The breathing problems are back in the last few weeks and and I feel very weak and anxious .I have done allergy testing last year and only showed allergic to mold and dust mites but I don’t understand why allergies are acting up now.My doctor prescribed Flonase which helped a bit last night but now I find myself having a hard time breathing and my sinus area between my eyebrows have gotten very red and itchy and I wanted to see if its there anyone else experiencing sinus issues and allergic type of reactions more so this time of the year ?
sono quasi 4 anni che soffro per tutti i disturbi causati dal botox.
Ho bisogno di un consiglio.
qualcuno dopo la disgrazia del botulino ha provato a fare trattamenti al viso con vitamine o acido ialuronico con la tecnica del picotage?
sono spaventata per paura di reazioni allergiche.
qualcuno ha fatto esperienze del genere?
Hello everyone, hope you all doing better in your recovery..
Has anyone been tested positive for autoimmune diabetes ( type 1) after botox poisoning? Or any other autoimmune disease? My fighting spirit gave up today..
Da 4 anni soffro per tutti i disturbi causati da una iniezione di botox per uso estetico.
Ma qualcuno di voi ha vinto la causa legale contro il medico o la casa farmaceutica?
Se si con quali analisi o mezzi per dimostrare il danno subito?
Questa disgrazia del botox mi ha sconvolto la vita.
Vorrei cercare una strada per chiedere un risarcimento .
Qualcuno mi può dire come fare?
Hello everyone ,
I try to check in when I can , unfortunately I am chronically ill from the injections . This may be old news to you but still I wanted to put it out there in case anyone hasn’t read it yet . The CENTER FOR DISEASE CONTROL,CDC has released a book called I survived Botox.
One woman’s horrible poisoning that most of us have experienced. I have no idea how or why but the CDC is the only one that could release and publish this book without consequences . My best to everyone made of sunshine become brighter for you every day .
It seems like there’s not a ton of activity here anymore, though I do check back a lot. I found something that might possibly be helpful and wanted to share, though, in case there are still people checking this board.
First: I am more than 24 months out (I was injected in January of 2015) and, I think, mostly recovered, though I still have lingering issues. For a year or two I had excruciating joint and stomach pain. I also developed high levels of anxiety. At first it was unrelenting, now it seems like it just presents in certain situations. For instance, I have a really, really hard time flying. (I take the train when I go out west to see my family now.) I also developed some OCD symptoms which may have been latent but are really annoyingly full-blown now. Half the time after I cook dinner I worry I will get food poisoning, and I am especially afraid of fish because it often harbors botulism. Lots of pretty irrational fears, which I did not have pre-Botox. No way to prove it’s connected but hey, I’d bet money on it…
My depression has also worsened – I was really proud to have been off meds of any kind for 10+ years, and now seeing a psychiatrist and trying to figure out what to take for anxiety & depression. He thinks I’m crazy, I’m pretty sure. I tried to explain the Botox and why I am so afraid of medication but as you all know, that often doesn’t go over well. : ) I had a really discouraging visit with him on Monday – I filled my wellbutrin Rx, but asked for the non-time-release stuff because for whatever reason, those are the meds that always seem to kick my butt.
Doing research into Wellbutrin, I realized my intuitive fear of it was actually founded – it’s anticholinergic. Actually I read that any med with “anti” in the title (including antibiotics) are anticholinergic, too, which explains a lot.
I remember Anne had a great thread about cholinergic supplements a few years back, so people might want to refer back to that. I tried Huperzine A and had a really bad reaction to it, and still have a mostly full (probably expired) bottle. But, in hopes of feeling better I re-Googled cholingerics and discovered citricoline, which apparently has a very low toxicity level, raises dopamine levels, clears your head out, increases blood flow, and boosts choline, which might help a lot of us. I did a search for it on the site and didn’t find it, so thought I’d post about it. I ordered a bottle from Vitacost so I’ll try it and see if it helps, and if so let you know what happens. I know a lot of us have unpredictable reactions to supplements and meds, but wanted to put it out there in case anyone wanted to try it. Hope everyone is on the up and up – happy (almost) spring!
