low vit d. may increase risk

just happened to notice this article after reading the article from soloist.. its interesting so i’ll put it up here.. i have heard that many many people are chronically low in vit d… like 45% of the population or something. i wonder if this is any factor in some of our reactions. the researchers seemed to find that vit d is ‘neuroprotective’ or something like that and prevents certain kinds of neurological damage from other conditions.. i wonder if any of us reacted worse, or took longer to recover, due to low d levels.

http://health.usnews.com/health-news/health-wellness/articles/2014/11/20/are-you-getting-enough-vitamin-d?int=a57b09

“In October, researchers revealed that in a study of patients who suffered from sudden cardiac arrest, 65 percent of those with low vitamin D levels suffered poor neurological outcomes six months after hospital discharge, compared with 23 percent of patients with healthy vitamin D levels. In addition, 29 percent of patients with low levels died six months after their cardiac attack, whereas all the patients with healthy vitamin D levels survived.”

“The researchers discovered that when compared with subjects with normal levels of vitamin D, those with low levels had a 53 percent increased risk of developing dementia, while those with a severe deficiency had a 125 percent increased risk. Plus, people with lower levels of vitamin D were almost 70 percent more likely to develop Alzheimer’s disease, while those with a severe deficiency were more than 120 percent more likely to do so.”

Family Gets $6.75M in Botox Treatment Case

http://www.usnews.com/news/business/articles/2014/11/20/family-gets-675-million-in-botox-treatment-case

Thousands of people continue to suffer life-altering symptoms after receiving botulinum toxin injections. While the resulting neurological problems present numerous challenges for any victim, the cases that are the most heart-breaking are those that involve young children. This most recent lawsuit involves Joshua Drake, a 7-year old boy now left with recurring seizures, and, unfortunately, his story is just one representing countless others. As the medical community and pharmaceutical industry continue to turn their backs on this problem….the very sad and unfortunate scenario is that we (or at least, those who have been affected) have to consider a lawsuit settlement hitting the mainstream newswire as a small victory towards greater focus being placed on patient safety in the future. The deception in the Botox clinical trials regarding the (un)safety of these products is becoming known through court proceedings now part of public record….but the deception continues through the unrelenting marketing of these products without emphasis placed on the real risks and through both the FDA’s and the manufacturers’ disregard of the tens of thousands of reported problems.   Women, men, children and their parents continue to unknowingly agree to treatments that could ultimately change their ability to live a normal life, and those who receive injections in hopes of achieving therapeutic benefit can be left with a myriad of problems much worse than those for which they received treatment.

I continue to speak out regarding this issue because there needs to be more victories. Different victories. Victories that don’t involve children or other people falling victim. While through my own battle with this toxin I have lost the physical ability to do many things, I have not lost the ability to share this message. I have not lost the ability to do what I can to try and prevent this from happening to someone else. If you, or someone that you know or love, are currently receiving or considering these treatments, please use Joshua or me or the thousands of other people whose lives have been affected by this toxin as an example of what is NOT being told regarding what CAN and DOES happen with the use of these products. If there is one person whose life we can save through sharing this information….it is a victory.

Thank you.

Any advice for GERD/acid reflux and frequent migraines?

Hi everyone, hope you are all doing well.

For the past couple of months I have been unable to eat most things because afterwards I get acid reflux burning in my chest. I stopped eating any bread (I was able to eat this in moderation, 1 piece a day) and most grains and citrus fruits as they gave me the worst reaction. Oddly though I can eat crackers made of wheat with no acid reaction (maybe something to do with how it is processed or refined?)

What complicates matters is that like a lot of others on here I developed sudden food allergies even to certain fruits and vegetables, so I have only a small list of foods to choose from. I can eat sweet potatoes, potatoes, white rice, most vegetables and certain fruits.

