Some Hope

Hi All,
I wanted to post an update that made me feel more hopeful and maybe can give hope to other people struggling through this nightmare, too. One of the most disturbing side effects I suffered was ocular hypertension – basically damage to the optic nerve/glaucoma. I went back to my eye doc last week and took a field vision test (I got my injections on 1/7/15, so this is a little more than a year out). It was almost perfect (meaning no permanent eye damage) and the pressure is starting to come down in my eyes. He feels like all I need to do is keep seeing the optometrist and having them do the low-tech eye pressure test and I should be fine. This despite the fact I have had a hard time kicking coffee and haven’t had a consistent exercise program, the two things my doc suggested would help. (I did the best I could – partly it’s my damn stressful job which eats up a lot of hours and energy. Hence coffee. Hence inconsistent exercise! But just to say, my body has healed on its own despite my lousy habits.) I still have some facial damage with my chin (dents – argh!!!) but even that has gotten slightly better. There are some weeks where my face still looks awful but it seems to get better after it gets worse. My horrible joint pain, which was really getting me down last year, has gotten better, and though I am still having stomach issues, the feeling of having razor blades rolling around in my stomach is gone, at least. : ) And my hair is starting to fall out at a much slower rate (gotta have gratitude for the little things, right?). I know that sometimes people get better and then get much worse – it’s such a crapshoot! – but it really feels like maybe I have made some true progress. I wanted to let people know because reading “recovered” posts here helped me get through some of my darkest hours with Botox poisoning. I think about everyone here a lot and send out love & light for healing.

Anyone start to get hair loss 1.5 – 2 years in?

Hi all,

All of a sudden I am experiencing significant hair loss. I know many of you here have had the same problem, but I wonder if anyone has experienced it starting 1.5 – 2 years after botox injections?  I’m not sure if I should be attributing unusual new symptoms to botox anymore since I hit the 2 year mark this month… but hair loss does not run in my family.  And up until 6 months or so ago I had a thick head of hair. Now, I have been told I have the beginning of female pattern baldness – the thinning is very evident around my hair line. And the texture seems to have changed as well. It seems to be getting worse quickly and I am only 46, so though I may be peri-menopausal, it’s still early stages . Anyone else experience the same thing? If so, did it progress or did your hair grow back? Any input would be appreciated! :-)

It’s been a while since I last posted. My last injections for migraines was Dec 3, 2015. I went to the Drs. 8 times. Steroids did not work. Oral or injections. The highest dosage of RX antihistime didn’t work. Nothing did. Out of all the Drs. I saw only 2 admitted it could be Botox.

The hives covered my Entire body for almost 3 months. My skin turned purple, swelled and even my butt was covered which made sitting very difficult. They never left until the Botox was completely out of my system. I am now myself 100% convinced it was indeed the Botox. I had 2 skin biopsies and it came back as a hypersensitive medication reaction. Botox was the ONLY thing I had used and the itching and hives started a few days after injections. OMG the itching for 3 months was TORTUROUS! Now that it’s gone. My skin is back to normal and my head of course has been aweful.

Im very very disappointed that after the whole horrible experience that “all”  Drs are now saying. Yes. Yes it was very likely the Botox.

After 3 years. Never again. Never! I’m so glad this nightmare is over. I didn’t know from one day to the next what else would be affected

Just wanted to update everyone who was supportive to me during my struggles and horrific reaction. Thanks –

Teresa


 

 

 

 

 

domanda

buonasera a tutti

scusate ma se possibile vorrei che qualcuno mi potesse dare una risposta  se un giorno l’occhio danneggiato dal bott riprenderà la sua forma e anche la guancia

vorrei sapere e un consiglio quanto potrà durare questo mio malessere generale di nausea perdita di forze alle gambe ginocchia vertigini mal di testa

I noticed a Limpoma on the back of my leg

I was wondering if anyone else on the site has had a limpoma. I just noticed this today on the back of my leg as big as a golf ball. I think it has to do with the toxic trying to come out of my body. I read on line about them. And to be honest I am very nervous about it because with one usually comes more. I was wondering if anyone else got this. I am going on 4 years out. I have had many symptoms headaches, burning that still come and go. I know that my energy has been better than the beginning. But I am still having too many issues.
If anyone has had this please let me know.
Thanks Lori

Natural help to heal nerve pain

It’s been a while since I posted and thought I’d share some natural remedies for healing nerve pain. I haven’t tried all of these and I know many of us have sensitivities to everything so you know to proceed with caution and introduce one at a time but hoping this may be of help to some.