As many others have reported I am very sensitive to most medications and a lot of supplements . A friend of mine who suffers from depression and anxiety brought a machine around which he has used with great results. It is a cranial electro-stimulating device. You attach clips to your earlobes and it sends electric currents into your brain . I was a bit sceptical but after 20 minutes a day for a week my anxiety levels were right down and my sleep has improved by leaps and bounds. I have now purchased one of my own. I bought the Alpha Stim but there are others on the market too. The downside is that they are really pricey but if they work for you are well worth the money. This is a drug free way of managing anxiety and depression .
this started several years ago for me after I was going through a withdrawal from benzodiazepines. Why I thought a neurotoxin to the head was what I needed then I dont know. Anyway I felt I needed to go back on benzos back then since nothing else was working and I was losing my mind. The symptoms instantly got much better where I woulc tolerate them and live. Just recently I got off of the benzos and the depakote I started taking for my symptoms. I feel worse than ever before. I am wondering if what iv been experiencing was the original withdrawal all along that left me vulnerable to the botox. Or in other words I had a very vulnerable nervous system to start with and the botox was like adding fuel to the fire. So Now Im not sure what Im experiencing. I guess just trying to heal from an injured nervous system. I am not taking any meds now because I am hoping to slowly get better on my own. I dont seem to do ewll with meds and they dont seem to heal only mask. Does anyone have similar experience>?
I am wondering if anyone has recovered or knows of anyone who has recovered from the facial fat loss, muscle and tissue loss. This continues to keep happening to me and I will be 4 years out from the shots in April. A couple doctors said the volume comes back, but I would like to talk to someone who has been through this. I still have other health problems, but feel I could be in a positive mind set if it weren’t for my face. I don’t know if it’s from nerves or some kind of catabolism. Any input would be great!
I wish everyone peace and healing.
Recent radio show on Botox
Hello everyone , just want to see if anyone has had the same experience as I have with electricity . I have been sick for quite a while and in the beginning stages along with other horrific effects I begin to shock people and things I touched . At one point while going to bed while pulling up my comforter every single one of my fingers created a white spark of electricity . My daughter was sleeping with me she saw it and said wow mommy you’re a superhero .
It then progressed I was shocked every time I touch something and when people touch me they would get shocked heavily . Not too long after that when I would touch a light switch and a BlueStreak of electricity would shoot out . I just dealt with it and it seem to dissipate in time . But now it has returned and another odd thing has occurred. I was at a secondhand store they had a radio playing an older one with Christmas music as I walked by it caused a static sound . The young man working there noticed it looked at me strangely . I left the area the radio no longer had static in the song returned. I circled around once again walked up to the radio and all I could hear was static . Young boy said that’s strange let me walk by it he did and there was no change the song remain on . The whole time the manager had been watching this and she said let me change the station then you can walk by it . So she change the station once again I came up to the radio nothing but static . At this point I thought it was time to do some research . Turns out there happens to be a connection with botulism poisoning and electric people which they call sliders . There are books and articles exposing this phenomenon caused by botulism poisoning .
I forgot to mention my husband had bought me a massage pad. The cord blew up so he bought me another once again the cord blew up . This week for the first time we lost cable and Internet connection . The providers were unable to figure out why and so they need to send someone out to fix it was an electrical thing . Maybe it’s a coincidence it’s very strange . So if any of you are experienced anything similar look up botulism poisoning and electric people there is information on the Internet about it .
Happy holidays everyone and may your new year be blessed
I have not been back to visit in a long time but wanted to check in to say nearly 5 years since my nightmare started – I am confidant to say I am now 95% recovered. I truly believe that this toxin took years to leave my body. The only residual effects are 1) bouts of tinnitus from time to time – that seem to resolve themselves. 2) Anxiety – though only on rare occasion does this happen anymore – 1x or 2x a year where I need to take an ativan. What if any long term consequences there are from putting this toxin into my body remains to be seen. After checking back in I am heartened to see that there seems to be more ‘study’ of these effects – though saddened to see so many still having these awful experiences and needing to seek support from a site like this because no one in the health profession believes you.