Since I have had to change my diet, I have been getting frequent migraines. Obviously there is something off in my body causing this, as I was able to eat normally and not experiencing migraines until recently. I have no idea what changed! I am going to try apple cider vinegar as a remedy for the acid reflux today, and hope it doesn’t make things worse.

26 month update

Kris and Heather,

Was trying to respond to your posts but having trouble with log in for replies.

I am 26 months post injections now and still have new and recurring symptoms but am finding that during the time between relapses I am better than before.

Kris, the dry mouth for me was unbearable for the first 6-8 months. I had constant sores in my mouth and severe swelling of tongue, and the inside of cheeks. The only thing that helped is Biotene oral rinse. I carried it with me and used it several times a day. I also had to avoid acidic or spicy foods. Even cinnamon flavoring made it worse. It did pass but you should try to supplement with calcium if you can tolerate it and continue to use the tooth paste.

Heather and all who are experiencing hair loss, mine started about a year ago and seems to be getting worse. I lose a large handful every time I wash and you can now see my scalp all over. I had a full thick head of long blond hair before this so like you I am very upset about this. The good news is, several months back I was trying to take biotin and could not tolerate it. Now my system seems to be accepting it so I started taking again last week. Some have suggested HBOT helps to repair the issue with hair loss so I will be looking into possibly renting a chamber. I remain hopeful that this will pass but this part is so upsetting.

My skin has also lost so much elasticity and color and moisture and it’s the same everywhere — trunk, arms, legs, face. Sleep and a ton of water is critical for me. Early on I eliminated all but one caffeine drink per day and I still stay with that. I rarely drink alcohol now and for the past month have been doing my best to stay away from gluten, all junk and sugar. I started on charcoal also about a month ago but picked up a cold on a trip up north so I’ve been off of it but I’m planning to start up again this week. It did make me feel better while I was taking it so I’m looking forward to starting it up again.

I’m dealing with the neuropathy too (burning in head and on surface of skin on the face, tingling in arms and legs). I still have it daily but not as severe. Aspirin is the ONLY thing that has helped to dull that pain.

Back to the elasticity, I have finally been able to do a power walk almost every day which is helping to rebuild muscle and the skin is looking a little less saggy in places. Have been doing this now for a few weeks and it’s the longest stretch I’ve been able to handle daily exercise so that is good. I also get small red spots (I call them crop circles) because they appear out of nowhere in clusters in random places on the body. They disappear just as mysteriously and suddenly as they appeared. No explanation for that.

My veins still bulge in my hands and feet on a regular basis with no explanation. Probably some vascular reaction to the toxin but doctors don’t know.

Still taking this one day at a time and I will say I am way better than I was those first 6 months. Staying hopeful that time will heal our bodies and having each other sure helps our minds.

Thankful for my friends here and wishing you all well.

Jeanette

Almost 2 Years Out- Update

It has been a long road.  But I can for sure say, things are getting better.  In terms of symptoms,  I’ve been through anxiety, depression, major weight loss, mental fogginess, double/skewed vision, etc.  Now I am at my heaviness point ever (besides pregnancy), my skin is supper saggy,  I have very little muscle tone, and my hair is falling out so severely my husband saw the pile when I got out of the shower and asked how I have any hair left (he said it lovingly…humor helps).   Pretty much all of the symptoms come and go, except for the hair loss.  That started about 2 weeks ago.  I’m just praying it stops as abruptly as it started.

Months have passed where I haven’t visited this site.  Reading the stories and symptoms can be terrifying.  I will say this.  This f-ing horrendous ordeal has taught me to love my family and the good days more.  If my hair would have fallen out like this 3 years ago, I would have  freaked.  I’m at the point where people are probably going to start noticing my scalp, but I’m okay. After all, vanity is what got me to this point in the first place.

I’m going to start looking at this like Adrenal Fatigue.  We will see what happens.  In the meantime, my advise is just to stay strong.  I have had days of utter despair .  They passed (God willing, they will never come back).  I still have moments of agitation.  They pass.  My skewed/double vision has been better lately.  It all ebbs and flows.  But this is my life now and I am so very grateful for it.