I have to say first I am in my 4th year since injections and I my muscles spasms in my legs have calmed somewhat. I still have a deep dent in the right calf where the large muscle is still contracting constantly and there is still constant ‘twitches’ of the muscles in both calfs but the constant painful deep muscle spasms have calmed a bit so I am thankful for some relief.

The nerve pain in the face is unfortunately still 24/7 and unbearable without aspirin. My concerns about taking so much aspirin (500 in 90 days) and the risk of bleeding associated with it is what prompted me to do more research on natural alternatives for pain relief and nerve healing. Sharing what I found here to both relieve pain and some to prompt healing of the nerves. You may know some or all of this but perhaps this will help someone. Please let us know if anyone has tried any of this and had positive results or negative reactions.

I also want to share that my #1 help in seeing some relief over a long period of time has been a clean diet. Green leafy veggies, herbal or green tea, lots of water, all organic if possible, no gluten, dairy, preservatives, packaged foods, artificial ingredients, no sugar, etc. I have not eliminated meat entirely but cook it on the grill with nothing but light salt and pepper. Veggies always fresh either cooked or raw. I notice a real improvement in inflammation very quickly after eating celery. Beyond that, less than 9 hours sleep a night or going to bed later than 11:00 even with 9 hours aggravates all symptoms. And of course there is the stress factor. Exercise is now helping — a year ago I couldn’t take walks without triggering relapse.

So here’s the list for nerve pain relief and healing — many of these address inflammation as well:

Green Juicing —
Stops the cycle of chronic inflammation and gets inflamed nerves back in shape. Also helps clean out toxins. Juice cucumbers, celery, kale, spinach, parsley, broccoli & other greens — add a fruit if you don’t like veggies and it will sweeten in up.

Ginger —
Reduces inflammation

Turmeric —
Reduces Inflammation

Benfotiamine —
B6 if you can tolerate. Helps to repair damaged nerves. B12 as well but I know many can’t tolerate.

Herbs: Vervain, Wild Lettuce, Valerian, Crampbark, St. John’s Wort —
Lowers inflammation & calms and helps heal nerves

Omega 3 oils —
Full of anti-inflammatories

Skullcap —
Strengthens nervous system & brings relief to inflamed nerves.

Lobelia —
Relieves tension & relaxes muscles that may be pressing on nerves

Black Cohosh —
Works well with Valerian — helps to regenerate irritated nerves.

Bitters —
Swedish bitters can heal nerve pain.

Arnica & Peppermint oil —
Helps to fight inflammation.

All the Best for good health soon!
J

Pituitary issues

I just wanted to point out (and I am not sure if anyone has done this yet) that it’s possible that we either developed or had pituitary issues that were created/aggravated by the botox. I have had two MRI’s that show issues with my pituitary gland. If you look up symptoms of pituitary lesions, you find many that overlap with the symptoms we experience as a result of Botox injuries. Some of these are relevant, and some not, but most importantly, there is help (I think) that can be provided. If you have had an MRI but not had one that is protocolled for the pituitary, they may not catch anything. Here are just a few of the symptoms:

  • extra hormones in the blood
  • flushing of the face
  • weak muscles and bones
  • high blood pressure
  • irregular heartbeat
  • headache
  • vision loss
  • large hands and feet (acromegaly)
  • breast milk even if not pregnant
  • lack of milk when breastfeeding
  • menstrual cycle changes
  • lower sex drive
  • impotence
  • loss of body hair
  • delayed sexual development and growth in children
  • weight gain
  • bruising easily
  • irritability, anxiety, depression
  • nausea, vomiting
  • dizziness
  • confusion
  • seizures

I wish everyone healing on this awful journey!!!

Facial changes

Like many here, I have noticed drastic changes to my face, including fat loss, muscles loss, sagging, etc. Is there ANYTHING that anyone has done to help this? I realize the toxin is going to do what it wants, but even if I could do something to keep it from getting much worse would be helpful. I try not to read too much on here because it’s depressing, but if anyone can offer any words of wisdom who is further out, then I would be so appreciative. Trying to stay positive, but it seems like there is a lot of pain and suffering down the road . . .

cerco risposte

grazie per la prima risposta

io ho fatto l’iniezione 34 mesi fa

i primi disturbi sono iniziati dopo 5 mesi e nel tempo si sono manifestati tutti molto lentamente

ora sto malissimo : contratture alla testa dolori agli arti all’occhio tendine spalla lesionato crisi di panico senso  di svenimento e difficoltà respiratorie

sono disperata

mi puoi gentilmente dare delle risposte su come potrà passare il mio malessere

se ora sono sul culmine dei disturbi

quanto dovrò attendere  2-3 anni per stare un po meglio?

i disturbi andranno a scomparire lentamente?

ce chi non guarisce più?

l’occhio e la guancia riprenderanno la loro forma?

vi prego di darmi una risposta

grazie di cuore a tutti voi

image image image

I’m 9 months out.

