockades-in-chronic-fatigue-syndrome/a-simple-explanation-of-the-glutathionemethylation-depletion-theory-of-mecfs-by-rich-von-konynenburg

direct-ms.org/sites/default/files/B12 folic acid nervous system.pdf
^there is probably a better article or explanation than this one

Does anyone know more about this and how we could apply it to our recovery?
For those who tried glutathione, what kind did you take, and did it have any effect?

B12 vitamin and acetyl L carnitide

Hello everyone, on September 18th it will be 2 years since my injections (50 units). At the beginning of my nightmare I wondered when would it end? But now I’m seriously wondering: will there be an end? I’m definitely less ill this year than I was last year. I have way more energy, a clearer mind and my symptoms have decreased in intensity. However I’m still severely sick. I don’t have a single day without symptoms such as neck pain, facial pain, ocular pain, nausea, vertigo, nerves throbbing, pain in my left arm, my vision is completely blurry and even the air I breathe can hurt me due to what it seems to be hypersensitive sinus. I have also become allergic to everything including my own cats….I honestly don’t think I could fully recover one day if I’m in this state 2 years later but I’m desperate to find something which would at least aid to repair the damages botox has done…

So do you think if I take b12 vitamin and acetyl l carnitide there’s a chance this could help since these 2 things repair nerve damages? As I understand botox has damaged our nerves…Right now I’m taking b12 vitamins pills. I have started 3 days ago and I didn’t notice any side effect. Sadly by doing some search I’ve noticed that I haven’t bought the right type of b12 vitamin. The type I need is methycobalamine as this one is better absorbed by the body and can enter the brain from what I understand. But feel free to prove me wrong…

And thanks again to everyone for contributing to this wonderful site!