I am at 18 months and feel like I am never going to get better

Hi Everyone, I hope everyone on here is getting better!
I am a little over 18 months and continue to have so many symptoms (fatigue, brain fog, muscle weakness, hair loss, etc.) Just when I think one symptom is getting better it comes back again. I just feel like this is never going to end. I am really concerned about my teeth and gums right now. My teeth look transparent and my gums are sore and receding. I think it might be due to the horrible dry mouth that I have? Also, I think my face is getting worse instead of better.:(
All my muscles are still sunken and my skin looks terrible. Like all of the elasticity is going out of it and I have wrinkles that weren’t there before. My eyes are still small and beady with big bags under them. Any input would be greatly appreciated! Thanks! Kris

General Anaesthetic

I know this question has been asked previously however this was quite awhile ago – has anyone gone under general anaesthetic since their injections?  If so how did they feel afterwards?  Did the general anaesthetic make any of their symptoms worse, bring back any symptoms that had resolved or cause any new symptoms to occur?

Low Neutrophils & White Cell Count

I had Botox injections in my forehead over a five year period. My last injection was seven months ago. Since then I have been taking heaps of supplements to speed up my recovery [including B12, glutathione, digestive enzymes, astragalus and chlorella].

I had a whole lot of blood tests done last week and a few things have improved [my inflammation factor is nearly back to normal] but, for the last 4 years, I have had low neutrophils and white cells. They are always the same … neutrophils – 1.4 [should be between 2 & 7] and white cell count 3.5 [should be between 4 & 11] This shows my immune system has been badly affected, and I’m wondering if it will ever recover.

Has anyone else had this problem? And has anyone else had neutrophils and WCC that have eventually increased to a reasonable level?

Many thanks,

Botojo

Affects when Botox wearing off?

I had Botox injected into my jaw muscles in June 14. This was to help with the chronic neck and shoulder pain which I believe is caused by the TMD. It actually helped, eventually. I don’t remember suffering any immediate bad effects of the Botox. However, from August there has been a gradual decline in my mental health. I have had various issues to deal with-relationships breakdown, losing my job and having to find another, car dying and ongoing situation dealing with my dad who has dementia (and having to deal with all that alone as I do not have a partner), so I would expect those things to take their toll. However, I am currently off work because of anxiety. I thought I was feeling better but went out yesterday to a hospital appointment and it just turned into a bit of an ordeal. I felt anxious, cried in the waiting room, didn’t feel safe driving. I have a history of depression/alcohol and drug abuse but no longer drink/take drugs and the depression wasn’t really an issue anymore. I actually thought I was at last starting to feel better, after having issues my with my emotional/mental health for most of my life. This episode is not like anything I’ve experienced before which is why I’m on this site. Could this somehow be related to Botox wearing off?? I did read a snippet somewhere (by a doctor) that when B wears off it can cause anxiety).

Anyone else having worsening of their symptoms at this time of the year?!

Hi Guys,I was doing a bit better with going organic and the AC(activated charcoal ) treatment but just like last year this time around I’m back to square one again with violent muscle spasms/twichings ,breathing gets worse and also chest tightness and palpitations. Granted I did go for a pt evaluation and the therapist I would say was a bit to strong on my neck but still just trying to figure out if maybe its not just me and weather change has something to do with the relapse/worsening as well. Quite honestly the anxiety has gotten worse also since I am terrified of getting thru another breathless relapse .

Thanks in advance and sending healing thoughts to everyone.