I have been coping with this I’ll mess okay – still have swallowing troubles if I get any negative feelings like anger/sorrow/hurt – my vision is still blurry, I get tingles in my right leg, I have head pressure a lot of the time, and full ears. This skin give issue raised its head in Feb and exploded over my entire face up to my eyes. I had to go to see a doctor and am on different creams to help it and thankfully after a month it’s going away slowly. I have a friend I talk to on here to told me she had hives so I’m wondering if it’s related to my injections… It seems other have experienced it so I thought I’d report it on here. My face was blistering so bad i didn’t go out. It hurt to sleep. It wept and stang.

Anybody else have  this?

and I had a ear specialist explain to me something very wise; the more you think of tinnitus (ear ringing) the worse & louder it’ll get. Because you think of it lots it’s etched into your mind – the brain stores the thought near the front so you will remember it. So if you think about it more, it will bother you more as the brain categorises it as “important”.

good luck everybody X

 

 

 

My Botox Experience

Hi all

I think it’s important to share what I went through when I injected myself with this hideous poison.
On October 13th last year I decided to try Botox for the first time. I insisted on the smallest amount in my forehead. Being needle phobic I was terrified about the injections but surprisingly they didn’t hurt at all. In fact when the surgeon injected me I felt this really great tingling feeling. Kind of like you have when you have a glass of strong alcohol. The tingling stayed with me for the rest of the day. All was fine.
By that night however the tingling had given way to full blown muscular spasms. My anxiety levels were at 150% – I have never known anxiety so bad. My heart was racing and I did not sleep the entire night.

I called the doctor who injected me. He did not even come to the phone but sent a message via his receptionist that my symptoms cannot have been from Botox.
The next morning I went straight to Urgent Care and the doctor there told me that I was having a bad reaction to the Botox. He gave me Benadryl to help me sleep. The Benadryl helped me sleep fine and the next few days were ok with no violent spasms. I did however have this almost constant tingling sensation in my arms and legs which seemed to intensify if I got upset.
On Day 7 I woke up at 4am with body spasms so severe that I could not even pick up a glass of water. I raced back to Urgent Care and the doctor took me off Benadryl and put me on Xanax. He explained that Botox does affect the nervous system and that it has been known to cause muscular dystonia of the kind I had been experiencing. He referred me to a neurologist. It was unfortunately a two week wait before I could see the neuro – during that time I had a disagreement with my landlord as his builders had messed up our shower. After this fight the spasms were so bad that I could not even send a text – my fingers could not stop trembling.
I finally saw the neurologist and he told me that I am an incredibly sensitive person and that my body just cannot handle the toxin. He pointed out that these effects from Botox are actually not as rare as people believe and he put me in touch with this site which helped me no end. The neuro put me on a very limited diet ( no caffeine, sugar or preservatives or the spasms would come back) I even had to limit exercising which was awful as I’m a gym junkie but the exercise brought on the tingling.

The changes to my diet helped tremendously and now I’m finally able to begin living my life normally again. I am back to one cup of tea in the morning. If I have more than that the tremors return. Not violently but unpleasant enough. This is from a girl who used to have up to 4 cups a day. But baby steps for now. I’m just grateful to be feeling myself again. And I’m grateful for being able to sleep through the night without being woken up with violent spasms. It’s incredibly that a horrible experience like this can teach you to be grateful for the things we take for granted.
My argument against Botox can be summed up by this one question: If Botox is so safe why can’t pregnant women take it?
Because 30 years ago everybody smoked but we knew enough not to smoke when pregnant. Now today everyone knows cigarettes are death machines
I honestly believe that 20 years from now people will say the same about Botox.