I know I am very lucky and my heart goes out to those who have not had as significant a recovery. When you are viewing this section of the website – please take heart that not as many people may post of their recovery. When the nightmare is over you simply want to move on with your life and don’t necessarily want to look back. I can say anytime the topic of botox or fillers etc.. arise in conversation in my circle of peers/friends I warn them openly and honestly about my journey and seriously caution them about the serious and harmful “unknowns” of this toxin. I also direct them to this website so they can read for themselves the nightmares that people experience and no health professionals to take you seriously or help your recovery.
Stay strong, keep the faith and believe that with time alongside whatever methods you find brings relief – recovery is possible and time is your body’s best weapon to detox and mend. Yes, time heals!! Cliche but true in my experience.
God bless Annette for her commitment to this site and to fellow sufferers for sharing their journey. You are not alone!!
I am now 2,5 years out and I still struggle with symptoms daily, my weakness is on and off every few days,. My cardiovascular symptoms are worse and on top of all I suffer daily with pain in my whole body, joints ( even fingers) muscles, head, neck, organs ( stomach , kidneys, heart , liver..) the pain is the worst in the morning but today stays all day making me cry – it’s hard to handle. I also have blood vessels hardening. In the morning they feel like squeezing and its very painful too, It gives me also morning head aches and preassure in my head, feels like its going to explode then everything gets very stiff. I knew second year pain start to kick in – neurologist warned me about it but I did not expect it to be so bad and in my whole body. I was avoiding any medications they gave me for pain as long as it was possible but at the moment I don’t know if I can live like this.
Did anyone have such a bad pain and found anything helpful ? If my only option are drugs that doctors prescribe is anything I should be more careful about? Will this pain ever go away? I feel like my all bones and joints being crushed and yet my kidneys and other organs feel the same, cant imagine my life suffering like this 😢
Well, I hit my 6 years post injection anniversary yesterday and I am still ill. Each year is a little better, but I am still disabled by this.
HI,,, I was diagnosed with cervical dystonia in 2015 and given 200 units of botox into my neck…… a few days later I had no range of motion in my neck
!!! which was very very painful and also I was unable to perform simple task .. such as bending over… and I felt very dizzy when I would look down.
after a month my entire head began to spasm… so ….
the neurologist called it “anxiety” and started me on a dose of lexapro which made the dizzyness really really bad…
so I was switched to Elavil with zero improvement….
After 2 months of staying home on the sofa I was very scared and decided to go to a center in town where the doctors specialize in these psychiatric medicines………. Biggest mistake of my life………………….
I told them.. I am not tolerating the medicines…. and that my neck was the issue here from the botox…………… and the doctor did not listen.. because I was hysterical and gave me Klonopin .5 twice a day.
After 6 weeks on the Klonopin…… I realized this drug was not helping me at all…… as I begin to have balance issues and the dizzyness was even worse.
So…. then I learned Klonopin needs to be tapered! no one told me that. I had never taken a benzo before…………. so when I began to taper…… the dose.. boy….. I was in for a shock….
I had scalp burning sensations.. which I had never experienced in my life.. and I am 57…..
i know my body…
long story short… I took the Klonopin for 3 more months .. after tapering because if I missed a dose I would have such bad balance… it was unreal…. and
I was finally cold turkeyed off Klonopin last Feb …………… and I have been in severe withdrawal from that for 10 months on top of the damage done to my neck from the Klonopin…
My question is…………..will my neck muscles ever return to normal?????????????????? It seems to be the part of my body that hurts the worst………………… and Klonopin effects the brain and the whole nervous system……………….
I am just so …………………………………….heart broken over what botox and klonopin has done to my health and life………………………. and I wish I had never heard of either of them………
I f anyone has experience with t his please let me know.. I see that many are improving and recovering from botox………….. so I hope that I will too//////// peace to all and thanks you for reading… :)
I am now 27 months out and I did have some times of little or a bit bigger improvements which did not last long but I was still very grateful to have any. Unfortunately my nerves don’t regenerate well and mostly autonomic. I suffer daily from heart symptoms, circulation issues, skin burning, cramps, vission loss, ringing ears or feeling blocked, nausea, muscles tightness, muscles aches,weakness, blood vessels pain in legs and arms , hair loss, I am very cold and dizzy, the list goes on.