Recommended reading

Hi all
Since I’ve been unwell over the last year or so I’ve read a number of different books on health and most recently I’ve started reading Why is my brain not working? by Datis Kharrazian. I think it has some very good suggestions to help us with many of the symptoms that we have all experienced. It talks a lot of about blood sugar imbalances, stress, adrenals, inflammation and how these things effect the brain. Also poor circulation and blood flow to the brain. My hands and feel are always cold which are symptoms of poor circulation which probably also effecting my brain. For poor brain oxygenation he recommends a number of botanical compounds including huperzine which I’ve read of other people taking on this forum. He talks a lot about gluten sensitivities and nervous system disorders and the gut brain axis and diet and herbs for healing leaky gut. He warns against heavy metal chelation if you have a leaky blood brain barrier. I know some people have considered having mercury fillings removed, this is dangerous if your blood brain barrier is compromised and can lead to further inflammation and brain degeneration. He recommends a number of herbs to dampen neuro inflammation including resveratrol, curcumin and a number of others. He takes these himself as a precautionary measure. I’m only half way through but this is by far the best book I’ve read so far. Also there are a number of practitioners that he recommends that may be able to help. I’m going to re-read it and apply many of the suggestions.

Thank You!!

First, let me say how very, very sorry I am to all of you here who are suffering from this terrible poison. It is a profound reminder to me of the many who suffer in the shadows. I have already begun praying for you all and that you may get your lives back as they were, and as you deserve. I can tell you that your stories brought me to tears, over and over.

All I can say is thank God for this site and that I was lucky enuf to find it before I went and played Russian roulette with my life. I have been diagnosed with severe health anxiety, if you don’t know what it is, look it up, it is a nightmare. It caused a major depressive episode and triggered panic disorder. It has taken me almost two years to recover, and to think I was about to destroy it, I can tell you, has shaken me to the core.

I couldn’t handle any medications for depression, especially the SSRIs, just a nightmare. The anxiety and insomnia were off the charts. The only thing that helped me was a good therapist and cognitive behavior therapy and it has been a very, very tough road to regain my emotional health.  Now that I’m feeling better, I’ve realized how much I’ve aged Because of the terrible stress and wanted to look a little “better”, and I started researching the botox, dermal filler route. I am shaking as I write this because SO many of the symptoms of botox poisoning mimic my symptoms of severe health anxiety. I went to the allergen site and read the manifesto of evil side effects of botox and I can tell you, I KNOW I dodged a deadly bullet. From all the posts I’ve read here, I KNOW that this evil stuff would have triggered a catastrophic event for me. I have a very difficult time with bodily sensations to begin with and I know that every little flutter or sensation I felt would have sent me over the edge, it would not have mattered whether it was the botox causing it or not, but I do know that I’ve struggled so hard to recover and im not about to lose this tenacious emotional health over some wrinkles.

I know that it is small comfort to you all who are suffering so badly, but perhaps you can take some small measure of satisfaction knowing you absolutely prevented someone from doing something that they may very well have not been able to handle. By reading these posts, I know you all are much stronger than I am emotionally. I will be forever grateful to all of you and from now on, will warn anyone I know not to do anything within 100 miles of this evil stuff.  I will continue to check back here in hopes that you are all recovering and regain your lives that were certainly stolen from you. My prayer is that you will all have the perseverance to help yourselves and be well again.

Much love and peace to you all.

5 years , feeling ok, but not fully recovered, legal action

Hi All,

Iam back here for an update  to give hope for the new victims of botox world.I had very very hard time from 2009-2013.I had all the symptoms which are listed on this forum. From 2013 I started to feel better but in a very small steps.I feel ok now , I can live my life , but I still have light symptoms like fainting feeling, sleeping attacks, tiredness.Iam also very paranoid about my health.I think it will be with me the rest of my life , the shocking paranoid feeling  from the re-lapse.Thats how the recovery went , you got better and re-lapse and again better and re-lapsed even deeper.Socking!!!I live in the UK but  I received my injections in Hungary in a private clinic.Ive  run out of time by the hungarian law to sue the manufacture, so I had to go for the doctor.Its all began.I have many documents from all over the world , from America, Sweden…  I received botox clinical trial results , which is a secret in a way, I have emails from Matteo Caleo who is an Italian science and testing the botox on animals… I have many documents that shows the botox can travel from the injection points to the central nerve system and brain.