My Botox Experience

Hi all

I think it’s important to share what I went through when I injected myself with this hideous poison.
On October 13th last year I decided to try Botox for the first time. I insisted on the smallest amount in my forehead. Being needle phobic I was terrified about the injections but surprisingly they didn’t hurt at all. In fact when the surgeon injected me I felt this really great tingling feeling. Kind of like you have when you have a glass of strong alcohol. The tingling stayed with me for the rest of the day. All was fine.
By that night however the tingling had given way to full blown muscular spasms. My anxiety levels were at 150% – I have never known anxiety so bad. My heart was racing and I did not sleep the entire night.

I called the doctor who injected me. He did not even come to the phone but sent a message via his receptionist that my symptoms cannot have been from Botox.
The next morning I went straight to Urgent Care and the doctor there told me that I was having a bad reaction to the Botox. He gave me Benadryl to help me sleep. The Benadryl helped me sleep fine and the next few days were ok with no violent spasms. I did however have this almost constant tingling sensation in my arms and legs which seemed to intensify if I got upset.
On Day 7 I woke up at 4am with body spasms so severe that I could not even pick up a glass of water. I raced back to Urgent Care and the doctor took me off Benadryl and put me on Xanax. He explained that Botox does affect the nervous system and that it has been known to cause muscular dystonia of the kind I had been experiencing. He referred me to a neurologist. It was unfortunately a two week wait before I could see the neuro – during that time I had a disagreement with my landlord as his builders had messed up our shower. After this fight the spasms were so bad that I could not even send a text – my fingers could not stop trembling.
I finally saw the neurologist and he told me that I am an incredibly sensitive person and that my body just cannot handle the toxin. He pointed out that these effects from Botox are actually not as rare as people believe and he put me in touch with this site which helped me no end. The neuro put me on a very limited diet ( no caffeine, sugar or preservatives or the spasms would come back) I even had to limit exercising which was awful as I’m a gym junkie but the exercise brought on the tingling.

The changes to my diet helped tremendously and now I’m finally able to begin living my life normally again. I am back to one cup of tea in the morning. If I have more than that the tremors return. Not violently but unpleasant enough. This is from a girl who used to have up to 4 cups a day. But baby steps for now. I’m just grateful to be feeling myself again. And I’m grateful for being able to sleep through the night without being woken up with violent spasms. It’s incredibly that a horrible experience like this can teach you to be grateful for the things we take for granted.
My argument against Botox can be summed up by this one question: If Botox is so safe why can’t pregnant women take it?
Because 30 years ago everybody smoked but we knew enough not to smoke when pregnant. Now today everyone knows cigarettes are death machines
I honestly believe that 20 years from now people will say the same about Botox.

My Botox Experience

Hi all

I think it’s important to share what I went through when I injected myself with this hideous poison.
On October 13th last year I decided to try Botox for the first time. I insisted on the smallest amount in my forehead. Being needle phobic I was terrified about the injections but surprisingly they didn’t hurt at all. In fact when the surgeon injected me I felt this really great tingling feeling. Kind of like you have when you have a glass of strong alcohol. The tingling stayed with me for the rest of the day. All was fine.
By that night however the tingling had given way to full blown muscular spasms. My anxiety levels were at 150% – I have never known anxiety so bad. My heart was racing and I did not sleep the entire night.

I called the doctor who injected me. He did not even come to the phone but sent a message via his receptionist that my symptoms cannot have been from Botox.
The next morning I went straight to Urgent Care and the doctor there told me that I was having a bad reaction to the Botox. He gave me Benadryl to help me sleep. The Benadryl helped me sleep fine and the next few days were ok with no violent spasms. I did however have this almost constant tingling sensation in my arms and legs which seemed to intensify if I got upset.
On Day 7 I woke up at 4am with body spasms so severe that I could not even pick up a glass of water. I raced back to Urgent Care and the doctor took me off Benadryl and put me on Xanax. He explained that Botox does affect the nervous system and that it has been known to cause muscular dystonia of the kind I had been experiencing. He referred me to a neurologist. It was unfortunately a two week wait before I could see the neuro – during that time I had a disagreement with my landlord as his builders had messed up our shower. After this fight the spasms were so bad that I could not even send a text – my fingers could not stop trembling.
I finally saw the neurologist and he told me that I am an incredibly sensitive person and that my body just cannot handle the toxin. He pointed out that these effects from Botox are actually not as rare as people believe and he put me in touch with this site which helped me no end. The neuro put me on  a very limited diet ( no caffeine, sugar or preservatives or the spasms would come back) I even had to limit exercising which was awful as I’m a gym junkie but the exercise brought on the tingling.