Today I am very scared because again it has hit me very hard, I’m extremaly weak, have burning all over body, my legs turned blue, can’t keep myself up, I’m completely bed bound since yesterday, but what scares me the most is the burning in my chest, pain in the chest, white stiff hands and feet and the feeling to collapse. My breathing is very shallow and I can’t swallow properly due to weakness.
I feel like having some flu or chest infection, but my temperature is very low. I don’t know if this is another bad relapse or If I have catched something but It has not been so difficult with my blood circulation and breathing since last time I have been taken to the hospital till now. I am afraid to go here in UK to A&E because Im afraid of any medications they could give me but I will have to if my circulation and breathing wont get any better 😔
I am trying warm bath with salts, magnesium but It is more helpful when I’m having stiffness, I take Vit C and will start echinecea drops, I have no idea how to fight infection now if that’s what causing the relapse but I’m desperate to help my chest burning and breathing without any steroids or antibiotics , please if anyone have some advice that might help I would be so much thankful. I am more afraid to go to the hospital feeling so bad because I have completely lost my trust to these people..
Sending all healing thoughts
dopo l’iniezione di botulino oltre a tutti i gravi problemidi saluteche mi ha dato
mi è rimasta la parte destra del viso più piccola
occhio guancia e labbro leggermente cadenti
sono passati 3,5 anni
qualcuno mi sa dire se tutto recupera o se devo rassegnarmi
e se ci sarà la guarigione totale dei disturbi
buona sera a tutti
qualcuno mi può dire se dopo tutti i disturbi e i dolori che ho passato con il botulino si possono fare iniezioni di acido ialuronico tipo vital della restylane sul viso?
è pericoloso dopo quello che mi è successo?
è meglio aspettare ancora qualche anno?
(sono 3,5 anni e sto ancora male)
o non lo farò piu?
grazie per le risposte
There is article from Hong Kong hospital about 2 botulism cases from injections, they recieved high doses of botox and developed botulism 3 days later, they went to the hospital late but antitoxin was still administered 7 and 9 days later.
They wrote ” In an outbreak of foodborn botulism toxin was detectable in the blood of a patient 25 days after symptom onset. However, simply neutralizing the circulating toxin is unlikely to have clinical improvement if there is saturation of the neuromuscular junction toxin receptors. In these two patients, therefore, the arrest of symptom progression after antitoxin treatment might be because their neuromuscular junction receptors were not fully saturated. ..”
” Patient may present to emergency departments with systemic effects of BTX-A after cosmetic injection. The clinical response of the two patients in this report suggests that antitoxin treatment should still be considered even if patients present late.”
This is only part of the article as I probably can’t post full in here..
This is really good article because it proves that toxin does get into bloodstream and can circulate for much longer than patients are told. My case and Klaudia’s also proves that it does not need to be high dose to be still detectable in the bloodstream and not only days but months and even years later. The whole problem is that patients are refused to be tested for it by hospitals and doctors. We can’t stop people to have injections or manufactures make money but something need to be done to force hospitals to help victims when there is time for it.
Here is arricle abstract.
Sending you all healing thoughts..
Hi fellow soldiers !So I quit smoking around May because I was in a really bad shape and loosing weight especially muscle fat and within a week I started to get much better .The digestive issues gone ,the energy started to come back and also neuropathy got better .I started to get more engage and even was able to help my mom set up her shop and also help at times with ironing and stuff like that .I thought this is what recovery finally looks like.Around September though I got hit with a bout of weakness and was homebound again .Due to isolation ,loneliness and frustration unfortunately I picked up smoking again .While it did give me a much needed mood boost it also making anxiety and nerve pain worse .But what really always makes things much worse for me and still happened this time around is the cold weather outside .While I try to limit exposure and don’t go outside much and I also try to push myself for some walks because I don’t want to get decondictioned I’m still struggling with neuropathy so I was wondering If anyone has found a solution or a remedy that helps ?