I found a neurologist who is practising with a german founded  mashine and he was able to find the botulinum toxin in 3 places in my brain, bladder and liver.He told me in this case the botox is build and attached into the nerve cells and endings that is a very long process to get rid of it.It will clears out but very long time.I had also a thermographic scan , which  shows the poison part of the spine.Also I talk do Dr. Anna Hristrova , who knows a lot about  botox.

My lawer wanted an out of court setlement which is only for the loss money and payments for cures, nothing major amount but it will be a legal action.The media is always hungry for new stories , in Europe the botox subject is still very quiet not well known as in America.

There are 3 known botox victims in Hungary at the moment.We all met through the forum and we are regurlary keeping in touch.We all 3 had a more serious blood test and we had the common results of  a low  CD- 57 white blood cells which is responsible for the immune system. I started to study the reason of  CD 57  cells, only 2 cause of lower CD 57 cells : any type of poisoning and lyme. Both effecting the central nerve system.We all were healthy before botox , so the low CD-57 caused by the botox. I would recommend to all of you to do the blood test for CD 57….  thats why the recovery so slow because the body is struggeling to recover the immune system , white blood cells also the botox is stucked in a molekular level in the brain and central nerve system.

I will update you how the legal action is going and my recovery !

Take Care , look after your self

Botox used to relax my esophagus pre surgery.

I started having an issue with food and liquid going past my esophagus into my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Botox was used to relax my esophagus pre-surgery for Achelasia

I started having an issue with food and liquid going past my esophagus and getting to my stomach about a year ago.  Food would get stuck and liquid would refuse to go down.  My body would hiccup to help move it along or it would eventually go down with quite a bit of pain.  Finally, nothing seemed to be going down and I was waking each night literally drowning in liquid and food.  My doctor sent me to get an upper GI.  The diagnosis was “Achalasia”  my esophagus was literally closed and turned up into what is known as a birds beak.   I was admitted to the hospital and had an upper endoscopy to confirm the diagnosis.  The Gastro told me that I had to make a decision right away whether I wanted to do a “Botox” treatment or surgery.  I asked if he could explain both and he said he didn’t have time.  Later that evening I was being taken to do the “Botox” treatment.  I was told that since it was Memorial day weekend that there wouldn’t be anyone available for the surgery and that the Botox would relax my esophagus until the surgery could be performed.  No explanation on how it was done exactly or any info on side effects or future care or concerns.  Within a couple of days I started to have confusion issues.   By two weeks after the injection I was having pretty serious memory and confusion issues.  I was extremely fatigued and dizziness was starting to be more frequent.  I thought these symptoms were from lack of food and possibly dehydration.  There was some food and liquid going down but not what would be considered usual.  I work with Senior Citizens and know as a fact that quite often major surgeries have been shelved for folks over 80 due to the fact that anesthesia can bring on dementia.  I personally have known quite a few over 80’s that have had anesthesia induced dementia.  So I thought that the problems I was having was from lack of nutrition, liquid and having anesthesia two times in one day for the “Achalasia” confirmation and treatment (Botox).  I scheduled my surgery, called a “Heller-Myotomy” for a little over 3 weeks from the Botox treatment.  I had an event that I was putting on that needed my attention before I could take the time off.  It ended up being the most stressful event of my entire marketing career.  I couldn’t figure out how to organize anything.  The day of the event I was so stressed, dizzy, confused, fatigued and was so filled with anxiety I didn’t think I was going to make it through the day.  After the event, which was a fundraiser, I couldn’t even add up a stack of checks that needed to be turned in before I was off for a couple of weeks to a month for my “Heller-Myotomy”.   Before I went in to the surgery the Anesthesiologist came by to see if I had any questions.  I told her that I was very concerned to go under anesthesia again due to the extreme confusion and memory issues I was experiencing since the two times three weeks earlier under anesthesia.  We decided since I couldn’t eat or drink I needed the surgery.  After the surgery I was extremely fatigued.  Slept a lot, had dizziness and still had pretty severe confusion and memory issues.  I thought they would go away as I healed.  2 weeks after surgery I was still experiencing all the above symptoms but my body was healing fine.  I was on a liquid diet for 30 days but I was getting my nutrition and calories so I didn’t think the fatigue, weakness, dizziness was still connected to the surgery.  About 3 weeks after my surgery and about 6-7 weeks after the Botox injection I started having speech difficulties.  Slurring and confusion on which words to use.  Even stuttering at times.   I feel the surgery for the “Achalasia” was a success.  The symptoms that I have discussed earlier are all over the map.  Some days I feel like I am coming out of it.  Maybe a little more clear, especially in the afternoons, not as fatigued, dizziness will lift although the memory issues don’t seem to lift much.  Then the next day I am trying to work and end up laying my head down on my arm as I try to keep my eyes open and concentrate on the task at hand.  Then the dizziness reappears, and the confusion and weakness along with the speech problems are just as bad if not worse.   I have had a CT scan,  every blood test available, even a spinal tap to try and find out what is causing these symptoms.  Nothing to be found.  My doctor thought I had an adrenal crash and after treatment from doubling my hormones we found that that wasn’t the case.   My surgeon has referred me to an Endocrinologist and I am waiting for an appt. with them.  The surgeon is convinced that I need a different general physician and wants me to meet with the Endocrine specialist.   My daughters father started looking into Botox, botulism poisoning and finally found this site.  I was experiencing such severe depression that I have never had before this wild ride that I literally thought I was losing my mind and asking for prayer from all who knew me to help me deal w/the depression and other symptoms.  When he told me he found this site, I broke down crying.  It lifted the huge dark cloud that had been hanging over my head for quite a while now.  It isn’t gone completely but I can breath just knowing this is real.  I am not crazy, imagining these symptoms.  I am going to do the 5 step detox tomorrow that is suggested from a site about the botulism poisoning.  I am willing to try it to see if I can function enough to do my job.  I may lose my job soon if I can’t find a way to be able to get behind the wheel of a car again, safely, and on the road.   I feel blessed to have found this site and I will keep all posted on my journey and will cherish all your input and wisdom.