The changes to my diet helped tremendously and now I’m finally able to begin living my life normally again. I am back to one cup of tea in the morning. If I have more than that the tremors return. Not violently but unpleasant enough. This is from a girl who used to have up to 4 cups a day. But baby steps for now. I’m just grateful to be feeling myself again. And I’m grateful for being able to sleep through the night without being woken up with violent spasms. It’s incredibly that a horrible experience like this can teach you to be grateful for the things we take for granted.
My argument against Botox can be summed up by this one question: If Botox is so safe why can’t pregnant women take it?
Because 30 years ago everybody smoked but we knew enough not to smoke when pregnant. Now today everyone knows cigarettes are death machines.

Hi all

I think it’s important to share what I went through when I injected myself with this hideous poison.
On October 13th last year I decided to try Botox for the first time. I insisted on the smallest amount in my forehead. Being needle phobic I was terrified about the injections but surprisingly they didn’t hurt at all. In fact when the surgeon injected me I felt this really great tingling feeling. Kind of like you have when you have a glass of strong alcohol. The tingling stayed with me for the rest of the day. All was fine.
By that night however the tingling had given way to full blown muscular spasms. My anxiety levels were at 150% – I have never known anxiety so bad. My heart was racing and I did not sleep the entire night.

The next morning I called the doctor who injected me. He did not even come to the phone but sent a message via his receptionist that my symptoms cannot have been from Botox.
I went straight to Urgent Care and the doctor there told me that I was having a bad reaction to the Botox. He gave me Benadryl to help me sleep. The Benadryl helped me sleep fine and the next few days were ok with no violent spasms. I did however have this almost constant tingling sensation in my arms and legs which seemed to intensify if I got upset.
On Day 7 I woke up at 4am with body spasms so severe that I could not even pick up a glass of water. I raced back to Urgent Care and the doctor took me off Benadryl and put me on Xanax. He explained that Botox does affect the nervous system and that it has been known to cause muscular dystonia of the kind I had been experiencing. He referred me to a neurologist. There  was unfortunately a two week wait before I could see the neuro – during that time I had a disagreement with my landlord as his builders had messed up our shower. After this fight the spasms were so bad that I could not even send a text – my fingers could not stop trembling.
I finally saw the neurologist and he told me that I am an incredibly sensitive person and that my body just cannot handle the toxin. He pointed out that these effects from Botox are actually not as rare as people believe and he put me in touch with this site which helped me no end. The neuro put me on a very limited diet ( no caffeine, sugar or preservatives or the spasms would come back) I even had to limit exercising which was awful as I’m a gym junkie but the exercise brought on the tingling.

The changes to my diet helped tremendously and now I’m finally able to begin living my life normally again. I am back to one cup of tea in the morning. If I have more than that the tremors return. Not violently but unpleasant enough. (This from a girl who used to have up to 4 cups a day. But baby steps for now.) I’m just grateful to be feeling myself again. And I’m grateful for being able to sleep through the night without being woken up with violent spasms. It’s incredibly that a horrible experience like this can teach you to be grateful for the things we take for granted.

Reading the stories on this site I can see that numerous people have had the same reactions as me so my doctor and the other doctors who deny Botox does this are clearly lying.  To them it is a business. People like us are in the minority so they aren’t going to worry about one person when the other 500 000 don’t have such effects.

My argument against Botox can be summed up by this one question: If Botox is so safe why can’t pregnant women take it?
Because 30 years ago everybody smoked but we knew enough not to smoke when pregnant. Now today everyone knows cigarettes are death machines
I honestly believe that 20 years from now people will say the same about Botox.

 

Antidepressants ?!

So as you guys know I been in a relapse for quite some time now and it’s really taking a toll on me psychologically .Breathing difficulties ,general weakness and numbness and digestive issues are a daily thing now and diet  and positive thinking alone are not helping much so I was wondering if anyone had improvements or good response from antidepressants .I gotta admit…I am a bit terrified of the possible side effects cos even before the botulism they never seem to agree with me (tried most of them when I was dealing with chronic neck pain and were way to stimulating ) except Trazodone .That medication at the time helped me get a good night sleep and also curve the anxiety but I tried it about a year ago and body went numb .So I am left wondering what can I try to alleviate the symptoms especially the overwhelming anxiety which lorazepam that I’ve been taking for a while it’s not helping much now .Any suggestion or sharing experience  would be greatly appreciated .