Much Aloha for now,  Cathyann

Lawsuit – do I have a shot? And looking for lawyer

Hi everyone. I am now 5ish months out from my botox injections and I feel like I’ve reached a plateau in terms of recovery. My most troubling issues at this time are whole body muscle weakness and chronic fatique (terribly exacerbated just yesterday by 2 doses of flexeril – a muscle relaxant – given to me for severe muscular headaches and jaw tension/pain which is preventing me from sleeping), tinnitus and vision issues. I  feel as though none of this is getting better (and gets so much worse when I make even little shifts, such as flying, taking meds stronger than tylenol, spending too long on the computer etc.) and I have been thinking about getting a lawyer as I am still not able to work and we have spent quite a bit of money on my care. I am in Canada, but I am a US citizen and so I am thinking about doing this in the US, if possible. I looked into representation here in Canada – suing the injecting doctor – but I was warned that I have to absolutely prove she was negligent and if I did win, compensation is so low in this country it may not even cover court costs. If I don’t win, I am on the hook for hers.

So, back to suing through the US… I did a bunch of searching and contacted a couple law firms but they are no longer taking botox cases. And then I began to wonder if I even had a shot, considering that I am not as bad as some others on this site – I am walking and can now do some of my own housework. And I have little proof, other than 2 neuros I saw did put in writing that I am ‘sensitive’ to botox and should never have it again.

I’d welcome any input as to whether it is worth the stress to continue down this legal road. I am so angry that docs and big pharma think nothing of ruining people’s lives that I want to sue. But I’m so tired I don’t know if I should put my energy here. Is anyone out there going through this process? And if anyone does have a lawyer taking cases in the US, please let me know. Thank you and quick healing to all!

This is so much more serious than I ever could have thought

I still have been having many issues. Today I was diagnosed as prediabetic from a test that my hormone dr. gave me last week. So very scary. I have never been sick a day in my life before this episode with Botox.

I am beyond scared. The inflammation in my body must be so very bad. I know that I still have a crazy thirst everyday since I got these shots. I am seeing so many doctors and nothing at all seems to help. What I did to myself is so upsetting to me.

I have to push myself to exercise even though I am so very tired every single day. My immune system is a mess. I feel like I am slowing dying I really do.

Did anyone else get diagnosed with this??? If anyone did please let me know.

Lumps on fingers and toes

Hi everyone!

I have been getting lumps on my fingers and toes. They look like blisters, but they are hard and under the skin rather than on top. They start out as a small circle, and grow much bigger. They last for weeks, and once they eventually shrink, others will take their place on different parts of the finger or toe.

I went to my doc who just said it must be an autoimmune symptom. They are not nodules on the joint like with arthritis although some have grown near the joint. (as usual all inflammation type tests were normal, no surprise there.)

has anyone had these? I can post a picture later on if necessary.

topical capsaicin for muscle/nerve issues & pain

hey everyone!

i know a lot of people have neurological issues here, including pain, numbness, and a lot of various neuropathies and problems.. also muscle pains, joint pains, and related issues.

obviously with our sensitivity this would not work for everyone or at all times, but has anyone tried topical capsaicin for these issues.

im really not sure why i thought of it but for some reason smeared a bunch of cayenne pepper oil on the muscles of my forehead a few days ago. (i have no bad reaction to hot peppers, i eat them all the time this might not be true of everyone) ive done this twice now and it stung predictably a few hours both times and i had significantly less nerve pain in my entire head when it wore off.

i did a lot of reading about capsaicin and its got a long history of use for neurological issues and a large amount of actual research has been done on this effect. its considered pretty safe for normal use and can be used several times a day for several weeks.

the theory of how it works is that by its ‘stinging’ effect it depletes the nerves of something called substance P, a neurotransmitter which transmits pain signals. the nerves can only make so much substance P at one time, and if it ‘dumps’ it all becuase of the ‘sting’ effect, it cannot make more for a certain amount of time, so the body will perceive less random nerve pain during this time.

i realized doing this that my facial nerves are constantly in pain (something i knew already anyway) and applying the topical capsaicin has actually really helped this. also i feel that the nerves there are not firing normally, some are overactive, some underactive, but the action of the capsaicin sort of makes them all fire at once, and for a sustained period, which seems to sort of normalize their action.

i realize capsaicin isnt for everyone but i have had very good results with 2 tries so far and plan to continue. i have not used the kind from the store, i have a lot of good fresh chiles in my garden so have made my own chili oil (soaking chiles or cayenne in olive or coconut oil)

obviously you dont want to get this in your eyes!!! but honestly, ive gotten it in my eyes by mistake and really its not that big a deal if you are used to hot peppers. (which lots of people arent) capsiacin can blister if too much is used but in small doses doesnt actually damage the skin, or even mucous membranes… it just stimulates the nerves. ive had no problem putting enough on my skin to cause a good sting. additionally, chilies are of course members of the nightshade family and i know some have sensitivity to nighshades in general.

anyone else tried this? i plan to continue i am loving the less pain in the nerves.. i didnt realize how much constant pain i was in until it actually went away for an hour or two. there are some studies which indicate capsaicin is effective against headaches, many people snort tiny amounts into their nose to combat migraines and other headaches!

supposedly it should be used for several weeks before full effect is even felt, so i have hopes to get even more improvement with careful use. i know a lot of people have nerve issues of all kinds here so thought i would see if anyone else has looked into topical capsaicin. :}}

hope everyones slowly getting better.